To pay or not to pay: Examining underlying principles in the debate on financial support for family caregivers

Canadian Journal on Aging

Volumn 26, Issue SUPPL. 1, 2007, Pages 77-89

  Keefe, Janice ^a,b   Rajnovich, Beth ^b  

^a Nova Scotia Centre on Aging

^b MOUNT SAINT VINCENT UNIVERSITY   (Canada)

Author keywords

Aging; Family caregivers; Gender; International; Payment for care; Policy

Indexed keywords

CAREGIVER SUPPORT; COMMUNITY CARE; CONTROLLED STUDY; ELDERLY CARE; FAMILY COUNSELING; FAMILY RELATION; FINANCIAL MANAGEMENT; HEALTH CARE; HEALTH CARE POLICY; HEALTH PROGRAM; HUMAN; REVIEW;

AGED; AGED, 80 AND OVER; CAREGIVERS; DEVELOPED COUNTRIES; FEMALE; FRAIL ELDERLY; HEALTH POLICY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; POLICY MAKING;

EID: 39149106487     PISSN: 07149808     EISSN: 17101107     Source Type: Journal    
DOI: 10.3138/cja.26.suppl_1.077     Document Type: Review

References (52)

1. Adamek, M.E. (1992). Should the government pay? Caregiver views of government responsibility and feelings of stigma about financial support. Journal of Applied Gerontology, 11, 283-297.
2. Armstrong, P., & Kits, O. (2001). One hundred years of caregiving. Ottawa: Law Commission of Canada.
3. Aronson, J., & Neysmith, S. (2001). Manufacturing social exclusion in the home care market. Canadian Public Policy, 27(2), 151-165.
4. Blasser, J. (1998). The case against paid family caregivers: Ethical and practical issues. Generations, 22(3), 65-69.
5. British Columbia Supreme Court. (2005). HMTQ v. Hutchinson et al. Retrieved 28 October 2005 from http://www.courts.gov.bc.ca/Jdb-txt/SC/05/14/ 2005BCSC1421err1.htm.
6. Canadian Caregiver Coalition. (2005). Working paper for a Canadian caregiver strategy. Retrieved 15 December 2005 from http://www.ccc-ccan.ca/ pdf/policyPaper3Eng.pdf.
7. Carrière, Y., Keefe, J., Légaré, J., Lin, X., & Rowe, G. (In press). Population aging and immediate family composition: Implications for future home care services. Genus.
8. Colepaugh, J.H. (2004). Lessons to be learned: A gender-based analysis of direct compensation policies for informal caregivers in Australia, Germany and the United Kingdom. Unpublished master's thesis, Mount Saint Vincent University, NS.
9. Evers, A. (1994). Payments for care: A small but significant part of a wider debate. In A. Evers, M. Pijl, & C. Ungerson (Eds.), Payments for care: A comparative overview (pp. 19-42). Brookfield: Avebury.
10. Evers, A. (1998). The new long term care insurance program in Germany. Journal of Aging and Social Policy, 10(1), 77-98.
11. Fast, J., Eales, J., & Keating, N. (2001). Economic impact of health, income security and labour policies on informal caregivers of frail seniors. Ottawa: Status of Women Canada.
12. Fast, J., Williamson, D., & Keating, N. (1999). The hidden costs of informal elder care. Journal of Family and Economic Issues, 20(3), 301-326.
13. Glendinning, C., & McLaughlin, E. (1993). Paying for care: Lessons from Europe. Social Security Advisory Committee Research Paper No. 5. London: HMSO.
14. Guberman, N. (2003). La remuneration des soins aux proches: enjeux pour les femmes. Nouvelles pratiques sociales, 16(1), 186-206.
15. Hammer, E., & Osterle, A. (2003). Welfare state policy and informal long-term care giving in Austria: Old gender divisions and new stratification processes among women. Journal of Social Policy, 32, 37-53.
16. Holstein, M., & Mitze, P. (1998). Paid family caregiving: A practical and ethical conundrum. Generations, 22(3), 64-65.
17. Ingebretsen, R., & Erikson, J. (2004). Services for supporting family carers of elderly people in Europe: Characteristics, coverage and usage - National background report for Norway. Retrieved 14 September 2004 from EUROFAMCARE. website http://www.uke.uni-hamburg.de/extern/eurofamcare/ presentations.html.
18. Jani-Le Bris, H. (2005). Services for supporting family carers of elderly people in Europe: Characteristics, coverage and usage - National background report for France. EUROFAMCARE. Retrieved 14 September 2005 from http://www.uke.uni-hamburg.de/extern/eurofamcare/documents/nabare_france_rc1_a4. pdf.
19. Jegermalm, M. (2002). Direct and indirect support for carers: Patterns of support for informal caregivers to elderly people in Sweden. Journal of Gerontological Social Work, 38(4), 67-84.
20. Jenson, J. (2004). Canada's new social risks: Directions for a new social architecture. CPRN Social Architecture Papers, Research Report F/43, Family Network. Ottawa: Canadian Policy Research Networks.
21. Jenson, J., & Jacobzone, S. (2002). Care allowances for the frail elderly and their impact on women care-givers. Labour Market and Social Policy, No. 41. Paris: Organisation for Economic Co-operation and Development.
22. Joel, M.E., & Martin, C. (1994). France. In A. Evers, M. Pijl, & C. Ungerson (Eds.), Payments for care: A comparative overview (pp. 165-190). Brookfield: Avebury.
23. Johansson, L. (2004). Services for supporting family carers of elderly people in Europe: Characteristics, coverage and usage - National background report for Sweden. Retrieved 14 September 2004 from from EUROFAMCARE Website http://www.uke.uni-hamburg.de/extern/eurofamcare/presentations.html.
