Key internet genetics resources for the clinician

JAMA

Volumn 299, Issue 11, 2008, Pages 1356-1358

  Uhlmann, Wendy R ^a,c   Guttmacher, Alan E ^b  

^a UNIVERSITY OF MICHIGAN   (United States)

^b NATIONAL HUMAN GENOME RESEARCH INSTITUTE   (United States)

^c UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANAMNESIS; CLINICAL PRACTICE; CYSTIC FIBROSIS; DECISION MAKING; EMPLOYMENT; FAMILY HISTORY; GENETIC ANALYSIS; GENETIC PROCEDURES; GENETICS; HEALTH CARE SYSTEM; INSURANCE; INTERNET; MEDICAL CARE; MEDICAL EDUCATION; MEDICAL PROFESSION; MEDICAL SOCIETY; MEDLINE; NOTE; NUTRIGENOMICS; PATIENT CARE; PATIENT INFORMATION; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; SUPPORT GROUP; ARTICLE; GENETIC SCREENING; MEDICAL GENETICS; MEDICAL INFORMATICS;

GENETIC SCREENING; GENETICS, MEDICAL; INTERNET; PUBLIC HEALTH INFORMATICS;

EID: 40949162356     PISSN: 00987484     EISSN: 15383598     Source Type: Journal    
DOI: 10.1001/jama.299.11.1356     Document Type: Note

References (21)

1. Sikorski R, Peters R. Internet resources for medical genetics. JAMA. 1997;278(15):1212-1213.
2. Guttmacher AE. Human genetics on the Web. Annu Rev Genomics Hum Genet. 2001;2:213-233.
3. PubMed Web site. http://www.ncbi.nlm.nih.gov/sites/entrez. Accessibility verified January 16, 2008.
4. GeneTests Web site. http://www.genetests.org. Accessibility verified January 16, 2008.
5. Secretary's Advisory Committee on Genetics, Health and Society. Report on Coverage and Reimbursement of Genetic Tests and Services. US Dept of Health and Human Services Web site. http://www4.od.nih.gov/oba/sacghs/reports/CR_report. pdf. February 2006. Accessed October 31, 2007.
6. Pfleger L, Yashar B, Uhlmann W. Insurance reimbursement for genetic testing. Presented at: National Society of Genetic Counselors 26th Annual Education Conference; October 11-12, 2007; Kansas City, MO. J Genet Counsel. 2007;16:665.
7. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors. ASHG/ACMG report: points to consider: ethical, legal and psychosocial implications of genetic testing in children and adolescents. http://www.ashg.org/pages/statement_ajhg57.shtml. Accessed February 22, 2007.
8. Position statement on prenatal and childhood testing for adult-onset conditions. National Society of Genetic Counselors Web site. http://www.nsgc.org/about/position.cfm#Genetic. 1995. Accessed October 31, 2007.
9. American Society of Human Genetics Social Issues Committee report on genetics and adoption: points to consider. http://www.ashg.org/pages/ statement_ajhg481.shtml. Accessed February 22, 2007.
10. American Society of Human Genetics Social Issues Committee, American College of Medical Genetics Social, Ethical, and Legal Issues Committee. Genetic testing in adoption. http://www.ashg.org/pages/statement_ajhg66.shtml. Accessed February 22, 2007.
11. Position statement on genetic testing and adoption. National Society of Genetic Counselors Website. http://www.nsgc.org/about/position.cfm#Genetic. 2002. Accessed October 31, 2007.
12. American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure. ASHG statement: professional disclosure of familial genetic information. http://www.ashg.org/pdf/pol-29%20.pdf. Accessed February 22, 2007.
13. Hirschhorn K, Fleisher LD, Godmilow L, et al. Duty to re-contact. http://www.acmg.net/StaticContent/StaticPages/Duty_to_Recontact.pdf. Accessed October 31, 2007.
14. Practice guidelines. American College of Medical Genetics Web site. http://www.acmg.net. Accessed October 31, 2007.
15. Policy statements. American College of Medical Genetics Web site. http://www.acmg.net. Accessed October 31, 2007.
16. Practice guidelines. National Society of Genetic Counselors Web site. http://www.nsgc.org/journal/Practice_Guidelines.cfm. Accessed October 31, 2007.
17. Position statements. National Society of Genetic Counselors Web site. http://www.nsgc.org/about/position.cfm#Genetic. Accessed October 31, 2007.
18. American College of Medical Genetics Board of Directors. ACMG statement on direct-to-consumer genetic testing. http://www.acmg.net/StaticContent/ StaticPages/Direct_Consumer.pdf. Accessed November 1, 2007.
19. Statement on direct-to-consumer genetic testing. American College of Medical Genetics Web site. http://www.acmg.net/AM/Template.cfm?Section= Home3&Template=/CM/ContentDisplay.cfm&ContentID=2395. 2007. Accessed November 1, 2007.
20. American Society of Human Genetics. ASHG statement on direct-to-consumer genetic testing in the United States. http://genetics.faseb.org/genetics/ashg/ news/dtc_statement.pdf. Accessed November 1, 2007.
21. Position statement on direct-to-consumer testing. National Society of Genetic Counselors Web site. http://www.nsgc.org/about/position.cfm. Accessibility verified January 16, 2008.