Successful techniques for retaining a cohort of infants and children born to HIV-infected women: The prospective P2C2 HIV study

Journal of the Association of Nurses in AIDS Care

Volumn 15, Issue 4, 2004, Pages 48-57

  Geromanos, Kimberly ^a   Sunkle, Susan N ^b,c   Mauer, Mary Beth ^d,e   Carp, Diane ^a,f   Ancker, Jessica ^c,g   Zhang, Weihong ^c,h   Easley, Kirk A ^c,i   Schluchter, Mark D ^c,j   Kozinetz, Claudia A ^d,k   Mellins, Robert B ^l,m  

^a New York Presbyterian Hospital Columbia University Medical Center   (United States)

^b Data Coordinating Center   (United States)

^c LERNER RESEARCH INSTITUTE   (United States)

^d BAYLOR COLLEGE OF MEDICINE   (United States)

^e CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^f MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^g Columbia Presbyterian Medical Center ^*  (United States)

^h CALIFORNIA DEPARTMENT OF PUBLIC HEALTH   (United States)

ⁱ EMORY UNIVERSITY   (United States)

^j CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^k TEXAS CHILDREN S HOSPITAL   (United States)

^l Emory University ^*

^m Case W Reserve School of Medicine ^*  (United States)

more..

Author keywords

AIDS; Pediatric HIV; Retention

Indexed keywords

ARTICLE; BIRTH; CAREGIVER; COHORT ANALYSIS; CONTROLLED STUDY; FAMILY; FEMALE; FOLLOW UP; HEALTH CARE ACCESS; HEALTH CARE PERSONNEL; HEALTH SURVEY; HOSPITAL MANAGEMENT; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; HUMAN RELATION; MAJOR CLINICAL STUDY; MALE; MEAL; MOTHER; NEWBORN; NURSE; PROSPECTIVE STUDY; QUALITATIVE ANALYSIS; TECHNIQUE;

EID: 4143149515     PISSN: 10553290     EISSN: None     Source Type: Journal    
DOI: 10.1177/1055329003256653     Document Type: Article

References (18)

1. Brown-Peterside, P., Rivera, E., Lucy, D., Slaughter, I., Ren, L., Chiasson, M. A., et al. (2001). Retaining hard-to-reach women in HIV prevention and vaccine trials: Project ACHIEVE. American Journal of Public Health, 97, 1377-1379.
2. Cahill, J. (1996). Patient participation: A concept analysis. Journal of Advanced Nursing, 24, 561-571.
3. Cattlet, A. T., Thompson, R. J., Johndrow, D. A., & Boshkoff, M. R. (1993, September-October). Risk status for dropping out of developmental follow-up for very low birth weight infants. Public Health Reports, 108(5), 589-594.
4. 2 HIV Study Group. (1997). Coordinating a large multicentered HIV research project. Journal of the Association of Nurses in AIDS Care, 8, 41-50.
5. Culnane, M., Fowler, M., Lee, S. S., McSherry, G., Brady, M., O'Donnell, K., et al. for the Pediatric AIDS Clinical Trials Group Protocol 219/076 Teams. (1999). Lack of long-term effects of in utero exposure to zidovudine among uninfected children born to HIV-injected women. Journal of the American Medical Association, 281, 151-157.
6. Diaz, C., Hanson, C., Cooper, E. R., Read, J. S., Watson, J., Mendez, H. A., et al. (1998). Disease progression in a cohort of infants with vertically acquired HIV infection observed from birth: The Women and Infants Transmission Study (WITS). Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology, 18(3), 221-228.
7. Dudley, J., Jin, S., Hoover, D., Metz, S., Thackeray, R., & Chmiel, J. (1995). The Multicenter AIDS Cohort Study: Retention after 9 1/2 years. American Journal of Epidemiology, 142(3), 323-330.
8. Gortmaker, S. L., Hughes, M., Cervia, J., Brady, M., Johnson, G. M., Seage, G. R., III, et al., for the Pediatric AIDS Clinical Trials Group Protocol 219 Team. (2001). New England Journal of Medicine, 345(21), 1522-1528.
9. Hessol, N. A., Schneider, M., Greenblatt, R. M., Bacon, M., Barranday, Y., Holman, S., et al., for the Women's Interagency Human Immunodeficiency Virus Collaborative Study Group. (2001). American Journal of Epidemiology, 154(6), 563-573.
10. Janson, S. L., Aliota, M. E., & Boushey, H. A., for the Asthma Clinical Research Network. (2001). Attrition and retention of ethnically diverse subjects in a multicenter randomized controlled research trial. Controlled Clinical Trials, 22, 236S-243S.
11. McKenzie, M., Tulsky, J. P., Long, H. L., Chesney, M., & Moss, A. (1999). Tracking and follow-up of marginalized populations: A review. Journal of Health Care for the Poor and Underserved, 10, 409-429.
12. Mellins, C. A., & Ehrhardt, A. A. (1994). Families affected by pediatric acquired immunodeficiency syndrome: Sources of stress and coping. Journal of Developmental and Behavioral Pediatrics, 15(3), S54-S60.
13. Meredith, K., Delaney, J., Morgan, M., Fisher, E., Jr., & Fraser, V. (1997). A survey of women with HIV about their expectations for care. AIDS Care, 9(5), 513-522.
14. Morse, E. V., Simon, P. M., Besch, C. L., & Walker, J. (1995). Issues of recruitment, retention, and compliance in community-based clinical trials with traditionally underserved populations. Applied Nursing Research, 8(1), 8-14.
15. Senturia, Y., Mortimer, K., Baker, D., Gergen, P., Mitchell, H., Joseph, C., et al. (1998). Successful techniques for retention of study participants in an inner-city population. Controlled Clinical Trials, 19, 544-554.
16. 2 HIV) infection study: Design and methods. Journal of Clinical Epidemiology, 49(11), 1285-1294.
17. Weinert, C., & Burman, M. (1996). Issues in clinical nursing research: Nurturing longitudinal samples. Western Journal of Nursing Research, 18, 360-364.
18. 2 HIV Study Group. (1998). Recognizing nurse coordinators' contributions to the clinical research process. Journal of the Association of Nurses in AIDS Care, 9, 39-48.