Reducing psychological distress in a genetic counseling consultation for breast cancer

Journal of Genetic Counseling

Volumn 12, Issue 3, 2003, Pages 243-264

  Duric, Vlatka ^a   Butow, Phyllis ^a   Sharpe, Louise ^a   Lobb, Elizabeth ^a   Meiser, Bettina ^b,c   Barratt, Alexandra ^d   Tucker, Katherine ^b,c  

^a UNIVERSITY OF SYDNEY   (Australia)

^b PRINCE OF WALES HOSPITAL   (Australia)

^c UNIVERSITY OF NEW SOUTH WALES   (Australia)

^d UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Breast cancer; Doctor patient communication; Genetic counseling; Psychological distress

Indexed keywords

ANXIETY; BEHAVIOR; BREAST CANCER; CANCER PATIENT; CANCER RISK; CONSULTATION; DEPRESSION; DISTRESS SYNDROME; DOCTOR PATIENT RELATION; EMPATHY; FAMILIAL CANCER; GENETIC COUNSELING; HIGH RISK PATIENT; HUMAN; PATIENT CARE; REVIEW; TAPE RECORDER;

EID: 3543100483     PISSN: 10597700     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1023284219871     Document Type: Review

References (51)

1. Birdwhistell, R. L. (1970). Kinesics and Context. Philadelphia: University of Pennsylvania Press.
2. Brown, R. F., Dunn, S., & Butow, P. (1997). Meeting Patient Expectations in the Cancer Consultation. Ann Oncol, 8, 877-882.
3. Buckman, R. (1984). Breaking Bad News: Why Is It Still so Difficult? BMJ, 288, 1597-1599.
4. Butow, P., Brown, R. F., Cogar, S., Tattersal, M. H. N., & Dunn, S. M. (2002). Oncologists' Reactions to Cancer Patients' Verbal Cues. Psychooncology, 11, 47-58.
5. Butow, P. N., Kazemi, J., Beeney, L. J., Griffin, A.-M., Dunn, S. M., & Tattersall, M. H. N. (1996). When the Diagnosis is Cancer: Patient Communication Experiences and Preferences. Cancer, 77(12), 2630-2637.
6. Carkuff, R. R., & Pierce, R. M. (1975). Trainer's Guide: The Art of Helping. Amherst, MA: Human Resource Development Press.
7. Cormaroff, J., & Maguire, P. (1981). Ambiguity and the Search for Meaning: Childhood Leukemia in the Modern Clinical Context. Soc Sci Med B, 15, 115-123.
8. Croyle, R. T., Smith, K. R., Botkin, J. R., Baty, B., & Nash, J. (1997). Psychological Responses to BRCA1 Mutation Testing: Preliminary Findings. Health Psychol, 16(1), 63-72.
9. Cull, A., Anderson, E. D. C,, Campbell, S., Mackay, J., Smyth, E., & Steel, M. (1999). The Impact of Genetic Counselling About Breast Cancer Risk on Women's Risk Perceptions and Levels of Distress. Br J Cancer, 79(3/4), 501-508.
10. Cull, A., Miller, H., Porterfield, T., Mackay, J., Anderson, E. D., Steel, C. M. et al. (1998). The Use of Videotaped Information in Cancer Genetic Counselling: A Randomised Evaluation Study. Br J Cancer, 77(5), 830-837.
11. Davenport, S., Goldberg, D., & Millar, T. (1987). How Psychiatric Disorders are Missed During Medical Consultations. Lancet, 2(8556), 439-441.
12. Fallowfield, L. J., Hall, A., Maguire, G. P., & Baum, M. (1990). Psychological Outcomes of Different Treatment Policies in Women With Early Breast Cancer Outside a Clinical Trial. BMJ, 301(6752), 575-580.
13. Ford, S., Fallowfield, L., & Lewis, S. (1994). Doctor-Patient Interactions in Oncology. Soc Sci Med, 42, 1511-1519.
14. Furnival, C. M. (1997). Breast Cancer: Current Issues in Diagnosis and Treatment. Aust N Z J Surg, 67, 47-58.
15. Goldberg, D., Jenkins, L., Millar, T., & Fargher, E. (1993). The Ability of Trainee General Practitioners to Identify Psychological Distress Among Their Patients. Psychol Med, 23, 185-193.
16. Greenlay, J. R., Young, T. B., & Schoenherr, R. A. (1982). Psychological Distress and Patient Satisfaction. Med Care, 20, 373-385.
