The development and translation of a treatment-specific quality of life questionnaire for adult patients on home parenteral nutrition

e-SPEN

Volumn 3, Issue 1, 2008, Pages

  Baxter, Janet P ^a   Fayers, Peter M ^b,c   McKinlay, Alastair W ^d  

^a UNIVERSITY OF DUNDEE   (United Kingdom)

^b UNIVERSITY OF ABERDEEN   (United Kingdom)

^c NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^d ABERDEEN ROYAL INFIRMARY   (United Kingdom)

Author keywords

Home parenteral nutrition; Parenteral nutrition; Quality of life; Questionnaire; Translation

Indexed keywords

ARTICLE; HEALTH CARE PERSONNEL; HOME CARE; HUMAN; LANGUAGE; METHODOLOGY; PARENTERAL NUTRITION; PRACTICE GUIDELINE; PUBLICATION; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SEMI STRUCTURED INTERVIEW;

EID: 38549144828     PISSN: 17514991     EISSN: 17514991     Source Type: Journal    
DOI: 10.1016/j.eclnm.2007.10.001     Document Type: Article

References (16)

1. Dudrick S.J., Wilmore D.W., Vars H.M., and Rhoads J.E. Can intravenous feeding as the sole source of nutrition support growth in the child and restore weight loss in an adult? An affirmative answer. Ann Surg 169 (1969) 974-984
2. Dudrick S.J., Wilmore D.W., Vars H.M., and Rhoads J.E. Long-term parenteral nutrition with growth, development, and positive nitrogen balance. Surgery 64 (1968) 134-142
3. Broviac J.W., and Scribner B.H. Prolonged parenteral nutrition at home. Surg Gynaecol Obstet 139 (1974) 24-28
4. Baxter J.P., and McKee R.F. Organisation of managed clinical networks for home parenteral nutrition. Curr Opin Clin Nutr Metab Care 9 3 (2006) 270-275
5. Jones BJM, editor. Trends in Artificial Nutrition Support in the UK 2000-2003. BAPEN, Secure Hold Business Centre, Studley Road, Redditch, Worcestershire, B98 7LG; 2005.
6. Baxter J.P., Fayers P.M., and McKinlay A.W. A review of the instruments used to assess quality of life of adult patients with chronic intestinal failure receiving parenteral nutrition at home. Br J Nutr 94 (2005) 633-638
7. Baxter J.P., Fayers P.M., and McKinlay A.W. A review of the quality of life of adult patients treated with long-term parenteral nutrition. Clin Nutr 25 (2006) 543-553
8. Winkler M.F. Quality of life in adult home parenteral nutrition patients. JPEN J Parenter Enteral Nutr 29 3 (May-Jun 2005) 162-170
9. McColl E., Jacoby A., Thomas L., Soutter J., Bamford C., Steen N., et al. Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients. Health Technol Assess 5 (2001) 31
10. Blazeby J., Sprangers M., Cull A., Groenvold M., and Bottomley A. EORTC Quality of Life Group. Guidelines for developing Questionnaire Modules. 3rd ed. (2002), EORTC, Brussels
11. McColl E. Developing questionnaires. In: Fayers P.M., and Hays (Eds). Assessing quality of life (2004), Oxford University Press
12. Fayers P.M., Aaronson N., Bjordal K., Groenvold M., Curran D., and Bottomley A. EORTC quality of life group. EORTC QLQ-C30 Scoring Manual. 3rd ed. (2001), EORTC, Brussels
13. The Scottish home parenteral nutrition clinical standards for home parenteral nutrition. Available from: (2002). www.shpnmcn.scot.nhs.uk
14. Cull A., Sprangers M., Bjordal K., Aaronson N., West K., and Bottomley A. EORTC Quality of Life group translation procedures. 3rd ed. (2002), EORTC, Brussels
15. McRitchie K.J. Life without eating or drinking. Can Psychiatr Assoc J 23 (1978) 373-378
16. Rovera G.M., DiMartini A., Graham T.O., Hutson W.R., Furukawa H., Todo S., et al. Quality of life after intestinal transplantation and on total parenteral nutrition. Transplant Proc 30 (1998) 2513-2514