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Volumn 11, Issue 3, 2007, Pages 276-290

Development and pilot evaluation of novel genetic educational materials designed for an underserved patient population

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHROMOSOME; CLINICAL ARTICLE; CONTROLLED STUDY; EVIDENCE BASED PRACTICE; FAMILY; FEMALE; GENE; GENERAL PRACTICE; GENETIC ANALYSIS; GENETIC COUNSELING; GENETIC RISK; GENETIC SCREENING; HEALTH CARE; HEREDITY; HUMAN; MEDICAL EDUCATION; PEDIGREE; QUANTITATIVE ANALYSIS; VIGNETTE;

EID: 35348949542     PISSN: 10906576     EISSN: None     Source Type: Journal    
DOI: 10.1089/gte.2007.0012     Document Type: Article
Times cited : (22)

References (46)
  • 1
    • 0030271277 scopus 로고    scopus 로고
    • The meaning of 6.8: Numeracy and normality in health information talks
    • Adelsward V, Sachs L (1996) The meaning of 6.8: numeracy and normality in health information talks. Soc Sci Med 43:1179-1187.
    • (1996) Soc Sci Med , vol.43 , pp. 1179-1187
    • Adelsward, V.1    Sachs, L.2
  • 3
    • 33747385762 scopus 로고    scopus 로고
    • Genetic testing, genetic information and the role of maternal-child health nurses in Israel
    • Barnoy S, Appel D, Peretz C, Meiraz H, Ehrenfeld M (2006) Genetic testing, genetic information and the role of maternal-child health nurses in Israel. J Nurs Scholarsh 38:219-224.
    • (2006) J Nurs Scholarsh , vol.38 , pp. 219-224
    • Barnoy, S.1    Appel, D.2    Peretz, C.3    Meiraz, H.4    Ehrenfeld, M.5
  • 4
    • 0037824700 scopus 로고    scopus 로고
    • Developing culturally sensitive cancer genetics communication aids for African-Americans
    • Baty B, Kinney A, Ellis S (2003) Developing culturally sensitive cancer genetics communication aids for African-Americans. Am J Med Genet 118A:146-155.
    • (2003) Am J Med Genet , vol.118 A , pp. 146-155
    • Baty, B.1    Kinney, A.2    Ellis, S.3
  • 7
    • 0030833282 scopus 로고    scopus 로고
    • Clinical terminology: Anxiety and confusion amongst families undergoing genetic counseling
    • Chapple A, Campion P, May C (1997) Clinical terminology: anxiety and confusion amongst families undergoing genetic counseling. Patient Educ Couns 32:81-91.
    • (1997) Patient Educ Couns , vol.32 , pp. 81-91
    • Chapple, A.1    Campion, P.2    May, C.3
  • 8
    • 0032950723 scopus 로고    scopus 로고
    • The impact of genetic counseling about breast cancer risk on women's risk perceptions and levels of distress
    • Cull A, Anderson ED, Campbell S, Mackay J, Smyth E, Steel M (1999) The impact of genetic counseling about breast cancer risk on women's risk perceptions and levels of distress. Br J Cancer 79:501-508.
    • (1999) Br J Cancer , vol.79 , pp. 501-508
    • Cull, A.1    Anderson, E.D.2    Campbell, S.3    Mackay, J.4    Smyth, E.5    Steel, M.6
  • 11
    • 0034853557 scopus 로고    scopus 로고
    • Understanding risk and lessons for clinical risk communication about treatment preferences
    • Edwards A, Elwyn G (2001) Understanding risk and lessons for clinical risk communication about treatment preferences. Qual Health Care 10:i9-i13.
    • (2001) Qual Health Care , vol.10
    • Edwards, A.1    Elwyn, G.2
  • 12
    • 0032226959 scopus 로고    scopus 로고
    • Patient understanding of genetic principles and their expectations of genetic services within the NHS: A qualitative study
    • Emery J, Kumar S, Smith H (1998) Patient understanding of genetic principles and their expectations of genetic services within the NHS: a qualitative study. Community Genet 1:78-83.
