Social, behavioural, and intervention research among people of Sub-Saharan African origin living with HIV in the UK and Europe: Literature review and recommendations for intervention

AIDS and Behavior

Volumn 12, Issue 2, 2008, Pages 170-194

  Prost, Audrey ^a   Elford, Jonathan ^b   Imrie, John ^c   Petticrew, Mark ^a   Hart, Graham J ^c  

^a MRC Social and Public Hlth Sci U   (United Kingdom)

^b CITY UNIVERSITY   (United Kingdom)

^c ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

Author keywords

Ethnicity; Europe; HIV AIDS; Interventions; Review

Indexed keywords

DESCRIPTIVE RESEARCH; EMBASE; EUROPE; GENDER; HEALTH CARE UTILIZATION; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; IMMIGRATION; INTERVENTION STUDY; LIFESTYLE; MEDLINE; NEGRO; OBSERVATIONAL STUDY; PATIENT ATTITUDE; PEER REVIEW; POVERTY; PSYCINFO; PUBLISHING; REVIEW; SEXUAL BEHAVIOR; SOCIAL BEHAVIOR; STIGMA; UNEMPLOYMENT; UNITED KINGDOM;

ACQUIRED IMMUNODEFICIENCY SYNDROME; AFRICA SOUTH OF THE SAHARA; EUROPE; FEMALE; HIV INFECTIONS; HUMANS; MALE; PREVENTIVE HEALTH SERVICES; RISK FACTORS; SOCIOECONOMIC FACTORS;

EID: 43149086390     PISSN: 10907165     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10461-007-9237-4     Document Type: Review

References (103)

