Behavioural characteristics associated with dementia assessment referrals in adults with Down syndrome

Journal of Intellectual Disability Research

Volumn 52, Issue 4, 2008, Pages 358-368

  Adams, D ^a   Oliver, C ^a,c   Kalsy, S ^b   Peters, S ^b   Broquard, M ^b   Basra, T ^b   Konstandinidi, E ^b   Mcquillan, S ^b  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^b South Birmingham Primary Care Trust   (United Kingdom)

^c NONE   (United Kingdom)

Author keywords

Alzheimer's disease; Behavioural change; Dementia; Down syndrome; Referral

Indexed keywords

ADULT; AGED; ARTICLE; BEHAVIOR CHANGE; CAREGIVER; CLINICAL ARTICLE; COGNITIVE DEFECT; CONTROLLED STUDY; COPING BEHAVIOR; DAY CARE; DEMENTIA; DISEASE ASSOCIATION; DOWN SYNDROME; FEMALE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; NEUROPSYCHOLOGICAL TEST; PATIENT REFERRAL; RESIDENTIAL HOME; SOCIALIZATION;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; BEHAVIOR; COGNITION DISORDERS; COMMUNICATION; DEMENTIA; DOWN SYNDROME; FEMALE; GREAT BRITAIN; HUMANS; LONGITUDINAL STUDIES; MALE; MEMORY, SHORT-TERM; MIDDLE AGED; NEUROPSYCHOLOGICAL TESTS; REFERRAL AND CONSULTATION; SOCIAL BEHAVIOR; VERBAL BEHAVIOR; VOCABULARY;

EID: 40949114260     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2007.01036.x     Document Type: Article

References (39)

