The parent with mental retardation

International Review of Research in Mental Retardation

Volumn 24, Issue , 2001, Pages 171-210

  Holburn, Steve ^a   Perkins, Tiffany ^b   Vietze, Peter ^a  

^a NEW YORK STATE INSTITUTE FOR BASIC RESEARCH IN DEVELOPMENTAL DISABILITIES   (United States)

^b CITY UNIVERSITY OF NEW YORK   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 35448962173     PISSN: 00747750     EISSN: None     Source Type: Book Series    
DOI: 10.1016/s0074-7750(01)80009-4     Document Type: Article

References (156)

1. Abidin R.R. Parenting Stress Index manual 1990 Pediatric Psychology Press New Haven
2. Accardo P. Whitman B. Children of mentally retarded parents American Journal Diseases of Children 144 1990 69 70
3. Ainsworth M.D. Bell S.M. Attachment, exploration, and separation: Illustrated by behavior of one-year-olds in a strange situation Child Development 41 1970 49 67
4. Ainsworth M. Wagner E. Strauss A. Children of our children American Journal of Mental Deficiency 49 1945 227
5. Altemeier W.A. O'Connor S.M. Vietze P.M. Sandler H.M. Sherrod K.B. Antecedents of child abuse Journal of Pediatrics 100 1982 823 829
6. Andron L. Sturm M.C. Is “I do” in the repertoire of the retarded? Mental Retardation 1 1973 31 34
7. Baker B.L. Blacher J. Kopp C.B. Kraemer B. Parenting children with mental retardation N.W. Bray International review of research in mental retardation Vol. 20 1997 Academic Press Charlottesville, VA 1 36
8. Bass M.S. Marriage, parenthood and prevention of pregnancy American Journal of Mental Deficiency 68 1963 318 333
9. Bayley N. Bayley scales of infant development: Birth to two years 1969 Psychological Corp. San Diego
10. Barker L.T. Maralani V. Challenges and strategies of disabled parents: findings from a national survey of parents with disabilities 1997 CA, Berkeley Planning Associates New York
11. Beier D.C. Disturbances in the mentally retarded H.A. Stevens R. Heber Mental retardation 1964 Univ. of Chicago Press Oakland 453 487
12. Booth W. Booth T. Accentuate the positive: A personal profile of a parent with learning difficulties Disability Handicap and Society 8 4 1993 377 392
13. Booth T. Booth W. Working with parents with mental retardation: Lessons from research Journal of Developmental and Physical Disabilities 6 1994 23 41
14. Booth T. Booth W. Unto us a child is born: The trials and rewards of parenthood for people with learning difficulties Australia and New Zealand Journal of Developmental Disabilities 20 1 1995 25 39
15. Booth T. Booth W. Exceptional childhoods, unexceptional children: Growing up with parents who have learning difficulties 1997 Family Policies Studies Centre Chicago
16. Booth T. Booth W. Against the odds: Growing up with parents who have learning difficulties Mental Retardation 38 2000 1 14
17. Borgman R. Intelligence and maternal adequacy Child Welfare 48 1969 301 304
18. Bowlby J. Attachment 1969 Basic Books London, UK
19. Bradley V.J. Evolution of a new service paradigm V. Bradley J.W. Ashbaugh B.C. Blaney Creating individual supports for people with developmental disabilities: A mandate for change at many levels 1994 Paul Brookes New York 11 32
20. Bradley K. Greenspan S. Loughlin G. Parent Needs for Support Scale: Provisional manual 1998 A.J. Pappanikou Center of the Univ. of Connecticut Baltimore, MD
21. Brandon M.W.G. The intellectual and social status of children of mental defectives Journal of Mental Science 103 1957 710 738
22. Brandon M.W.G. A survey of 200 women discharged from a mental deficiency hospital Journal of Mental Science 106 1960 335 370
23. Brantlinger E. Teacher's perceptions of the parenting abilities of their secondary students with mild retardation Remedial and Special Education 9 4 1988 31 43
24. Brock L.G. Report of the departmental committee on sterilisation 1934 H.M. Stationary Office Storres, CN
25. Bronfenbrenner U. Socialization and social class through time and space E.E. MacCoby T.M. Newcomb E.L. Hartley Reading in social psychology 3rd ed 1958 Holt, Rinehart, & Winston London 406 425
