The information needs of women who have undergone breast reconstruction. Part I: Decision-making and sources of information

European Journal of Oncology Nursing

Volumn 8, Issue 3, 2004, Pages 211-223

  Wolf, Lisa ^a  

^a ROYAL MARSDEN HOSPITAL   (United Kingdom)

Author keywords

Breast cancer; Breast reconstruction; Information giving; Information needs

Indexed keywords

ADULT; ARTICLE; BREAST CANCER; BREAST RECONSTRUCTION; CANCER PATIENT; CLINICAL ARTICLE; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE NEED; HEALTH PRACTITIONER; HUMAN; INTERNET; MASTECTOMY; MEDICAL DECISION MAKING; MEDICAL INFORMATION; NURSE PRACTITIONER; PATIENT INFORMATION; PHOTOGRAPHY;

ADULT; BREAST NEOPLASMS; DECISION MAKING; FEMALE; FOCUS GROUPS; HUMANS; MAMMAPLASTY; MASTECTOMY; MIDDLE AGED; NEEDS ASSESSMENT; NURSING ASSESSMENT; PATIENT EDUCATION;

EID: 4344652565     PISSN: 14623889     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ejon.2003.12.012     Document Type: Article

References (57)

1. Bottomley A. Jones L. Breast cancer care: women's experience European Journal of Cancer Care 6 1997 124-132
2. Brown M. Koch T. Webb C. Information needs of women with non-invasive breast cancer Journal of Clinical Nursing 9 2000 713-722
3. Carey M.A. Smith M.W. Capturing the group effect in focus groups: a special concern in analysis Qualitative Health Research 5 4 1995 123-127
4. Cooley M.E. Moriarty H. Berger M.S. Selm-Orr D. Coyle B. Short T. Patient literacy and the readability of written cancer educational materials Oncology Nursing Forum 22 9 1995 1345-1351
5. Cooper J. Palmer J. The role of the breast cancer care nurse in reconstructive surgery-the exeter experience Palliative Care Today 1997 24-25
6. Côté-Arsenault D. Morrison-Beedy D. Practical advice for planning and conducting focus groups Nursing Research 48 5 1999 280-283
7. Degner L.F. Kristjanson L.K. Brown D. Sloan J.A. Carriere K.C. O'Neil J. Bilodeau B. Watson P. Mueller B. Information needs and decisional preferences in women with breast cancer Journal of the American Medical Association 277 18 1997 1485-1492
8. Department of Health (DoH), 1989. Working for Patients. HMSO: London: Department of Health.
9. Department of Health (DoH), 1991. The Patient's Charter. HMSO: London: Department of Health.
10. Department of Health (DoH), 1995, (1995) Expert Advisory Group on Cancer. A Policy Framework for Commissioning Cancer Services. Department of Health, London.
11. Department of Health (DoH), (2000) The NHS Cancer Plan. A Plan for Investment. A Plan for reform. HMSO: London: Department of Health.
12. Fallowfield L. Hall A. Maguire G. Baum M. Psychological outcomes of different treatment policies in women with early breast cancer outside a clinical trial British Medical Journal 301 1990 575-580
13. Fallowfield L. Ford S. Lewis S. No news is not good news: information preferences of patients with cancer Psycho-oncology 4 1995 197-202
14. Ferrario R. After mastectomy: breast reconstruction The nurse's counselling role. European Journal of Cancer 34 1005 1998 27
15. Finlayson C.A. MacDermott T.A. Arya J. Can specific preoperative counseling increase the likelihood a woman will choose postmastectomy breast reconstruction American Journal of Surgery 182 6 2001 649-653
16. Galloway S. Graydon J. Harrison D. Evan-Boyden B. Palmer-Wickham S. Rich-van der Blij L. West P. Blair A. Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool Journal of Advanced Nursing 25 1997 1175-1183
17. Girotto J.A. Scgreiber J. Nahabedian M.Y. Breast reconstruction in the elderly: preserving excellent quality of life Annals of Plastic Surgery 50 6 2003 572-578
18. Gray-Vickrey P. Gerontological research. Use and application of focus groups Journal of Gerontological Nursing 19 5 1993 21-27
19. Graydon J. Galloway S. Palmer-Wickham S. Harrison D. Rich-van der Blij L. West P. Burlein-Hall S. Evan-Boyden B. Information needs of women during early treatment for breast cancer Journal of Advanced Nursing 25 1997 59-64
20. Greenhalgh T. Taylor R. How to read a paper. Papers that go beyond numbers (qualitative research) British Medical Journal 315 1997 740-743
21. Hagopian G.A. The effects of informational audiotapes on knowledge and self-care behasviours of patients undergoing radiation therapy Oncology Nursing Forum 23 4 1996 697-700
22. Harcourt D. Rumsey N. Psychological aspects of breast reconstruction: a review of the literature Journal of Advanced Nursing 35 4 2001 477-487
23. Harrison D.E. Galloway S. Graydon J.E. Palmer-Wickham S. Rich-van der Blij L. Information needs and preferences for information of women with breast cancer over a first course of radiation therapy Patient Education and Counselling 38 1999 217-225
24. Holloway I. Wheeler S. Qualitative Research for Nurses 1996 Blackwell Science Oxford
25. Hunt M. Qualitative research In: Cormack D.F.S. (Ed.) The Research Process in Nursing 2nd Edition 1991 117-128 Blackwell Science London