1. Ancoli-Israel S., Kripke D. F., Klauber M. R., Parker L., Stepnowsky C., Kullen A. et al. (1993) Natural history of sleep disordered breathing in community dwelling elderly. Sleep 16, S25-9.
2. Ancoli-israel S., Klauber M. R., Gillin J. C., Campbell S. S. & Hofstetter C. R. (1994) Sleep in non-institutionalized Alzheimer's disease patients. Aging (Milano.) 6, 451-8.
3. Borthwick-Duffy S. A. & Eyman R. K. (1990) Who are the dually diagnosed? American Journal of Mental Retardation 94, 586-95.
4. Crayton L., Oliver C., Holland A. J., Bradbury J. & Hall S. (1998) The Neuropsychological Assessment of age related cognitive deficits in adults with Down's syndrome. Journal of Applied Research in Intellectual Disabilities 11, 255-72.
5. Donaldson C., Tarrier N. & Burns A. (1998) Determinants of carer stress in Alzheimer's disease. International Journal of Geriatric Psychiatry 13, 248-56.
6. Doody R. S., Massman P., Mahurin R. & Law S. (1995) Positive and negative neuropsychiatric features in Alzheimer's disease. The Journal of Neuropsychiatry and Clinical Neurosciences 7, 54-60.
7. Duggan L., Lewis M. & Morgan J. (1996) Behavioural changes in people with learning disability and dementia: A descriptive study. Journal of Intellectual Disability Research 40, 311-21.
8. Dunn L. M., Dunn L. M., Whetton C. & Burley J. (1998) British Picture Vocabulary Scales (Version 2). NFER-Nelson, Windsor.
9. Edelstein T. M. & Glenwick D. S. (1997) Referral reasons for psychological services for adults with mental retardation. Research in Developmental Disabilities 18, 45-59.
10. Evenhuis H. M., Kengen M. M. & Eurlings H. A. L. (1990) Dementia Questionnaire for Persons with Mental Retardation. Hooge Burch Institute for Mentally Retarded People, Zwamerdam.
11. Fletcher R. J. (1993) Mental illness-mental retardation in the United States: Policy and treatment challenges. Journal of Intellectual Disability Research 37(Suppl. 1), 25-33.
12. Gangadharan S., Bretherton K. & Johnson B. (2001) Pattern of referral to a child learning disability service. British Journal of Developmental Disabilities 47, 99-104.
13. Holland A. J., Hon J., Huppert F. A., Stevens F. & Watson P. (1998) Population-based study of the prevalence and presentation of dementia in adults with Down's syndrome. British Journal of Psychiatry 172, 493-8.
14. Holland A. J., Hon J., Huppert F. A. & Stevens F. (2000) Incidence and course of dementia in people with Down's syndrome: Findings from a population-based study. Journal of Intellectual Disability Research 44, 138-46.
15. Howell D. C. (1997) Statistical Methods for Psychology. Duxbury Press, Belmont, CA.
16. Janicki M. P., Dalton A. J., Henderson C. M. & Davidson P. W. (1999) Mortality and morbidity among older adults with intellectual disability: health services considerations. Disability and Rehabilitation 21, 284-94.
17. Janicki M. P., Davidson P. W., Henderson C. M., McCallion P., Taets J. D., Force L. T. etal. (2002) Health characteristics and health services utilization in older adults with intellectual disability living in community residences. Journal of Intellectual Disability Research 46, 287-98.
18. Kalsy S., McQuillan S., Oliver C. & Hall S. (2001) Assessment for Adults with Developmental Disabilities. University of Birmingham, Birmingham.
19. Kalsy S., McQuillan S., Adams D. M., Basra T., Konstantinidi E., Broquard M. etal. (2005) A proactive psychological screening strategy for determining the presence of dementia in adults with Down syndrome: preliminary description of service use and evaluation. Journal of Policy and Practice in Intellectual Disabilities 2, 116-25.
20. Kalsy S., Adams D. & Oliver C. (2006) Dementia and people with Down syndrome. Signpost: Journal of Dementia and Mental Health Care for Older People 10, 7-11.
21. Kalsy S., Heath R., Adams D. M. & Oliver C. (2007) Effects of training on controllability attributions of behavioural excesses and deficits shown by adults with Down syndrome and dementia. Journal of Applied Research in Intellectual Disabilities 20, 64-8.
22. Logiudice D., Waltrowicz W., Brown K., Burrows C., Ames D. & Flocker L. (1999) Do memory clinics improve the quality of life of carers? A randomized pilot trial. International Journal of Geriatric Psychiatry 14, 626-32.
23. Nelson L., Orme D., Osann K. & Lott I. T. (2001) Neurological changes and emotional functioning in adults with Down syndrome. Journal of Intellectual Disability Research 45, 450-6.
24. O'Donnell B. F., Drachman D. A., Barnes H. J., Peterson K. E., Swearer J. M. & Lew R. A. (1992) Incontinence and troublesome behaviors predict institutionalization in dementia. Journal of Geriatric Psychiatry Neurology 5, 45-52.
25. Oliver C. & Adams D. (2008) Manual for the interpretation of scores from the Neuropsychological Assessment of Dementia in Individuals with Intellectual Disabilities (NAID). University of Birmingham: Birmingham.
26. Oliver C. & Crayton L. (1993) Neuropsychological Assessment of Dementia in Individuals with Intellectual Disabilities. University of Birmingham: Birmingham. Unpublished.
27. Oliver C. & Holland A. (1986) Down's syndrome and Alzheimer's disease: A review. Psychological Medicine 16, 307-22.
28. Oliver C., Crayton L., Holland A., Hall S. & Bradbury J. (1998) A four year prospective study of age-related cognitive change in adults with Down's syndrome. Psychological Medicine 28, 1365-77.
29. Oliver C., Crayton L., Holland A. & Hall S. (2000) Cognitive deterioration in adults with Down syndrome: Effects on the individual, caregivers, and service use. American Journal of Mental Retardation 105, 455-65.
30. Pearlin L. I., Mullan J. T., Semple S. J. & Skaff M. M. (1990) Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 30, 583-94.
31. Petry S., Cummings J. L., Hill M. A. & Shapira J. (1988) Personality alterations in dementia of the Alzheimer type. Archives of Neurology 45, 1187-90.
32. Picton T. A. & Karki C. (2002) Referral patterns of children to a psychiatric learning disability service. British Journal of Developmental Disabilities 48, 53-9.
33. Reichman W. E. & Negron A. (2001) Negative symptoms in the elderly patient with dementia. International Journal of Geriatric Psychiatry 16, S7-11.
34. Simeonsson R. J., Cooper D. H. & Scheiner A. P. (1982) A review and analysis of the effectiveness of early intervention programs. Pediatrics 69, 635-41.
35. Smith T. (1999) Outcome of early intervention for children with autism. Clinical Psychology: Science and Practice 4, 33-5.
36. Sparrow S. S., Balla D. A. & Chiccetti D. V. (1984) Vineland Adaptive Behavior Scales: Interview Edition, Survey Form Manual. American Guidance Service, Circle Pines, MN.
37. Streams M. E., Wackerbarth S. B. & Maxwell A. (2003) Diagnosis-seeking at subspecialty memory clinics: Trigger events. International Journal of Geriatric Psychiatry 18, 915-24.
38. Welsh K. A., Butters N., Hughes J., Mohs R. C. & Heyman A. (1992) Detection and staging of dementia in Alzheimer's disease: Use of the neuropsychological measures developed for the Consortium to Establish a Registry for Alzheimer's Disease (CERAD). Archives of Neurology 49, 448-52.
39. Yaffe K., Fox P., Newcomer R., Sands L., Lindquist K., Dane K. etal. (2002) Patient and caregiver characteristics and nursing home placement in patients with dementia. The Journal of the American Medical Association 287, 2090-7.