Informed consent in a changing environment

Social Science and Medicine

Volumn 65, Issue 11, 2007, Pages 2187-2198

  Boulton, Mary ^a   Parker, Michael ^b  

^a OXFORD BROOKES UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

BIOMEDICINE; EDITORIAL; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH; SOCIAL ASPECT; SOCIAL MEDICINE; SOCIOLOGY;

DECISION MAKING; ETHICS, MEDICAL; ETHICS, RESEARCH; HUMANS; INFORMED CONSENT; SOCIAL SCIENCES; SOCIOLOGY, MEDICAL;

EID: 36049020918     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2007.08.002     Document Type: Editorial

References (33)

1. Alderson P. Competent children? Minors' consent to healthcare treatment and research. Social Science and Medicine 65 11 (2007) 2272-2283
2. In: Beauchamp T., Faden R., Wallace R.J., and Walters L. (Eds). Ethical issues in social science research (1982), Johns Hopkins University Press, Baltimore
3. Beecher H. Ethics and clinical research. New England Journal of Medicine 274 (1966) 1354-1360
4. Borofsky R. Yanomami: The fierce controversy and what we can learn from it (2005), University of California, Berkeley, Los Angeles, and London
5. British Medical Journal (2004). The 31 July 2004 issue (number 7460) of the BMJ includes a collection of papers by medical researchers critical of the inappropriate use of research ethics review in medical research
6. Burgess M. Proposing modesty for informed consent. Social Science and Medicine 65 11 (2007) 2284-2295
7. Denzin N. Interpretive ethnography: Ethnographic practices for the 21st century (1997), Sage, London
8. Department of Health. Research governance framework for health and social care. 2nd ed. in draft (2001, revised 2003), Department of Health, London
9. Dixon-Woods M., Ashcroft R., Jackson C., Tobin M., Kivits J., Burton P., et al. Beyond misunderstanding: Written information and decisions about taking part in a genetic epidemiology study. Social Science and Medicine 65 11 (2007) 2212-2222
10. Edwards R., and Mauthner M. Ethics and feminist research: Theory and practice. In: Mauthner M., Birch M., Jessop J., and Miller T. (Eds). Ethics in qualitative research (2002), Sage, London
11. ESRC (2006). Economic & Social Research Council (ESRC) research ethics framework. 〈http://www.esrcsocietytoday.ac.uk〉 (see 'corporate publications').
12. Faden R., and Beauchamp T. A history of informed consent (1986), Oxford University Press, Oxford
13. Harper I. Translating ethics: Researching public health and medical practices in Nepal. Social Science and Medicine 65 11 (2007) 2235-2247
14. ICH Harmonised Tripartite Guideline for Good Clinical Practice for Research E6 (R1) (1996). 〈http://www.ich.org/LOB/media/MEDIA482.pdf〉.
15. Kent J., Williamson E., Goodenough T., and Ashcroft R. 'Social science gets the ethics treatment: Research governance and ethical review. Sociological Research Online 7 4 (2002). www.socresonline.org.uk/7/4/williamson.html
16. Manson N., and O'Neill O. Rethinking informed consent in bioethics (2007), Cambridge University Press, Cambridge
17. Martin J., and Marker D. Informed consent: Interpretations and practice on social surveys. Social Science and Medicine 65 11 (2007) 2260-2271
18. Miller T., and Bell L. Consenting to what? Issues of access, gatekeeping and 'informed' consent. In: Mauthner M., Birch M., Jessop J., and Miller T. (Eds). Ethics in qualitative research (2002), Sage, London
19. Miller T., and Boulton M. Changing constructions of informed consent: qualitative research and complex social worlds. Social Science and Medicine 65 11 (2007) 2199-2211
20. Murphy E., and Dingwall R. Informed consent, anticipatory regulation and ethnographic practice. Social Science and Medicine 65 11 (2007) 2223-2234
21. O'Neill O. Autonomy and trust in bioethics (2002), Cambridge University Press, Cambridge
22. Papworth M. Human guinea pigs (1967), Beacon Press, Boston
23. Parker M. Ethnography/ethics. Social Science and Medicine 65 11 (2007) 2248-2259
24. Pattullo E. Modesty is the best policy: The federal role in social research. In: Beauchamp T., Faden R., Wallace R.J., and Walters L. (Eds). Ethical issues in social science research (1982), Johns Hopkins University Press, Baltimore 373-389
25. Ramcharan P., and Cutliffe J. Judging the ethics of qualitative research: Considering the 'ethics as process' model. Health and Social Care in the Community 9 6 (2001) 358-366
26. Redfern M. The Royal Liverpool Children's Hospital inquiry report (2001), The Stationery Office, London
27. Riessman C. Exporting ethics: A narrative about narrative research in South India. Health 9 4 (2005) 473-490
28. Social Sciences and Humanities Research Ethics Special Working Committee (2004). Giving voice to the spectrum. Report to the Interagency Advisory Panel on Research Ethics. Government of Canada.
29. In: Strathern M. (Ed). Audit culture: Anthropological studies in accountability, ethics and the academy (2000), Routledge, London and New York
30. Tri-Council Policy Statement (1998, 2003). Ethical conduct for research involving humans (with 2000, 2002 updates). Ottawa: Public Works and Government Services Canada.
31. Webster, A., Lewis, G., Brown, N., & Boulton, M. (2004). Developing a framework for social science research ethics. Report to the ESRC.
32. Weindling P. Nazi medicine and the Nuremberg trials: From medical war crimes to informed consent (2004), Palgrave Macmillan, Basingstoke
33. Whittaker E. Adjudicating entitlements: The emerging discourses of research ethics boards. Health 9 4 (2005) 513-535