A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers

Brain Injury

Volumn 21, Issue 11, 2007, Pages 1119-1130

  Turner, Benjamin ^a   Fleming, Jennifer ^a   Cornwell, Petrea ^a   Worrall, Linda ^a   Ownsworth, Tamara ^b   Haines, Terrence ^a   Kendall, Melissa ^c   Chenoweth, Lesley ^b  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b GRIFFITH UNIVERSITY   (Australia)

^c PRINCESS ALEXANDRA HOSPITAL   (Australia)

Author keywords

Acquired brain injury; And phenomenology; Transition

Indexed keywords

ADULT; ARTICLE; BRAIN INJURY; CAREGIVER; CLINICAL ARTICLE; COMMUNITY REINTEGRATION; EMPLOYABILITY; FAMILY ATTITUDE; FEMALE; FRIENDSHIP; HEALTH STATUS; HOME CARE; HOSPITAL DISCHARGE; HUMAN; MALE; MENTAL HEALTH; PHYSICAL CAPACITY; PSYCHOLOGICAL WELL BEING; QUALITATIVE RESEARCH; REHABILITATION CARE; SEMI STRUCTURED INTERVIEW; SOCIAL BEHAVIOR; SOCIOECONOMICS;

EID: 35548947496     PISSN: 02699052     EISSN: 1362301X     Source Type: Journal    
DOI: 10.1080/02699050701651678     Document Type: Article

References (47)

