Privacy and confidentiality issues in primary care: Views of advanced practice nurses and their patients

Nursing Ethics

Volumn 11, Issue 4, 2004, Pages 378-393

  Deshefy Longhi, Terry ^a   Dixon, Jane Karpe ^a   Olsen, Douglas ^a   Grey, Margaret ^a  

^a YALE UNIVERSITY SCHOOL OF NURSING   (United States)

Author keywords

Confidentiality; Issues; Primary care; Privacy

Indexed keywords

ADULT; AGED; ARTICLE; CONFIDENTIALITY; EMPIRICAL APPROACH; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; INFORMATION PROCESSING; MALE; MIDDLE AGED; NURSE PRACTITIONER; PATIENT SATISFACTION; PRIMARY HEALTH CARE; PRIVACY; PROFESSIONAL PATIENT RELATIONSHIP; PSYCHOLOGICAL ASPECT; UNITED STATES;

EMPIRICAL APPROACH; PROFESSIONAL PATIENT RELATIONSHIP;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; CONFIDENTIALITY; FEMALE; FOCUS GROUPS; HUMANS; MALE; MIDDLE AGED; NURSE PRACTITIONERS; PATIENT SATISFACTION; PRIMARY HEALTH CARE; PRIVACY; UNITED STATES;

EID: 4143094093     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1191/0969733004ne710oa     Document Type: Review

References (38)

1. Faden RR, Beauchamp TL. A history and theory of informed consent. New York, NY: Oxford University Press, 1986.
2. Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001.
3. Laurie G. Genetic privacy-a challenge to medico-legal norms. Cambridge: Cambridge University Press, 2002.
4. Rothstein M ed. Genetic secrets-protecting privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press, 1997.
5. Goldman M. Medical privacy in the information age. In: Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001: 71-99.
6. US Department of Health and Human Services. Health insurance portability and accountability Act. In: 42 USC; 1996. Retrieved 18 March, 2003, from: http://www.hhs.gov/ocr/hipaa/ and http://www.hrsa.gov/hipaa.htm
7. Brittin AJ, Melamed D eds. The HIPAA handbook: what your organization should know about the federal privacy standards. Washington, DC: URAC/American Accreditation Health Care Commission, 2001.
8. Humber JM. Promulgation of 'Standards for privacy of individually identifiable health information: final rule'. In: Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001: 165-80.
9. Scott C. Is too much privacy bad for your health? An introduction to the law and ethics of medical privacy. In: Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001: 3-52.
10. Bruce JAC. Privacy and confidentiality of health care information. Chicago, IL: American Hospital Association, 1984.
11. Dennis JC. Privacy and confidentiality of health information. San Francisco, CA: Jossey-Bass, 2000.
12. Parley M. Compassionate respect. Mahwah, NJ: Paulist Press, 2002.
13. Bok S. Secrets: on the ethics of concealment and revelation. New York, NY: Random House, 1989.
14. Goffman E. The presentation of self in everyday life. Woodstock, NY: Overlook Press, 1973.
15. LeBris S, Knoppers BM. International and comparative concepts of privacy. In: Rothstein M ed. Genetic secrets-protecting privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press, 1997: 418-48.
16. Boleyn-Fitzgerald P. An egalitarian justification of medical privacy. In: Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001: 55-68.
17. Olsen DP. Ethical considerations of video monitoring psychiatric patients in seclusion and restraint. Arch Psychiatr Niirs 1998; XII(2): 90-94.
18. Allen A. Privacy in health care. In: Ricch W, ed. Encyclopedia of bioethics. New York, NY: Simon and Schuster, 1995: 2064-75.
19. Beauchamp T, Childress J. Principles of biomedical ethics, fifth edition. New York, NY: Oxford University Press, 2001.
20. Allen AL. Genetic privacy: emerging concepts and values. In: Rothstein M ed. Genetic secrets - protecting privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press, 1997: 31-59.
21. Olsen DP. HIPAA privacy regulations and nursing research. Nurs Res 2003; 52: 344-48.
22. Wolf LE, Croughan M, Lo B. The challenges of IRB review and human subject protections in practice-based research. Med Care 2002; 40: 521-29.
23. Korn D. Medical information privacy and the conduct of biomedical research. In: Humber JM, Almeder RF eds. Privacy and health care. Totowa, NJ: Humana Press, 2001: 103-29.
24. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S. Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med 1999; 14: 537-46.
25. Curtis LC, Hodge M. Old standards, new dilemmas: ethics and boundaries in community support services. Psychosoc Rehabil J 1994; 18(2): 13-33.
26. Davies L, Casey S. Primary care. Can you keep a secret? Nurs Times 1999; 95(50): 63-64.
27. Duncan KA. Evolving community health information networks. Front Health Serv Manage 1995; 12(1): 44-49.
28. France FH. Ethics and biomedical information. Int J Med Inf 1998; 49: 111-15.
29. Janssen PA, Landolt MA, Grunfeld AF. Assessing for domestic violence exposure in primary care settings: the transition from classroom to clinical practice. J Interpers Violence 2003; 18: 623-33.
30. Purcell JS, Hergenroeder AC, Kozinetz C, Smith EO, Hill RB. Interviewing techniques with adolescents in primary care. J Adolesc Health 1997; 20: 300-305.
31. Petchey R, Farnsworth W, Heron T. The maintenance of confidentiality in primary care: a survey of policies and procedures. AIDS Care 2001; 13: 251-56.
32. Reamer FG. AIDS and social work: the ethics and civil liberties agenda. Soc Work 1993; 38: 412-19.
33. Stewart FJ, Rosenthal DA. Rural and urban female secondary school students' attitudes towards and use of primary care services. Aust J Rural Health 1997; 5: 126-31.
34. Vasquez MJ. Implications of the 1992 ethics code for the practice of individual psychotherapy. Prof Psychol 1994; 25: 321-28.
35. Deshefy-Longhi T, Swartz MK, Grey M. Establishing a practice-based research network of advanced practice registered nurses in southern New England. Nurs Outlook 2002; 50: 127-32.
36. Polit D, Hungler B. Nursing research principles and methods, sixth edition. Philadelphia, PA: Lippincott Williams and Wilkins, 1999.
37. Cohen M, Kahn D, Sleeves R. Making use of qualitative data. West J Nurs Res 2002; 24: 454-71.
38. Creswell J. Qualitative inquiry and research design: choosing among five traditions. Thousand Oaks, CA: SAGE, 1998.