    • (1998) Community Genet , vol.1 , pp. 78-83
    • Emery, J.1    Kumar, S.2    Smith, H.3
  • 13
    • 0032934606 scopus 로고    scopus 로고
    • Limited literacy revisited: Implications for patient education
    • Foltz A, Sullivan J (1999) Limited literacy revisited: implications for patient education. Cancer Pract 7:145-150.
    • (1999) Cancer Pract , vol.7 , pp. 145-150
    • Foltz, A.1    Sullivan, J.2
  • 16
    • 0037208644 scopus 로고    scopus 로고
    • Risk communication: Problems of presentation and understanding
    • Gordon-Lubitz RJ (2003) Risk communication: problems of presentation and understanding. Student JAMA 289:95.
    • (2003) Student JAMA , vol.289 , pp. 95
    • Gordon-Lubitz, R.J.1
  • 17
    • 0032993787 scopus 로고    scopus 로고
    • Patients' understanding of medical risks: Implications for genetic counseling
    • Grimes DA, Snively GR (1999) Patients' understanding of medical risks: Implications for genetic counseling. Obstet Gynecol 93:910-914.
    • (1999) Obstet Gynecol , vol.93 , pp. 910-914
    • Grimes, D.A.1    Snively, G.R.2
  • 18
    • 0001091395 scopus 로고    scopus 로고
    • Talking about chance: The presentation of risk information during genetic counseling for breast and ovarian cancer
    • Hallowell N, Statham H, Murton F, Green J, Richards M (1997) "Talking about chance": The presentation of risk information during genetic counseling for breast and ovarian cancer. J Genet Couns 6:269-285.
    • (1997) J Genet Couns , vol.6 , pp. 269-285
    • Hallowell, N.1    Statham, H.2    Murton, F.3    Green, J.4    Richards, M.5
  • 19
    • 0031877327 scopus 로고    scopus 로고
    • Women's understanding of their risk of developing breast/ovarian cancer before and after genetic counseling
    • Hallowell N, Statham H, Murton F (1998) Women's understanding of their risk of developing breast/ovarian cancer before and after genetic counseling. J Genet Couns 7:345-364.
    • (1998) J Genet Couns , vol.7 , pp. 345-364
    • Hallowell, N.1    Statham, H.2    Murton, F.3
  • 20
    • 0036591549 scopus 로고    scopus 로고
    • Genetic testing for women previously diagnosed with breast/ovarian cancer: Examining the impact of BRCA1 and BRCA2 mutation searching
    • Hallowell N, Foster C, Ardern-Jones A, Eeles R, Murday V, Watson M (2002) Genetic testing for women previously diagnosed with breast/ovarian cancer: Examining the impact of BRCA1 and BRCA2 mutation searching. Genet Test 6:79-87.
    • (2002) Genet Test , vol.6 , pp. 79-87
    • Hallowell, N.1    Foster, C.2    Ardern-Jones, A.3    Eeles, R.4    Murday, V.5    Watson, M.6
  • 22
    • 33747113033 scopus 로고    scopus 로고
    • Do notions of risk inform patient choice? Lessons from a study of prenatal genetic counseling
    • Hunt, LM, Castaneda H, DE Vooqd, KB (2006) Do notions of risk inform patient choice? Lessons from a study of prenatal genetic counseling. Med Anthropol 25:193-219.
    • (2006) Med Anthropol , vol.25 , pp. 193-219
    • Hunt, L.M.1    Castaneda, H.2    DE Vooqd, K.B.3
  • 23
    • 35348944980 scopus 로고    scopus 로고
    • Institute of Social Research, UO.M (2003) Public knows no more about genetics than in 1990. Retrieved August 20, 2003 from http://www.umich.edu/news/ Releases/2003/May03/r051303.html
    • Institute of Social Research, UO.M (2003) Public knows no more about genetics than in 1990. Retrieved August 20, 2003 from http://www.umich.edu/news/ Releases/2003/May03/r051303.html
  • 24
    • 0028972288 scopus 로고
    • Presenting uncertainty in health risk assessment: Initial studies of its effects on risk perception and trust
    • Johnson BB, Slovic P (1995) Presenting uncertainty in health risk assessment: initial studies of its effects on risk perception and trust. Risk Anal 15:485-494.
