Parent life management and transformational outcomes when a child has Down syndrome

International Journal of Special Education

Volumn 6, Issue 2, 2001, Pages 57-68

  Scorgie, K ^a   Wilgosh, L ^b   Sobsey, D ^b   McDonald, J ^b  

^a AZUSA PACIFIC UNIVERSITY   (United States)

^b UNIVERSITY OF ALBERTA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 4043101713     PISSN: 08273383     EISSN: 19177844     Source Type: Journal    
DOI: None     Document Type: Article

References (22)

1. Aldwin, C. M. (1994). Stress, coping, and development: An integrative perspective. New York: Guilford Press.
2. Atkinson, L., & Chisholm, V. (1995). Cognitive coping, affective distress, and maternal sensitivity: Mothers of children with Down syndrome. Developmental Psychology, 31, 668-676.
3. Beck, M. (1999). Expecting Adam: A true story of birth, rebirth, and everyday magic_. New York: Times Books.
4. Bérubé, M. (1996). Life as we know it: A father, a family, and an exceptional child. New York: Pantheon Books.
5. Cahill, B. M., & Glidden, L. M. (1996). Influence of child diagnosis on family and parental functioning: Down syndrome versus other disabilities. American Journal on Mental Retardation, 101, 149-160.
6. Duis, S. S., Summers, M., & Summers, C. R. (1997). Parent versus child stress in diverse family types: An ecological approach. Topics in Early Childhood Education, 17, 53-73.
7. Gill, B. (1997). Changed by a child: Companion notes for a parent of a child with a disability. New York: Doubleday.
8. Glidden, L. M., & Cahill, B. M. (1998). Successful adoption of children with Down syndrome and other developmental disabilities. Adoption Quarterly, 1, 27-43.
9. Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. New York: Macmillan.
10. Meyer, D. J. (1995). Uncommon fathers: Reflections on raising a child with a disability. Bethesda: Woodbine House.
11. Oe, K. (1996). A healing family (Translated by Snyder, S.). Tokyo: Kodansha, International.
12. Palus, C. J. (1993). Transformative experiences of adulthood: A new look at the seasons of life. In J. Demick, K. Bursik, & R. Dibiase (Eds.), Parental development (pp. 39-58). Hillsdale, NJ: Erlbaum.
13. Roach, M. A., Orsmond, G. I., & Barratt, M. S. (1999). Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare. American Journal on Mental Retardation, 104, 422-436.
14. Rogers, D. E. (1953). Angel unaware. Westwood, NJ: Revell.
15. Rogers, D. E. (1981). Angel unaware (revised). Westwood, NJ: Revell.
16. Sander, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19, 15-32.
17. Scorgie, K., Wilgosh, L., & McDonald, L. (1996). A qualitative study of managing life when a child has a disability. Developmental Disabilities Bulletin, 24(2), 68-90.
18. Scorgie, K., Wilgosh, L., & McDonald, L. (1997). A survey follow-up on managing life when a child has a disability. Developmental Disabilities Bulletin, 25(2), 65-69.
19. Skinner, D., Bailey, D. B., Correa, V., & Rodriguez, P. (1999). Narrating self and disability: Latino mothers' constructions of identities vis-à-vis their child with special needs. Exceptional Children, 5, 481-495.
20. Stainton, T., & Besser, H. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual & Developmental Disability, 23, 57-70.
21. Trute, B., & Hauch, C. (1988). Building on family strengths: A study of families with positive adjustments to the birth of a developmentally disabled child. Journal of Marital and Family Therapy, 14, 185-193.
22. Wilgosh, L., Scorgie, K., & Fleming, D. (2000). Effective life management in parents of children with disabilities: A survey replication and extension. Developmental Disabilities Bulletin, 28(2), 1-14. Footnote