The road to empowerment: A historical perspective on the medicalization of disability

Journal of Health and Human Services Administration

Volumn 30, Issue 3, 2007, Pages 352-377

  Hayes, Jeanne ^a   Hannold, Elizabeth M ^b  

^a UNIVERSITY OF KANSAS SCHOOL OF MEDICINE   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 37349049946     PISSN: 10793739     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (65)

1. Asch, A. & Fine, M. (1992). Beyond Pedestals: Revisiting the Lives of Women with Disabilities, Pp. 139-174 in Disrupting Voices. Michelle Fine (Ed.). Ann Arbor: The University of Michigan Press.
2. Aleksiuk, M. (1996). Power therapy: Maximizing health through self-efficacy. (1st ed.) Seattle: Hogrefe & Huber Publishers.
3. Armstrong, D. (1983). Political Anatomy of the Body - Medical Knowledge in Britain in the Twentieth Century. Cambridge University Press.
4. Barnartt, S., Schriner, K., & Scotch, R. (2001). Advocacy and political action. In G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 430-449). Thousand Oaks, CA: Sage Publications.
5. Basnett, I. (2001). Health care professionals and their attitudes toward and decisions affecting disabled people. In G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 450-466). Thousand Oaks, CA: Sage Publications.
6. Bezold, C. (2005). The future of patient-centered care: Scenarios, visions, and audacious goals. The Journal of Alternative and Complementary Medicine, 11(Suppl. 1), 77-84.
7. Bickenbach, J. E. (2001). Disability human rights, law, and policy. In G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 565-584). Thousand Oaks, CA: Sage Publications.
8. Blackwell-Stratton, Breslin, Byrnne Mayerson, & Bailey. (1988). Smashing icons: Disabled women and the disability and women's movements. In M. Fine and A. Asch (Eds.) Women With Disabilities (pp. 306-336). Temple University Press.
9. Bopp, J., Jr., & Avila, D. (1995). When worlds collide: disability rights and medical prerogatives in matters of life and death. HEC Forum, 7(2-3), 132-149.
10. Brennan, P. & Safran, C. (2003). Report of conference track 3: patient empowerment. International Journal of Medical Information, 69, 301-304.
11. Burkhauser, R. V., & Daly, M. C. (2002). Policy watch: U.S. disability policy in a changing environment. J Econ Perspect, 16(1), 213-224.
12. Bury, M. R. (1997). Health and Illness in a Changing Society. New York: Routledge.
13. Charlton, J. I. (1988). Nothing About Us Without Us. University of California Press.
14. Coates H. and King, A. (1982). The Patient Assesment. Edinburg, UK: Churchill Livingstone.
15. Csordas, T. J. & Kleinman, A. (1996). The therapeutic process. In C.F.Sargent & T. M. Johnson (Eds.), Medical anthropology: Contemporary theory and method (rev. ed., pp. 3-20). Westport, CT: Praeger Publishers/Greenwood Publishing Group, Inc.
16. DeJong, G. (1979). Independent living: From social movement to analytic paradigm. Archives of Physical Medicine and Rehabilitation, 60(10), 435-446.
17. Dejong, G., & Basnett, I. (2001). Disability and health policy: The role of markets in the delivery of services. In G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 610-632). Thousand Oaks, CA: Sage Publications.
18. Dickerson, F. B. (1998). Strategies that foster empowerment. Cognitive and Behavioral Practice, 5, 255-275.
19. Emener, W. G. (1993). Empowerment in rehabilitation: An empowerment philosophy for rehabilitation in the 20th century. In M.Nagler (Ed.), Perspectives on disability. Text and readings on disability. (2nd ed., pp. 297-305). Palo Alto, CA: Health Markets Research.
20. Falk-Rafael, A. R. (2001). Empowerment as a process of evolving consciousness: a model of empowered caring. Annals of Advanced Nursing Science, 24, 1-16.
