Strategies and cost of recruitment of middle-aged and older unmarried women in a cancer screening study

Cancer Epidemiology Biomarkers and Prevention

Volumn 16, Issue 12, 2007, Pages 2605-2614

  Clark, Melissa A ^a   Neighbors, Charles J ^a   Wasserman, Melanie R ^a   Armstrong, Gene F ^a   Drnach, Melody L ^a   Howie, Stephanie L ^a   Hawthorne, Terri L ^a  

^a BROWN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CANCER SCREENING; COST; DISABILITY; EDUCATION; ETHNICITY; FEMALE; GENDER; HUMAN; INCOME; MAJOR CLINICAL STUDY; PRIORITY JOURNAL; RACE; SAMPLING; SELF REPORT; SINGLE WOMAN;

ADULT; AGED; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HETEROSEXUALITY; HOMOSEXUALITY, FEMALE; HUMANS; MARRIAGE; MASS SCREENING; MIDDLE AGED; NEOPLASMS; PATIENT SELECTION;

EID: 38849189224     PISSN: 10559965     EISSN: None     Source Type: Journal    
DOI: 10.1158/1055-9965.EPI-07-0157     Document Type: Article

References (59)

1. NIH. NIH Guidelines on the inclusion of women and minorities as subjects in clinical research. NIH Guide, Volume 23, Number 11, March 18, 1994. Available from http://grants.nih.gov/grants/guide/notice-files/not94-100.html. Accessed: 2007 Jul 23.
2. Yancey AK, Ortega AN, Kumanyika SK. Effective recruitment and retention of minority research participants. Annu Rev Public Health 2006;27:1-28.
3. Institute of Medicine. Lesbian health: current assessment and directions for the future. Washington (DC): National Academy Press; 1999.
4. Laumann EO, Gagnon JH, Michael RT, Michaels S. Homosexuality. In: Laumann EO, Gagnon JL, Michael RT, Michaels S, editors. The social organization of sexuality: sexual practices in the United States. Chicago (IL): University of Chicago Press; 1994. p. 283-320.
5. Valanis BG, Bowen DJ, Bassford T, Whitlock E, Charney P, Carter RA. Sexual orientation and health: comparisons in the women's health initiative sample. Arch Fam Med 2000;9:843-53.
6. Case P, Austin SB, Hunter DJ, et al. Disclosure of sexual orientation and behavior in the Nurses' Health Study II: results from a pilot study. J Homosex 2006;51:13-31.
7. Bowen DJ, Bradford J, Powers D. Comparing sexual minority status across sampling methods and populations. Women Health 2006;44:121-34.
8. Cochran SD, Mays VM, Bowen D, et al. Cancer-related risk indicators and preventive screening behaviors among lesbians and bisexual women. Am J Public Health 2001;91:591-7.
9. Dibble SL, Roberts SA, Nussey B. Comparing breast cancer risk between lesbians and their heterosexual sisters. Womens Health Issues 2004;14:60-8.
10. Wells BE, Bimbi DS, Tider D, Van Ora J, Parsons JT. Preventive health behaviors among lesbian and bisexually identified women. Women Health 2006;44:1-13.
11. White JC, Dull VT. Health risk factors and health-seeking behavior in lesbians. J Womens Health 1997;6:103-12.
12. Fish J, Anthony D. UK national lesbians and health care survey. Women Health 2005;41:27-45.
13. Rothblum ED, Factor R. Lesbians and their sisters as a control group: demographic and mental health factors. Psychol Sci 2001;12:63-9.
14. Grindel CG, McGehee LA, Patsdaughter CA, Roberts SJ. Cancer prevention and screening behaviors in lesbians. Women Health 2006;44:15-39.
15. Roberts SJ, Patsdaughter CA, Grindel CG, Tarmina MS. Health related behaviors and cancer screening of lesbians: results of the Boston Lesbian Health Project II. Women Health 2004;39:41-55.
16. Kalsbeek WD. Sampling minority groups in health surveys. Stat Med 2003;22:1527-49.
17. Sudman S, Kalton G. New developments in the sampling of special populations. Annu Rev Sociol 1986;12:401-29.
18. Centers for Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS). National Survey of Family Growth Cycle 6. Available from: http://www.cdc.gov/nchs/nsfg.htm. Last updated: 2002. Accessed 2007 Jul 23.
