Caregiving experience for Chinese caregivers of persons suffering from severe mental disorders

Hong Kong Journal of Psychiatry

Volumn 17, Issue 3, 2007, Pages 75-80

  Lau, David Y K ^a,c   Pang, Alfred H T ^b  

^a St Paul's Hospital Hong Kong   (Hong Kong)

^b TAI PO HOSPITAL   (Hong Kong)

^c East Point Centre   (Hong Kong)

Author keywords

Caregivers; Family health; Mental disorders; Stress, psychological

Indexed keywords

ARTICLE; CAREGIVER; CHINESE; CLINICAL FEATURE; CONTROLLED STUDY; COPING BEHAVIOR; DELUSIONAL DISORDER; DEMOGRAPHY; DISEASE COURSE; DISEASE SEVERITY; EDUCATIONAL STATUS; EXPERIENTIAL LEARNING; FAMILY RELATION; HUMAN; MAJOR CLINICAL STUDY; MENTAL DISEASE; MOOD DISORDER; PERSONAL EXPERIENCE; PSYCHIATRIST; RATING SCALE; SCHIZOPHRENIA; SCHIZOTYPAL PERSONALITY DISORDER; STRESS MANAGEMENT; SYMPTOM;

EID: 36049046149     PISSN: 10262121     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (46)