26. Bronfenbrenner U. The ecology of human development 1979 Harvard Univ. Press New York
27. Budd K.S. Greenspan S. Mentally retarded mothers E.A. Leckman Behavior modification with women 1984 Guilford Cambridge, MA 477 506
28. Budd K.S. Greenspan S. Parameters of successful and unsuccessful interventions with parents who are mentally retarded Mental Retardation 23 1985 269 273
29. Bullard W.N. State care of high-grade imbecile girls Proceedings of the National Conference of Charities and Correction 1910 299 303
30. Unpublished manuscript Caldwell B. Bradley R. Manual for the Home Observation for Measurement of the Environment 1979 University of Arkansas New York
31. Unpublished manuscript Coates D.L. Dunckel L.S. Vietze P.M. Reflection on “good” parenting of young children from a developmental science perspective 2000 City Univ. of New York Little Rock
32. Conley R.W. The economics of mental retardation 1973 MD-John Hopkins University Press
33. Craft A. Craft M. Handicapped married couples 1979 Routledge & Kegan Paul Baltimore
34. Craft A. Craft M. Sexuality and personal relationships M. Craft J. Bicknell S. Hollins Mental handicap 1985 Bailiere Tindall London 177 196
35. Crittenden P.M. Bonvillian J.D. The relationship between maternal risk status and maternal sensitivity American Journal of Orthopsychiatry 54 1984 250 262
36. de la Cruz F.F. LaVeck G.D. Human sexuality and the mentally retarded 1973 Brunner/Mazel London
37. Denfeld R. Outgrowing your parents New York Times Magazine 1998, March 22 32 35
38. Dingman H.F. Tarjan G. Mental retardation and the normal distribution curve American Journal of Mental Deficiency 64 1960 991 994
39. Drew C.J. Logan D.R. Hardman M.L. Mental retardation: A life cycle approach 1984 Time Mirror/Mosby New York
40. Durkin M.S. Stein Z.A. Classification of mental retardation J.W. Jacobson J.A. Mulick Manual of diagnosis and professional practice in mental retardation 1996 American Psychological Association St. Louis 67 73
41. Eaton L. Menolascino F.J. Psychiatric disorders in the mentally retarded: Types, problems, and challenges American Journal of Psychiatry 139 1982 1297 1303
42. Edgerton R.B. The cloak of competence: Stigma in the lives of the mentally retarded 1967 Univ. of California Press Washington, DC
43. Edgerton R.B. Some sociocultural research considerations F.F. de la Cruz G.D. LaVeck Human sexuality and the mentally retarded 1973 Brunner/Mazel Berkeley 240 249
44. Espe-Scherwindt M. Parents with special needs/mental retardation: A handbook for early intervention 1990 University Affiliated Cincinnati Center for Developmental Disorders New York
45. Espe-Scherwindt M. Crable S. Parents with mental retardation: Moving beyond the myths Topics in Early Childhood Special Education 13 2 1993 154 174
46. Espe-Scherwindt M. Kerlin S. Early intervention with parents with mental retardation: Do we empower or impair? Infants and Young Children 2 4 1990 21 28
47. Eugenics Survey of Vermont Third annual report of the eugenics survey of Vermont 1929 Univ. of Vermont Cincinnati, OH
48. Feldman M.A. Research on parenting by mentally retarded persons Psychiatric Clinics of North America 9 4 1986 777 796
49. Feldman M.A. Parenting education for parents with intellectual disabilities: A review of outcome studies Research in Developmental Disabilities 15 1994 299 332
50. Feldman M.A. Case L. Effectiveness of self-instructional audio-visual materials in teaching child-care skills to parents with intellectual disabilities Journal of Behavioral Education 7 1997 235 257
51. Feldman M.A. Case L. Teaching child-care to parents with intellectual disabilities via self-learning Journal of Intellectual and Developmental Disability 24 1999 27 44
52. Feldman M.A. Case L. Rincover A. Towns F. Betel J. Parent Education Project III: Increasing affection and responsivity in developmentally handicapped mothers: Component analysis, generalization and effects on child language Journal of Applied Behavior Analysis 22 1989 211 222
53. Feldman M.A. Case L. Sparks B. Effectiveness of a child-care training program for parents at-risk for child neglect Canadian Journal of Behavioral Science 24 1992 14 28