26. Jenkins V. Fallowfield L. Saul J. Information needs of patients with cancer: results from a large study in UK cancer centres British Journal of Cancer 84 2001 48-51
27. Jones R. Pearson J. McGregor S. Gilmour W.H. Atkinson J.M. Barrett A. Cawsey A.J. McEwen J. Cross sectional survey of patients' satisfaction with information about cancer British Medical Journal 319 1999 1247-1248
28. Kitzinger J. Introducing focus groups in qualitative research In: Mays N. Pope C. (Eds.) Qualitative Research in Health Care 1996 36-45 BMJ Publishing Group London
29. Korvenoja M.L. Smitten K. Asko-Selavaara S. Problems in wearing external prosthesis after mastectomy and patient's desire for breast reconstruction Annales Chirurgiae Gynaecologiae 81 7 1998 30-34
30. Krueger R.A. Focus Groups A Practical Guide for Applied Research 2nd Edition 1994 Sage London
31. Luker K.A. Beaver K. Leinster S.J. Owens R.G. Degner L.F. Sloan J.A. The information needs of women newly diagnosed with breast cancer Journal of Advanced Nursing 22 1995 134-141
32. Luker K.A. Beaver K. Leinster S.J. Owens R.G. The information needs and sources of information for women with breast cancer: a follow-up study Journal of Advanced Nursing 23 1996 487-495
33. Meredith C. Symonds P. Webster L. Lamont D. Pyper E. Gillis C.R. Fallowfield L. Information needs of cancer patients in west scotland: cross sectional survey of patients' views British Medical Journal 313 1996 724-726
34. Morgan D.L. The Focus Group Guidebook 1998 Sage London
35. Morrison-Beedy D. Côté-Arsenault D. FischbeckFeinstein N. Maximizing results with focus groups: moderator and analysis issues Applied Nursing Research 14 1 2001 48-53
36. National Cancer Alliance, Patient-Centred Cancer Services? 1996 What Patients Say. National Cancer Alliance Oxford
37. Neill K.M. Armstrong N. Burnett C.B. Choosing reconstruction after mastectomy: a qualitative analysis Oncology Nursing Forum 25 4 1998 743-750
38. Nissen M.J. Swenson K.K. Kind E.A. Quality of life after post mastectomy breast reconstruction Oncology Nursing Forum 29 3 2002 547-553
39. NHS Management Executive, 1996. Improving Outcomes in Breast Cancer: The Manual. Department of Health, London,
40. Nyamathi A. Schuler P. Focus group interview: A research technique for informed nursing practice Journal of Advanced Nursing 15 1990 1281-1288
41. Parker J.M. Breast reconstruction In: Denton S. (Ed.) Breast Cancer Nursing 1996 124-147 Chapman & Hall London
42. Patton M.Q. Qualitative Evaluation and Research Methods 1990 Sage California
43. Pierce P. Deciding on breast cancer treatment: a description of decision behaviour Nursing Research 42 1 1993 22-27
44. Pusic A. Thompson T.A. Kerrigan C.L. Sargeant R. Slezak S. Chang B.W. Kelzlsouer K.J. Manson P.N. Surgical options for the early stage breast cancer: Factors Associated with patient choice and postoperative quality of life Plastic and Reconstructive Surgery 104 5 1999 1325-1333
45. Raupach J.C. Hiller J.E. Information and support for women following the primary treatment of breast cancer Health Expectations 5 4 2002 289-301
46. Reaby L.L. Breast restoration decision-making: enhancing the process Cancer Nursing 21 3 1998 196-204
47. Reaby L.L. Breast restoration decision-making Plastic Surgical Nursing 19 1 1999 22-29
48. Ritchie J. Spencer L. Qualitative data analysis for applied policy research In: Bryman A. Burgess R.G. (Eds.) Analyzing Qualitative Data 1994 173-194 Routledge London
49. Rosenqvist S. Sandelin K. Wickman M. Patients' psychological and cosmetic experience after immediate breast reconstruction European Journal of Surgical Oncology 22 3 1996 262-266
50. Rowland J.H. Holland J.C. Chaglassian T. Kinne D. Psychological responses to breast reconstruction Psychosomatics 34 3 1993 241-250
51. Schain, W.S., 1991. Breast reconstruction: update of psychosocial and pragmatic concerns. Cancer Suppl. Sep 1: 1170-1175.
52. Scott J.T. Harmsen M. Prictor M.J. Entwistle V.A. Sowden A.J. Watt J. Recordings or Summaries of Consultations for People with Cancer Cochrane Database Systematic Review. The Cochrane Library 2003 Oxford Update Software Oxford
53. Silverman D. Doing qualitative research a practical handbook 2000 Sage Publications London
54. Stark D.P.H. House A. Anxiety in cancer patients British Journal of Cancer 83 10 2000 1261-1267
55. Stewart D.W. Shamadasani P.N. Focus Groups: theory and practice 1990 Sage California
56. Watts M. Ebbutt D. More than the sum of the parts: Research methods in group interviewing British Educational Research Journal 13 1987 25-34
57. Wilkins E.G. Cederna P.S. Lowery J.C. Kim M. Davies J.A. Roth R.S. Goldfarb S. Izenberg P.H. Houin H.P. Shaheen K.W. Prospective analysis of psychosocial outcomes in breast reconstruction: one-year postoperative results from the michigan breast reconstruction outcome study Plastic and Reconstructive Surgery 106 5 2000 1014-1025