How do officially organized services meet the needs of elderly caregivers and their spouses with Alzheimer's disease?

American Journal of Alzheimer's Disease and other Dementias

Volumn 22, Issue 5, 2007, Pages 360-368

  Raivio, Minna ^a,b,c   Eloniemi Sulkava, Ulla ^d   Laakkonen, Marja Liisa ^d   Saarenheimo, Marja ^d   Pietilä, Minna ^d   Tilvis, Reijo ^b,c   Pitkälä, Kaisu ^b,c  

^a Medical Center Hemo   (Finland)

^b UNIVERSITY OF HELSINKI   (Finland)

^c HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^d Vanhustyon keskusliitto   (Finland)

Author keywords

Alzheimer; Caregiver; Dementia; Needs; Services

Indexed keywords

ADULT; AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER; CLEANING; CONTROLLED STUDY; DEMOGRAPHY; FEMALE; FINANCIAL MANAGEMENT; GERIATRIC PATIENT; HEALTH CARE ORGANIZATION; HEALTH CARE SYSTEM; HUMAN; MALE; NURSING HOME; PHYSICAL DISABILITY; PHYSIOTHERAPY; QUESTIONNAIRE; SOCIAL BEHAVIOR; SPOUSE;

EID: 38649139876     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/1533317507305178     Document Type: Article

References (31)

