Late Consequences of Chronic Pediatric Illness

Psychiatric Clinics of North America

Volumn 30, Issue 4, 2007, Pages 819-835

  Turkel, Susan ^a   Pao, Maryland ^b  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b NATIONAL INSTITUTE OF MENTAL HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AUTOANTIBODY; AZATHIOPRINE; CORTICOSTEROID; CYCLIC AMP; DEXAMETHASONE; GLUCOCORTICOID; GROWTH HORMONE; IMMUNOMODULATING AGENT; IMMUNOSUPPRESSIVE AGENT; MERCAPTOPURINE; N METHYL DEXTRO ASPARTIC ACID RECEPTOR; PREDNISONE; PROSTAGLANDIN E2; TRANSMEMBRANE CONDUCTANCE REGULATOR;

ASTHMA; BODY HEIGHT; CATARACT; CHILD DEVELOPMENT; CHILD GROWTH; CHILD PSYCHIATRY; CHILDHOOD DISEASE; CHRONIC DISEASE; CONGENITAL HEART DISEASE; CORTICOSTEROID THERAPY; CYSTIC FIBROSIS; DEPRESSION; DRUG MEGADOSE; ENTERITIS; GLAUCOMA; GROWTH RETARDATION; HUMAN; MALNUTRITION; MENTAL DISEASE; NEPHROTIC SYNDROME; OSTEOPOROSIS; PRIORITY JOURNAL; PSYCHOGENESIS; PSYCHOSOCIAL CARE; REVIEW; SIDE EFFECT; SOCIAL ADAPTATION; SYSTEMIC LUPUS ERYTHEMATOSUS; WEIGHT GAIN;

ADOLESCENT; ARTHRITIS, JUVENILE RHEUMATOID; CHILD; CHRONIC DISEASE; CYSTIC FIBROSIS; DIAGNOSIS, DIFFERENTIAL; HEART DEFECTS, CONGENITAL; HUMANS; MENTAL DISORDERS; TIME FACTORS;

EID: 35048838995     PISSN: 0193953X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.psc.2007.07.009     Document Type: Review

References (96)