21. Fawcett, S., White, G., Balcazar, F., Suarez-Balcazar, Y., Matthews, E., Paine-Andrews, P., Seekins, T., & Smith, J. 1994. A contextual-behavioral model of empowerment: Case studies involving people with physical disabilities. American Journal of Community Psychology, 22, 471-496.
22. Finkelstein, V. (1993). Disability: A Social Challenge or an Adminstrative Responsibility. Pp. 34-43 in Disabling Barriers - Enabling Environments. J. Swain, V. Finklestein, S. French, & M. Oliver (Eds.). Milton Keynes: Open University Press.
23. Flyvbjerg, B. (2001). Making social science matter: Why social inquiry fails and how it can succeed again (S. Sampson, Trans.). New York: Cambridge University Press.
24. Foucault, M. (1980). Madness and Civilization. London: Tavistock.
25. Freidson, E. (1970). Profession of Medicine. University of Chicago Press.
26. Frank, G. (1988). On embodiment: A case study of congenital limb deficiency in American culture. Pp. 41-71 in Women With Disabilities, Fine, M. & Asch. (Eds.). Temple University Press.
27. Frost, M. (2001). The role of physical, occupational, and speech therapy in hospice: patient empowerment. American Journal of Hospice and Palliative Care, 18, 397-402.
28. Galland, L. (2006). Patient-centered care: Antecedents, triggers and mediators. Alternative Therapies in Health & Medicine, 12(4), 62-70.
29. Giddens, A. (1991). Modernity and Self-Identity. Stanford, CA. Stanford University Press.
30. Goffman, E. (1961). Asylums: Essays on the Social Situation of Mental Patients and Other Inmates. New York: Doubleday.
31. Hahn, H. (1991). "Alternative Views of Empowerment: Social Services and Civil Rights." Journal of Rehabilitation 57, 4:17-19.
32. Hammel, J. (2003). Technology and the environment: supportive resource or barrier for people with develolmental disabilities? Nursing Clinics of North America, 38:331-349.
33. Houser, R., Hampton, N. Z., & Carriker, C. (2000). Implementing the empowerment concept in rehabilitation: Contributions of social role theory. Journal of Applied Rehabilitation Counseling, 31, 18-23.
34. Houston, A. M. & Cowley, S. (2002). An empowerment approach to needs assessment in health visiting practice. Journal of Clinical Nursing, 11, 640-650.
35. Kelley, M. P. (2001). Disability and community: a sociological approach. In G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 546-564). Thousand Oaks, CA: Sage Publications.
36. Illich, I. (1979). Limits to Medicine: Medical Nemesis: The Expropriation of Health. Pantheon: New York.
37. McKnight, J. (1981). Professional service and disabling help. Pp. 24-32 in Handicap in a social world, edited by. Brechin, A., Liddiard, P., and J. Swain. Sevenoaks: Hodder.
38. Mechanic, D., Rochefort, D.A. (1990). Deinstitutionalization: an appraisal of reform. Annual Review of Sociology, 16, 301-327.
39. Mishler, E. (1984). The Discourse of Medicine: Dialectics of Medical Interviews. Ablex Publishing Company: Norwood, NJ.
40. National Service Inclusion Project. (No date). Section II: People with Disabilities. Retrieved June 26, 2006, from http://www.serviceandinclusion. org/handbook/index.php?page=sectionii
41. Oliver, M. (1993). Disability and Dependency: A Creation of Industrial Societies. In J. Swain, V. Finklestein, S. French, & M. Oliver (Eds.) Disabling Barriers - Enabling Environments (pp.49-60). Milton Keynes: Open University Press.
42. Oliver, M. (1990). The Politics of Disablement: A Sociological Approach. New York: St. Martin's Press.
43. Parsons, T. (1978). Health and Diseases: A Sociological and Action Perspective.In Action Theory and the Human Condition, New York: Free Press.
