Factors associated with African Americans' enrollment in a national cancer genetics registry

Community Genetics

Volumn 11, Issue 4, 2008, Pages 224-233

  Skinner, C S ^a,e   Schildkraut, J M ^a   Calingaert, B ^a   Hoyo, C ^a   Crankshaw, S S ^a   Fish, L ^a   Susswein, L ^c   Jasper, C ^d   Reid, L ^b  

^a DUKE CANCER INSTITUTE   (United States)

^b NORTH CAROLINA CENTRAL UNIVERSITY   (United States)

^c UNIVERSITY OF NORTH CAROLINA   (United States)

^d GEORGETOWN UNIVERSITY   (United States)

^e DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

African Americans; Cancer Genetics Network; Cancer genetics registry

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; ANALYTIC METHOD; ARTICLE; BIVARIATE ANALYSIS; CANCER GENETICS; CANCER REGISTRY; CANCER RESEARCH; FEMALE; HEALTH BEHAVIOR; HEALTH EDUCATION; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; PATIENT SATISFACTION; POSTAL MAIL; PRIORITY JOURNAL; TELEPHONE; TRUST;

ADULT; AFRICAN AMERICANS; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CLINICAL TRIALS AS TOPIC; COHORT STUDIES; EDUCATIONAL STATUS; FEMALE; GENETIC RESEARCH; HUMANS; MALE; MEDICAL ONCOLOGY; MIDDLE AGED; NEOPLASMS; PATIENT PARTICIPATION; REGISTRIES; TRUST;

EID: 42349105285     PISSN: 14222795     EISSN: None     Source Type: Journal    
DOI: 10.1159/000116883     Document Type: Article

References (14)

1. Ard J, Skinner CS, Svetkey L: Acculturation and dietary intake among African American participants in the PREMIER trial. J Behav Med 2005;28:239-247.
2. Hughes C, Peterson SK, Ramirez A, Gallion KJ, McDonald PG, Skinner CS, Bowen D: Minority recruitment in hereditary breast cancer research. Cancer Epidemiol Biomarkers Prev 2004;13:1146-1155.
3. Kreuter M, Skinner C, Holt C, Clark E, Haire-Joshu D, Fu Q, Booker A, Steger-May K, Buckholtz D: Cultural tailoring for mammography and fruit and vegetable intake among low-income African American women in urban public health centers. Prev Med 2005;41:53-62.
4. Bowen DJ, Vu T, Kasten-Sportes C: Increasing minority participant enrollment into a cancer family registry: the Cancer Genetics Network. Community Genet 2008;11:191-192.
5. Moorman PG, Skinner CS, Evans JP, Newman B, Sorenson JR, Calingaert B, Susswein L, Crankshaw TS, Hoyo C, Schildkraut JM: Racial differences in enrolment in a cancer genetics registry. Cancer Epidemiol Biomarkers Prev 2004;13:1349-1354.
6. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S: Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med 1999;14:537-546.
7. Friemuth V, Quinn S, Thomas S, Cole G, Zook E, Duncan T: African Americans' views on research and the Tuskegee Syphilis Study. Soc Sci Med 2001;52:797-808.
8. Kass NE, Sugarman J, Faden R, Schoch-Spana M: Trust, the fragile foundation of contemporary biomedical research. Hastings Cent Rep 1996;26:25-29.
9. Gamble K: Communication and information: the experience of radiotherapy patients. Eur J Cancer Care 1998;7:153-161.
10. Mouton CP, Harris S, Rovi S, Solorzano P, Johnson MS: Barriers to black women's participation in cancer clinical trials. J Natl Med Assoc 1997;89:721-727.
11. Lukwago SN, Kreuter MW, Holt CL, Steger-May K, Bucholtz DC, Skinner CS: Sociocultural correlates of breast cancer knowledge and screening in urban African American women. Am J Pub Health 2003;93:1271-1274.
12. Skinner C, Kreuter M, Buchanan A, Holt C, Buckholtz D: Adaptation of tailored intervention message libraries. Health Educ 2003;103:221-229.
13. Lukwago SN, Kreuter MW, Bucholtz DC, Holt CL, Clark EM: Development and validation of brief scales to measure collectivism, religiosity, racial pride, and time orientation in urban African American women. Fam Community Health 2001;24:63-71.
14. Hall MA, Dugan E, Zheng B, Mishra AK: Trust in physicians and medical institutions: what is it, can it be measured, and does it matter? Milbank Q 2001;79:613-639.