    • (1995) Risk Anal , vol.15 , pp. 485-494
    • Johnson, B.B.1    Slovic, P.2
  • 25
    • 30744439056 scopus 로고    scopus 로고
    • Recruitment, genetic counseling and BRCA testing for underserved women at a public hospital
    • Lee R, Beattie M, Crawford, Mak J, Stewart, Komaromy M (2005) Recruitment, genetic counseling and BRCA testing for underserved women at a public hospital. Genet Test 9:306-311.
    • (2005) Genet Test , vol.9 , pp. 306-311
    • Lee, R.1    Beattie, M.2    Crawford3    Mak, J.4    Stewart5    Komaromy, M.6
  • 27
    • 0032528265 scopus 로고    scopus 로고
    • Lindor NM, Greene MH, and the Mayo Familial Cancer Program (1998) The concise handbook of family cancer syndromes. J Natl Cancer Inst 90:1039-1071.
    • Lindor NM, Greene MH, and the Mayo Familial Cancer Program (1998) The concise handbook of family cancer syndromes. J Natl Cancer Inst 90:1039-1071.
  • 29
    • 0033161492 scopus 로고    scopus 로고
    • Women's knowledge and attitudes about genetic testing for breast cancer susceptibility
    • Ludman EJ, Curry SJ, Hoffman E, Taplin S (1999) Women's knowledge and attitudes about genetic testing for breast cancer susceptibility. Eff Clin Pract 2:158-162.
    • (1999) Eff Clin Pract , vol.2 , pp. 158-162
    • Ludman, E.J.1    Curry, S.J.2    Hoffman, E.3    Taplin, S.4
  • 30
    • 0034848587 scopus 로고    scopus 로고
    • Long-term outcomes of genetic counseling in women at increased risk of developing hereditary breast cancer
    • Psychological Impact Collaborative Group
    • Meiser B, Butow PN, Barratt AL, Schnieden V, Gattas M, Kirk J, Gaff C, Suthers G, Gather K, Psychological Impact Collaborative Group (2001) Long-term outcomes of genetic counseling in women at increased risk of developing hereditary breast cancer. Patient Educ Couns 44:215-225.
    • (2001) Patient Educ Couns , vol.44 , pp. 215-225
    • Meiser, B.1    Butow, P.N.2    Barratt, A.L.3    Schnieden, V.4    Gattas, M.5    Kirk, J.6    Gaff, C.7    Suthers, G.8    Gather, K.9
  • 31
    • 35348964287 scopus 로고    scopus 로고
    • Merajver S, LeClaire V, Taylor K, Strecher V ND, Understanding cancer and genetics: a counseling handbook and interactive CD ROM, Health Media Research Lab of University of Michigan Comprehensive Cancer Center
    • Merajver S, LeClaire V, Taylor K, Strecher V (ND). Understanding cancer and genetics: a counseling handbook and interactive CD ROM, Health Media Research Lab of University of Michigan Comprehensive Cancer Center.
  • 32
    • 35349006559 scopus 로고    scopus 로고
    • Myriad Genetics Laboratories (2000) Hereditary breast and ovarian cancer: a professional and community education program Myriad Laboratories counseling aids series.
    • Myriad Genetics Laboratories (2000) Hereditary breast and ovarian cancer: a professional and community education program Myriad Laboratories counseling aids series.
  • 33
    • 4544374528 scopus 로고    scopus 로고
    • BRCA1 and BRCA2: 1994 and beyond
    • Narod S, Foulkes W (2004) BRCA1 and BRCA2: 1994 and beyond. Nat Rev Cancer 4:665-676.
