Using the senses framework to achieve relationship-centred dementia care services: A case example

Dementia

Volumn 7, Issue 1, 2008, Pages 71-93

  Ryan, Tony ^a   Nolan, Mike ^b   Reid, David ^b,c   Enderby, Pam ^b,d  

^a SHEFFIELD HALLAM UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

^c ALZHEIMER'S SOCIETY   (United Kingdom)

^d UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Relationship centred care; Respite care

Indexed keywords

EID: 38549130211     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301207085368     Document Type: Article

References (77)

1. Adams, T., & Gardiner, P. (2005). Developing a theory for relationship-centred care. Dementia, 4 (2), 185-205.
2. Allan, K. (2001). Communication and consultation: Exploring ways for staff to involve people with dementia in developing services. Bristol: Joseph Rowntree Foundation and the Policy Press.
3. Arksey, H., Jackson, K., Crouchert, K., Weatherly, H., Golder, S., Hare, P., et al. (2004). Review of respite services and short-term breaks for carers for people with dementia. Report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R&D (NCCSDO).
4. Audit Commission (2000). Forget me not: Mental health services for older people. London: Audit Commission.
5. Audit Commission (2004). Support for carers of older people. London: Audit Commission Retrieved (August 2006) from www.audit-commission.gov.uk.
6. Bamford, L., & Bruce, E. (2000). Defining the outcomes of community care: The perspectives of older people with dementia and their carers. Ageing and Society, 20 (5), 543-570.
7. Bear, M., Griffin, R., Saver, M., & Milspaugh, C. (1999). Measuring client satisfaction with home-based respite services. American Journal of Alzheimer's Disease, 14 (6), 357-363.
8. Beisecker, A.E., Wright, L.J., Chrisman, S.K., & Ashworth, J. (1996). Family caregiver perceptions of benefits and barriers to the use of adult day care for individuals with Alzheimer's Disease. Research on Aging, 18 (4), 430-450.
9. Bond, J., & Corner, L. (2001). Researching dementia: Are their unique methodological challenges for health services research? Ageing and Society, 21 (1), 95-116.
10. Braithwaite, V. (2000). Contextual or generic stress outcomes: Making choices through caregiving appraisals. The Gerontologist, 40 (6), 706-717.
11. Briggs, K., & Askham, J. (1998). The needs of older people with dementia and those who care for them. London: Alzheimer's Disease Society.
12. Brodaty, H., Thomson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss use services. International Journal of Geriatric Psychiatry, 20 (6), 537-546.
13. Brooker, D. (2004). What is person-centred care in dementia? Reviews in Clinical Gerontology, 13, 215-222.
14. Clarke, C.L. (1999). Dementia care partnerships: Knowledge, ownership and exchange. In T. Adams & C.L. Clarke (Eds.), Dementia care: Developing partnerships in practice (pp. 5-35). London: Ballière Tindall.
15. Clyburn, L.D., Stones, M.J., Hadjistauropoulous, T., & Tuckko, H. (2000). Predicting caregiver burden and depression in Alzheimer's disease. Journal of Gertonology (Social Sciences), SSB (1), S2-S13.
16. Cohen-Mansfield, J., Besansky, J., Watson, V., & Bernhard, L.J. (1994). Underutilization of adult day care: An exploratory study. Journal of Gerontological Social Work, 22 (1/2), 21-39.
17. Cotrell, V., & Engel, R.J. (1998). The role of secondary supports in mediating formal services to dementia caregivers. Journal of Gerontological Social Work, 30 (3/4), 117-132.
18. Davies, S., Nolan, M.R., Brown, J., & Wilson, F. (1999). Dignity on the ward: Promoting excellence in care. London: Help the Aged.
19. Department of Health (2000). Quality standards for carer support services. London: The Stationery Office.
20. Frost, P. (1990). Short-term care in East Sussex: A study of the experience and needs of carers for the East Sussex Care for Carers Council. Brighton: Community Studies Department, Brighton Polytechnic.
21. Hanson, E., Nolan, J., Magnusson, L., Sennemark, E., Johansson, L., & Nolan, M.R. (2006). COAT: The Carers Outcome Agreement Tool: A new approach to working with family carers. Getting Research into Practice (GRIP) Report No 1, University of Sheffield, UK.
22. Jansson, W., Almberg, B., Grafström, M., & Winblad, B. (1998). The circle model: Support for relatives of people with dementia. International Journal of Geriatric Psychiatry, 13, 674-81.
23. Jennings, B. (1999). A life greater than the sum of its sensations: Ethics, dementia and quality of life. Journal of Mental Health and Aging, 5 (1), 95-111.
24. Jewson, N., Jeffers, S., & Kalra, V. (2003). Family care, respite services and Asian communities in Leicester. Leicester: Elderly Research Centre, University of Leicester.
25. Josephsson, S., Bäckman, L., Nygärd, L., & Borrell, L. (2000). Non-professional caregivers' experience of occupation performance on the part of relatives with dementia: Implications for caregiver programmes in occupational therapy. Scandinavian Journal of Occupational Therapy, 7, 61-66.
