Respiratory symptom management in a child with severe neurologic impairment

Journal of Palliative Medicine

Volumn 10, Issue 5, 2007, Pages 1201-1207

  Hauer, Julie M ^a,b,c,d  

^a UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

^b GILLETTE CHILDREN'S SPECIALTY HEALTHCARE   (United States)

^c BOSTON CHILDREN S HOSPITAL   (United States)

^d UNIVERSITY OF MINNESOTA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIBIOTIC AGENT; BUDESONIDE; CLINDAMYCIN; PREDNISONE; PROTON PUMP INHIBITOR;

ARTICLE; ARTIFICIAL VENTILATION; BREATHING EXERCISE; CASE REPORT; CLINICAL FEATURE; COUGHING; DEVELOPMENTAL DISORDER; DISEASE COURSE; DISEASE DURATION; DISEASE SEVERITY; HUMAN; INTENSIVE CARE UNIT; LUNG CLEARANCE; MALE; NEBULIZATION; NEUROLOGIC DISEASE; NUCLEAR MAGNETIC RESONANCE IMAGING; OXYGEN THERAPY; RESPIRATORY FAILURE; RESPIRATORY TRACT DISEASE; SCHOOL CHILD; SCOLIOSIS; STOMACH TUBE;

ACUTE DISEASE; ADVANCE CARE PLANNING; BRAIN DISEASES; CHILD; CHRONIC DISEASE; HUMANS; MALE; NERVOUS SYSTEM DISEASES; PALLIATIVE CARE; RESPIRATORY INSUFFICIENCY;

EID: 35948990803     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2007.9907     Document Type: Article

References (54)

