Alone and confused: Community-residing older African Americans with dementia

Dementia

Volumn 6, Issue 4, 2007, Pages 489-506

  Edwards, Dorothy F ^a   Morris, John C ^b  

^a WASHINGTON UNIVERSITY   (United States)

^b WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Alzheimer's disease; Formal service use; Functional impairment

Indexed keywords

EID: 37249016866     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301207084367     Document Type: Article

References (34)

1. Andersen, N.B., & Armstead, C.A. (1995). Toward understanding the association of socioeconomic status and health: A new challenge for the biopsychosocial approach. Psychosomatic Medicine, 57, 213-225.
2. Andersen, R.M., & Newman, J. (1973). Societal and individual determinants of medical care utilization in the United States. Milbank Memorial Fund Quarterly, 51, 95-124.
3. Bazargan, M., Bazargan, S., & Baker, R.S. (1998). Emergency department utilization, hospital admissions, and physician visits among elderly African American persons. The Gerontologist, 38, 25-36.
4. Cox, C. (1995). Comparing the experiences of black and white caregivers of dementia patients. Social Work: Journal of the National Association of Social Workers, 40, 343-349.
5. Dilworth-Anderson, P., & Gibson, B.E. (2002). The cultural influence of values, norms, meanings, and perceptions in understanding dementia in ethnic minorities. Alzheimer Disease and Associated Disorders, 16 (Supplement 2): S56-S63.
6. Ebly, E.M., Hogan, D.B., & Rockwood, K. (1999). Living alone with dementia. Dementia and Geriatric Cognitive Disorders, 10, 541-548.
7. Eckenrode, J., & Wethington, E., (1990). The process and outcome of mobilizing social support. In S. Duck & R. Cohen (Eds.), Personal relationships and social support (pp. 83-103). London: Sage.
8. Edwards, D.F., Baum, C., Meisel, M., Depke, M., Williams, J., Braford, T., et al. (1999). Home-based multidisciplinary diagnosis and treatment of inner-city elderly with dementia. The Gerontologist, 39, 1-6.
9. Fillenbaum, G. (1988). Multidimensional functional assessment of older adults. Hillsdale NJ: Lawrence Erlbaum.
10. Fox, P.J. (1997). Service use and cost outcomes for persons with Alzheimer's disease. Alzheimer's Disease and Associated Disorders, 11 (Supplement 6), 125-134.
11. Freedman, V.A. (1996). Family structure and the risk of nursing home admission. The Journals of Gerontology: Series B, Psychological Sciences and Social Sciences, 51, S61-S69.
12. Gonzales, E., Gitlin, L.N., & Lyons, K.J. (1995). Review of the literature on African American caregivers of individuals with dementia. Journal of Cultural Diversity, 2, 40-48.
13. Hinton, L. (2002). Improving care for ethnic minority elderly and their family caregivers across the spectrum of dementia severity. Alzheimer's Disease and Associated Disorders, 16(Supplement 2), S50-S55.
14. Johnson, C.L., & Barer, B.M. (1990). Families and networks among older inner-city blacks. The Gerontologist, 30, 726-733.
15. Katzman, R., Brown, T., Fuld, P., Peck A., Schechter, R., & Schimmel, H. (1983). Validation of a short Orientation-Memory-Concentration Test of cognitive impairment. American Journal of Psychiatry, 140, 734-739.
16. Kessler, R.C. (1992). Perceived support and adjustment to stress. In H. Veiel & U. Baumann (Eds.), The meaning and measurement of social support. (pp. 259-271). Washington DC: Hemisphere Publishing. (pp. 259-271).
17. Lampley-Dallas, V.T. (2002). Research issues for minority dementia patients and their caregivers: What are the gaps in our knowledge base? Alzheimer's Disease and Associated Disorders, 16 (Supplement 2), S46-S9.
18. Lauder, J. (1999). Self neglect in the elderly. Journal of Clinical Nursing, 8, 95-102.
19. Li, H., Edwards, D.F., & Morrow-Howell, N., (2004). Informal caregiving networks and use of formal services by inner city African American elderly with dementia. Families in Society, 85, 55-62.
20. Litwak, E. (1985). Helping the elderly: The complementary roles of informal networks and formal systems. New York: Guilford.
21. McKhann, G., Drachman, D.A., Folstein, M., Katzman, R., Price, D., & Stadlan, E.M. (1984). Clinical diagnosis of Alzheimer's disease: Report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease. Neurology, 34, 939-944.
22. Morris, J.C. (1993). The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology, 43, 2412-2414.
23. Morris, J.C., Heyman, A., Mohs, R.C., Hughes, J.P., van Belle G., Fillenbaum G., et al. (1989). The Consortium to Establish a Registry for Alzheimer's Disease (CERAD). Part 1: Clinical and neuropsychological assessment of Alzheimer's disease. Neurology, 39, 1159-1165.
24. Prescop, K.L., Dodge, H.H., Morycz, R.K., Schulz, R.M., & Ganguli, M. (1999). Elders with dementia living in the community with and without caregivers: An epidemiological study. International Psychogeriatrics, 11, 235-250.
25. Scott, J.W., & Black, A. (1989). Deep structures of African American family life: Female and male kin networks. Western Journal of Black Studies, 13, 17-24.
26. Tierney, M.C., Charles, J., Jaglal, S., Snow, W.G., Szalai, J.P., Spizzirri, F., et al. (2001). Identification of those at greatest risk of harm among cognitively impaired people who live alone. Aging, Neuropsychology and Cognition, 8, 182-191.
27. Thompson, E.E., & Krause, N. (1998). Living alone and neighborhood characteristics as predictors of social support in later life. The Journals of Gerontology: Series B, Psychological Sciences and Social Sciences, 58, S354-S364.
28. Thornton, M.C., White-Means, S.I., & Choi, H.K. (1993). Sociodemographic correlates of the size and composition of informal caregivers networks among frail ethnic elderly. Journal of Comparative Family Studies, 24, 485-506.
29. Tuokko, H., Maccourt, P., & Heath, Y. (1999). Home alone with dementia. Aging and Mental Health, 3, 21-27.
30. US Bureau of the Census. (2003). The 65 years and over population: Census 2000. Census 2000 Brief, October 2003, Washington, DC.
31. Valle, R., & Lee, B. (2002). Research priorities in the evolving demographic landscape of Alzheimer disease and associated dementias. Alzheimer Disease and Associated Disorders, 16 (Supplement 2), S64-S76.
32. Wagner, M.T., Spangenberg, K.B., Bachman, D.L.,& O'Connell, P., (1997). Unawareness of cognitive deficit in Alzheimer disease and related dementias. Alzheimer Disease and Associated Disorders, 11, 125-131.
33. Webber, P.A., Fox, P., & Burnette, D. (1994). Living alone with Alzheimer's disease: Effects on health and social service utilization patterns. The Gerontologist, 34, 8-14.
34. White-Means, S. (1993). Informal home care for frail black elderly. Journal of Applied Gerontology, 12, 18- 33.