19. Centers for Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS). National Health and Nutrition Examination Survey Data, 1999+. Available from: http://www.cdc.gov/nchs/nhanes.htm. Last updated: 2003. Accessed 2007 Jul 23.
20. Gruskin E, Geiger AM, Gordon N, Ackerson L. Characteristics of nonrespondents to questions on sexual orientation and income in a HMO survey. J Gay Lesbian Med Assoc 2001;5:21-4.
21. Bowen DJ, Bradford JB, Powers D, et al. Comparing women of differing sexual orientations using population-based sampling. Women Health 2004;40:19-34.
22. Mills TC, Stall R, Pollack L, et al. Health-related characteristics of men who have sex with men: a comparison of those living in "gay ghettos" with those living elsewhere. Am J Public Health 2001;91:980-3.
23. Muhib FB, Lin LS, Stueve A, et al. A venue-based method for sampling hard-to-reach populations. Public Health Rep 2001;116 Suppl 1:S216-22.
24. Watters JK, Biernacki P. Targeted sampling: options for the study of hidden populations. Soc Probl 1989;36:416-30.
25. Heckathorn DD. Respondent-driven sampling: a new approach to the study of hidden populations. Soc Probl 1997;44:174-99.
26. Clark MA, Bonacore L, Wright SJ, Armstrong G, Rakowski W. The cancer screening project for women: experiences of women who partner with women and women who partner with men. Women Health 2003;38:19-33.
27. Drummond MF, O'Brien B, Stoddart GL, Torrance GW. Methods for the economic evaluation of health care programmes. New York: Oxford University Press; 1997.
28. Gold MR, Siegel J, Russell LB, Weinstein MC. Cost-effectiveness in health and medicine. New York: Oxford University Press; 1996.
29. Muenning P. Designing and conducting cost-effectiveness analyses in medicine and health care. San Francisco: Jossey-Bass; 2002.
30. Kaplan RS, Atkinson AA. Advanced management accounting. Upper Saddle River (NJ): Prentice Hall; 1998.
31. Hunt VD. Process mapping: how to reengineer your business process. New York: John Wiley and Sons; 1996.
32. U.S. Census Bureau. American Community Survey, 2003. Table PCT 013: Sex by marital status by age for the population 15 years and over. Available from: http://factfinder.census.gov/servlet/DTTable?_bm=y&-context=dt&-ds_name= ACS_2003_EST_G00_&-mt_name=ACS_2003_EST_G2000_PCT013&-CONTEXT= dt&-tree_id=4001&-redoLog=true&-all_geo_types=N&- currentselections=ACS_2003_EST_G2000_PCT013&-geo_id=04000US44&- search_results=01000US&-format=&-_lang=en. Last updated: 2004. Accessed 2006 Apr 19.
33. U.S. Census Bureau. Census 2000. SF dataset, Table PCT 14: Unmarried-partner households by sex of partners. Available from: http://factfinder.census.gov/servlet/DTTable?_bm=y&-context=dt&-ds_name= DEC_2000_SF1_U&-mt_name=DEC_2000_SF1_U_PCT014&-CONTEXT=dt&-tree_id= 4001&-all_geo_types=N&-geo_id=04000US44&-search_results= 01000US&-format=&-_lang=en. Accessed 2006 Apr 19.
34. Bureau of Labor Statistics. National occupational employment and wage estimates, May 2005: Social science research assistants. Available from: http://www.bls.gov/oes/2005/may/oes194061.htm. Last Updated: May 24, 2006. Accessed 2007 Apr 19.
35. Bureau of Labor Statistics. Employer costs for employee compensation-December 2005. Available from: http://www.bls.gov/ncs/ect/sp/ ecnr0064.pdf. Last Updated: March 14, 2006. Accessed 2007 Apr 19.
36. Keyzer JF, Melnikow J, Kuppermann M, et al. Recruitment strategies for minority participation: challenges and cost lessons from the POWER interview. Ethn Dis 2005;15:395-406.
37. Wilson KM, Orians CE. Considerations in recruiting underscreened women to focus groups on screening for cervical cancer. Health Promot Pract 2005;6:379-84.
38. Katula JA, Kritchevsky SB, Guralnik JM, et al. Lifestyle Interventions and Independence for Elders pilot study: recruitment and baseline characteristics. J Am Geriatr Soc 2007;55:674-83.