1. Seddon PC, Khan Y: Respiratory problems in children with neurological impairment. Arch Dis Child 2003;88:75-78.
2. Wright RE, Wright FR, Carson CA; Videofluoroscopic assessment in children with severe cerebral palsy presenting with dysphagia. Pediatr Radiol 1996;26:720-722.
3. Rogers B, Arvedson J, Buck G, Smart P, Msall M: Characteristics of dysphagia in children with cerebral palsy. Dysphagia 1994;9:69-73.
4. Mirrett PL, Riski JE, Glascott J, Johnson V. Videofluoroscopic assessment of dysphasia in children with severe cerebral palsy. Dysphagia 1994;9:174-179.
5. Taniguchi MH, Moyer RS: Assessment of risk factors for pneumonia in dysphagic children: Significance of videofluoroscopic swallowing evaluation. Dev Med Child Neurol 1994;36:495-502.
6. Hutton JL: Cerebral palsy life expectancy. Clin Perinatol 2006;33:545-555.
7. Hemming K, Hutton JL, Pharoah PO: Long-term survival for a cohort of adults with cerebral palsy. Dev Med Child Neurol 2006;48:90-95.
8. Strauss D, Cable W, Shavelle R: Causes of excess mortality in cerebral palsy. Dev Med Child Neurol 1999;41:580-585.
9. Arnold R: Ambivalence and ambiguity in hospitalized, critically ill patients and its relevance for palliative care. J Palliat Med 2000;3:17-22.
10. Graham RJ, Robinson WM: Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities. J Dev Behav Pediatr 2005;26:361-365
11. Abrams EZ, Goodman JF: Diagnosing developmental problems in children: Parents and professionals negotiate bad news. J Pediatr Psychol 1998;23:87-98.
12. Himelstein BP, Hilden JM, Boldt AM, Weissman D: Pediatric palliative care. N Engl J Med 2004;350:1752-1762.
13. Field MJ, Behrman R (eds): When Children Die: Improving Palliative and End of Life Care for Children and Families. Washington, D.C.: National Academies Press, 2003.
14. Owayed AF, Campbell DM, Wang EE: Underlying causes of recurrent pneumonia in children. Arch Pediatr Adolesc Med. 2000;154:190-194.
15. Pikus L, Levine MS, Yang YX, Rubesin SE, Katzka DA, Laufer I, Gefter WB: Videofluoroscopic studies of swallowing dysfunction and the relative risk of pneumonia. Am J Roentgenol 2003;180:1613-1616.
16. Boesch RP, Daines C, Willging JP, Kaul A, Cohen AP, Wood RE, Amin RS: l. Advances in the diagnosis and management of chronic pulmonary aspiration in children. Eur Respir J 2006;28:847-861.
17. Baikie G, South MJ, Reddihough DS, Cook DJ, Cameron DJ, Olinsky A, Ferguson E: Agreement of aspiration tests using barium videofluoroscopy, salivagram, and milk scan in children with cerebral palsy. Dev Med Child Neurol 2005;47:86-93.
18. Ramsey D, Smithard D, Kalra L: Silent aspiration: What do we know? Dysphagia. 2005;20:218-225.
19. Brook I, Finegold SM: Bacteriology of aspiration pneumonia in children. Pediatrics.1980;65:1115-1120.
20. Dreyfuss D: Aspiration pneumonia [letter]. N Engl J Med 2001;344:1868.
21. Brook I: Treatment of aspiration or tracheostomy-associated pneumonia in neurologically impaired children: Effect of antimicrobials effective against anaerobic bacteria. Int J Pediatr Otorhinolaryngol 1996:35:171-177.
22. Allewelt M, Schuler P, Bolcskei PL, Mauch H, Lode H: Ampicillin + sulbactam vs clindamycin +/- cephalosporin for the treatment of aspiration pneumonia and primary lung abscess. Clin Microbiol Infect 2004;10:163-170.
23. Kadowaki M, Demura Y, Mizuno S, Uesaka D, Ameshima S, Miyamori I, Ishizaki T: Reappraisal of clindamycin IV monotherapy for treatment of mild-to-moderate aspiration pneumonia in elderly patients. Chest 2005;127:1276-1282.
24. Hatakeyama S, Tachibana A, Suzuki H, Okano SK: Treatment of aspiration pneumonia with low-dose methylprednisolone and antibiotics. Nihon Kyobu Shikkan Gakkai Zasshi 1995;33:51-56.
25. Nagase T, Fukuchi Y, Teramoto S, Jo C, Uejima Y, Yamaoka M, Ishida K, Shimizu T, Orimo H: Intravenous bolus of prednisolone decreases 15-hydroxyeicosaetraenoic acid formation in the rat model of acid aspiration. Crit Care Med 1991;19:950-954.
26. Morton RE, Wheatley R, Minford J: Respiratory tract infections due to direct and reflux aspiration in children with severe neurodisability. Dev Med Child Neurol 1999;41:329-334.
27. Stein MR: Possible mechanisms of influence of esophageal acid on airway hyperresponsiveness. Am J Med 2003;115(Suppl 3A):55S-59S.
28. Jolley SG, Herbst JJ, Johnson DG, Matlak ME, Book LS: Surgery in children with gastroesophageal reflux and respiratory symptoms. J Pediatr 1980;96:194-198.
29. Kawahara H, Okuyama H, Kubota A, Oue T, Tazuke Y, Yagi M, Okada A: Can laparoscopic antireflux surgery improve the quality of life in children with neurologic and neuromuscular handicaps? J Pediatr Surg 2004;39:1761-1764.