17. Heaven, C., & Maguire, P. (1996). Training Hospice Nurses to Elicit Patients' Concerns. J Adv Nurs, 23, 280-286.
18. Hill, C. E., & Corbett, M. (1993). A Perspective on the History of Process and Outcome Research in Counseling Psychology. J Counsel Psychol, 40, 3-24.
19. Hopper, J. (1995). A Coordinated National Approach to Breast Cancer Gene Testing. Breast News: Newslett NHMRC Nat Breast Cancer Centre, 2(2), Winter.
20. Hopwood, P., Keeling, F., Long, A., & Pool, C. (1998). Psychological Support Needs for Women at High Genetic Risk of Breast Cancer: Some Preliminary Indicators. Psychooncology, 7, 407-412.
21. Hopwood, P., & Maguire, P. (1992). Priorities in the Psychological Care of Cancer Patients. Int Rev Psychol, 4, 35-44.
22. Hosmer, D. W., & Lemeshoe, S. (1989). Applied Logistic Regression. Brisbane, Australia: Wiley.
23. Ivey, A. E., Ivey, M. B., & Simek-Morgan, L. (1993). Counselling and Psychotherapy: A Multicultural Perspective, 3rd ed. Needham Heights, MA: Allyn & Bacon.
24. Julian-Reynier, C., Eisinger, F., Chabal, F., Aurran, Y., Bignon, Y.-J., Machelard-Roumagnac, M., et al. (1999). Cancer Genetic Consultation and Anxiety in Healthy Consultees. Psych Health, 14, 379-390.
25. Kessler, S. (1979). The counselor as psychotherapist. In: A. M. Capron, M. Lappe, R. F. Murray, T. M. Powledge, S. B. Twiss, & D. Bergsma, (eds.), Genetic counseling: Facts, values and norms (BD:OAS XV(2), pp. 187-200). New York: Alan R. Liss Inc. for the National Foundation-March of Dimes.
26. Kessler, S. (1984). Psychologic responses to stresses in genetic diseases. In J. O. Weiss, B. A. Bernhardt, & N. Paul (Eds), Genetic disorders and birth defects in families and society: toward interdisciplinary understanding (BD:OAS XX(4), pp. 114-117). White Plains, NY: March of Dimes Birth Defects Foundation.
27. Kissane, D. W., Clarke, D. M., Ikin, J., Bloch, S., Smith, G. C., Vitetta, L., et al. (1998). Psychological Morbidity and Quality of Life in Australian Women with Early Stage Breast Cancer. Med J Aust, 169, 192-196.
28. Lerman, C., Hughes, C., Benkendorf, J. L., Biesecker, B., Kerner, J., Willison, J., et al. (1999). Racial Differences in Testing Motivation and Psychological Distress Following Pretest Education for BRCA1 Gene Testing. Cancer Epidemiol Biomarkers Prev, 8(4, Pt 2), 361-367.
29. Lerman, C., Schwartz, M. D., Miller, S. M., Daly, M., Sands, C., & Rimer, B. K. (1996). A Randomized Trial of Breast Cancer Risk Counseling: Interacting Effects of Counseling, Educational Level, and Coping Style. Health Psychol, 15(2), 75-83.
30. Lobb, E. A., Butow, P., Meiser, B., Barratt, A., Gaff, C., Young, M. A., et al. (2002). Tailoring Communication in Consultations With Women From High Risk Breast Cancer Families. Br J Cancer, 87(5), 502-508.
31. Lobb, E. A., Butow, P., Meiser, B., Barratt, A., Kirk, J., Gattas, M., et al. (2002). The Use of Audiotapes in Consultations With Women From High Risk Breast Cancer Families: A Randomised Trial. J Med Genet, 39, 697-703.
32. Maguire, P. (1985). Improving the Detection of Psychiatric Problems in Cancer Patients. Soc Sci Med, 20, 819-823.
33. Maguire, P., Booth, K., Elliott, C., & Jones, B. (1996b). Helping Health Professionals Involved in Cancer Care Acquire Key Interviewing Skills - The Impact of Workshops. Eur J Cancer A, 32(9), 1486-1489.
34. Maguire, P., & Faulkner, A. (1988). Improve the Counseling Skills of Doctors and Nurses in Cancer Care. BMJ, 297, 847-849.
35. Maguire, P., Faulkner, A., & Booth, K. (1996a). Helping Cancer Patients Disclose Their Concerns. Eur J Cancer A, 32, 78-81.