1. Hatfield AB, Lefley HP. Families of the mentally ill: coping and adaptation. New York: Guilford Press; 1987.
2. Tessler RC, Killian LM, Gunman GD. Stages in family response to mental illness: an ideal type. Psychosocial Rehabilitation Journal 1987;10:3-16.
3. Clausen JA, Yarrow MR. The impact of mental illness on the family. J Soc Issues 1955;11:3-64.
4. Grad J, Sainsbury P. The effects that patients have on their families in a community care and a control psychiatric service - a two year follow-up. Br J Psychiatry 1968;114:265-78.
5. Maurin JT, Boyd CB. Burden of mental illness on the family: a critical review. Arch Psychiatr Nurs 1990;4:99-107.
6. Solomon P, Draine J. Subjective burden among family members of mentally ill adults: relation to stress, coping, and adaptation. Am J Orthopsychiatry 1995;65:419-27.
7. Szmukler GI, Burgess P, Herrman H, Benson A, Colusa S, Bloch S. Caring for relatives with serious mental illness: the development of the Experience of Caregiving Inventory. Soc Psychiatry Psychiatr Epidemiol 1996;31:137-48.
8. Webb C, Pfeiffer M, Mueser KT, Gladis M, Mensch E, DeGirolamo J, et al. Burden and well-being of caregivers for the severely mentally ill: the role of coping style and social support. Schizophr Res 1998;34:169-80.
9. Magliano L, Fadden G, Economou M, Xavier M, Held T, Guarneri M, et al. Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: results of the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 1998;33:413-9.
10. Baronet AM. Factors associated with caregiving burden in mental illness: a critical review of the research literature. Clin Psychol Rev 1999;19:819-41.
11. Horwitz AV, Reinhard SC. Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illnesses. Journal of Health and Social Behaviour 1995;36:138-50.
12. Harvey K, Burns T, Fahy T, Manley C, Tattan T. Relatives of patients with severe psychotic illness: factors that influence appraisal of caregiving and psychological distress. Soc Psychiatry Psychiatr Epidemiol 2001;36:456-61.
13. Jones SL, Roth D, Jones PK. Effect of demographic and behavioral variables on burden of caregivers of chronic mentally ill persons. Psychiatr Serv 1995;46:141-5.
14. Pickett SA, Greenley JR, Greenberg JS. Off-timedness as a contributor to subjective burdens for parents of offspring with severe mental illness. Fam Relat 1995;44:195-201.
15. Tessler R, Gamache G. Continuity of care, residence, and family burden in Ohio. Milbank Q 1994;72:149-69.
16. Noh S, Turner RJ. Living with psychiatric patients: implications for the mental health of family members. Soc Sci Med 1987;25:263-72.
17. Wing JK, Monck E, Brown GW, Carstairs GM. Morbidity in the community of schizophrenic patients discharged from London mental hospitals in 1959. Br J Psychiatry 1964;110:10-21.
18. Grad J, Sainsbury P. Mental illness and the family. Lancet 1963;1:544-7.
19. Raj L, Kulhara P, Avasthi A. Social burden of positive and negative schizophrenia. Int J Soc Psychiatry 1991;37:242-50.
20. Creer C, Wing JK. Schizophrenia at home. In: Elliot GR, Eisdorfer C, editors. Stress and human health. New York: Springer; 1982.
21. Fadden G, Bebbington P, Kuipers L. The burden of care: the impact of functional psychiatric illness on the patient's family. Br J Psychiatry 1987;150:285-92.
22. Lazarus RS, Folkman S. Stress appraisal, and coping. New York: Springer, Berlin Heidelberg; 1984.
23. Falloon I, Pederson J, Al-Khayyal M. Enhancement of health-giving family support versus treatment of family pathology. Journal of Family Therapy 1986;8:339-50.
24. Birchwood M, Cochrane R. Families coping with schizophrenia: coping styles, their origins and correlates. Psychol Med 1990;20:857-65.
25. Bentelspacher C, Chitran S, Rahman M. Coping and adaptation patterns among Chinese, Indian and Malay families caring for a mentally ill relative. Fam Soc 1994;75:287-94.
26. Noh S, Avison WR. Spouses of discharged psychiatric patients: Factors associated with their experience of burden. J Marriage Fam 1988;50:377-89.
27. Ryder AG, Bean G, Dion KL. Caregiver responses to symptoms of first-onset psychosis: A comparative study of Chinese- and Euro-Canadian families. Transcult Psychiatry 2000;37:255-65.
28. Chan KF. The impact of schizophrenia on Hong Kong Chinese families. The Hong Kong Journal of Social Work 1995;29:21-34.
29. Pearson V, Ning SP. Family care in schizophrenia: an undervalued resource. In: Chan CL, Rhind N, editors. Social work intervention in health care. Hong Kong: The Hong Kong Scene; 1997.
30. Wong DF. Stress factors and mental health of carers with relatives suffering from schizophrenia in Hong Kong: implications for culturally sensitive practices. Br J Soc Work 2000;30:365-82.
31. Lau DY, Pang AH. Validation of the Chinese version of Experience of Caregiving Inventory in caregivers of persons suffering from severe mental disorders. Hong Kong J Psychiatry 2007;17:24-31.
32. Pearlin LI, Schooler C. The structure of coping. J Health Soc Behav 1978;19:2-21.
33. Cheng P, Tang CS. Coping and psychological distress of Chinese parents of children with Down syndrome. Ment Retard 1995;33:10-20.
34. Turner RJ, Noh S. Physical disability and depression: a longitudinal analysis. J Health Soc Behav 1988;29:23-37.
35. Lukoff D, Liberman RP, Nuechterlein KH. Symptom monitoring in the rehabilitation of schizophrenic patients. Schizophr Bull 1986;12:578-602.
36. Andreasen N. The Scale for the Assessment of Negative Symptoms (SANS). Iowa: University of Iowa, Department of Psychiatry; 1984.
37. Hamilton M. A rating scale for depression. J Neurol Neurosurg Psychiatry 1960;23:56-62.
38. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 4th ed. Washington, DC: American Psychiatric Association; 1994.
39. Scazufa M, Kuipers E. Stability of expressed emotion in relatives of those with schizophrenia and its relationship with burden of care and perception of patients' social functioning. Psychol Med 1998;28:453-61.
40. Szmukler GI, Wykes T, Parkman S. Care-giving and the impact on carers of a community mental health service. PRiSM Psychosis Study. 6. Br J Psychiatry 1998;173:399-403.
41. Joyce J, Leese M, Szmukler G. The Experience of Caregiving Inventory: further evidence. Soc Psychiatry Psychiatr Epidemiol 2000;35:185-9.
42. Horwitz AV, Reinhard SC. Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illnesses. J Health Soc Behav 1995;36:138-50.
43. Stueve A, Vine P, Struening EL. Perceived burden among caregivers of adults with serious mental illness: comparison of black, Hispanic, and white families. Am J Orthopsychiatry 1997;67:199-209.
44. Greenberg JS, Kim HW, Greenley JR. Factors associated with subjective burden in siblings of adults with severe mental illness. Am J Orthopsychiatry 1997;67:231-41.
45. Noh S, Avison WR. Spouses of discharged psychiatric patients: Factors associated with their experience of burden. J Marriage Fam 1988;50:377-89.
46. Falloon IR, Pederson J. Family management in the prevention of morbidity of schizophrenia: the adjustment of the family unit. Br J Psychiatry 1985;147:156-63.