The trick of probabilities: Pregnant women's interpretations of maternal serum screening results in Japan

Nursing and Health Sciences

Volumn 10, Issue 1, 2008, Pages 23-30

  Yoshino, Mikiko Aoki ^a   Takahashi, Miyako ^b   Kai, Ichiro ^b  

^a MUSASHINO UNIVERSITY   (Japan)

^b UNIVERSITY OF TOKYO   (Japan)

Author keywords

Maternal serum screening; Probability interpretation; Qualitative research

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CONTROLLED STUDY; FALSE NEGATIVE RESULT; FEMALE; GROUNDED THEORY; HUMAN; JAPANESE; MATERNAL SERUM SCREENING; MEDICAL INFORMATION; PREGNANT WOMAN; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; PROBABILITY; RISK FACTOR; SCREENING TEST; SEMI STRUCTURED INTERVIEW;

ADULT; ATTITUDE TO HEALTH; FEMALE; HUMANS; INTERVIEWS AS TOPIC; JAPAN; MASS SCREENING; MATERNAL WELFARE; PERCEPTION; PERINATAL CARE; PILOT PROJECTS; PREGNANCY; QUALITATIVE RESEARCH;

EID: 38949185680     PISSN: 14410745     EISSN: 14422018     Source Type: Journal    
DOI: 10.1111/j.1442-2018.2007.00335.x     Document Type: Article

References (41)