36. Meiser, B., Butow, P., Barratt, A., Friedlander, M., Gattas, M., Kirk, J., et al. (1999). Attitudes Toward Prophylactic Oophorectomy and Screening Utilization in Women at Increased Risk of Developing Hereditary Breast/Ovarian Cancer. Int J Gynaecol Cancer, 75, 122-129.
37. Meiser, B., Butow, P. N., Barratt, A. L., Schnieden, V., Gattas, M., Kirk, J., et al. (2001). The Psychological Impact Collaborative Group. Long-term Outcomes of Genetic Counseling in Women at Increased Risk of Developing Hereditary Breast Cancer. Patient Educ Couns, 44(3), 215-225.
38. Meiser, B., Butow, P., Friedlander, M., Schnieden, V., Gattas, M., Kirk, J., et al. (2000). Intention to Undergo Prophylactic Bilateral Mastectomy in Women at Increased Risk of Developing Hereditary Breast Cancer. J Clin Oncol, 18(11), 2250-2257.
39. Meyer, T. J., & Mark, M. M. (1995). Effects of Psychosocial Interventions With Adult Cancer Patients: A Meta-Analysis of Randomised Experiments. Health Psychol, 14(2), 101-108
40. Michie, S., Marteau, T., & Bobrow, M. (1997). Genetic Counseling: The Psychological Impact of Meeting Patients' Expectations. J Med Genet, 34, 237-241.
41. Moorey, S., Greer, S., Watson, M., Gorman, C., Rowden, L., Tunmore, R., et al. (1991). The Factor Structure and Factor Stability of the Hospital Anxiety and Depression Scale in Patients with Cancer. Br J Psychol, 158, 255-259.
42. Pope, C., & Mays, N. (Eds.) (2000). Qualitative Research in Health Care, 2nd ed. London: BMJ Books. Schwartz, M. D., Lerman, C., Audrain, J., Cella, D., Rimer, B., Stefanek, M., Garber, J., Lin, T. H., Vogel, V. (1998). The Impact of a Brief Problem-Solving Training Intervention for Relatives of Recently Diagnosed Breast Cancer Patients. Ann Behav Med, 20(1), 7-12.
43. Pope, C., & Mays, N. (Eds.) (2000). Qualitative Research in Health Care, 2nd ed. London: BMJ Books. Schwartz, M. D., Lerman, C., Audrain, J., Cella, D., Rimer, B., Stefanek, M., Garber, J., Lin, T. H., Vogel, V. (1998). The Impact of a Brief Problem-Solving Training Intervention for Relatives of Recently Diagnosed Breast Cancer Patients. Ann Behav Med, 20(1), 7-12.
44. Shiloh, S., Avdor, O., & Goodman, R. M. (1990). Satisfaction With Genetic Counseling: Dimensions and Measurement. Am J Med Genet, 37, 522-529.
45. Spinhoven, P. H., Ormel, J., Sloekers, P. P. A., & Kempen, G. I. J. M. (1997). A Validation Study of the Hospital Anxiety and Depression Scale (HADS) in Different Groups of Dutch Subjects. Psychol Med, 27, 363-370.
46. Street, R. (1991). Information Giving in Medical Consultations: The Influence of Patients' Communicative Styles and Personal Characteristics. Soc Sci Med, 32, 541-548.
47. Watson, M., Duvivier, V., & Walsh, M. A. (1998). Family History of Breast Cancer: What do Women Understand and Recall About Their Genetic Risk? J Med Genet, 35, 731-738.
48. Watson, M., Lloyd, S., Davidson, J., Meyer, L., Ebbs, R., Ebbs, S., et al. (1999). The Impact of Genetic Counseling on Risk Perception and Mental Health in Women With a Family History of Breast Cancer. Br J Cancer, 79(5/6), 868-874.
49. Wiggins, S., Whyte, P., Huggins, M., Adam, S., Theilmann, J., Bloch, M., et al. (1992). The Psychological Consequences of Predictive Testing for Huntington's Disease. Canadian Collaborative Study of Predictive Testing. N Eng J Med, 327(20), 1401-1405.
50. Wilkinson, S. (1991). Factors Which Influence How Nurses Communicate With Cancer Psatients. J Adv Nurs, 16, 677-688.
51. Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand, 67, 361-370.