39. Harris KJ, Ahluwalia JS, Catley D, Okuyemi KS, Mayo MS, Resnicow K. Successful recruitment of minorities into clinical trials: The Kick It at Swope project. Nicotine Tob Res 2003;5:575-84.
40. McIntosh S, Ossip-Klein DJ, Spada J, Burton K. Recruitment strategies and success in a multi-county smoking cessation study. Nicotine Tob Res 2000;2:81-4.
41. Maurer BT, Moreno SI, Pickard AR, Wurst BE, Norden DK, Schumacher Jr HR. A comparison of recruitment methods for an osteoarthritis exercise study. Arthritis Care Res 1995;8:161-6.
42. Schoenfeld ER, Greene JM, Wu SY, O'Leary E, Forte F, Leske MC. Recruiting participants for community-based research: the Diabetic Retinopathy Awareness Program. Ann Epidemiol 2000;10:432-40.
43. Tarlow BA, Mahoney DF. The cost of recruiting Alzheimer's disease caregivers for research. J Aging Health 2000;12:490-510.
44. Shuhatovich OM, Sharman MP, Mirabal YN, Earle NR, Follen M, Basen-Engquist K. Participant recruitment and motivation for participation in optical technology for cervical cancer screening research trials. Gynecol Oncol 2005;99 Suppl 1:S226-31.
45. Davey R, Edwards SM, Cochrane T. Recruitment strategies for a clinical trial of community-based water therapy for osteoarthritis. Br J Gen Pract 2003;53:315-7.
46. Kennedy BM, Conlin PR, Ernst D, Reams P, Charleston JB, Appel LJ. Successfully recruiting a multicultural population: the DASH-Sodium experience. Ethn Dis 2005;15:123-9.
47. Brown CS, Mitchel JT. Recruiting patients for female sexual arousal disorder studies. J Sex Marital Ther 2001;27:443-51.
48. Fouad MN, Corbie-Smith G, Curb D, et al. Special populations recruitment for the Women's Health Initiative: successes and limitations. Control Clin Trials 2004;25:335-52.
49. Ford ME, Havstad SL, Davis SD. A randomized trial of recruitment methods for older African American men in the Prostate, Lung, Colorectal and Ovarian (PLCO) cancer screening trial. Clin Trials 2004;1:343-51.
50. Fuqua SR, Wyatt SB, Andrew ME, et al. Recruiting African-American research participation in the Jackson Heart Study: methods, response rates, and sample description. Ethn Dis 2005;15 Suppl 6:S18-29.
51. Gilliss CL, Lee KA, Gutierrez Y, et al. Recruitment and retention of healthy minority women into community-based longitudinal research. J Womens Health Gend Based Med 2001;10:77-85.
52. Blumenthal DS, Sung J, Coates R, Williams J, Liff J. Recruitment and retention of subjects for a longitudinal cancer prevention study in an inner-city black community. Health Serv Res 1995;30:197-205.
53. Resio MA, Baltch AL, Smith RP. Mass mailing and telephone contact were effective in recruiting veterans into an antibiotic treatment randomized clinical trial. J Clin Epidemiol 2004;57:1063-70.
54. Rudick C, Anthonisen NR, Manfreda J. Recruiting healthy participants for a large clinical trial. Control Clin Trials 1993;14 Suppl 1:S68-79.
55. McFarland LV, Reiber GE, Norman JE. Recruitment of Medicaid and dual-enrolled Medicare beneficiaries with diabetes mellitus into a randomized controlled trial. Am J Manag Care 2005;11:443-8.
56. Connett JE, Bjornson-Benson WM, Daniels K. Recruitment of participants in the Lung Health Study, II: assessment of recruiting strategies. Control Clin Trials 1993;14 Suppl 1:S38-51.
57. Unson CG, Ohannessian C, Kenyon L, Case A, Reisine S, Prestwood K. Barriers to eligibility and enrollment among older women in a clinical trial on osteoporosis: effects of ethnicity and SES. J Aging Health 2004;16:426-43.
58. Hollis JF, Satterfield S, Smith F, et al. Effective strategies and predictors of randomization. Trials of Hypertension Prevention (TOHP) Collaborative Research Group. Recruitment for phase II of the Trials of Hypertension Prevention. Ann Epidemiol 1995;5:140-8.
59. Rubin RR, Fujimoto WY, Marrero DG, et al. The Diabetes Prevention Program: recruitment methods and results. Control Clin Trials 2002;23:157-71.