54. Feldman M. Case L. Towns F. Betel J. Parent Education Project I: Development and nurturance of children of mentally retarded parents American Journal of Mental Deficiency 90 3 1985 253 258
55. Feldman M.A. Ducharm J.M. Case L. Using self-instructional pictorial manuals to teach child-care skills to mothers with intellectual disabilities Behavior Modification 23 1999 480 497
56. Feldman M. Leger M. Walton-Allen N. Stress in mothers with intellectual disabilities Journal of Child and Family Studies 6 4 1997 471 485
57. Feldman M.A. Towns F. Betel J. Case L. Rincover A. Rubino C.A. Parent education project II: Increasing stimulating interactions of developmentally handicapped mothers Journal of Applied Behavior Analysis 19 1986 23 27
58. Feldman M.A. Sparks B. Case L. Effectiveness of home-based early intervention on the language development of children of mothers with mental retardation Research in Developmental Disabilities 14 1993 387 408
59. Feldman M.A. Walton-Allen N. Effects of maternal mental retardation and poverty on intellectual, academic and behavioral status of school-age children American Journal of Mental Retardation 101 1997 352 364
60. Fotheringham J.B. The concept of social competence as applied to marriage and child care in those classified as mentally retarded Canadian Medical Association Journal 8 104 1971 813 816
61. Garber H.L. The Milwaukee project: Preventing mental retardation in children at risk 1988 American Association on Mental Retardation Burlington, VT
62. Greenspan S. Bradley K. Loughlin G. Ethical and methodological issues in assessing parents who have intellectual disabilities Paper presented at Parents with Intellectual Impairment Conference conducted at The New York State Institute for Basic Research on Staten Island October, 1998
63. Greenspan S. Budd K.S. Research on mentally retarded parents J.J. Gallagher P.M. Vietze Families of handicapped persons: Current research, programs and policy issues 1986 Brooks Washington 115 127
64. Grossman H. Manual on terminology and classification in mental retardation: Revision 1973 American Association on Mental Deficiency Baltimore
65. Hall J.E. Sexual behavior J. Wortis Mental retardation and developmental disabilities: An annual review Vol. 6 1974 Brunner/Mazel Washington
66. Hayman R.J. Presumptions of justice: Law, politics and the mentally retarded parent Harvard Law Review 103 1990 1201 1274
67. Helfer R. The etiology of child abuse Pediatrics 51 1973 777 779
68. Heber R. Garber H. Harrington S. Hoffman C. Falender C. Rehabilitation of families at risk for mental retardation Progress Report of the Rehabilitation Research and Training Center 1972 Univ. of Wisconsin New York
69. Hertz R. Retarded parents in neglect proceedings: The erroneous assumption of parental inadequacy Stanford Law Review 31 1979 785 805
70. Higgins J.V. Reed E.W. Reed S.C. Intelligence and family size: A paradox resolved Eugenics Quarterly 9 1962 84 90
71. Holburn C.S. A renaissance in residential behavior analysis? A historical perspective and a better way to help people with challenging behavior The Behavior Analyst 20 1997 61 85
72. Holburn C.S. Vietze P. Acknowledging barriers in adopting person-centered planning Mental Retardation 37 1999 117 124
73. Johnson P.L. Clark S.R. Service needs of developmentally disabled parents J.M. Berg J.M. de Long Perspective and progress in mental retardation: Social, psychological, and educational aspects Vol. 1 1984 Univ. Park Press Madison 443 450
74. Kaminer R.K. Jedrysek E. Soles B. Intellectually limited parents Developmental and Behavioral Pediatrics 2 2 1981 39 43
75. Kaminer R.K. Cohen H.J. Intellectually limited mothers Developmental handicaps: Prevention and treatment 1983 American Association of University Affiliated Programs for Persons with Developmental Disabilities Baltimore, MD 24 44
76. Keltner B. Caregiving by mothers with mental retardation Family and Community Health 15 2 1992 10 18
77. Keltner B. Home environments of mothers with mental retardation Mental Retardation 32 1994 123 127