1. American College of Obstetricians and Gynecologists. ACOG educational bulletin. Maternal serum screening. Number 228, September 1996 (replaces no. 154, April 1991). Committee on Educational Bulletins of the American College of Obstetricians and Gynecologists. Int. J. Gynaecol. Obstet. 1996; 55: 299-308.
2. Aoki M, Takahashi M, Kai I. Botai kessei maka kensa no jyukensha no jyukenriyuu ni kansuru sitsuteki kenkyuu. Nihon Bosei Eisei Gakkai Zasshi 2006; 46: 560-569.
3. Chiyo H. Nintei iden kaunsera no yousei to shikaku nintei ni kansuru kenkyuu. In: Furuyama J (ed.). Idenshi Iryou no Seibi ni Kansuru Kenkyuu. Tokyo: Kousei Roudou Kagaku Kenkyuuhi Hojyokin Kodomo Katei Sougou Kenkyuu Jigyou, 2005; 67-73.
4. Einhorn HJ, Hogarth RM. Behavioral decision theory: Processes of judgment and choice. Annu. Rev. Psychol. 1981; 32: 53-88.
5. Gardner RJ, Sutherland GR. Chromosome Abnormalities and Genetic Counseling. New York: Oxford University Press, 2004.
6. Gekas J, Gondry J, Mazur S, Cesbron P, Thepot F. Informed consent to serum screening for Down syndrome: Are women given adequate information? Prenat. Diagn. 1999; 19: 1-7.
7. General Medical Council. Seeking Patients' Consent: The Ethical Considerations. 1998. [Cited 12 Mar 2007.] Available from URL: http://www.gmc-uk.org/guidance/surrent/library/consent.asp.
8. Grimes DA, Snively GR. Patients' understanding of medical risks: implications for genetic counseling. Obstet. Gynecol. 1999; 93: 910-914.
9. Halpern DF, Blackman S. Magazines versus physicians: The influence of information source on intentions to use oral contraceptives. Women Health 1985; 10: 9-23.
10. Halpern DF, Blackman S, Salzman B. Using statistical risk information to assess oral contraceptive safety. Appl. Cogn. Psychol. 1989; 3: 251-260.
11. Hasegawa T. Shuseimae kensa no kouzai. Botai Kessei maka kensa ni kanshite. Rinshou Yakubutsu Chiryou 1998; 17: 56-59.
12. Iinuma K, Shimomura K. Botai kessei maka no seido kanri yobitekichousa 3 maka to 4 maka no hikaku. Nihon Sanfujinka Gakkai Tokyo Chihou Bukai Kaishi 2001; 50: 507-510.
13. Iinuma K, Shimomura K, Takeda O. Ninpu no nenrei nominiyoru daunshou yosokuti no fuseikakusa. Nihon Sanfujinka Gakkai Tokyo Chihou Bukai Kaishi 1999; 48: 106-109.
14. Lincoln Y, Guba E. Naturalistic Inquiry. Beverly Hills, CA: Sage, 1985.
15. Lippman A. Embodied knowledge and making sense of prenatal diagnosis. J. Genet. Couns. 1999; 8: 255-274.
16. Marteau TM, Saidi G, Goodburn S etal. Numbers or words? A randomized controlled trial of presenting screen negative results to pregnant women. Prenat. Diagn. 2000; 20: 714-718.
17. Ministry of Health, Labour and Welfare. Vital Statistics of Japan. 2002. [Cited 22 Oct 2007.] Available from URL: http://www.mhlw.go.jp/toukei/ saikin/hw/jinkou/geppo/nengai02/brth.html.
18. Ministry of Health, Labour and Welfare. Ethical Guidelines for Clinical Studies. 2003. [Cited 21 Jun 2007.] Available from URL: http://www.imcj.go.jp/rinri/main/03english.htm.
19. Ministry of Internal Affairs and Communications. Maternal Protection Law. 1948. [Cited 22 Oct 2007.] Available from URL: http://law.e-gov.go.jp/htmldata/S23/S23HO156.html.
20. Miyakawa K. Shuseimae kensa no moraru. Perineitaru Care 1998; 17: 214-222.
21. Miyamura T, Saito N, Touno A et al. Tashisetsu kyoudou kenkyuu niyoru honpou ni okeru ninpu kessei toriprumaka kijyunchi settei no kokoromi. Nihon Sanfujinka Gakkai Zasshi 1999; 51: 1042-1045.
22. Muller F, Forestier F, Dingeon B. Second trimester trisomy 21 maternal serum marker screening. Results of a countrywide study of 854902 patients. Prenat. Diagn. 2002; 22: 925-929.
23. Onda T, Kitagawa M, Iinuma K. Toripuru Maka Sukuriningu Kensa. Tokyo: Ishiyaku, 1999.
24. Onda T, Tanaka T, Takeda O et al. Agreement between predicted risk and prevalence of Down syndrome in second-trimester triple-marker screening in Japan. Prenat. Diagn. 1998; 18: 956-958.
25. Onda T, Tanaka T, Yoshida K et al. Triple marker screening for trisomy 21, trisomy 18 and open neural tube defects in singleton pregnancies of native Japanese pregnant women. J. Obstet. Gynaecol. Res. 2000; 26: 441-447.
26. Onda T, Wada S, Sugiura K et al. Botai kessei maka kensa ha nihonjin no daunshou nado no shindan ni yuuyousei ha aruka? Shusanki Igaku 2004; 35 (Suppl.): 68-73.
27. Palomaki GE, Knight GJ, McCarthy JE et al. Maternal serum screening for Down syndrome in the United States: A 1995 survey. Am. J. Obstet. Gynecol. 1997; 176: 1046-1051.
28. Pearn J. Decision-making and reproductive choice. In: Hsia YE (ed.). Counseling in Genetics. New York: Alan R. Liss, 1979; 223-238.
29. Press N, Browner CH. Why women say yes to prenatal diagnosis. Soc. Sci. Med. 1997; 45: 979-989.
30. Roelofsen EEC, Kamerbeek LI, Tymstra TJ. Chances and choices. Psycho-social consequences of maternal serum screening. A report from the Netherlands. J. Reprod. Infant Psychol. 1993; 11: 41-47.
31. Ryder IH. Prenatal screening for Down syndrome: A dilemma for the unsupported midwife?. Midwifery 1999; 15: 16-23.
32. Sago H, Suzumori K, Uehara S et al. Wagakuni ni okeru shuseimae shindan no doukou (1998-2002). Nihon Shuusanki Shinseiji Igakukai Zasshi 2005; 41: 561-564.
33. Shiloh S, Sagi M. Effect of framing on the perception of genetic recurrence risks. Am. J. Med. Genet. 1989; 33: 130-135.
34. Smith DK, Shaw RW, Marteau TM. Informed consent to undergo serum screening for Down's syndrome: The gap between policy and practice. BMJ 1994; 309: 776.
35. Strauss A, Corbin J. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. New York: Sage, 1990.
36. Takano T. Shuseimae shindan wo meguru kadai. Hoken no Kagaku 1999; 41: 202-206.
37. Terao T. Botai kessei maka kensa ni kansuru kenkai. Nihon Sanfujinka Gakkai Zasshi 1999; 51: 823-826.
38. UK National Screening Committee. Down's Syndrome Screening Programme. 2002. [Cited 13 Mar 2006.] Available from URL: http://www.screening.nhs.uk/downs/home.htm.
39. Williams C, Alderson P, Farsides B. Too many choices? Hospital and community staff reflect on the future of prenatal screening. Soc. Sci. Med. 2002a; 55: 743-753.
40. Williams C, Alderson P, Farsides B. Is non-directiveness possible within the context of antenatal screening and testing? Soc. Sci. Med. 2002b; 54: 339-347.
41. Yoshida K, Kuwabara Y, Tanaka T et al. Dimeric inhibin A as a fourth marker for Down's syndrome maternal serum screening in native Japanese women. J. Obstet. Gynaecol. Res. 2000; 26: 171-174.