1. Fortune, N. and Wen, X. The definition, incidence and prevalence of acquired brain injury in Australia, Australian Institute of Health and Wellbeing. Cat. No. DIS 15, Canberra, AIHW
2. Colantonio, A., Ratcliff, G., Chase, S., Kelsey, S., Escobar, M. and Vernich, L. (2004) Long-term outcomes after moderate to severe traumatic brain injury. Disability and Rehabilitation, 25:5, pp. 253-261.
3. Hoofien, D., Gilboa, A., Vakil, E. and Donovick, P. (2001) Traumatic brain injury 10-20 years later: A comprehensive outcome study of psychiatric symptomology, cognitive abilities and psychosocial functioning. Brain Injury, 15:3, pp. 189-201.
4. King, R., Shade-Zeldow, Y., Carlson, C., Feldman, J. and Phillip, M. (2002) Adaptation to stroke: A longitudinal study of depressive symptoms, physical health, and coping process. Topics in Stroke Rehabilitation, 9:1, pp. 46-66.
5. Anson, K. and Ponsford, J. (2006) Coping and emotional adjustment following traumatic brain injury. Journal of Head Trauma Rehabilitation, 21:3, pp. 248-259.
6. Anson, K. and Ponsford, J. (2006) Evaluation of a coping skills group following traumatic brain injury. Brain Injury, 20:2, pp. 167-178.
7. Ponsford, J., Olver, J., Ponsford, M. and Nelms, R. (2003) Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Injury, 17:6, pp. 453-468.
8. Jorge, R., Robinson, R., Arndt, S., Forrester, A., Geisler, F. and Starkstein, S. (1993) Comparison between acute- and delay-onset depression following traumatic brain injury. Journal of Neuropsychiatry, 5, pp. 43-49.
9. Tate, R. and Broe, G. (1999) Psychosocial adjustment after traumatic brain injury: What are the important variables?. Psychological Medicine, 29, pp. 713-725.
10. Deb, S., Lyons, I., Koutzoukis, C., Ali, I. and McCarthy, G. (1999) Rate of psychiatric illness 1 year after traumatic brain injury. American Journal of Psychiatry, 156, pp. 374-378.
11. Sawchyn, J., Mateer, C. and Suffield, J. (2005) Awareness, emotional adjustment, and injury severity in postacute brain injury. Journal of Head Trauma Rehabilitation, 20:4, pp. 301-314.
12. Pelletier, P. and Alfano, D. (2000) Depression, social support and family coping following traumatic brain injury. Brain and Cognition, 44, pp. 45-49.
13. Godfrey, H. and Smith, L. (1995) Family support programs and rehabilitation, Plenum, New York
14. Bowen, A., Neumann, V., Conner, M., Tennant, A. and Chamberlain, M. (1998) Mood disorders following traumatic brain injury: Identifying the extent of the problem and people at risk. Brain Injury, 12, pp. 177-190.
15. Corrigan, J., Smith-Knapp, K. and Granger, C. (1998) Outcomes in the first 5 years after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 79:3, pp. 298-305.
16. Mellick, D., Gerhart, K. and Whiteneck, G. (2003) Understanding outcomes based on the post-acute hospitalization pathways followed by persons with traumatic brain injury. Brain Injury, 17:1, pp. 55-71.
17. McColl, M., Davies, D., Carlson, P., Johnston, J., Harrick, L., Minnes, P. and Shue, K. (1999) Transitions to independent living after ABI. Brain Injury, 13:5, pp. 311-330.
18. Lefebvre, H., Pelchat, D., Swaine, B., Gelinas, I. and Levert, M. (2005) The experience of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum. Brain Injury, 19:8, pp. 585-597.
19. Oppermann, J. (2004) Interpreting the meaning individuals ascribe to returning to work after traumatic brain injury: A qualitative approach. Brain Injury, 18:9, pp. 941-955.
20. Paterson, J. and Stewart, J. (2002) Adults with acquired brain injury: Perceptions of their social world. Rehabilitation Nursing, 27:1, pp. 13-18.
21. Cott, C. (2004) Client-centered rehabilitation: Client perspectives. Disability and Rehabilitation, 26:24, pp. 1411-1422.
22. Turner, B., Fleming, J., Ownsworth, T. and Cornwell, P. The transition from hospital to home for individuals with acquired brain injury: A literature review and research recommendations.
23. Schlossberg, N. (1984) Counseling adults in transition: Link practice with theory, Springer Publishing Company, New York
24. Glass, T. and Maddox, G. (1992) The quality and quantity of social support: Stroke recovery as psycho-social transition. Social Science and Medicine, 34:11, pp. 1249-1261.
25. Goldberg, G., Segal, M., Berk, S., Schall, R. and Gershkoff, A. (1997) Stroke transition after inpatient rehabilitation. Topics in Stroke Rehabilitation, 4:1, pp. 64-79.
26. Fraser, C. (1999) The experience of transition for a daughter caregiver of a stroke survivor. Journal of Neuroscience Nursing, 31:1, pp. 9-16.
27. Rittman, M., Faircloth, C., Boystein, C., Gubrium, J., Williams, C., Puymbroeck, M. and Ellis, C. (2004) The experience of time in the transition from hospital to home following stroke. Journal of Rehabilitation Research and Development, 41:3, pp. 259-268.
28. Olofsson, A., Andersson, S. and Carlberg, B. (2005) 'If only I manage to get home I'll get better'-interviews with stroke patients after emergency stay in hospital on their experiences and needs. Clinical Rehabilitation, 19, pp. 433-440.
29. Conneeley, A. (2002) Social Integration following traumatic brain injury and rehabilitation. British Journal of Occupational Therapy, 65:8, pp. 356-362.
30. Conneeley, A. (2003) Quality of life and traumatic brain injury: A one-year longitudinal study. British Journal of Occupational Therapy, 66:10, pp. 440-446.
31. Patton, M. (2002) Qualitative research and evaluation methods, Sage Publications Inc, California
32. Rappaport, M., Hall, K., Hopkins, K., Belleza, T. and Cope, D. (1982) Disability rating scale for severe head trauma: Coma to community. Archives of Physical Medicine and Rehabilitation, 63:3, pp. 118-123.
33. Tate, R. (2004) Assessing support needs for people with traumatic brain injury: The care and needs scale (CANS). Brain Injury, 18, pp. 445-460.
34. Robinson, B. (1983) Validation of a caregiver strain index. Journal of Gerontology, 38, pp. 344-348.
35. Paterson, B. and Scott-Finlay, S. (2002) Pearls, pith, and provacation. Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research, 12:3, pp. 399-409.
36. Richards, L. (1999) Using NVivo in qualitative research, Sage Publications Inc, London
37. Fleming, J. and Strong, J. (1997) The development of insight following severe traumatic brain injury: Three case studies. British Journal of Occupational Therapy, 60:7, pp. 295-300.
38. Fleming, J., Connell, J., Tooth, L. and Strong, J. (2002) A comparison of adjustment and self-awareness in adults after traumatic brain injury and spinal cord injury: The transition from hospital to community. Journal of Cognitive Rehabilitation, 20:3, pp. 28-36.
39. Fleming, J., Winnington, H., McGillivray, A., Tatarevic, B. and Ownsworth, T. (2006) The development of self-awareness and relationship to emotional functioning during early community reintegration after traumatic brain injury. Brain Impairment, 7:2, pp. 83-94.
40. Machamer, J., Temkin, N. and Dikmen, S. (2002) Significant other burden and factors related to it in traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 24:4, pp. 420-433.
41. Marsh, N., Kersel, D., Havill, J. and Sleigh, J. (1998) Caregiver burden at 1 year following severe traumatic brain injury. Brain Injury, 12:12, pp. 1045-1059.
42. Marsh, N., Kersel, D., Havill, J. and Sleigh, J. (2002) Caregiver burden during the year following severe traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 24:2, pp. 434-447.
43. Barnes, E., Frank, E., Montgomery, A. and Nichols, M. (2005) Factors predicting rehabilitative service provision in adults with traumatic brain injury. Journal of Speech-Language Pathology, 13:1, pp. 69-84.
44. Andersen, H., Eriksen, K., Brown, A., Schultz-Larsen, K. and Forchhammer, B. (2002) Follow-up services for stroke survivors after hospital discharge-a randomized control study. Clinical Rehabilitation, 16, pp. 593-603.
45. Harrick, L., Krefting, L., Johnston, M., Carlson, P. and Minnes, P. (1994) Stability of functional outcomes following transitional living programme participation: 3 year follow-up. Brain Injury, 8:5, pp. 439-447.
46. Olver, J. and Harrington, H. Functional outcomes after a transitional living programme for adults with traumatic brain injury. International Perspectives in Traumatic Brain Injury 1996, 1, pp. 359-361.
47. Simpson, G., Secheny, T., Lane-Brown, A., Strettles, B., Ferry, K. and Phillips, J. (2004) Post-acute rehabilitation for people with traumatic brain injury: A model description and evaluation of the Liverpool Hospital Transitional Living Program. Brain Impairment, 5:1, pp. 67-80.