44. Parsons, T. (1970). Some Trends of Change in American Society: Their Bearing on Medical Education. In Structure and Process in Modern Societies. New York: Free Press.
45. Parsons, T. (1951). The Social System. Glencoe, Ill: Free Press.
46. Phillips, M. (1991). Try Harder: The Experience of Disability and the Dilemma of Normalization. In P. Ferguson, D. Ferguson, & S. Taylor (Eds.) Interpreting Disability: A Qualitative Reader (pp. 213-232). NY: Teachers College Press.
47. Radford, J. (1994). Intellectual Disability and the Heritage of Modernity. Pp. 9-28 in Disability is Not Measles: New Research Paradigms in Disability, M.
48. Rioux & M. Bach (Eds.). Rehabilitation Research and Training Center on Disability Demographics and Statistics. (2005). 2004 Disability Status Reports. Ithaca, NY: Cornell University.
49. Report to Agency Officials. (2002). United States General Accounting Office (GAO). SSA and VA disability programs: Re-Examination of Disability Criteria Needed to Help Ensure Program Integrity, GAO-02-597.
50. Ryan & Thomas, 1980). Scheff, T. (1984). Being Mentally Ill. New York: Aldine.
51. Shakespeare, T. & Watson, N. (2001). Making the difference: Disability, Politics, and Recognition. Pp. 546-564 in G. L. Albrecht, K. Seelman & M. Bury (Eds.), Handbook of Disability Studies (pp. 610-632). Thousand Oaks, CA: Sage Publications.
52. Shapiro, J. P. (1993). From charity to independent living. In J. P. Shapiro (Ed.), No pity: People with disabilities forging a new civil rights movement (pp. 41-73). New York: Random House, Inc.
53. Sidani, S., Epstein, D., & Miranda, J. (2006). Eliciting patient treatment preferences: A strategy to integrate evidence-based and patient-centered care. Worldviews on Evidence-Based Nursing, 3(3), 116-123.
54. Smart, J. (2001). Disability, society, and the individual. Gaithersburg, MD: Aspen Publications.
55. Sprague, J. & Hayes, J. (2000). Self-determination and empowerment: A feminist analysis of talk about disability. American Journal of Community Psychology, 28(5), 671-695.
56. Stockholder, F. E. (1994). Naming and renaming persons with intellectual disabilities. In M. H. Rioux and M. Bach (Ed.) Disability is not measles: New research paradigms in disability (pp. 153-180). North York, Ontario: Roeher Institute.
57. Stone, D. A. (1985). The Disabled State. London: MacMillan.
58. nd Ed. London: Macmillan.
59. Young, I. M. (1990). Justice and the politics of difference. Princeton: Princeton University Press.
60. West, D. A., Bopp, K. D. & Brown, G. D. (1995). New disability rights require organizational change and leadership. Journal of Health and Human Services Administration, Spring, 501-519.
61. Woodhill, G. (1994). In M. H. Rioux and M. Bach (Ed.) The Social Semiotics of Disability. In M. H. Rioux and M. Bach (Ed.) Disability is not measles: New research paradigms in disability (pp. 201-226). North York, Ontario: Roeher Institute.
62. Zimmerman, M. A. (1990). Taking aim on empowerment research: On the distinction between psychological and individual conceptions. American Journal of Community Psychology, 18, 169-177.
63. Zimmerman, M. A. (1995). Psychological empowerment: Issues and illustrations. American Journal of Community Psychology, 23, 581-599.
64. Zimmerman, M. A. & Warschausky, S. (1998). Empowerment theory for rehabilitation research: Conceptual and methodological issues. Rehabilitation Psychology, 43, 3-16.
65. Zola, I. (1994). Towards inclusion: The role of people with disabilities in policy and research issues in the United States: A historical analysis. In M. H. Rioux and M. Bach (Ed.) Disability is not measles: New research paradigms in disability (pp. 49-66). North York, Ontario: Roeher Institute.