1. CF Foundation 2005. Cystic Fibrosis Foundation, 50 years of progress, hope (2005), Cystic Fibrosis Foundation, Bethesda (MD)
2. American Academy of Pediatrics, Committee on Psychosocial Aspects of Child and Family Health. The new morbidity revisited: a renewed commitment to the psychosocial aspects of pediatric care. Pediatrics 108 5 (2001) 1227-1230
3. Gledhill J., Rangel L., and Garralda E. Surviving chronic physical illness: psychosocial outcome in adult life. Arch Dis Child 83 (2000) 104-110
4. Janse A.J., Uiterwaal C.S.P.M., Genke R.J.B.J., et al. A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. J Clin Epidemiol 58 (2005) 495-502
5. Knapp P.K., and Harris E.S. Consultation-liaison in child psychiatry: a review of the past 10 years. Part I: clinical findings. J Am Acad Child Adolesc Psychiatry 37 1 (1998) 17-25
6. Stuber M.L., Schneider S., Kassam-Adams N., et al. The medical traumatic stress toolkit. CNS Spectr 11 (2006) 137-142
7. Rutter M. Implications of resilience concepts for scientific understanding. Ann NY Acad Sci 1094 (2006) 1-12
8. Pao M., Ballard E.D., and Rosenstein D.L. Growing up in the hospital. JAMA 297 (2007) 2752-2755
9. Armstrong F.D. Neurodevelopment and chronic illness: mechanisms of disease and treatment. Ment Retard Dev Disabil Res Rev 12 (2006) 168-173
10. Fitzgerald M., and Beggs S. The neurobiology of pain: developmental aspects. Neuroscientist 7 3 (2001) 246-257
11. National Child Traumatic Stress Network. Medical events and traumatic stress in children and families. Available at: http://www.nctsnet.org/nccts/nav.do?pid=typ_mt. Accessed December 12, 2005.
12. Patel L., Dixon M., and David T.J. Growth and growth charts in cystic fibrosis. J R Soc Med 96 Suppl 43 (2003) 35-41
13. Voss L.D. Short normal stature and psychosocial disadvantage: a critical review of the literature. J Pediatr Endocrinol Metab 14 6 (2001) 701-711
14. Hochberg Z. Mechanisms of steroid impairment of growth. Horm Res 58 Suppl 1 (2002) 33-38
15. Mushtaq T., and Ahmed S.F. The impact of corticosteroids on growth and bone health. Arch Dis Child 87 2 (2002) 93-96
16. Saha M.-T., Ruuska T., Laippala P., et al. Growth of prepubertal children with inflammatory bowel disease. J Pediatr Gastroenterol 26 3 (1998) 310-314
17. Newby E.A., Sawczenko A., Thomas A.G., et al. Interventions for growth failure in childhood Crohn's disease. Cochrane Database Syst Rev 3 (2005) CD003873
18. Uchida K., Araki T., Toiyama Y., et al. Preoperative steroid-related complications in Japanese pediatric patients with ulcerative colitis. Dis Colon Rectum 49 1 (2006) 74-79
19. Ballinger A. Management of growth retardation in the young patient with Crohn's disease. Expert Opin Pharmacother 3 1 (2002) 1-7
20. Hung Y.T., and Yang L.-Y. Follow-up of linear growth of body height in children with nephritic syndrome. J Microbiol Immunol Infect 39 5 (2006) 422-425
21. Emma F., Sesto A., and Rizzoni G. Long term linear growth of children with severe steroid-responsive nephrotic syndrome. Pediatr Nephrol 18 8 (2003) 783-788
22. Vester U., Schaefer A., Kranz B., et al. Development of growth and body mass index after pediatric renal transplantation. Pediatr Transplant 9 4 (2005) 445-449
23. Motoyama O., Hasegawa A., Ohara T., et al. A prospective trial of steroid withdrawal after renal transplantation treated with cyclosporine and mizoribine in children: results obtained between 1990 and 2003. Pediatr Transplant 9 2 (2005) 232-238
24. Grote F.K., Van Suijlekom-Smit L.W.A., Mul D., et al. Growth hormone treatment in children with rheumatic disease, corticosteroid induced growth retardation and osteopenia. Arch Dis Child 91 1 (2006) 56-60
25. Bechtold S., Ripperger P., Bonfig W., et al. Bone mass development and bone metabolism in juvenile idiopathic arthritis: treatment with growth hormone for four years. J Rheumatol 31 7 (2004) 1407-1412
26. Bechtold S., Ripperger P., Hafner R., et al. Growth hormone improves height in patients with juvenile idiopathic arthritis: 4 year data of a controlled study. J Pediatr 143 4 (2003) 512-519
27. Simon D., Lucidarme N., Prieur A.-M., et al. Treatment of growth failure in juvenile chronic arthritis. Horm Res 58 Suppl 1 (2002) 28-32
28. Simon D., Fernando C., Czernichow P., et al. Linear growth and final height in patients with systemic juvenile idiopathic arthritis treated with longterm glucocorticoids. J Rheumatol 9 6 (2002) 1296-1300
29. Simon D., Lucidarme N., Prieur A.-M., et al. Linear growth in children suffering from juvenile idiopathic arthritis requiring steroid therapy: natural history and effects of growth hormone treatment on linear growth. J Pediatr Endocrinol 14 Suppl 6 (2001) 1483-1486
30. Bae Y.S., Bae S.C., Lee S.W., et al. Lupus flare associated with growth hormone. Lupus 10 6 (2001) 448-450
31. Baum W.F., Schneyer U., Lantzsch A.M., et al. Delay of growth and development in children with bronchial asthma, atopic dermatitis and allergic rhinitis. Exp Clin Endocrinol Diabetes 110 2 (2002) 53-59
32. Sizonenko P.C. Effects of inhaled or nasal glucocorticoids on aqdrenal function and growth. J Pediatr Endocrinol 15 1 (2002) 5-26
33. Davis P.B., and Kercsmar C.M. Growth in children with chronic lung disease. N Engl J Med 342 12 (2000) 887-888
34. Ripa P., Robertson I., Dowley D., et al. The relationship between insulin, insulin-like growth factor axis and growth in children with cystic fibrosis. Clin Endocrinol 56 3 (2002) 383-389
35. Lai H.C., Kosorok M.R., Sondel S.A., et al. Growth status in children with cystic fibrosis based on the National Cystic Fibrosis Patient Registry data: evaluation of various criteria used to identify malnutrition. J Pediatr 132 3 Pt 1 (1998) 478-485
36. Hardin D.S., and Sy J.P. Effects of growth hormone treatment in children with cystic fibrosis: the National Cooperative Growth Study experience. J Pediatr 131 1 Pt 2 (1997) S65-S69
37. Hardin D.S., Stratton R., Krramer J.C., et al. Growth hormone improves weight velocity and height velocity in prepubertal children with cystic fibrosis. Horm Metab Res 30 10 (1998) 636-641
38. Hardin D.S., