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Volumn 9, Issue 11, 2007, Pages 778-791

Results communication and patient education after screening for possible hemochromatosis and iron overload: Experience from the HEIRS Study of a large ethnically and linguistically diverse group

(14)  Walker, Ann P a,m   Tucker, Diane C b   Hall, Mark A c   Lohman, Kurt c   Harrison, Helen d   Harrison, Barbara W e   Reiss, Jacob f   Acton, Ronald T b,g,h   Adams, Paul C d   Diaz, Sharmin e   Holup, Joan i   Thomson, Elizabeth j   Ellis, Shellie D k   McLaren, Christine E l  


Author keywords

Genetic counseling; Genetics education; Health literacy; Hemochromatosis screening; HFE gene

Indexed keywords

FERRITIN; TRANSFERRIN;

EID: 36248953761     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e318159a303     Document Type: Article
Times cited : (10)

References (27)
  • 1
    • 0030957346 scopus 로고    scopus 로고
    • Hereditary hemochromatosis: Presentation and diagnosis in the 1990s
    • Bacon BR, Sadiq SA. Hereditary hemochromatosis: presentation and diagnosis in the 1990s. Am J Gastroenterol 1997;92:784-789.
    • (1997) Am J Gastroenterol , vol.92 , pp. 784-789
    • Bacon, B.R.1    Sadiq, S.A.2
  • 2
    • 4744350147 scopus 로고    scopus 로고
    • Hemochromatosis
    • Adams PC. Hemochromatosis. Clin Liver Dis 2004;8:735-753.
    • (2004) Clin Liver Dis , vol.8 , pp. 735-753
    • Adams, P.C.1
  • 3
    • 0032401727 scopus 로고    scopus 로고
    • Management of hemochromatosis. Hemochromatosis Management Working Group
    • Barton JC, McDonnell SM, Adams PC, Brissot P, et al. Management of hemochromatosis. Hemochromatosis Management Working Group. Ann Intern Med 1998;129:932-939.
    • (1998) Ann Intern Med , vol.129 , pp. 932-939
    • Barton, J.C.1    McDonnell, S.M.2    Adams, P.C.3    Brissot, P.4
  • 4
    • 84866587917 scopus 로고    scopus 로고
    • Hereditary haemochromatosis: A realistic approach to prevention of iron overload disease in the population
    • Burke W, Reyes M, Imperatore G. Hereditary haemochromatosis: a realistic approach to prevention of iron overload disease in the population. Best Pract Res Clin Haematol 2002;15:315-328.
    • (2002) Best Pract Res Clin Haematol , vol.15 , pp. 315-328
    • Burke, W.1    Reyes, M.2    Imperatore, G.3
  • 5
    • 2442715056 scopus 로고    scopus 로고
    • Implementation of Haemscreen, a workplace-based genetic screening program for hemochromatosis
    • Nisselle AE, Delatycki MB, Collins V, Metcalfe S, et al. Implementation of Haemscreen, a workplace-based genetic screening program for hemochromatosis. Clin Genet 2004;65:358-367.
    • (2004) Clin Genet , vol.65 , pp. 358-367
    • Nisselle, A.E.1    Delatycki, M.B.2    Collins, V.3    Metcalfe, S.4
  • 6
    • 0030340194 scopus 로고    scopus 로고
    • Population screening for haemochromatosis: A unifying analysis of published intervention trials
    • Bradley LA, Haddow JE, Palomaki GE. Population screening for haemochromatosis: a unifying analysis of published intervention trials. J Med Screen 1996;3:178-184.
    • (1996) J Med Screen , vol.3 , pp. 178-184
    • Bradley, L.A.1    Haddow, J.E.2    Palomaki, G.E.3
  • 7
    • 0034056799 scopus 로고    scopus 로고
    • Population screening for hemochromatosis: A comparison of unbound iron-binding capacity, transferrin saturation, and C282Y genotyping in 5,211 voluntary blood donors
    • Adams PC, Kertesz AE, McLaren CE, Barr R, et al. Population screening for hemochromatosis: a comparison of unbound iron-binding capacity, transferrin saturation, and C282Y genotyping in 5,211 voluntary blood donors. Hepatology 2000;31:1160-1164.
    • (2000) Hepatology , vol.31 , pp. 1160-1164
    • Adams, P.C.1    Kertesz, A.E.2    McLaren, C.E.3    Barr, R.4
  • 8
    • 20244372858 scopus 로고    scopus 로고
    • Hemochromatosis and iron-overload screening in a racially diverse population