26. Kadzin, A.E. (1999). The meanings and measurement of clinical significance. Journal of Consulting and Clinical Psychology, 67, 332-339.
27. Karner, T., & Hall, L. (2002). Successful strategies for serving diverse populations. Home Health Care Services Quarterly, 21 (3/4), 107-131.
28. Kitwood, T. (1997a). Personhood, dementia and dementia care. In S. Hunter (Ed.), Dementia: Challenges and new directions (pp. 9-23). London: Jessica Kingsley.
29. Kitwood, T. (1997b). The concept of personhood and its relevance for a new culture of dementia care. In B.M.L. Miesen & G.M.M. Jones (Eds.), Caregiving in dementia: Research and applications, Vol. 2 (pp. 3-13). London: Routledge.
30. Kitwood, T. (1997c). Dementia reconsidered: The person comes first. Buckingham: Open University Press.
31. Levin, E., Moriarty, J., & Gorback, P. (1994). Better for the break. London: HMSO.
32. Longshaw, S., & Perks, A. (2000). Respite care innovations for carers of people with dementia. British Journal Nursing, 9 (6), 1079-1081.
33. Loveday, B., & Kitwood, T. (1998). Improving dementia care. London: Hawker Publications.
34. Lowenstein, A., & Ogg, J. (Eds.). (2003). Old age and autonomy: The role of service systems and integrated family solidarity. Final report. Haija, Israel: Centre for Research and Study of Aging.
35. Mestheneos, E., & Triantafillou, J. (2005). Supporting family carers of older people in Europe - The Pan-European Background Report. Münster: Lit Verlag.
36. Montgomery, R.J.V. (2002). Introduction: A new look at community-based respite programs: Utilization, satisfaction and development. New York: Howarth Press.
37. Montgomery, R.J.V., & Kosloski, K.D. (2000). Family caregiving: Change, continuity and diversity. In M.P. Lawton & R.L. Rubestein (Eds.), Interventions in dementia care: Towards improving quality of life (pp. 143-171). New York: Springer.
38. Montgomery, R.J.V., Kosloski, K., Karner, T.Y., & Schaefer, J.P. (2002). Initial findings from the evaluation of Alzheimer's disease grants to state programs. In R.J.V. Montgomery (Ed.), A new look at community-based respite programs: Utilization, satisfaction and development (pp. 1-4). New York: Howarth Press.
39. Montgomery, R.J.V., Marquis, J., Schaefer, J.P., & Kosloski, K. (2002). Profiles of respite use. In R.J.V. Montgomery (Ed.), A new look at community-based respite programs: Utilization, satisfaction and development (pp. 33-64). New York: Howarth Press.
40. Moriarity, J., & Webb, S. (2000). Part of their lives: Community care for older people with dementia. London: Policy Press.
41. Nies, H. (2004a). Integrated care: Concepts and background. In Integrated services for older people: A resource book for managers (pp. 17-31). European Centre for Social Welfare Policy and Research. Retrieved (August 2006) from www.euro.centre.org/procare/
42. Nies, H. (2004 b). A European research agenda on integrated care for older people (on behalf of the CARMEN Network). Dublin: European Health Management Association.
43. Nolan, M.R. (1997). Health and social care: What the future holds for nursing. Keynote address at Third Royal College of Nursing Older Person European Conference and Exhibition, Harrogate.
44. Nolan, M.R., Davies, S., & Grant, G. (Eds.). (2001). Working with older people and their families: Key issues in policy and practice. Buckingham: Open University Press.
45. Nolan, M.R., Davies, S., Brown, J., Keady, J., & Nolan, J. (2004). Beyond 'personcentred' care: A new vision for gerontological nursing. International Journal of Older People Nursing, 13 (3a), 45-53.
46. Nolan, M.R., & Grant, G. (1992). Regular respite: An evaluation of a hospital rota bed scheme for elderly people. Age Concern Institute of Gerontology Research Papers Series No. 6. London: Ace Books.
47. Nolan, M.R., Grant, G., & Keady, J. (1996). Understanding family care: A multidimensional model of caring and coping. Buckingham: Open University Press.
48. Nolan, M.R., Lundh, U., Grant, G., & Keady, J. (Eds.). (2003). Partnerships in family care: Understanding the caregiving career. Maidenhead: Open University Press.
49. Nolan, M.R., Ryan, T., Enderby, P., & Reid, D. (2002). Towards a more inclusive vision of dementia care practice and research. Dementia: The International Journal of Social Research and Practice, 1 (2), 193-211.
50. Packer, T. (1999). Attitudes towards dementia care: Education and morale in health care teams. In T. Adams & C.L. Clarke (Eds.), Dementia care: Developing partnerships in practice (pp. 325-349). London: Baillière Tindall.
51. Parahoo, K., Campbell, A., & Scoltook, C. (2002). An evaluation of domically respite services for younger people with dementia. Journal of Evaluation in Clinical Practice, 8 (4), 377-385.