1. Mittelman MS, Ferris SH, Shulman E., Steinberg G., Levin B.A. Family intervention to delay nursing home placement of patients with Alzheimer's disease. A randomized controlled trial. JAMA. 1996 ; 276: 1725-1731.
2. Dello Buono M, Busato R., Mazzetto M., et al. Community care for patients with Alzheimers' disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers. Int J Geriatr Psychiatry. 1999 ; 14: 915-924.
3. Eloniemi-Sulkava U., Notkola IL, Hentinen M., Kivela SL, Sivenius J., Sulkava R. Effects of supporting community-living demented patients and their caregivers: a randomized trial. J Am Geriatr Soc. 2001 ; 49: 1282-1287.
4. Toseland RW, McCallion P., Gerber T., Banks S. Predictors of health and human services use by persons with dementia and their family caregivers. Soc Sci Med. 2002 ; 55: 1255-1266.
5. Zarit SH, Leitsch SA Developing and evaluating community based intervention programs for Alzheimers' patients and their caregivers. Aging Ment Health. 2001 ; 5 (suppl 1). S84 - S98.
6. Ganzer C., England SE Alzheimer's care and service utilization: generating practice concepts from empirical findings and narratives. Health Soc Work. 1994 ; 19: 174-181.
7. Nankervis J., Schofield H., Herrman H., Bloch S. Home-based assessment for family carers: a preventative strategy to identify and meet service needs. Int J Geriatr Psychiatry. 1997 ; 12: 193-201.
8. MaloneBeach EE, Zarit SH, Spore DL Caregivers' perceptions of case management and community-based services: barriers to service use. J Appl Gerontol. 1992 ; 11: 146-159.
9. Saarenheimo M. Exploring the borderlines of family caregiving in finland. In: Paoletti I, ed. Family Caregiving for Older Disabled People: Relational and Institutional Issues. New York, NY: Nova Science Publishers ; 2007: 333-357.
10. Philp I., McKee KJ, Meldrum P., et al. Community care for demented and non-demented elderly people: a comparison study of financial burden, service use, and unmet needs in family supporters. BMJ. 1995 ; 310: 1503-1506.
11. Schneider J., Murray J., Banerjee S., Mann A. EURO-CARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: I-factors associated with carer burden. Int J Geriatr Psychiatry. 1999 ; 14: 651-661.
12. Gaugler JE, Kane RL, Kane RA, Newcomer R. Early community-based service utilization and its effects on institutionalization in dementia caregiving. Gerontologist. 2005 ; 45: 177-185.
13. Gaugler JE, Kane RL, Kane RA, Newcomer R. Unmet care needs and key outcomes in dementia. J Am Geriatr Soc. 2005 ; 53: 2098-2105.
14. Folstein MF, Folstein SE, McHugh PR Mini-mental state. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975 ; 12: 189-198.
15. Pitkala KH, Valvanne J., Kulp S., Strandberg TE, Tilvis RS Secular trends in self-reported functioning, need for assistance and attitudes towards life: 10-year differences of three older cohorts. J Am Geriatr Soc. 2001 ; 49: 596-600.
16. Routasalo PE, Savikko N., Tilvis S., Strandberg TE, Pitkälä KH Social contacts and their relationship to loneliness among aged people-a population-based study. Gerontology. 2006 ; 52: 181-187.
17. Savikko N., Routasalo P., Tilvis RS, Strandberg TE, Pitkala KH Predictors and subjective causes of loneliness in an aged population. Arch Gerontol Geriatr. 2005 ; 41: 223-233.
18. Cummings JL, Mega M., Gray K., Rosenberg - Thompson S, Carusi DA, Gornbein J. The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology. 1994 ; 44: 2308-2314.
19. Andersen R. Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav. 1995 ; 36: 1-10.
20. Bradley EH, McGraw SA, Curry L., et al. Expanding the Andersen model: the role of psychosocial factors in long-term care use. Health Serv Res. 2002 ; 37: 1221-1242.
21. Hope T., Keene J., Gedling K., Fairburn CG, Jacoby R. Predictors of institutionalization for people with dementia living at home with a carer. Int J Geriatr Psychiatry. 1998 ; 13: 682-690.
22. Pot AM, Deeg DJ, Knipscheer CP Institutionalization of demented elderly: the role of caregiver characteristics. Int J Geriatr Psychiatry. 2001 ; 16: 273-280.
23. Thomas P., Lalloue F., Preux PM, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry. 2006 ; 21: 50-56.
24. Lyketsos CG, Lopez O., Jones B., Fitzpatrick AL, Breitner J., DeKosky S. Prevalence of neuropsychiatric symptoms in dementia and mild cognitive impairment: results from the cardiovascular health study. JAMA. 2002 ; 288: 1475-1483.
25. Engelborghs S., Maertens K., Nagels G., et al. Neuropsychiatric symptoms of dementia: cross-sectional analysis from a prospective, longitudinal Belgian study. Int J Geriatr Psychiatry. 2005 ; 20: 1028-1037.
26. Fuh JL, Wang SJ, Cummings JL Neuropsychiatric profiles in patients with Alzheimer's disease and vascular dementia. J Neurol Neurosurg Psychiatr. 2005 ; 76: 1337-1341.
27. Gilley DW, Bienias JL, Wilson RS, Bennett DA, Beck TL, Evans DA Influence of behavioral symptoms on rates of institutionalization for persons with Alzheimer's disease. Psychol Med. 2004 ; 34: 1129-1135.
28. De Vugt ME, Stevens F., Aalten P., Lousberg R., Jaspers N., Verhey FR A prospective study of the effects of behavioral symptoms on the institutionalization of patients with dementia. Int Psychogeriatr. 2005 ; 17: 577-589.
29. Gordon DS, Carter H., Scott S. Profiling the care needs of the population with dementia: a survey in central Scotland. Int J Geriatr Psychiatry. 1997 ; 12: 753-759.
30. Prescop KL, Dodge HH, Morycz RK, Schulz RM, Ganguli M. Elders with dementia living in the community with and without caregivers: an epidemiological study. Int Psychogeriatr. 1999 ; 11: 235-250.
31. Viramo P., Sulkava R. Epidemiology in memory disorders and dementia. In: Erkinjuntti T, Alhainen K, Rinne J et al, eds. Memory Disorders and Dementia [in Finnish]. 2 nd ed. Helsinki, Finland: Duodecim. 2006: 23-39.