78. Keltner B. Tymchuk A.J. Reaching out to mothers with mental retardation American Journal of Maternal Child Nursing 17 1992 136 140
79. Kollberg E. Disputed mothers: A study of mothers registered as mentally retarded Doctoral thesis 1989 Nordic School of Public Health Washington, DC
80. Lazarus R. Psychological stress and the coping process 1966 McGraw-Hill Goteborg, Sweden
81. Lewis M. Rosenblum L. The origins of behavior: The effect of the infant on its care giver vol. 1 1974 Wiley New York
82. Llewellyn G.M. Parents with an intellectual disability: Perspectives from the literature Australia and New Zealand Journal of Developmental Disabilities 16 4 1990 369 380
83. Llewellyn G. Parents with intellectual disability learning to parent: The role of experience and informal learning International Journal of Disability Development and Education 44 3 1997 243 262
84. Llewellyn G. McConnel D. Bye R. Perception of service needs by parents with intellectual disability, their significant others and their service workers Research in Developmental Disabilities 19 1998 245 260
85. Llewellyn G. Relationships and social support: View of parents with mental retardation Mental Retardation 33 1995 349 363
86. Luckasson R. Coulter D.L. Polloway E.A. Reiss S. Schalock R.L. Snell M.E. Spitalnik D.M. Stark J.A. Mental retardation: Definitions, classifications, and system of support 1992 American Association on Mental Retardation New York
87. Martin S.M. Ramey C.T. Ramey S. The prevention of intellectual impairment in children of impoverished families: Findings of a randomized trial of educational day care American Journal of Public Health 80 1990 844 847
88. Mattison J. Marriage and handicap 2nd ed. 1975 Institute of Marital Studies, The Tavistock Institute of Human Relations Washington, DC
89. McCandless B. Environment and intelligence American Journal of Mental Deficiency 56 1952 785 797
90. McConnell D. Llewellyn G. Bye R. Providing services for parents with intellectual disability: Parent needs and service constraints Journal of Intellectual and Developmental Disability 22 1 1997 5 17
91. McKenna D. Parenting skills curriculum: A curriculum for mentally handicapped parents of young children 1982 Northwest Center Infant Development Program London
92. McLaren J. Bryson S. Review of recent epidemiological studies of mental retardation: Prevalence, associated disorders, and etiology American Journal of Mental Retardation 92 1987 243 254
93. Mercer J. Labeling the mentally retarded: Clinical and social systems perspectives on mental retardation 1973 Univ. of California Press Seattle, Washington
94. Mickelson P. Can mentally deficient parents be helped to give their children better care? American Journal of Mental Deficiency 53 1949 516 534
95. Mickelson P. The feebleminded parent: A study of 90 family cases American Journal of Mental Deficiency 51 1947 644 653
96. Unpublished manuscript Mira M. Roddy J. Parenting competencies of retarded persons: A critical review 1980 The Univ. of Kansas Medical Center Berkeley
97. Mount B. Benefits and limitations of personal futures planning V.J. Bradley J.W. Ashbaugh B.C. Blancy Creating individual supports for people with developmental disabilities: A mandate for change at many levels 1994 Paul Brookes Kansas 97 108
98. (Publication No. 421-88-109) Mount B. Zwernik K. It's never too early, it's never too late: A booklet about personal futures planning 1988 Metropolitan Council, Mears Park Center Baltimore, MD
99. Olshansky S. Chronic sorrow, a response to having a defective child Social Casework 43 1962 191 194
100. Patton M.Q. How to use qualitative methods in evaluation 1987 Sage St. Paul, MN
101. Peck J.R. Stephens W.B. Marriage of young adult male retardates American Journal of Mental Deficiency 69 1965 818 827
102. Peterson S.L. Robinson E.A. Littman I. Parent-child interaction training for parents with a history of mental retardation Applied Research in Mental Retardation 4 1983 329 342
103. Ramey C.T. Cambell F.A. Preventive education for high-risk children: Cognitive consequences of the Carolina Abecedarian Project American Journal of Mental Deficiency 88 1984 515 523