    • (2004) Nat Rev Cancer , vol.4 , pp. 665-676
    • Narod, S.1    Foulkes, W.2
  • 35
    • 0344389542 scopus 로고    scopus 로고
    • The interplay of first-hand and second-hand investigations to model and support the development of scientific knowledge and reasoning
    • Carver SM, Klahr D eds, Erlbaum, Mahwah, NJ, pp
    • Palinscar AS, Magnusson SJ (2001) The interplay of first-hand and second-hand investigations to model and support the development of scientific knowledge and reasoning. In Carver SM, Klahr D (eds) Cognition and instruction: Twenty-five years of progress. Erlbaum, Mahwah, NJ, pp 151-192.
    • (2001) Cognition and instruction: Twenty-five years of progress , pp. 151-192
    • Palinscar, A.S.1    Magnusson, S.J.2
  • 37
    • 85010599311 scopus 로고
    • Chromosomes and communication: The discourse of genetic counseling
    • Rapp R (1988) Chromosomes and communication: the discourse of genetic counseling. Med Anthropol Q 2:143-157.
    • (1988) Med Anthropol Q , vol.2 , pp. 143-157
    • Rapp, R.1
  • 38
    • 0030452123 scopus 로고    scopus 로고
    • Lay understanding of genetics: A test of a hypothesis
    • Richards M, Ponder B (1996) Lay understanding of genetics: a test of a hypothesis. J Med Genet 33:1032-1036.
    • (1996) J Med Genet , vol.33 , pp. 1032-1036
    • Richards, M.1    Ponder, B.2
  • 40
    • 0033287632 scopus 로고    scopus 로고
    • Treating people with information: An analysis and review of approaches to communicating health risk information
    • Rothman AJ, Kiviniemi M. (1999) Treating people with information: an analysis and review of approaches to communicating health risk information. J Natl Cancer Inst Monogr 25:44-51.
    • (1999) J Natl Cancer Inst Monogr , vol.25 , pp. 44-51
    • Rothman, A.J.1    Kiviniemi, M.2
  • 42
    • 0030666187 scopus 로고    scopus 로고
    • The role of numeracy in understanding the benefit of screening mammography
    • Schwartz, L. M., Woloshin, S., Black, WC, Welch HG (1997) The role of numeracy in understanding the benefit of screening mammography. Ann Intern Med 127:966-972.
    • (1997) Ann Intern Med , vol.127 , pp. 966-972
    • Schwartz, L.M.1    Woloshin, S.2    Black, W.C.3    Welch, H.G.4
  • 43
    • 0000922790 scopus 로고    scopus 로고
    • Grounded theory methodology: An overview
    • Denzim N, Lincoln Y eds, Sage Publications, Thousand Oaks, CA, pp
    • Strauss A, Corbin J (1998) Grounded theory methodology: an overview. In Denzim N, Lincoln Y (eds.), Strategies of qualitative inquiry. Sage Publications, Thousand Oaks, CA, pp. 158-183.
    • (1998) Strategies of qualitative inquiry , pp. 158-183
    • Strauss, A.1    Corbin, J.2
  • 44
    • 0035057806 scopus 로고    scopus 로고
    • BRCA1 and BRCA2 and the genetics of breast and ovarian cancer
    • Welcsh PL, King M.-C (2001) BRCA1 and BRCA2 and the genetics of breast and ovarian cancer. Hum Mol Genet 10:705-713.
    • (2001) Hum Mol Genet , vol.10 , pp. 705-713
    • Welcsh, P.L.1    King, M.-C.2
  • 46
    • 2542637299 scopus 로고    scopus 로고
    • When a 12.86% mortality is more dangerous than 24.14%: Implications for risk communication
    • Yamagishi K (1997) When a 12.86% mortality is more dangerous than 24.14%: implications for risk communication. Appl Cogn Psychol 11:495-506.
    • (1997) Appl Cogn Psychol , vol.11 , pp. 495-506
    • Yamagishi, K.1


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