Delay between pregnancy confirmation and sickle cell thalassaemia screening: A population-based cohort study

British Journal of General Practice

Volumn 58, Issue 548, 2008, Pages 154-159

  Dormandy, Elizabeth ^a   Gulliford, Martin C ^a   Reid, Erin P ^a   Brown, Katrina ^a   Marteau, Theresa M ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Anaemia; Genetic screening; Pregnancy; Primary health care; Sickle cell; Thalassaemia

Indexed keywords

ADULT; ARTICLE; COHORT ANALYSIS; CORRELATION ANALYSIS; DELAYED DIAGNOSIS; ETHNICITY; FEMALE; GENERAL PRACTICE; GENETIC SCREENING; GESTATIONAL AGE; HETEROZYGOTE; HUMAN; MATERNAL AGE; PARITY; PREGNANCY TEST; PRENATAL CARE; PRENATAL SCREENING; PRIMARY MEDICAL CARE; SICKLE CELL; THALASSEMIA;

ADULT; ANEMIA, SICKLE CELL; COHORT STUDIES; EARLY DIAGNOSIS; FEMALE; GENETIC SCREENING; GESTATIONAL AGE; HUMANS; PREGNANCY; PREGNANCY COMPLICATIONS; PREGNANCY OUTCOME; PREGNANCY TRIMESTER, FIRST; PREGNANCY TRIMESTER, SECOND; PRENATAL DIAGNOSIS; THALASSEMIA; TIME FACTORS;

EID: 40749096818     PISSN: 09601643     EISSN: None     Source Type: Journal    
DOI: 10.3399/bjgp08X277267     Document Type: Article

References (17)

1. Weatherall D, Akinyanju O, Fucharoen S, et al. Inherited disorders of hemoglobin. In: Jamieson DT, Mosely WH, Measschon AR (eds). Disease control priorities in developing countries. (2nd edn), Oxford: Oxford University Press and The World Bank, 1993:663-680.
2. World Health Organisation. 59th World Health Assembly Agenda, Item 11.4. Geneva, Switzerland: WHO, 2006. www.who.int/gb/ebwha/pdf_files/ WHA59/A59_R20-en.pdf (accessed 25 Jan 2008).
3. NHS Sickle Cell and Thalassaemia Screening Programme. Standards for linked antenatal and newborn screening programme. London: UK National Screening Programme, King's College, 2006. http://www.sct.screening.nhs.uk/Documents/ProgrammeSTAN.pdf (accessed 25 Jan 2008).
4. National Institute for Clinical Excellence. Antenatal care: routine care for the healthy pregnant woman. Clinical Guideline 6. Londory. RCOG press, 2003.
5. Department of Health. National Service Framework for Children, young people and maternity services. maternity services. London: Department of Health, 2004. www.dh.gov.uk/en/Publicationsandstatistics/Publications/ PublicationsPolicyAndGuidance/DH_4089101 (accessed 25 Jan 2008)
6. Modell B, Harris R, Lane B, et al. Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential inquiry. BMJ 2000; 320(7231): 337-341.
7. Neuenschwander H, Modell B. Audit of process of antenatal screening for sickle cell disorders at a north London hospital. BMJ 1997; 315(7111):784-785.
8. Thomas P, Oni L, Alli M, et al. Antenatal screening for haemoglobinopathies in primary care: a whole system participatory action research project. Br J Gen Pract 2005; 55(515): 424-428.
9. Wright J, Rati N, Kennefick A, et al. A pilot study of 'fast track' antenatal screening for haemoglobinopathies. J Med Screen 2003; 10(4):169-171.
10. Gill C, Klynman N. Care Pathways for antenatal and neonatal haemoglobinopathy screening in Greater London, 2003. NHS Sickle Cell and Thalassamia Programme. http://www.sct.screening.nhs.uk/Documents/ LondonMappingReport.pdf (accessed 25 Jan 2008)
11. Greengross P, Hickman M, Gill M, et al. Outcomes of universal antenatal screening for haemoglobinopathies. J Med Screen 1999; 6(1): 3-10.
12. Office for National Statistics. Neighbourhood statistics. Indices of deprivation 2004: Local authority summaries. London: National Statistics. http://www.neighbourhood.statistics.gov.uk/dissemination/ LeadTableView.do?a=7&b=276767&c=newham&d=13&e=10&g= 343478&i=1001x1003x1004&o=35&m=0&r=1&s= 1201083025343&enc=18rdsFamilyId=724 (accessed 25 Jan 2008).
13. Marteau TM, Ades T, Anionwu EA, et al. Antenatal screening for haemoglobinopathies in primary care: a cluster randomised trial to inform a simulation model (SHIFT), 2004. http://www.hta.ac.uk/project/ 1401.asp (accessed 25 Jan 2008).
14. Rowe RE, Garcia J. Social class, ethnicity and attendance for antenatal care in the United Kingdom: a systematic review. J Public Health Med 2003; 25(2): 113-119.
15. Ahmad W, Atkin K Primary care and haemoglobin disorders: a study of family and professionals. Critical Public Health 2000; 10(1): 41-53.
16. Green J, Dawson MF. Women's experience of screening in pregnancy: ethnic differences in the West Midlands. In: Clarke A, Parsons E (eds). Culture, kinship and genes. towards cross-cultural genetics. Basingstoke. MacMillan, 1997: 120-133
17. Adams G, Gulliford M, Ukoumunne O, et al. Geographical and organisational variation in the structure of primary care services: implications for study design. J Health Serv Res Policy 2003; 8(2): 87-93.