Evaluating the impact of patient and public involvement initiatives on UK health services: A systematic review

Evidence and Policy

Volumn 3, Issue 1, 2007, Pages 47-65

  Daykin, Norma ^a   Evans, David ^a   Petsoulas, Christina ^b   Sayers, Adrian ^c  

^a UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^b UNIVERSITY OF LONDON   (United Kingdom)

^c CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

Patient Advice and Liaison Service (PALS); Patient and Public Involvement (PPI)

Indexed keywords

EID: 39049127314     PISSN: 17442648     EISSN: 17442656     Source Type: Journal    
DOI: 10.1332/174426407779702201     Document Type: Review

References (30)

1. Abbott, S., Meyer, J., Copperman, J., Bentley, J. and Lanceley, A. (2005) 'Quality criteria for patient advice and liaison services: what do patients and the public want?', Health Expectations, vol 8, no 2, pp 126-37.
2. Baggott, R. (2005) 'A funny thing happened on the way to the forum? Reforming patient and public involvement in the NHS in England', Public Administration, vol 83, no 3, pp 533-51.
3. Buchanan, D.,Abbott, S., Bentley,J., Lanceley,A. and Meyer,J. (2005) 'Let's be PALS: user-driven organizational change in healthcare', British Journal of Management, vol 16, no 4, pp 315-28.
4. Campbell, R., Pound, P., Pope, C., Britten, N., Pill, R., Morgan, M. and Donovan,J. (2003) 'Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care', Social Science and Medicine, vol 56, no 4, pp 671-84.
5. CASP (Critical Appraisal Skills Programme) (2002) 10 questions to help you make sense of qualitative research, Milton Keynes: Public Health Resource Unit, Milton Keynes Primary Care Trust, www.phru.nhs.uk/ casp/critical_appraisal_tools.htm
6. Crawford, M., Rutter, D. and Thelwall, S. (2003) User involvement in change management: A review of the literature, London: National Co-ordinating Centre for NHS Service Delivery and Organisation Research and Development (www.sdo.lshtm.ac.uk/sdo182002.html).
7. Crawford, M.J., Rutter, D., Manley, C., Weaver, T., Bhui, K., Fulop, N. and Tyrer, P. (2002) 'Systematic review of involving patients in the planning and development of health care', British Medical Journal, vol 325, no 7375, pp 1263-4.
8. Crowley, P., Green, J., Freake, D. and Drinkwater, C. (2002) 'Primary care trusts involving the community: is community development the way forward?', Journal of Management in Medicine, vol 16, no 4, pp 311-22.
9. Daykin, N., Rimmer, J., Turton, P., Evans, S., Sanidas, M., Tritter,J. and Langton, H. (2002) 'Enhancing user involvement through interprofessional education in healthcare: the case of cancer services', Learning in Health and Social Care, vol 1, no 3, pp 122-31.
10. DH (Department of Health) (2000) The NHS plan: A plan for investment, a plan for reform, Cm 4818, London: DH.
11. DH (2001) Shifting the balance of power: Securing delivery, London: DH.
12. DH (2002) Supporting the implementation of Patient Advice and Liaison Services:A resource pack, London: DH.
13. DH (2003) PALS core national standards and evaluation framework:Assessing performance against national core standards for PALS, London: DH.
14. DH (2005a) Creating a patient-led NHS: Delivering the NHS improvement plan, London: DH.
15. DH (2005b) Commissioning a patient-led NHS, London: DH.
16. Greener, I. (2003) 'Who choosing what? The evolution of the use of'choice' in the NHS, and its importance for New Labour', in C. Bochel, N. Ellison and M. Powell (eds) UK and international perspectives, Social Policy Review 15, Bristol:The Policy Press, pp 49-68.
17. Heaton,J. and Sloper, P. (2004) 'National survey of Patient Advice and Liaison Services (PALS) in England: children, young people and parents' access to and use of PALS', Child: Care, Health and Development, vol 30, no 5, pp 495-501.
18. Hill, P., O'Grady,A., Millar, B. and Boswell, K. (2000) 'The patient care development programme: organisational development through user and staff involvement', International Journal of Health Care Quality Assurance, vol 13, no 4/5, pp 153-61.
19. Hodge, S. (2005) 'Participation, discourse and power: a case study in service user involvement', Critical Social Policy, vol 25, no 2, pp 164-79.
20. Kashefi, E. and Mort, M. (2004) 'Grounded citizens'juries: a tool for health activism?', Health Expectations, vol 7, no 4, pp 290-302.
21. King's Fund (2001) What's to stop us? Overcoming barriers to public sector engagement with local communities: The Strategic Action Programme for Healthy Communities: programme summary, Keypoints series, London: King's Fund.
22. Mays, N., Roberts, E. and Popay, J. (2001) 'Synthesising research evidence', in N. Fulop, P.Allen,A. Clarke and N. Black (eds) Studying the organisation and delivery of health services: Research methods, London: Routledge, pp 188-220.
23. Noblit, G.W and Hare, R.D. (1988) Meta-ethnography: Synthesising qualitative studies, London: Sage Publications.
24. Pawson, R. and Tilley, N. (1997) Realistic evaluation, London: Sage Publications.
25. Rose, D., Fleischmann, P., Tonkiss, F., Campbell, P. and Wykes, T. (2002) User and carer involvement in change management in a mental health context: Review of the literature, London: National Co-ordinating Centre for NHS Service Delivery and Organisation Research and Development (www.sdo.lshtm.ac.uk/files/project/17-final-report.pdf).
26. Rutter, D., Manley, C., Weaver, T., Crawford, M. and Fulop, N. (2004) 'Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London', Social Science & Medicine, vol 58, no 10, pp 1973-84.
27. Simpson, E.L. and House,A.O. (2002) 'Involving users in the delivery and evaluation of mental health services: systematic review', British Medical Journal, vol 325, no 7375, pp 1265-7.
28. Tritter,J.Q., Barley,V, Daykin, N., Evans, S., McNeill, J., Rimmer,J., Sanidas, M. and Turton, P. (2003) 'Divided care and the third way: user involvement in statutory and voluntary sector cancer services', Sociology of Health and illness, vol 25, no 5, pp 429-56.
29. Truman, C. and Raine, P. (2002) 'Experience and meaning of user involvement: some explorations from a community mental health project', Health and Social Care in the Community, vol 10, no 3, pp 136-43.
30. Williams, M. (2004) 'Discursive democracy and New Labour: five ways in which decision-makers manage citizen agendas in public participation initiatives', Sociological Research Online, vol 9, no 3 (www.socresonline.org.uk/9/3/contents.html).