Special considerations in conducting bereavement focus groups

Omega: Journal of Death and Dying

Volumn 56, Issue 3, 2007, Pages 255-271

  Briller, Sherylyn H ^a   Schim, Stephanie Myers ^a   Meert, Kathleen L ^a   Thurston, Celia S ^b  

^a WAYNE STATE UNIVERSITY   (United States)

^b CHILDREN'S HOSPITAL OF MICHIGAN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATTITUDE TO DEATH; BEREAVEMENT; CLINICAL COMPETENCE; ETHICS; GROUP PROCESS; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; METHODOLOGY; PERSONNEL; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RESEARCH ETHICS; VULNERABLE POPULATION;

ATTITUDE TO DEATH; BEREAVEMENT; CLINICAL COMPETENCE; ETHICS, RESEARCH; FOCUS GROUPS; GROUP PROCESSES; HUMANS; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; RESEARCH DESIGN; RESEARCH PERSONNEL; VULNERABLE POPULATIONS;

EID: 38049136679     PISSN: 00302228     EISSN: 15413764     Source Type: Journal    
DOI: 10.2190/OM.56.3.c     Document Type: Article

References (44)

1. Bader, G. E., & Rossi, C. A. (2002). Focus groups: A step-by-step guide (3rd ed.), San Diego, CA: Bader Group.
2. Barbour, R. S., & Schostak, J. (2005). Interviewing and focus groups. In B. Somekh & C. Levin (Eds.), Research methods in the social sciences (pp. 41-48). Thousand Oaks, CA: Sage.
3. Bernard. R. H. (2006). Research methods in anthropology: Qualitative and quantitative approaches (4th ed.). Lanham, MD: Altamira Press.
4. Bridging Work Group, (2005). Bridging the gap between research and practice in bereavement: Report from the Center for the Advancement of Health. Death Studies, 29, 93-122.
5. Bystedt, J. (2003). Moderating to the max: A full-tilt guide to creative insightful focus groups and depth interviews. Ithaca, NY: Paramount Market.
6. Christ, G. H., & Sormanti, M. (1999). Advancing social work practice in end-of-life care. Social Work in Health Care, 30(2), 81-99.
7. Earle, C. C., Park, E. R., Lai, B., Weeks, J. C., Ayanian, J. Z., & Block, S. (2003). Identifying potential indicators of the quality of end-of-life cancer care from administrative data. Journal of Clinical Oncology, 21(6), 1133-1138.
8. Exley, C., & Tyrer, F. (2005). Bereaved carers views of a hospice at home service. International Journal of Palliative Nursing, 11(5), 242-246.
9. Field, M. J., & Behrman, R. E. (Eds.). (2003). When children die: Improving palliative and end-of-life care for children and their families (pp, 66-68). Washington, DC: National Academy Press.
10. Field, M. J., & Cassel, C. K. (Eds.). (1997). Approaching death: Improving care at the end of life. Washington, DC: National Academy Press.
11. Fielding, N. G. (2003). Interviewing. Thousand Oaks, CA: Sage.
12. Fingerson, L. (2005). 'Yeah, me too!': Adolescent talk building in group interviews. Sociological Studies of Children and Youth, 11, 261-287.
13. Fins, J. (2005). A palliative ethic of care: Clinical wisdom at life's end. Boston, MA: Jones & Bartlett.
14. Frank, A. W. (1995). The wounded storyteller: Body, illness and ethics. Chicago, IL: University of Chicago Press.
15. Hesse-Biber, S. N., & Leavy, P. L. (2005). The practice of qualitative research. Thousand Oaks, CA: Sage.
16. Higgins, C. (1988). Youth motivation: At-risk youth talk to program planners. Philadelphia, PA: Public/Private Ventures report.
17. Hill, S. (2004). Doing collaborative research: Doing what feels right and makes sense. International Journal of Social Research Methodology, 7(2), 109-126.
18. Honkatukia, P., Nyqvist, L., & Poso, T. (2003). Sensitive issues in vulnerable conditions: Studying violence in youth residential care. Young, 11(4), 323-339.
19. Hudson, P., Arnada, S., & McMurray, N. (2002). Intervention development for enhanced lay palliative caregiver support - The use of focus groups. European Journal for Cancer Care, 11, 262-270.
20. Kleespies, P. M. (2003), Life and death decisions: Psychological and ethical considerations in end-of-life care. Washington, DC: American Psychological Association,