1. Adage. (2002). Les freins au dépistage du VIH chez les populations primo-migrantes originaires du Maghreb et d'Afrique Subsaharienne - Synthèse de l'étude qualitative (pp. 1-4). Paris.
2. Anderson, J., & Doyal, L. (2004). Women from Africa living with HIV in London; a descriptive study. AIDS Care, 16(1), 95-105.
3. Arendt, G., & von Giesen, H.-J. (2003). HIV-1-positive female migrants in Northrhine-Westphalia-relevant but unfocussed problem? European Journal of Medical Research, 8(4), 137-141.
4. AIDS and Mobility. (2003). Access to care: Privilege or right? Migration and vulnerability in Europe. Woerden: European Project Health and Mobility.
5. All Party Parliamentary Group on AIDS. (2003). Migration and HIV: Improving lives in Britain. An inquiry into the impact of the UK nationality and immigration system on people living with HIV.
6. Bhatt, C., Phellas, C., & Pozniak, A. (2000). National African HIV prevention projects: Evaluation report. London: Enfield and Haringey Health.
7. Burns, F. M., Fakoya, A. O., Copas, A. J., & French, P. D. (2001). Africans in London continue to present with advanced HIV disease in the era of highly active antiretroviral therapy. AIDS, 15(18), 2453-2455.
8. Camden and Islington Health Authority. (1997). HIV prevention strategy 1997-2000, Working with African Communities in Camden and Islington. London: Camden and Islington Health Authority.
9. Camden and Islington Health Authority. (2000). The 1st National African communities HIV primary prevention conference, proceedings. Camden and Islington Community Health Services NHS Trust.
10. Castilla, J., & Del Amo, J. (2000). Epidemiología de la infección por VIH/SIDA en immigrantes y minorías étnicas en Espana. Secretaría des Plan Nacional sobre el SIDA.
11. Chinouya, M., Ssanyu-Sseruma, W., & Kwok, A. (2003). The SHIBAH report: A study of sexual health issues affecting Black Africans living with HIV in Lambeth, Southwark, and Lewisham. London: Health First.
12. Chinouya Mudari, M., & O'Brien, M. (2005). AIDS and African childhood in London. The paradox of African traditions and modern concerns on childhood. London. Online paper, accessed 09/02/05 at: ttp://www.cindi.org.za/papers/ paper2.htm
13. Chinouya, M., Musoro, L., & O'Keefe, E. (2003). Ubuntu-Hunhu in Hertfordshire. Black Africans in Herts: Health and social care issues: A report on the action research intervention in the county. The Crescent Support Group.
14. Chinouya, M., & Davidson, O. (2003).The PADARE project: Assessing the health related knowledge, attitudes and behaviours of HIV Positive African Accessing Services in North Central London. London: African HIV Policy Network.
15. Chinouya, M., & Reynolds, R. (2001). HIV prevention and African communities living in England: A framework for action. London: National AIDS Trust.
16. Chinouya, M., Davidson, O., & Fenton, K. (2000). The Mayisha study: Sexual attitudes and lifestyles of migrant Africans in inner London. Horsham: Avert.
17. Chinouya, M., Fenton, K., & Davidson, O. (1999). The Mayisha study: The social mapping phase. Horsham: Avert.
18. Connell, M. (2001). Sexually transmitted infections among Black young people in South East London: Results of a rapid ethnographic assessment. Culture Health and Sexuality, 3, 311-327.
19. Coulon, M., & Feroni, I. (2004). Genre et santé: Devenir mère dans le contexte des multithérapies antirétrovirales. Sciences Sociales et Santé, 22(3), 13-40.
20. Creighton, S., Sethi, G., Edwards, S. G., & Miller, R. (2004). Dispersal of HIV positive asylum seekers: national survey of UK healthcare providers. British Medical Journal, 329, 322-323.
21. Department of Health. (2005). Government response to the health select committee's third report of session 2004-2005 on new development in sexual health and HIV/AIDS policy, http://www.dh.gov.uk/assetRoot/04/11/62/53/04116253. pdf (accessed 09/08/05).
22. Department of Health, African HIV Policy Network & National AIDS Trust. (2004). HIV and AIDS in African communities: A framework for better prevention and care. London.
23. Department of Health. (2003). Renewing the focus: HIV and other sexually transmitted infections in the United Kingdom in 2002. London: Health Protection Agency.
24. Del Amo, J., Bröring, G., & Fenton, K. (2003). HIV health experiences among migrant Africans in Europe: How are we doing? AIDS, 17(15), 2261-2263.
25. Del Amo, J., Goh, B. T., & Forster, G. E. (1996a). AIDS defining conditions in Africans resident in the United Kingdom. International Journal of STD & AIDS, 7(1), 44-47.
26. Del Amo, J., et al. (1996b). Spectrum of disease in Africans with AIDS in London. AIDS, 10(13), 1563-1569.
27. Delpech, V., Antoine, D., Forde, J., Story, A., Watson, J., & Evans, B. (2004). HIV and Tuberculosis (TB) co-infections in the United Kingdom (UK): Quantifying the problem. International AIDS society conference 2004, Abstract 2169174.
