Bioterrorism surveillance and privacy: Intersection of HIPAA, the common rule, and public health law

American Journal of Public Health

Volumn 98, Issue 5, 2008, Pages 802-807

  Nordin, James D ^a   Kasimow, Sophie ^a   Levitt, Mary Jeanne ^a   Goodman, Michael J ^a  

^a HEALTHPARTNERS RESEARCH FOUNDATION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIOLOGICAL WARFARE; ETHICS; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HEALTH INSURANCE; HUMAN; MEDICAL INFORMATION; MEDICAL RESEARCH; PUBLIC HEALTH; PUBLIC HEALTH SERVICE; REVIEW; ARTICLE; DISASTER PLANNING; HEALTH SURVEY; INFORMATION SYSTEM; LEGAL ASPECT; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PRIVACY; STANDARD; UNITED STATES;

BIOMEDICAL RESEARCH; BIOTERRORISM; DISASTER PLANNING; HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT; HUMANS; INFORMATION SYSTEMS; POPULATION SURVEILLANCE; PRIVACY; PUBLIC HEALTH; UNITED STATES;

EID: 43049173776     PISSN: 00900036     EISSN: 15410048     Source Type: Journal    
DOI: 10.2105/AJPH.2007.113332     Document Type: Review

References (15)

1. Nordin J, Asplin BR, Kassenborg H. Syndromic surveillance systems. Minn Med. 2003;17:1-10.
2. Miller B, Kassenborg H, Dunsmuir W, et al. Syndromic surveillance for influenza-like illness in ambulatory care network. Emerg Infect Dis. 2004;10:1806-1811.
3. Yih WK, Caldwell B, Harmon R. National bioterrorism syndromic surveillance demonstration program. MMWR Morb Mortal Wkly Rep. 2004;53(suppl):43-49.
4. Platt R, Bocchino C, Caldwell B, et al. Syndromic surveillance using minimum transfer of identifiable data: the example of the national bioterrorism syndromic surveillance demonstration program. J Urban Health. 2003;80(suppl 1):i25-i31.
5. Lazarus R, Kleinman K, Dashevsky, et al. Use of automated ambulatory-care encounter records for detection of acute illness clusters, including potential bioterrorism events. Emerg Infect Dis. 2002;8(8):753-760.
6. Hodge J, Gostin L, Jacobson P. Legal issues concerning electronic health information: privacy, quality, and liability. JAMA. 1999;282:1-2.
7. Dunn C, Chadwick G. Protecting Study Volunteers in Research: A Manual for Investigative Sites. 3rd ed. Boston, MA: Thompson Centerwatch; 2004.
8. Centers for Disease Control and Prevention. HIPAA privacy rule and public health: guidance from CDC and the US Department of Health and Human services. MMWR Morb Mortal Wkly Rep. 2003; 52; 1-12. Available at http://www.cdc.gov/mmwr/preview/mmwrhtml/m2e411a1.htm. Accessed May 17, 2005.
9. Ethical and Policy Issues in Research Involving Human Participants: Report and Recommendations of the National Bioethics Advisory Commission. Bethesda, MD: National Bioethics Advisory Commission; 2001. Vol 1.
10. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. Washington, DC: Department of Health Education and Welfare; 1978. Publication No. (OS) 78-0012.
11. Gostin L. National health information privacy: regulations under the health insurance portability and accountability act. JAMA. 2001;285:3019.
12. Public Health Statute Modernization National Excellence Collaborative. Model State Public Health Act. Turning Point Web site. Available at http://www.turningpointprogram.org/Pages/pdfs/ statute_mod/MSPHAfinal.pdf. Accessed July 17, 2005.
13. Bayer R, Fairchild A. Surveillance and privacy. Science. 2000;290:1898-1899.
14. Leape LL, Fromson JA. Problem doctors: is there a system-level solution? Ann Intern Med. 2006;144:107-115.
15. Fairchild A, Bayer R. Ethics and the conduct of public health surveillance. Science. 2004;203:632.