Genetics assessment at the end of life: Suggestions for implementation in clinic and future research

Journal of Palliative Medicine

Volumn 11, Issue 3, 2008, Pages 451-458

  Quillin, John Martin ^a   Bodurtha, Joann N ^a   Smith, Thomas J ^b  

^a VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

DNA;

ADENOMATOUS POLYP; ADULT; ANAMNESIS; BLOOD SAMPLING; CANCER GENETICS; CANCER RISK; CASE REPORT; CLINICAL RESEARCH; DIGESTIVE SYSTEM CANCER; DYING; FAMILY HISTORY; FEMALE; GENE MUTATION; GENETIC ANALYSIS; GENETIC COUNSELING; HUMAN; INFORMED CONSENT; MEDICAL ETHICS; NURSING HOME; PALLIATIVE THERAPY; REVIEW; RISK ASSESSMENT; TERMINAL CARE;

DNA; FAMILY HEALTH; FEMALE; GENETIC COUNSELING; GENETIC PREDISPOSITION TO DISEASE; GENETIC SCREENING; HEART FAILURE; HUMANS; INTRACRANIAL HEMORRHAGES; NEOPLASMS; PALLIATIVE CARE; TERMINAL CARE;

EID: 41149113307     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2007.0150     Document Type: Review

References (25)

1. Collins FS, Green ED, Guttmacher AE, Guyer MS, US National Human Genome Research Institute: A vision for the future of genomics research. Nature 2003;422:835-847.
2. Duster T: Backdoor to Eugenics, 2nd ed. New York: Routledge, 2003.
3. Patenaude AF: Genetic Testing for Cancer: Psychological Approaches for Helping Patients. Washington, D.C.: American Psychological Association, 2005.
4. Kirk J: The family history of cancer - A common concern in palliative care. Prog Palliat Care 2004;12:59-65.
5. Lillie AK: Exploring cancer genetics and care of the family: An evolving challenge for palliative care. Int J Palliat Nurs 2006;12:70-74.
6. Board of Directors, American Academy of Hospice and Palliative Medicine. Statement on Clinical Practice Guidelines for Quality Palliative Care. 2007(3/2007). http://www.aahpm.org/positions/quality.html
7. Duggleby W, Wright K. Elderly palliative care cancer patients' descriptions of hope-fostering strategies. Int J Palliat Nurs 2004;10:352-359.
8. Skirton H, Frazier LQ, Calvin AO, Cohen MZ: A legacy for the children - Attitudes of older adults in the United Kingdom to genetic testing. J Clin Nurs 2006;15:565-573.
9. McGinnis JM, Williams-Russo P, Knickman JR: The case for more active policy attention to health promotion. Health Aff (Millwood) 2002;21:78-93.
10. Offit K: Clinical Cancer Genetics. New York: Wiley-Liss, Inc., 1998.
11. Scheuner MT, Wang SJ, Raffel LJ, Larabell SK, Rotter JI: Family history: A comprehensive genetic risk assessment method for the chronic conditions of adulthood. Am J Med Genet 1997;71:315-324.
12. Stein LD: Human genome: End of the beginning. Nature 2004;431:915-916.
13. University of Washington (copyright). GeneTests: Medical Genetics Information Resource (database online). 2007 (3/2007). http://www.geneetests.org
14. National Society of Genetic Counselors: DNA Banking: Saving for the Future. 2006(09/15).
15. Byock IR: The nature of suffering and the nature of opportunity at the end of life. Clin Geriatr Med 1996;12:237-252.
16. King ML: Beyond Vietnam - A Time to Break the Silence [speech]. April 4, 1967.
17. Carlos RC, Fendrick AM: Improving cancer screening adherence: Using the "teachable moment" as a delivery setting for educational interventions. Am J Manage Care 2004;10:247-248.
18. Peterson SK: The role of the family in genetic testing: Theoretical perspectives, current knowledge, and future directions. Health Educ Behav 2005;32:627-639.
19. Beauchamp TL, Childress JF: Principles of Biomedical Ethics, 5th ed. New York: Oxford University Press, 2001.
20. Genetics & Public Policy Center: U.S. Public Opinion on Uses of Genetic Information and Genetic Discrimination. 2007(4/2007). http://www.DNApolicy.org
21. Sivell S, Iredale R, Gray J, Coles B: Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database Syst Rev 2007;CD003721.
22. Gramling R, Anthony D, Lowry J, Ballinger L, Ma D, Habbal R, Leighton N, Bowen D: Association between screening family medical history in general medical care and lower burden of cancer worry among women with a close family history of breast cancer. Genet Med 2005;7:640-645.
23. Guttmacher AE, Collins FS, Carmona RH: The family history - More important than ever. N Engl J Med 2004;351:2333-2336.
24. Frezzo TM, Rubinstein WS, Dunham D, Ormond KE: The genetic family history as a risk assessment tool in Internal Medicine. Genet Med 2003;5:84-91.
25. Yoon PW, Scheuner MT, Khoury MJ: Research priorities for evaluating family history in the prevention of common chronic diseases. Am J Prev Med 2003;24:128-135.