28. Dias, S., Gonçalves, A., Luck, M., & Jesus Fernandes, M. (2004). Risco de Infecção por VIH/SIDA: Utilização- acesso aos Serviços de Saúde numa comunidade migrante. Acta Medica Portuguesa, 17, 211-218.
29. Dougan, S., Elford, J., Rice, B., Brown, A. E., Sinka, K., Evans, B. G., Gill, O. N., & Fenton, K. (2005). Epidemiology of HIV among black and ethnic minority ethnic men who have sex with men in England and Wales. Sexually Transmitted Infections, 81(4), 345-350.
30. Doyal, L., & Anderson, J. (2005). My fear is to fall in love again.' How HIV-positive African women survive in London. Social Science and Medicine, 60(8), 1729-1738.
31. Edubio, A., & Sabanadesan, R. (2001). African communities in Northern Europe and HIV/AIDS. Report of two qualitative studies in Germany and Finland on the perception of the AIDS epidemic in selected African minorities., http://www.map-tampere.fi/dokumentit/report_african_communities.pdf (Accessed 09/02/05)
32. Elam, G. (2004a). Perspectives on Terrence Higgins Trust's HIV prejudice and discrimination poster campaign: Views of Barnet residents, African Business Owners and Their Customers. Report for Barnet PCT and Terrence Higgins Trust.
33. Elam, G. (2004b). Stoping stigma with Awaredressers: Views of Barnet's residents, businesses and their customers on the Awaredressers Project. Report for Barnet Primary Care Trust and the Terrence Higgins Trust, March 2004.
34. Elam, G., Fenton, K., Johnson, A., Nazroo, J., & Ritchie, J. (1999). Exploring ethnicity and sexual health: A qualitative study of sexual attitudes and lifestyles of five ethnic minority communities in Camden and Islington. London: University College London.
35. Elford, J., Ibrahim, F., Bukutu, C., & Anderson, J. (2007). Sexual behaviour of people living with HIV in London: Implications for HIV transmission. AIDS, 21(Suppl. 1), S63-S70.
36. Erwin, J., Morgan, M., Britten, N., Gray, K., & Peters, B. (2002). Pathways to HIV testing and care by black African and white patients in London. Sexually Transmitted Infections, 78(1), 37-39.
37. Erwin, J., & Peters, B. (1999). Treatment issues for HIV positive Africans in London. Social Science and Medicine, 49, 1519-1528.
38. Evans, B. A., Bond, R. A., & MacRae, K. D. (1999). Sexual behaviour and sexually transmitted infection among African and Caribbean men in London. International Journal of STD/AIDS, 10(11), 744-748.
39. Fassin, D. (2000). Constructions et experiences de la maladie: une étude anthropologique et sociologique du sida des migrants d'origine africaine dans la région parisienne. Available from: http://www.inserm. fr/cresp
40. Fenton, K., Chinouya, M., Davidson, O., & Copas, A. (2001). HIV transmission risk among sub-Saharan Africans in London travelling to their country of origin. AIDS, 15, 1442-1444.
41. Fenton, K. A., Chinouya, M., Davidson, O., Copas, A., & MAYISHA study team. (2002). HIV testing and high risk sexual behaviour among London's migrant African communities: A participatory research study. Sexually Transmitted Infections, 78, 241-245.
42. Fenton, K.A., Mercer, C.H., McManus, S., Erens, B., Byron, C.J., Copas, A.J., Nanchahal, K., MacDowall, W., Wellings, K., & Johnson, A.M. (2005). Sexual behaviour in Britain: Ethnic variations in high-risk behaviour and STI acquisition risk. Lancet, 365, 1246-1255.
43. Fenton, K., White, B., Weatherburn, P., & Cadette, M. (1999). What are you like? Assessing the sexual health needs of Black gay and bisexual men. London: Big Up.
44. Flowers, P., Davis, M., Hart, G., Rosengarten, M., Frankis, J., & Imrie, J. (2006) Diagnosis, stigma and identity among HIV positive Black African living in the UK. Psychology and Health, 21(1), 109-122.
45. Flowers, P., Rosengarten, M., Davis, M., Hart, G., & Imrie, J. (2005). The experiences of HIV positive black Africans living in the UK. Working paper (forthcoming).
46. Forsyth, S., Burns, F., & French, P. (2005). Conflict and changing patterns of migration from Africa: The impact on HIV services in London, UK. AIDS, 19, 635-637.
47. Gibb, D. M., et al. (2004). Decline in mortality in Children with HIV in the UK and Ireland. British Medical Journal, 328, 524.
48. Gordon, B., Hudson, M., & Mansour, J. (2005). Getting the message out: An evaluation of equal 1 action 3: Mainstreaming. Centre for Economic and Social Inclusion, January 2005. Available from the Positives Futures Partnership.
49. Gras, M. J., Weide, J. F., Langendam, M. W., Coutinho, R. A., & van den Hoek, A. (1999). HIV prevalence, sexual risk behaviour and sexual mixing patterns among migrants in Amsterdam, the Netherlands. AIDS, 13(14), 1953-1962.
50. Green, G., & Smith, R. (2004). The psychosocial and health care needs of HIV-positive people in the United Kingdom following HAART: A review. HIV Medicine, 5(Suppl.1), 5-46.