104. Ramey C.T. Mulvihill B.A. Ramey S.L. Prevention: Social and educational factors and early intervention J.W. Jacobson J.A. Mulick Manual of diagnosis and professional practice in mental retardation 1996 American Psychological Association Newbury Park 215 227
105. Ramey C.T. Ramey S.L. Effective early intervention Mental Retardation 30 1992 337 345
106. Reed E. Reed S. Mental retardation: A family study 1965 W.B. Saunders Washington, DC
107. Reed S.C. Anderson V.E. Effects of changing sexuality on the gene pool F.F. de la Cruz G.D. La Veck Human sexuality and the mentally retarded 1973 Brunner/Mazel Philadelphia
108. Robinson N.M. Robinson H.B. The mentally retarded child 2nd ed. 1976 McGraw-Hill New York
109. Robinson L.H. Parental attitudes of retarded young mothers Child Psychiatry and Human Development 8 1978 131 144
110. Ronai C.R. On loving and hating my mentally retarded mother Mental Retardation 35 6 1997 417 432
111. Rosen M. Clark G.R. Kivitz M.S. The history of mental retardation: Collected papers vol. 1 1976 Univ. Park Press New York
112. Rosenberg S.A. McTate G.A. Intellectually handicapped mothers: Problems and prospects Children Today 11 1982 24 27
113. Ryde-Brandt B. Mothers of primary school children with Down's syndrome How do they experience their situation? Acta Psychiatrica Scandivanica 78 1988 102 108
114. Ryde-Brandt B. Anxiety and depression in mothers of children with psychotic disorders and mental retardation British Journal of Psychiatry 156 1990 118 121
115. Sarason S.B. Psychological problems in mental deficiency 2nd ed. 1953 Harper Baltimore, MD
116. Sarason S.B. Psychological problems in mental deficiency 3rd ed. 1959 Harper New York
117. Sarber R.E. Halasz M.M. Messmer M.C. Bickett A.D. Lutzker J.R. Teaching menu planning and grocery shopping skills to a mentally retarded mother Mental Retardation 21 1983 101 106
118. Scally B.G. Marriage and mental handicap: Some observations in Northern Ireland F.F. de la Cruz G.D. La Veck Human sexuality and the mentally retarded 1973 Brunner/Mazel New York 169 185
119. Scheerenberger R.C. A history of mental retardation 1983 Paul Brookes New York
120. Schilling R.F. Schinke S.P. Blythe B.J. Barth R.P. Child maltreatment and mental retardation: Is there a relationship? Mental Retardation 20 1982 201 209
121. Seagull E. Scheurer S. Neglected and abused children of mentally retarded parents Child Abuse & Neglect 10 1986 493 500
122. Skeels H.M. Dye H.B. A study of the effects of differential stimulation on mentally retarded children Proceedings and Addresses of the American Association on Mental Deficiency 44 1939 114 136
123. (3, Serial No. 105) Skeels H.M. Adult status of children with contrasting early life experiences Monographs of the Society for Research in Child Development 31 1966
124. Smull M.W. Harrison S.B. Supporting people with severe retardation in the community 1992 National Association of State Mental Retardation Program Directors Baltimore, MD
125. Spitz R.A. Hospitalism: An inquiry into the genesis of psychiatric conditions in early childhood Psychoanalytic studies of the child Vol. 1 1945 International Univ. Press Alexandria, VA
126. Sundram C.J. Stack E.W. Benjamin W.P. Serving parents who are mentally retarded: A review of eight parenting programs in New York State 1993 New York State Commission of Quality of Care For the Mentally Disabled New York
127. Taylor C.G. Norman D.K. Murphy J.M. Jellinek M. Quinn D. Poitrast F.G. Goshko M. Diagnosed intellectual and emotional impairment among parents who seriously mistreat their children: Prevalence, type, and outcome in a court sample Child Abuse and Neglect 15 1991 389 401
128. Tredgold A.F. Mental deficiency (amentia) 2nd ed. 1915 William Wood & Company
129. Tredgold R.F. Soddy K. A textbook of mental deficiency 9th ed. 1956 Williams & Wilkins New York
130. Tucker M.B. Johnson O. Competence-promoting and competence-inhibiting social support for mentally retarded mothers Human Organization 48 1989 95 107