30. Cheung KM, Tse HW, Tse PW, Chan KH: Nissen fundoplication and gastrostomy in severely neurologically impaired children with gastroesophageal reflux. Hong Kong Med J 2006;12:282-288.
31. Bui HD, Dang CV, Chaney RH, Vergara LM: Does gastrostomy and fundoplication prevent aspiration pneumonia in mentally retarded persons? Am J Ment Retard 1989;94:16-19.
32. Hament JM, Bax NM, van der Zee DC, De Schryver JE, Nesselaar C: Complications of percutaneous endoscopic gastrostomy with or without concomitant antireflux surgery in 96 children. J Pediatr Surg 2001;36:1412-1415.
33. Subramaniam R, Dickson AP: Long-term outcome of boixochoa and nissen fundoplication in normal and neurologically impaired children. J Pediatr Surg 2000;35:1214-1216.
34. Fonkalsrud EW, Ashcraft KW, Coran AG, Ellis DG, Grosfeld JL, Tunell WP, Weber TR: Surgical treatment of gastroesophageal reflux in children: A combined hospital study of 7467 patients. Pediatrics 1998;101:419-422.
35. Pearl RH, Robie DK, Ein SH, Shandling B, Wesson DE, Superina R, Mctaggart K, Garcia VF, O'Connor JA, Filler RM: Complications of gastroesophageal antireflux surgery in neurologically impaired versus neurologically normal children. J Pediatr Surg 1990;25:1169-1173.
36. Wilson GJ, van der Zee DC, Bax NM: Endoscopic gastrostomy placement in the child with gastroesophageal reflux: Is concomitant antireflux surgery indicated? J Pediatr Surg 2006;41:1441-1445.
37. Puntis JW, Thwaites R, Abel B, Stringer MD: Children with neurological disorders do not always need fundoplication concomitant with percutaneous endoscopic gastrostomy. Dev Med Child Neurol 2000;42:97-99.
38. Razeghi S, Lang T, Behrens R: Influence of percutaneous endoscopic gastrostomy on astroesophageal reflux: A prospective study in 68 children. J Pediatr Gastroenterol Nutr 2002;35:27-30.
39. Samuel M, Holmes K: Quantitative and qualitative analysis of gastroesophageal reflux after percutaneous endoscopic gastrostomy. J Pediatr Surg 2002;37:256-261.
40. Launay V, Gottrand F, Turck D, Michaud L, Ategbo S, Farriaux JP: Percutaneous endoscopic gastrostomy in children: Influence on gastroesophageal reflux. Pediatrics 1996;97:726-728.
41. Sullivan P: Gastrostomy feeding in the disabled child: When is an antireflux procedure required? Arch Dis Child 1999;81:463-464.
42. van der Zee DC, Bax NM, Ure BM: Laparoscopic secondary antireflux procedure after PEG placement in children. Surg Endosc 2000;14:1105-1106.
43. Jesch NK, Schmidt AI, Strassburg A, Gluer S, Ure BM: Laparoscopic fundoplication in neurologically impaired children with percutaneous endoscopic gastrostomy. Eur J Pediatr Surg 2004;14:89-92.
44. Sleigh G, Brocklehurst P: Gastrostomy feeding in cerebral palsy: A systematic review. Arch Dis Child 2004;89:534-539.
45. Finucane TE, Bynum JP: Use of tube feeding to prevent aspiration pneumonia. Lancet 1996;348:1421-1424.
46. Cook SP, Lawless ST, Kettrick R: Patient selection for primary laryngotracheal separation as treatment of chronic aspiration in the impaired child. Int J Pediatr Otorhinolaryngol 1996;38:103-113.
47. Zocratto OB, Savassi-Rocha PR, Paixao RM, Salles JM: Laryngotracheal separation surgery: Outcome in 60 patients. Otolaryngol Head Neck Surg 2006;135:571-575.
48. Carron JD, Derkay CS, Strope GL, Nosonchuk JE, Darrow DH: Pediatric tracheotomies: Changing indications and outcomes. Laryngoscope 2000;110:1099-1104.
49. Senner JE, Logemann J, Zecker S, Gaebler-Spira D: Drooling, saliva production, and swallowing in cerebral palsy. Dev Med Child Neurol 2004;46:801-806.
50. Stern Y, Feinmesser R, Collins M, Shott SR, Cotton RT: Bilateral submandibular gland excision with parotid duct ligation for treatment of sialorrhea in children: Long-term results. Arch Otolaryngol Head Neck Surg 2002;128:801-803.
51. Jongerius PH, van den Hoogen FJ, van Limbeek J, Gabreels FJ, van Hulst K, Rotteveel JJ: Effect of botulinum toxin in the treatment of drooling: A controlled clinical trial. Pediatrics 2004;114:620-627.
52. Vijayasekaran S, Unal R, Schraff SA, Johnson RF, Rutter MJ: Salivary gland surgery for chronic pulmonary aspiration in children. Int J Pediatr Otorhinolaryngol 2007;71:119-123.
53. Murphy NA, Firth S, Jorgensen T, Young PC: Spinal surgery in children with idiopathic and neuromuscular scoliosis. What's the difference? J Pediatr Orthop 2006;26:216-220.
54. Tsirikos AI, Chang WN, Dabney KW, Miller R, Glutting J: Life expectancy in pediatric patients with cerebral palsy and neuromuscular scoliosis who underwent spinal fusion. Dev Med Child Neurol 2003;45:677-682.