A patient and family perspective on gene therapy for rare diseases

Journal of Gene Medicine

Volumn 9, Issue 10, 2007, Pages 922-923

  Kent, Alastair ^a,c   Oosterwijk, Cor ^b,c  

^a Genetic Interest Group (GIG)   (United Kingdom)

^b Dutch Genetic Alliance ^*  (Netherlands)

^c European Genetic Alliances Network (EGAN)

Author keywords

Clinical trials; Gene therapy; Patient perspective; Regulation

Indexed keywords

ATTITUDE TO HEALTH; CANCER THERAPY; CLINICAL PRACTICE; COMBINED IMMUNODEFICIENCY; CONFERENCE PAPER; CYSTIC FIBROSIS; FAMILY ASSESSMENT; FAMILY ATTITUDE; GENE THERAPY; GENETIC DISORDER; HEALTH CARE QUALITY; HEALTH EDUCATION; HUMAN; INFORMATION DISSEMINATION; LAW; MARKETING; MEDICAL RESEARCH; PATIENT ADVOCACY; PATIENT ATTITUDE; PATIENT PARTICIPATION; PATIENT SAFETY; PRIORITY JOURNAL; PUBLICATION; SCIENTIST;

CLINICAL TRIALS AS TOPIC; FAMILY; GENE THERAPY; GENETIC VECTORS; HUMANS; RARE DISEASES;

EID: 35148826004     PISSN: 1099498X     EISSN: 15212254     Source Type: Journal    
DOI: 10.1002/jgm.1097     Document Type: Conference Paper

References (4)

1. Proposal for a Regulation of the European Parliament and of the Council on advanced therapy medicinal products and amending Directive 2001/83/EC and Regulation. (EC) No 726/2004. Available: http://ec.europa.eu/ enterprise/pharmaceuticals/advtherapies/docs/st09756_en.pdf.
2. European Genetic Alliances' Network. Available: www.egan.eu.
3. Consert. Available: www.gene-therapy.eu.
4. Clinigene. Available: www.clinigene.eu.