    • Adams PC, Reboussin DM, Barton JC, McLaren CE, et al. Hemochromatosis and iron-overload screening in a racially diverse population. N Engl J Med 2005;352:1769-1778.
    • (2005) N Engl J Med , vol.352 , pp. 1769-1778
    • Adams, P.C.1    Reboussin, D.M.2    Barton, J.C.3    McLaren, C.E.4
  • 9
    • 0037326566 scopus 로고    scopus 로고
    • Hemochromatosis and Iron Overload Screening (HEIRS) study design for an evaluation of 100,000 primary care-based adults
    • McLaren CE, Barton JC, Adams PC, Harris EL, et al. Hemochromatosis and Iron Overload Screening (HEIRS) study design for an evaluation of 100,000 primary care-based adults. Am J Med Sci 2003;325:53-62.
    • (2003) Am J Med Sci , vol.325 , pp. 53-62
    • McLaren, C.E.1    Barton, J.C.2    Adams, P.C.3    Harris, E.L.4
  • 10
    • 0034707120 scopus 로고    scopus 로고
    • Disease-related conditions in relatives of patients with hemochromatosis
    • Bulaj ZJ, Ajioka RS, Phillips JD, LaSalle BA, et al. Disease-related conditions in relatives of patients with hemochromatosis. N Engl J Med 2000;343:1529-1535.
    • (2000) N Engl J Med , vol.343 , pp. 1529-1535
    • Bulaj, Z.J.1    Ajioka, R.S.2    Phillips, J.D.3    LaSalle, B.A.4
  • 11
    • 20444372258 scopus 로고    scopus 로고
    • Factors affecting the uptake of screening: A randomised controlled non-inferiority trial comparing a genotypic and a phenotypic strategy for screening for haemochromatosis
    • Patch C, Roderick P, Rosenberg W. Factors affecting the uptake of screening: a randomised controlled non-inferiority trial comparing a genotypic and a phenotypic strategy for screening for haemochromatosis. J Hepatol 2005;43:149-155.
    • (2005) J Hepatol , vol.43 , pp. 149-155
    • Patch, C.1    Roderick, P.2    Rosenberg, W.3
  • 12
    • 0037132786 scopus 로고    scopus 로고
    • Penetrance of 845G→A (C282Y) HFE hereditary haemochromatosis mutation in the USA
    • Beutler E, Felitti VJ, Koziol JA, Ho NJ, et al. Penetrance of 845G→A (C282Y) HFE hereditary haemochromatosis mutation in the USA. Lancet 2002;359:211-218.
    • (2002) Lancet , vol.359 , pp. 211-218
    • Beutler, E.1    Felitti, V.J.2    Koziol, J.A.3    Ho, N.J.4
  • 13
    • 27644476215 scopus 로고    scopus 로고
    • Comparison of genotypic and phenotypic strategies for population screening in hemochromatosis: Assessment of anxiety, depression, and perception of health
    • Patch C, Roderick P, Rosenberg W. Comparison of genotypic and phenotypic strategies for population screening in hemochromatosis: assessment of anxiety, depression, and perception of health. Genet Med 2005;7:550-556.
    • (2005) Genet Med , vol.7 , pp. 550-556
    • Patch, C.1    Roderick, P.2    Rosenberg, W.3
  • 14
    • 27144512248 scopus 로고    scopus 로고
    • Genotype-based screening for hereditary hemochromatosis. II. Attitudes toward genetic testing and psychosocial impact - a report from a German pilot study
    • Stuhrmann M, Hoy L, Nippert I, Schmidtke J. Genotype-based screening for hereditary hemochromatosis. II. Attitudes toward genetic testing and psychosocial impact - a report from a German pilot study. Genet Test 2005;9:242-254.
    • (2005) Genet Test , vol.9 , pp. 242-254
    • Stuhrmann, M.1    Hoy, L.2    Nippert, I.3    Schmidtke, J.4
  • 15
    • 0035851306 scopus 로고    scopus 로고
    • Accuracy and ambiguity in counseling patients about genetic risk
    • Lloyd FJ, Reyna VF, Whalen P. Accuracy and ambiguity in counseling patients about genetic risk. Arch Intern Med 2001;161:2411-2413.
    • (2001) Arch Intern Med , vol.161 , pp. 2411-2413
    • Lloyd, F.J.1    Reyna, V.F.2    Whalen, P.3
  • 16
    • 33751117755 scopus 로고    scopus 로고
    • Impact of hemochromatosis screening in patients with indeterminate results: The hemochromatosis and iron overload screening study
    • Anderson RT, Wenzel L, Walker AP, Ruggiero A, et al. Impact of hemochromatosis screening in patients with indeterminate results: the hemochromatosis and iron overload screening study. Genet Med 2006;8:681-687.