21. Kumar, R. (2005). Research methodology (2nd ed.). Thousand Oaks, CA: Sage.
22. Main, J. (2002). Management of relatives of patients who are dying. Journal of Clinical Nursing, 11, 794-801.
23. Meert, K. L., Thurston, C. S., & Briller, S. H. (2005). The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: A qualitative study. Pediatric Critical Care Medicine, 6(4), 420-427.
24. Meijler, W. J., Van Heest, F., Otter, R., & Sleijfer, D. (2005). Educational needs of general practitioners in palliative care: Outcome of a focus goup study. Journal of Cancer Education, 20(1), 28-33.
25. Morgan, D. L., & Krueger, R. A. (1997). The focus group kit (Vols. 1-6). Thousand Oaks, CA: Sage.
26. Morrow, E. (1997). Attitudes of women from vulnerable populations towards physician assisted death: A qualitative approach. The Journal of Clinical Ethics, 8(3), 279-289.
27. Morse, J. M., & Richards, L. (.2002). README FIRST for a user's guide to qualitative methods. Thousand Oaks, CA: Sage.
28. Munro, E. R., Holmes, L., & Ward, H. (2005). Researching vulnerable groups: Ethical issues and the effective conduct of research in local authorities. British Journal of Social Work, 35(7), 1023-1038.
29. Murdaugh, C., Hunt S., Sowell, R., & Santana, I. (2004). Domestic violence in Hispanics in the southeastern United States: A survey and needs analysis. Journal of Family Violence, 19(2), 107-115.
30. Murray, S. A., Boyd, K., Kendall, M., Worth, A., Benton, T. F., & Clausen, H. (2002). Dying of lung cancer and cardiac failure: Prospective qualitative interview study of patients and their caters in the community. British Medical Journal, 325, 929-932.
31. National Bioethics Advisory Commission. (2001). Ethical and policy issues in research involving human participants (Vol, 1). Bethesda, MD: Author.
32. National Institutes of Health. (2006). HIPAA privacy rule. Information for researchers. Retrieved August 25, 2006 from http://www.privacyruleandresearch.nih.gov/pr_08.asp#83
33. Owen, S. (2001) The practical, methodological and ethical dilemmas of conducting focus groups with vulnerable clients. Journal of Advanced Nursing, 36(5), 652-658.
34. Puchta, C., & Potter, J. (2004). Focus group practice. Thousand Oaks, CA: Sage.
35. Richards, L. (2005). Handling qualitative data: A practical guide. Thousand Oaks, CA: Sage.
36. Schim, S. M., Briller, S. H. Thurston, C. S., & Meert, K. L. (2007). Life as death scholars: Passion, personality and professional perspectives. Death Studies, 31, 1-8.
37. Seymour, J., Bellamy, G., Gott, M., Ahmedzai, S. H., & Clark, D. (2002). Using focus groups to explore older people's attitudes to end of life care. Ageing & Society, 22, 517-526.
38. Shield, R. R., & Aronson, S. M. (2003). Aging in today's world. New York: Berghahn.
39. Spall, B., Read, S., & Chantry, D. (2001). Metaphor: Exploning the origins and therapeutic use in death, dying, and bereavement. International Journal of Palliative Nursing, 7(7), 345-353.
40. Stanton, B. F., Black, M., Kaljee, L., & Ricardo, I. (1993). Perceptions of sexual behavior among urban early adolescents. Journal of Early Adolescence, 13(1), 44-66.
41. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., & Tulsky, J. A. (2000). Factors considered irnportant at the end of life by patients, family, physicians and other care providers. Journal of the American Medical Association. 284(19), 2476-2482.
42. Stewart, D. W., Shamdasani, P. N., & Rook, D. W. (2006). Focus groups: Theory and practice (2nd ed.). Thousand Oaks, CA: Sage.
43. Teno, J. M., Casey, V. A., Welch, L. C., & Edgman-Levitan, S. (2001), Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. Journal of Pain and Symptom Management, 22(3), 738-751.
44. Turner, W. L, Wallace, B. R., Anderson, J. R., & Bird, C. (2004). The last mile of the way: Understanding caregiving in African American families at the end of life. Journal of Marital and Family Therapy, 30(4), 427-438.