52. Perks, A., Nolan, M.R., Ryan, T., Enderby, P., Hemmings, I., & Robinson, K. (2001). Breaking the mould: Developing a new service for people with dementia and their carers. Quality in Ageing - Policy, practice and research, 2 (1), 3-11.
53. Phillips, J. (2003). The role of formal and family support in the care of older people on the family and the health system: A cost-raising or cost-reducing factor? Annual seminar of the European Observatory on the Social Situation, Demography and Family, Tutzing, Germany. Vienna: Austrian Institute for Family Studies.
54. Pickard, S. (1999). Coordinated care for older people with dementia. Journal of Interprofessional Care, 13 (4), 345-354.
55. Post, S.G. (2001a). Comments on research in the social sciences pertaining to Alzheimer's disease: A more humble approach. Aging and Mental Health, 5 (1), S17-S19.
56. Post, S.G. (2001b). Quality of life and quality of lives in dementia care: Review essay. Gerontologist, 41 (1), 139-140.
57. Reid, D., Ryan, T., & Enderby, P.M. (2001). What does it mean to listen to the person with AD? Disability and Society, 16 (3), 377-392.
58. Rhodes, D.R., & McFarland, K.F. (2000). Purpose in life and self-actualization in agency-supported caregivers. Community Mental Health Journal, 36 (5), 513-521.
59. Ryan, T., Nolan, M., Enderby, P., & Reid, D. (2004). 'Part of the family': Sources of job satisfaction amongst a group of community based dementia care workers. Health and Social Care in the Community, 12 (2), 111-118.
60. Ryan, T., Nolan, M.R., Reid, D., & Enderby, P. (2002). 'You fetch me to all the right places': An evaluation of the Community Dementia Support Service. Report to Community Health Sheffield, Sheffield: University, UK.
61. Ryan, T., Reid, D., & Enderby, P. (2000). Strategic review of services for carers of people with dementia. Research report, School of Health and Related Research, University of Sheffield, UK.
62. Schulz, R. (2001). Some critical issues in caregiver intervention research. Aging and Mental Health, 5 (1), S112-S115.
63. Schulz, R., O'Brien, A., Czaja, S., Ory, M., Norris, R., Martie, L.M., et al. (2002). Dementia caregiver intervention research: In search of clinical significance. The Gerontologist, 42 (5), 589-602.
64. Schumacher, K.L., Stewart, B.J., Archbold, P.G., Dodd, M.J., & Dibble, S.L. (1998). Family caregiving skill: Development of the concept. Image: Journal of Nursing Scholarship, 30 (1), 63-70.
65. Sheard, D. (2004). Bringing relationships into the heart of dementia care. Journal of Dementia Care, 12 (4): 22-24.
66. Sifton, C.B. (2000). Maximising the functional abilities of persons with Alzheimer's Disease and related disorders. In M.P. Lawton and R.L. Rubenstein (Eds.), Interventions in dementia care: Towards improving quality of life (pp. 11-37). New York: Springer.
67. Starns, M.K. (2002). Comment on the utility of the ADDGS evaluation for policy and practice. Home Health Care Service Quarterly, 21 (3-4), 133-139.
68. Starns, M.K., Karner, T.X., & Montgomery, R.J.V. (2002). Exemplars of successful Alzheimer's demonstration projects. Home Health Service Quarterly, 21 (3-4), 141-175.
69. Stone, R. (2001). Home and community based care: Towards a caring paradigm. In L.E. Cluff & R.H. Binstock (Eds.), The lost art of caring: A challenge to health professionals, families, communities and society (pp. 153-177). Baltimore, MD: Johns Hopkins University Press.
70. Strang, V.R., & Haughey, M. (1998). Factors influencing the caregivers' ability to experience respite. Journal of Family Nursing, 3, 231-254.
71. Toseland, R.W., McCallion, P., Gerber, T., & Banks, S. (2002). Predicators of health and human sciences use by persons with dementia and their family caregivers. Social Science and Medicine, 55, 1255-1266.
72. Townsend, D., & Kosloski, K. (2002). Factors related to client satisfaction with community-based respite services. Health Care Service Quarterly, 21 (3-4), 89-106.
73. Tresolini, C.P., & The Pew-Fetzer Task Force (1994). Health professions education and relationship-centered care: A report of the Pew-Fetzer Task Force on advancing psychosocial education. San Francisco, CA: Pew Health Professions Commission.
74. Weightman, G. (1999). A real break: A guidebook for good practice in the provision of short-term breaks as a support for care in the community. London: Department of Health.
75. Woods, R.T., Wills, W., Higginson, I.J., Hobbins, J., & Whitby, M. (2003). Support in the community for people with dementia and their carers, a comparative outcome study of specialist mental health inventions. International Journal of Geriatric Psychiatry, 18 (4), 298-307.
76. Zarit, S.H., Gaugler, J.E., & Jarrott, S.E. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14, 165-177.
77. Zarit, S.H., & Leitsch, S.A. (2001). Developing and evaluating community based intervention programes for Alzheimer's patients and their caregivers. Aging and Mental Health, 5 (1), S84-S98.