Acceptability of the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) in youth with type 1 diabetes

Quality of Life Research

Volumn 13, Issue 7, 2004, Pages 1279-1285

  Wagner, Julie ^a  

^a UNIVERSITY OF CONNECTICUT SCHOOL OF DENTAL MEDICINE   (United States)

Author keywords

Diabetes; Measurement; Pediatric; Quality of life

Indexed keywords

ADOLESCENT; ARTICLE; EVALUATION; FATIGUE; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; JUVENILE; MAJOR CLINICAL STUDY; MALE; MEASUREMENT; NONHUMAN; PRIORITY JOURNAL; QUALITY OF LIFE; SAMPLE; TASK PERFORMANCE;

ADOLESCENT; ANALYSIS OF VARIANCE; CHILD; DIABETES MELLITUS, TYPE 1; FEMALE; HUMANS; MALE; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 4344583845     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:QURE.0000037486.45671.61     Document Type: Article

References (31)

1. American Diabetes Association. National Diabetes Fact Sheet. General information and national estimates on diabetes in the United States, 2000.
2. Diabetes Control and Complications Trail Research Group. The diabetes control and complications trial. New Eng J Med 1993; 329: 977-986.
3. Thompson RJ, Gustafson KE. Adaptation to Chronic Childhood Illness. Washington, DC: American Psychological Association, 1996.
4. Davis SE, Anderson C, Linkowski DC, Berger K, Feinstein CF. Developmental tasks and transitions of adolescents with chronic illness and disabilities. Rehab Couns Bull 1985; December.
5. Zeltzer L. Chronic illness and disability in adolescents. Int J Adol Med Heal 1985; 1.
6. Mortensen HB. Findings from the Hvidore study group on childhood diabetes: Metabolic control and quality of life. Hormone Res 2002 57, 117-120.
7. Drotar D. Measuring health-related quality of life in children and adolescents: Implications for research and practice. Lawrence Erlbaum: Mahwah, NJ, 1998.
8. Grey M, Boland EA, Yu C, Sullivan-Bolyai S, Tamborlane WV. Personal and family factors associated with quality of life in adolescents with diabetes. Diabet Care 1998; 21(6), 909-914.
9. Spieth L, Harris C. Assessment of HRQOL in children and adolescents: An integrative review. J Pediatr Psychol 1996, 21, 175-193.
10. DCCT Research Group. Reliability and validity of a diabetes quality of life measure for the DCCT. Diabet Care 1988; 11: 725-732.
11. Ingersoll GM, Marrero DG. A modified quality of life measure for youths: Psychometric properties. Diabet Educ 1991; 17: 725-732.
12. Varni JW, Burwinkly TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL. The PedsQL in type 1 and type 2 diabetes. Diabet Care 2003; 26: 631-637.
13. Varni JW, Seid M, Rode CA. The PedsQL: Measurement model for the Pediatric Quality of Life inventory. Med Care 1999; 37: 126-139.
14. Johnson SB, Perwien AR. Insulin-dependent diabetes mellitus. In: Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. Koot HM, Wallander JL, (eds), East Sussex, UK, Brunner-Routledge, 2001, pp. 373-401.
15. Polonsky WH. Emotional and quality of life aspects of diabetes management. Curr Diab Rep 2002; 2: 153-159.
16. Spieth LE, Harris CV. Assessment of health-related quality of life in children and adolescents: An integrative review. J Ped Psychol 1996; 21: 175-193.
17. Drotar D. Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice. Mahwah, NJ: Lawrence, Earlbaum, 1998.
18. O'Boyle CA, McGee HM, Hickey A, et al. The Schedule for the Evaluation of Individual Quality of Life: Administration Manual. Department of Psychology, Royal College of Surgeons in Ireland, 1993.
19. Hickey AM, Bury G, O'Boyle CA, Bradely F, O'Kelly FD, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. Bri Med J 1996; 313: 29-33.
20. Campbell S, Whyte F. The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW. J Adv Nurs 1999; 39: 335-343.
21. Prince PN, Gerber GJ. Measuring subjective quality of life in people with serious mental illness using the SEIQoL-DW. Qual Life Res 2001; 10: 117-122.
22. Browne JP, O'Boyle C, McGee HM, McDonald NJ, Joyce RB. Development of a direct weighting procedure for quality of life domains. Qual Life Res 1997; 6: 301-309.
23. O'Boyle CA, McGee HM, Hickey A, O'Malley K, Joyce CRB. Individual quality of life in patients undergoing hip replacement. Lancet 1992; 1: 1088-1091.
24. McGee HM, O'Boyle CA, Hickey A, O'Malley K, Joyce CRB. Assessing the quality of life of the individual: The SEIQOL with a healthy and a gastroenterology unit population. Psychol Med 1991; 21: 749-759.
25. Karian VE, Jankowski SM, Beal JA. Exploring the lived-experience of childhood cancer survivors. J Pediatr Oncol Nurs 1998; 15: 153-162.
26. Polkki T, Pietila AM, Rissanen L. Pain in children: Qualitative research of Finnish school-aged children's experiences of pain in hospital. Int J Nurs Pract 1999; 5: 21-28.
27. Woodgate R, Kristjanson LJ. 'Getting better from my hurts': Toward a model of the young child's pain experience. J Pediatr Nurs 1996; 11: 233-242.
28. Ireland LM. Children's perceptions of asthma: Establishing normality. Br J Nurs 1997; 6: 1059-1064.
29. Woodgate RL. Adolescents' perspectives of chronic illness: 'It's hard'. J Pediatr Nurs 1998; 13: 210-223.
30. Woodgate R. Part I: An introduction to conducting qualitative research in children with cancer. J Pediatr Oncol Nurs 2000; 17: 192-206.
31. Kennedy C, Kools S, Krueger R. Methodological considerations in children's focus groups. Nurs Res 2001; 50: 184-187.