51. Hamers, F. F., Devaux, I., Alix, J., & Nardone, A. (2006). HIV/AIDS in Europe: Trends and EU-wide priorities. Euro Surveill 2006;11(11):E061123.1. Available from: http://www.eurosurveillance.org/ew/2006/061123.asp#1
52. Hamers, F. F., & Downs, A. M. (2004). The changing face of the HIV epidemic in western Europe: What are the implications for public health policies? The Lancet, 364, 83-94.
53. Health Protection Agency. (2006). A complex picture: HIV and other sexually transmitted infections in the United Kingdom: 2006. Available from: http://www.hpa.org.uk/publications/2006/hiv_sti_2006/contents.htm
54. Health Protection Agency. (2005). HIV and AIDS in the United Kingdom quarterly update: Data to the end of June 2005. Volume 15, Number 30.
55. Health Protection Agency. (2004). Populations at risk of HIV and STIs - Black and Ethnic minority populations, Updated November 2004. Availablefrom: http://www.hpa.org.uk/infections/topicsaz/hiv_and_sti/populationsatrisk/groups/ ethnicminorities.htm
56. Health Protection Agency. (2003). Focus on prevention: HIV and other sexually transmitted infections in the United Kingdom in 2003. An update: November 2004. London: Health Protection Agency, Centre for Infections.
57. Hickson, F., Reid, D., Weatherburn, P., Nutland, W., & Boakye, P. (2004). HIV, sexual risk and ethnicity among men in England who have sex with men. Sexually Transmitted Infections, 80, 443-450.
58. Ikambere. (2004). Rapport 2004. Paris. Available from: http://www.ikambere.com/rapport_2004.pdf
59. Institut de veille sanitaire. (2005). Épidémiologie du VIH/sida chez les migrants en France. Saint-Maurice: INVS.
60. International Organisation for Migration. (2005). World migration 2005: Costs and benefits of international migration, Vol. 3, IOM World Report Series.
61. Kesby, M., Fenton, K., Boyle, P., & Power, R. (2003). An agenda for future research on HIV and sexual behaviour among African migrant communities in the UK. Social Science and Medicine, 57(9), 1573-1592.
62. Kramer, M., Van Veen, M., Op de Coul, E., Van de Laar, M., Coutinho, R., Cornelissen, M., & Prins, J. M. (2005). [Conference Abstract] Heterosexual HIV transmission among migrants from Surinam and the Netherlands Antilles: HIV prevalence, sexual risk, and the role of travelling to the country of origin. European Journal of Public Health, 15(1), 21-23.
63. Lert, F., Obadia, Y., & l'équipe de l'enquête VESPA. (2004). Comment vit-on en France avec le VIH/SIDA? Populations et Santé, Numéro 406, Novembre 2004.
64. Le Vu, S., Lot, F., & Semaille, C. (2005). Les migrants africains au sein du dépistage anonyme du VIH, 2004. BEH no. 46-47. Institut de Veille Sanitaire.
65. Lot, F., Larsen. C., Valin, N., Gouezel, P., Blanchon, T., & Laporte, A. (2004) Parcours Sociomédical des personnes originaires d'Afrique subsahararienne atteintes par le VIH prises en charge dans les hopitaux d'Ile-de-France, 2002. Bulletin études no. 5, 2004, p. 17. Institut de Veille Sanitaire.
66. Low, N., Paine, K., Clark, R., Mahalingam, M., & Pozniak, A. (1996). AIDS survival and progression in black Africans living in south London, 1986-1994. Genitourinary Medicine, 72, 1, 12-16.
67. Lyall, E. G. H., et al. (1998). Review of uptake of interventions to reduce mother to child transmission of HIV by women aware of their HIV status. British Medical Journal, 316, 268-270.
68. MacLeish, J. (2002). Mothers in exile. London: Maternity Alliance
69. Madge, S., Matthews, P., Singh, S., & Theobald, N. (2004). HIV in primary care. London: The Medical Foundation for AIDS & Sexual Health.
70. Maharaj, K., Warwick, I., & Whitty, G. (1996). An assessment of HIV prevention interventions with refugees and asylum seekers, with particular reference to refugees from the African continent. London: Health and Education Research Unit.
71. Malanda, S., Meadows, J., & Catalan, J. (2001). Are we meeting the psychological needs of Black African HIV-positive individuals in London? Controlled Study of referrals to a psychological medicine unit. AIDS Care, 13(4), 413-419.
72. Manfredi, R., Calza, L., & Chiodo, F. (2001). HIV disease among immigrants coming to Italy from outside of the European Union: A case-control study of epidemiological and clinical features. Epidemiology of Infectious Diseases, 127(3), 527-533.
73. Mayaux, M.-J., Teglas, J.-P., & Blanche, S. (2003). Characteristics of HIV-infected women who do not receive preventive antiretroviral therapy in the French perinatal cohort. Journal of Acquired Immune Deficiency Syndrome, 34(3), 338-343.
74. MAYISHA II Collaborative Group. (2005). Assessing the feasibility and acceptability of community based prevalence surveys of HIV among black Africans in England. Health Protection Agency Centre for Infections: London.
75. McMunn, A., Mwanje, R., Paine, K., & Pozniak, A. L. (1998). Health service utilization in London's African migrant communities: Implications for HIV prevention. AIDS Care, 10(4), 453-462.
