Long-term psychological distress, and styles of coping, in parents of children and adolescents who underwent invasive treatment for congenital cardiac disease

Cardiology in the Young

Volumn 17, Issue 6, 2007, Pages 638-645

  Spijkerboer, Alinda W ^a   Helbing, Willem A ^a   Bogers, Ad J J C ^a   Van domburg, Ron T ^a   Verhulst, Frank C ^a   Utens, Elisabeth M W J ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

Congenital cardiac malformations; Parental distress; Psychology

Indexed keywords

ADOLESCENT; ANGER; ANNOYANCE; ANXIETY; ARTICLE; CHILD PARENT RELATION; CONGENITAL HEART DISEASE; CONTROLLED STUDY; COPING BEHAVIOR; DEPRESSION; DISEASE DURATION; DISEASE SEVERITY; DISTRESS SYNDROME; EMOTIONALITY; FEMALE; GENERAL HEALTH QUESTIONNAIRE; HEART SURGERY; HUMAN; INSOMNIA; INVASIVE PROCEDURE; MAJOR CLINICAL STUDY; MALE; MATERNAL BEHAVIOR; PATERNAL BEHAVIOR; PSYCHOLOGICAL RATING SCALE; SCHOOL CHILD; SEX DIFFERENCE; SOCIAL SUPPORT; SYMPTOM;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANXIETY DISORDERS; CARDIAC SURGICAL PROCEDURES; CHILD; FEMALE; FOLLOW-UP STUDIES; HEART DEFECTS, CONGENITAL; HUMANS; MALE; PARENTS; PROGNOSIS; QUESTIONNAIRES; RETROSPECTIVE STUDIES;

EID: 36349032197     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S1047951107001333     Document Type: Article

References (21)

1. Bhat HA, Sahn DJ. Congenital heart disease never goes away, even when it has been "treated": The adult with congenital heart disease. Curr Opin Pediatr 2004; 16: 500-507.
2. Goldberg S, Morris P, Simmons RJ, Fowler RS, Levison H. Chronic illness in infancy and parenting stress: A comparison of three groups of parents. J Pediatr Psychol 1990; 15: 347-358.
3. Utens EM, Versluis-Den Bieman HJ, Witsenburg M, Bogers AJ, Hess J, Verhulst FC. Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents? Cardiol Young 2002; 12: 524-530.
4. Wray J, Sensky T. Psychological functioning in parents of children undergoing elective cardiac surgery. Cardiol Young 2004; 14: 131-139.
5. Svavarsdottir EK, McCubbin M. Parenthood transition for parents of an infant diagnosed with a congenital heart condition. J Pediatr Nurs 1996; 11: 207-216.
6. Goldberg S, Washington J, Morris P, Fischer-Fay A, Simmons RJ. Early diagnosed chronic illness and mother-child relationships in the first two years. Can J Psychiatry 1990; 35: 726-733.
7. Goldberg S, Simmons RJ, Newman J, Campbell K, Fowler RS. Congenital heart disease, parental stress, and infant-mother relationships. J Pediatr 1991; 119: 661-666.
8. Lobo ML. Parent-infant interaction during feeding when the infant has congenital heart disease. J Pediatr Nurs 1992; 7: 97-105.
9. Koeter MWJ, Ormel J. General Health Questionnaire. Dutch version. Manual. Swets & Zeitlinger, Lisse, 1992.
10. Schreurs PJG, Willege van de G, Brosschot JF, Tellegen B, Graus GMH. De Utrechtse Coping Lijst: UCL, omgaan met problemen en gebeurtenissen, herziene handleiding 1993. Swets & Zeitlinger, Lisse, 1993.
11. Netherlands Central Bureau of Statistics. Standaard Beroepen-classificatie 1992 [Standard Classification of Occupations 1992]. Netherlands Central Bureau of Statistics, Voorburg/Heerlen, 1993.
12. Garson A, Scott Benson R, Ivler L, Patton C. Parental reactions to children with congenital heart disease. Child Psychiatry Hum Dev 1978; 9: 86-94.
13. Davis CC, Brown RT, Bakeman R, Campbell R. Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping, and family functioning. J Pediatr Psychol 1998; 23: 219-228.
14. Morelius E, Lundh U, Nelson N. Parental stress in relation to the severity of congenital heart disease in the offspring. Pediatr Nurs 2002; 28: 28-32.
15. Utens EM, Versluis-Den Bieman HJ, Verhulst FC, Witsenburg M, Bogers AJ, Hess J. Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery. Cardiol Young 2000; 10: 239-244.
16. Lawoko S, Soares JJF. Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. J Psychosom Res 2002; 52: 193-208.
17. Van Horn M, DeMaso DR, Gonzalez-Heydrich J, Dahlmeier Erickson J. Illness-related concerns of mothers of children with congenital heart disease. J Am Acad Child Adolesc Psychiatry 2001; 40: 847-854.
18. Sparacino PS, Tong EM, Messias DK, Foote D, Chesla CA, Gilliss CL. The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart Lung 1997; 26: 187-195.
19. Tong EM, Kools S. Health care transitions for adolescents with congenital heart disease: Patient and family perspectives. Nurs Clin N Am 2004; 39: 727-740.
20. Fernandes SM, Landzberg MJ. Transitioning the young adult with congenital heart disease for life-long medical care. Pediatr Clin N Am 2004; 51: 1739-1748.
21. Gudmundsdottir M, Gilliss CL, Sparacino PS, et al. Congenital heart defects and parent-adolescent coping. Fam Syst & Health 1996; 14: 245-255.