131. Tymchuk A.J. Moving towards integration of services for parents with intellectual diabilities Journal of Intellectual Impairment 24 1999 59 74
132. Tymchuk A.J. Parents with mental retardation: A national strategy 1990 Presidents' Committee on Mental Retardation Baltimore, MD
133. Tymchuk A.J. Parents with mental retardation: A national strategy Journal of Disability Policy Studies 1 4 1990 43 55
134. Tymchuk A.J. Parents with “functional or categorical” disabilities: Risk assessment, case management, and techniques for improving parenting skills: A training manual 1996 Center on Child Welfare, Department of Social Work, University of Southern California Washington, DC
135. Tymchuk A.J. Self-concepts of mothers who show mental retardation Psychological Reports 68 1991 503 510
136. Tymchuk A.J. Predicting adequacy of parenting by people with mental retardation Child Abuse and Neglect 16 1992 165 178
137. Tymchuk A.J. Depression symptomatology in mothers with mild intellectual disability: An exploratory study Australia and New Zealand Journal of Developmental Disabilities 19 1994 11 119
138. Tymchuk A.J. The importance of matching educational interventions to parent needs in child maltreatment J. Lutzker Handbook of child abuse research treatment 1998 Plenum Los Angeles 421 448
139. Tymchuk A.J. Andron L. Mothers with mental retardation who do or do not abuse or neglect their children Child Abuse & Neglect 14 1990 313 323
140. Tymchuk A.J. Andron L. Project parenting: Child interactional training with mothers who are mentally handicapped Mental Handicap Research 5 1992 4 32
141. Tymchuk A.J. Andron L. Unger O. Parents with mental handicaps and adequate child care—A review Mental Handicap 15 1987 49 53
142. Tymchuk A.J. Feldman M.A. Parents with mental retardation and their children: Review of research relevant to professional practice Canadian Psychology 32 3 1991 486 496
143. Tymchuk A.J. Hamada D. Andron L. Anderson S. Emergency training for mothers who are mentally retarded Mental Retardation and Learning Disability Bulletin 17 2 1989 34 45
144. Tymchuk A.J. Hamada D. Andron L. Anderson S. Home safety training with mothers who are mentally retarded Education and Training in Mental Retardation 25 1990 142 149
145. Tymchuk A.J. Llewellyn G.M. Feldman M.A. Parenting for persons with intellectual disabilities: A timely perspective Journal of Intellectual and Developmental Disability 24 1998 3 6
146. Tymchuk A.J. Yokota A. Rahbar B. Decision-making abilities of mothers with mental retardation Research Devel Disabilities 11 1990 97 109
147. Unger O. Howes C. Mother-child interactions and symbolic play between toddlers and their adolescent or mentally retarded mothers The Occupational Therapy Journal of Research 8 1988 237 249
148. Valman H.B. The handicapped child British Medical Journal 283 1981 1166 1169
149. Wald M. State intervention on behalf of “neglected” children: A search for realistic standards Stanford Law Review 27 1975 985 1040
150. Walton-Allen N. Feldman M.A. Perceptions of service needs by parents who are mentally retarded and their workers Comprehensive Mental Health Care 1 1991 57 67
151. Whitman B.Y. Graves B. Accardo P. Mentally retarded parents in the community: Identification method and needs assessment survey American Journal of Mental Deficiency 91 1987 636 638
152. Whitman B.Y. Graves B. Accardo P. Training in parenting skills for adults with mental retardation Social Work 34 5 1989 431 434
153. Whitman B. Accardo P. When a parent is mentally retarded 1990 Paul Brookes New York
154. (working paper no. 22) Winik L. Mildly retarded adults as parents: A description of the parenting process of two mildly retarded couples 1982 Mental Retardation Research Center Baltimore, MD
155. Wolfensberger W. The origin and nature of our institutional models 1975 Human Policy Press Los Angeles
156. Zetlin A. Weisner T. Gallimore R. Diversity, shared functioning and the role of benefactors: A study of parenting by retarded persons S.K. Thurman Children of handicapped parents: Research and clinical perspectives 1985 Academic Press Syracuse, New York 69 94