76. McMunn, A., Mwanje, R., & Pozniak, A. L. (1997). Issues facing Africans in London with HIV infection. Genitourinary Medicine, 73(3), 157-158.
77. Medical Foundation for AIDS and Sexual Health. (2005). Recommended standards for health services. Available online at: http://www.medfash.org.uk/ publications/documents/Recommended_standards_for_sexual_health_services.pdf. Accessed 12/05/05.
78. Ministère de la Santé et de la protection sociale. (2004). Programme National de lutte contre le VIH/SIDA en direction des étrangers/migrants vivant en France (2004/2006). Paris.
79. Mocroft, A., Ledergerber, B., Katlama, C., Kirk, O., Reiss, P., D'Arminio Monforte, A., Knysz, B., Dietrich, M., Phillips, A., & Lundgren, J. (2003). Decline in the AIDS and death rates in the EuroSIDA study: An observational study. The Lancet, 362(9377), 22-29.
80. National AIDS Trust. (2004). Annual report 2003-4. London.
81. National African HIV Prevention Programme: Pulle, S., Lubega, J., Davidson, O., & Chinouya, M. (2005). Doing it well: A good practice guide for choosing and implementing community-based HIV prevention interventions with African communities in England. London.
82. National African HIV Prevention Programme. (2004). 3rd National African HIV prevention conference report. What next? The future of HIV prevention with African communities, 11-12 March 2004. London.
83. Ohen, L., Hunte, S., & Wallace, C. (2004). Who provides social advice to HIV positive clients? London: Lambeth Primary Care Trust.
84. Onwumere, J., Holttum, S., & Hirst, F. (2002). Determinants of quality of life in black African women with HIV living in London. Psychology, Health & Medicine, 1, 61-74.
85. Project Nasah. Briefing sheet 1 and 2. Available Online: http://www.sigmaresearch.org.uk/downloads/nasahbriefing.pdf
86. Sasse, A., Vincent, A., & Galand, M. (2002). High HIV prevalence among patients choosing anonymous testing. International AIDS society conference, Abstract, 9092.
87. Serena, L. (2005). Testimony of Lucy. Forum Sida Suisse 2005, http://www.aids.ch/f/forum/pdf/migration/TESTIMONY%20OF%20LUCY.pdf
88. Sigma Research and NAT. (2004). Outsider status - Stigma and discrimination experienced by Gay men and African people with HIV. London: Sigma - NAT.
89. Sigma Research. (2002). National survey of people living with HIV. London.
90. Sigma Research: Ndofor-Tah, C., Hickson, F., Weatherburn, P., Amamoo, N.A., Majekodunmi, Y., Reid, D., Robinson, F., Sanyu-Sseruma, W., & Zulu, A. (2000). Capital assets. London.
91. Sinka, K., Mortimer, J., Evans, B., & Morgan, D. (2003). Impact of the HIV epidemic in sub-saharan Africa on the pattern of HIV in the UK. AIDS, 17, 1683-1690.
92. Staehelin, C., Rickenback, M., Low, N., Egger, M., Lederberger, B., Hirschel, B., d'Acremont, V., Battegay, M., Wagels, T., Bernasconi, E., Kopp, C., & Furrer, H. (2003). Migrants for sub-Saharan Africa in the Swiss HIV Cohort Study: Access to antiretroviral therapy, disease progression and survival. AIDS, 17(15), 2237-2244.
93. Study group for the MRC collaborative study of HIV infection in women. (1996). Ethnic differences in women with HIV infection in Britain and Ireland. AIDS, 10(1), 89-93.
94. Takura, D., & Power, L. (2002). Establishing initial peer support and services for migrant African women in Birmingham, UK. International AIDS society conference, Abstract 1821.
95. Terrence Higgins Trust, Doyal, L., & Anderson, J. (2003). My heart is loaded. African women with HIV surviving in London, a research report. London.
96. Terrence Higgins Trust. (2001a). Prejudice, discrimination and HIV. London.
97. Terrence Higgins Trust. (2001b). Social exclusion and HIV. London
98. Traore, C. (2002). Promoting knowledge of HIV Status amongst Africans in the UK. International AIDS society conference, Abstract 9597.
99. UNAIDS. (2006). AIDS epidemic update: Global summary. Available from: http://www.data.unaids.org/pub/EpiReport/2006/02- Global_Summary_2006_EpiUpdate_eng.pdf
100. UNFPA, UNAIDS and UNIFEM. (2004). Women and HIV/AIDS: Confronting the crisis. UNFPA, UNAIDS and UN.
101. Weatherburn, P., Ssanyu-Seruma, W., & Hickson, F. (2003). Project NASAH: An investigation into the HIV treatment, information and other needs of African people with HIV resident in England. Sigma Research, NAM Publications, National AIDS Trust and African HIV Policy Network.
102. Wiggers, L. C., de Wit, J. B., Gras, M. J., Countinho, R. A., & van den Hoek, A. (2003). Risk behavior and social-cognitive determinants of condom use among ethnic minority communities in Amsterdam. AIDS Education and Prevention, 15(5), 430-447.
103. World Health Organisation. (2006). Towards universal access by 2010: How WHO is working with countries to scale-up HIV prevention, treatment, care and support.WHO, October 2006. Available from: http://www.who.int/hiv/pub/advocacy/ universalaccess/en/index.html