Development of alternative methods of data collection in South Asians with type 2 diabetes

Diabetic Medicine

Volumn 25, Issue 4, 2008, Pages 455-462

  Lloyd, C E ^a,b   Sturt, J ^c   Johnson, M ^d   Mughal, S ^e   Collins, G ^f   Barnett, A H ^g  

^a OPEN UNIVERSITY   (United Kingdom)

^b Open University

^c UNIVERSITY OF WARWICK   (United Kingdom)

^d DE MONTFORT UNIVERSITY   (United Kingdom)

^e BIRMINGHAM HEARTLANDS HOSPITAL   (United Kingdom)

^f UNIVERSITY OF OXFORD   (United Kingdom)

^g UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Ethnic minority; Instrument development; Qualitative methods; Type 2 diabetes

Indexed keywords

ADULT; AGED; ARTICLE; ASIAN; CLINICAL ARTICLE; CULTURAL COMPETENCE; ETHNIC GROUP; FACE VALIDITY; FEMALE; HUMAN; INFORMATION PROCESSING; KNOWLEDGE; LANGUAGE; MALE; MIRPURI; NON INSULIN DEPENDENT DIABETES MELLITUS; QUESTIONNAIRE; SELF CARE; SOUTH ASIA; SYLHETI; UNITED KINGDOM; WRITING;

ADULT; AGED; ASIA; COMMUNICATION; DATA COLLECTION; DIABETES MELLITUS, TYPE 2; FEMALE; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; TRANSLATING;

EID: 41749097209     PISSN: 07423071     EISSN: 14645491     Source Type: Journal    
DOI: 10.1111/j.1464-5491.2008.02401.x     Document Type: Article

References (26)

1. Solijak M, Majeed A, Eliahoo J, Dornhorst A. Ethnic inequalities in the treatment and outcome of diabetes in three English Primary Care Trusts. Available at http://www.equityhealthj.com/content/6/1/8 Last accessed 7 September 2007.
2. Chowdhury TA, Lasker SA. Complications and cardiovascular risk factors in South Asian and Europeans with early onset Type 2 diabetes. Quart J Med 2002 95 : 241 246.
3. Department of Health. Health Survey for England. The Health of Minority Ethnic Groups. London : The Stationery Office, 1999.
4. National Statistics Online. Ethnicity and Identity. Available at http://www.statistics.gov.uk/cci/nugget_print.asp?ID464 Last accessed 5 September 2007.
5. Dixit J. Cultural evolution. Diabetes Update 2003 Summer : 22 27.
6. Baradaran H, Knill-Jones R. Assessing knowledge, attitudes and understanding of Type 2 diabetes amongst ethnic groups I Glasgow, Scotland. Pract Diab Int 2004 21 : 143 148.
7. Greenhalgh T, Helman C, Chowdhury AM. Health beliefs and folk models of diabetes in British Bangladeshis: a qualitative study. Br Med J 1998 316 : 978 983.
8. Vyas A, Haidery AZ, Wiles PG, Gill S, Roberts C, Cruickshank JK. A pilot randomized trial in primary care to investigate and improve knowledge, awareness and self-management among South Asians with diabetes in Manchester. Diabet Med 2003 20 : 1022 1026.
9. Stone MA, Pound E, Pancholi A, Farooqi A, Kunti K. Empowering patients with diabetes: a qualitative primary care study focusing on South Asians in Leicester, UK. Fam Pract 2005 22 : 647 652.
10. Curtis S, Beirne J, Jude E. Advantages of training Asian diabetes support workers for Asian families and diabetes healthcare professionals. Pract Diabetes Int 2003 20 : 215 218.
11. Johnson MRD, Owen D, Blackburn C, Nazroo J. Black and minority ethnic communities - health and lifestyles. London : Health Education Authority, 2000.
12. Bullinger M, Alonso A, Apolone G, Leplègc A, Sullivan M, Wood S et al. Translating health status questionnaires and evaluating their quality: the IQOLA approach. J Clin Epid 1998 51 : 912 923.
13. Koller M, Aaronson NK, Blazeby J, Bottomley A, Dewolf L, Fayers P et al. Translation procedures for standardised quality of life questionnaires: the European Organisation for Research and Treatment of Cancer (EORTC) approach. Eur J Cancer 2007 43 : 1810 1820.
14. Herdman M, Fox-Rushby J, Badia X. A model of equivalence in the cultural adaptation of HRQL instruments: the universalist approach. Qual Life Res 1998 7 : 323 335.
15. Mathias SD, Fifer S, Patrick DL. Rapid translation of quality of life measures for international clinical trials: avoiding errors in the minimalist approach. Qual Life Res 1994 3 : 403 412.
16. Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A et al. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR task force for translation and cultural adaptation. Value Health 2005 8 : 94 104.
17. Willgerodt MA. Using focus groups to develop culturally relevant instruments. West J Nurs Res 2003 25 : 798 814.
18. Halcombe EJ, Gholizadeh L, DiGiacomo M, Phillips J, Patricia PM. Literature review: considerations in undertaking focus group research with culturally and linguistically diverse groups. J Clin Nurs 2007 16 : 1000 1011.
19. Lloyd CE, Mughal S, Sturt J, O'Hare P, Barnett AH. Using self-complete questionnaires in a South Asian population with diabetes: problems and solutions. Divers Health Social Care 2006 3 : 245 251.
20. Lloyd CE, Sturt J, Johnson M, Mughal S, Collins G, Barnett AH. Development of alternative modes of data collection in South Asians with Type 2 diabetes. Diabet Med 2007 24 (Suppl. 1 97.
21. Fitzgerald JT, Anderson RM, Funnell MM, Hiss RG, Hess GE, Davis WK et al. The reliability and validity of a brief diabetes knowledge test. Diabetes Care 1998 21 : 706 710.
22. Sturt J, Hearnshaw H. Measuring outcomes: self-management, empowerment and self-efficacy. Diabet Med 2003 20 : 172.
23. Hunt SM, Bhopal R. Self report in clinical and epidemiological studies with non-English speakers: the challenge of language and culture. J Epidemiol Community Health 2004 58 : 618 622.
24. Lloyd CE. Researching the views of diabetes service users from South Asian backgrounds; a reflection on some of the issues. In : Douglas J, Earle Handsley S, Lloyd CE, Spurr SM, eds. Promoting Public Health; Challenge and Controversy. London : Sage, 2007 : 140 146.
25. Stone MA, Pancholi A, Khunti K, Davies MJ, Farooqi A. A qualitative investigation of group education provision for patients with Type 2 diabetes from ethnic minority backgrounds. Diabet Med 2005 22 : P324.
26. Department of Health. National Service Framework for Diabetes 2001. London : Department of Health, 2001.