    • (2006) Genet Med , vol.8 , pp. 681-687
    • Anderson, R.T.1    Wenzel, L.2    Walker, A.P.3    Ruggiero, A.4
  • 17
    • 11144262754 scopus 로고    scopus 로고
    • Role of thrombophilia in deciding on the duration of anticoagulation
    • Bauer KA. Role of thrombophilia in deciding on the duration of anticoagulation. Semin Thromb Hemost 2004;30:633-637.
    • (2004) Semin Thromb Hemost , vol.30 , pp. 633-637
    • Bauer, K.A.1
  • 18
    • 4444273185 scopus 로고    scopus 로고
    • Knowledge and educational needs of individuals with the factor V Leiden mutation
    • Hellmann EA, Leslie ND, Moll S. Knowledge and educational needs of individuals with the factor V Leiden mutation. J Thromb Haemost 2003;1:2335-2339.
    • (2003) J Thromb Haemost , vol.1 , pp. 2335-2339
    • Hellmann, E.A.1    Leslie, N.D.2    Moll, S.3
  • 21
    • 0028840955 scopus 로고
    • Inadequate functional health literacy among patients at two public hospitals
    • Williams MV, Parker RM, Baker DW, Parikh NS, et al. Inadequate functional health literacy among patients at two public hospitals. JAMA 1995;274:1677-1682.
    • (1995) JAMA , vol.274 , pp. 1677-1682
    • Williams, M.V.1    Parker, R.M.2    Baker, D.W.3    Parikh, N.S.4
  • 22
    • 84978388613 scopus 로고    scopus 로고
    • Inadequate functional health literacy in Spanish as a barrier to cervical cancer screening among immigrant Latinas in New York City
    • Garbers S, Chiasson MA. Inadequate functional health literacy in Spanish as a barrier to cervical cancer screening among immigrant Latinas in New York City. Prev Chronic Dis 2004;1:A07.
    • (2004) Prev Chronic Dis , vol.1
    • Garbers, S.1    Chiasson, M.A.2
  • 23
    • 33644871114 scopus 로고    scopus 로고
    • Educational outcomes of a workplace screening program for genetic susceptibility to hemochromatosis
    • Nisselle AE, Collins VR, Gason AA, Flouris A, et al. Educational outcomes of a workplace screening program for genetic susceptibility to hemochromatosis. Clin Genet 2006;69:163-170.
    • (2006) Clin Genet , vol.69 , pp. 163-170
    • Nisselle, A.E.1    Collins, V.R.2    Gason, A.A.3    Flouris, A.4
  • 24
    • 0037305322 scopus 로고    scopus 로고
    • Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: An exploratory study with correspondence analysis
    • Kakai H, Maskarinec G, Shumay DM, Tatsumura Y, et al. Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: an exploratory study with correspondence analysis. Soc Sci Med 2003;56:851-862.
    • (2003) Soc Sci Med , vol.56 , pp. 851-862
    • Kakai, H.1    Maskarinec, G.2    Shumay, D.M.3    Tatsumura, Y.4
  • 25
    • 23944502273 scopus 로고    scopus 로고
    • Attitudes about genetics in underserved, culturally diverse populations
    • Catz DS, Green NS, Tobin JN, Lloyd-Puryear MA, et al. Attitudes about genetics in underserved, culturally diverse populations. Community Genet 2005;8:161-172.
    • (2005) Community Genet , vol.8 , pp. 161-172
    • Catz, D.S.1    Green, N.S.2    Tobin, J.N.3    Lloyd-Puryear, M.A.4
  • 26
    • 33645332362 scopus 로고    scopus 로고
    • Predictors of belief that genetic test information about hemochromatosis should be shared with family members
    • Tucker DC, Acton RT, Press N, Ruggiero A, et al. Predictors of belief that genetic test information about hemochromatosis should be shared with family members. Genet Test 2006;10:50-59.
    • (2006) Genet Test , vol.10 , pp. 50-59
    • Tucker, D.C.1    Acton, R.T.2    Press, N.3    Ruggiero, A.4
  • 27
    • 22344453153 scopus 로고    scopus 로고
    • Genetics education in a culturally diverse population - lessons learnt, future directions
    • Saleh MT, Barlow-Stewart KK. Genetics education in a culturally diverse population - lessons learnt, future directions. Ann Hum Biol 2005;32:211-217.
    • (2005) Ann Hum Biol , vol.32 , pp. 211-217
    • Saleh, M.T.1    Barlow-Stewart, K.K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.