24. Keefe, J. (2004). Policy profiles for compensating family caregivers: Australia, Canada, France, Germany, Israel, Netherlands, Norway, Sweden, United Kingdom, United States. Retrieved 1 May 2005 from http://www.msvu.ca/ mdcaging/policyprofiles.asp.
25. Keefe, J., & Fancey, P. (1997). Financial compensation or home care services: Examining differences among program recipients. Canadian Journal on Aging, 16(2), 254-277.
26. Keefe, J., & Fancey, P. (1998). Financial compensation versus community supports: An analysis of the effects on caregivers and care receivers. Ottawa: Health Canada.
27. Keefe, J., Fancey, P., & White, S. (2005). Consultation on financial compensation initiatives for family caregivers of dependent adults: Final report. Halifax: Mount Saint Vincent University.
28. Keefe, J., Glendinning, C., & Fancey, P. (In press). Financial support for family carers: Policy approaches and debates. In A. Martin Matthews, & J. Philips (Eds.), Ageing at the intersection of work and home life: Blurring the boundaries.
29. Keigher, S. (1987). Point/counterpoint: Paid family caregiving for the elderly - Good for the poor? Market Mechanisms gone awry. Health and Social Work, Winter, 64-65.
30. Keigher, S. (1991). Wages or welfare? Compensating caregiving in two conservative social welfare states. Journal of Aging & Social Policy, 3(3), 83-104.
31. Keigher, S.M., & Murphy, C. (1992). A consumer view of a family care compensation program for the elderly. Social Service Review, 66, 256-277.
32. Kenny, N. (2004). What's fair? Ethical decision-making in an aging society. Ottawa: Canadian Policy Research Networks and the Change Foundation.
33. Kremer, M. (2004, October 7 & 8). Where are we going to when consumers are in the driver's seat? The Dutch Personal Budget (PGB) and its impact on the market, professionals and the family. Second draft. Paper presented at Professionals between People and Policy Transformations in Care and Welfare in Europe, Amsterdam, Utrecht.
34. Kunkel, S.R., Applebaun, R.A., & Nelson, I.M. (2003-2004). For love and money: Paying family caregivers. Generations, Winter, 74-80.
35. Ministry of Health Services, BC. (2002). Government policy on payment to family members. Retrieved 28 February 2005 from http://www. healthservices.gov.bc.ca/hcc/pdf/policy2.pdf.
36. Osterbusch, S.E., & Linsk, N.L. (1987). Point/counterpoint: Paid family caregiving for the elderly - Good for the poor? A call for gender justice. Health and Social Work, Winter, 66-71.
37. Pederson, A., & Huggan, P. (2001, November 8-10). The objective is care: Proceedings of the national think tank on gender and unpaid caregiving. National Think Tank on Gender and Unpaid Caregiving, Charlottetown, PEI.
38. Pestieau, C. (2003). Evaluating policy research (CPRN Research Paper W122 Work Network) Ottawa: Canadian Policy Research Networks. Retrieved 9 July 2005 from http://www.cprn.org/en/doc.cfm?doc=495.
39. Pijl, M. (1994). When private care goes public: An analysis of concepts and principles concerning payments for care. In A. Evers, M. Pijl, & C. Ungerson (Eds.), Payments for care: A comparative overview (pp. 3-18). Brookfield: Avebury.
40. Pijl, M., & Johansson, L. (2003, September 23-27). Filling the care gap: A critical analysis of the support of carers of older persons. First draft. Presented at ESA Conference, Murcia, Spain.
41. Pijl, M., & Ramakers, C. (n.d.). Contracting one's family members: The Dutch care allowance.
42. Schreuder Goedheijt, T., Visser-Jansen, G., & Pijl, M. (2004). Mantelzorg in the Netherlands: Family care - Characteristics, care policies, support and research. Retrieved 1 May 2005 from http://www.eiz.nl/eiz/docs/ word/mz%20in%20N1%20paper.doc.
43. Schneider, U. (1999). Germany's Social Long Term Care Insurance: Design, implementation and evaluation. International Social Security Review, 52(2), 31-74.
44. Shillington, R. (2004). Policy options to support dependent care: The tax/transfer system. Halifax: Healthy Balance Research Program.
45. Simon-Rusinowitz, L., Mahoney, K.J., & Benjamin, A.E. (1998). Payments to families who provide care: An option that should be available. Generations, 22(3), 69-75.
46. Stone, D. (2001). Policy paradox: The art of political decision-making. New York: Norton.
47. Ungerson, C. (2004). Whose empowerment and independence? A cross-national perspective on "cash for care" schemes. Aging & Society, 24, 189-212.
48. Ungerson, C. (1995). Gender, cash and informal care: European perspectives and dilemmas. Journal of Social Policy, 24(1), 31-52.
49. Ungerson, C. (1997). Give them money: Is cash a route to empowerment? Social Policy and Administration, 31, 45-53.
50. United Kingdom, Department for Work and Pensions. (2004). Disabled people and carers Services and benefits. Retrieved 12 July 2007 from http://www.dwp.gov.uk/lifeevent/discare/.
51. University of Maryland Center on Aging. (2002). Cash and Counseling Demonstration. Retrieved 28 February 2005 from http://www.hhp.umd.edu/AGING/ CCDemo.
52. Visser-Jansen, G., & Knipscheer, C.P.M. (2004). Services for supporting family carers of elderly people in Europe: Characteristics, coverage and usage - National background report for the Netherlands. Retrieved 14 September 2004 from EUROFAMCARE. Website http://www.uke.uni-hamburg.de/extern/ eurofamcare/presentations.html.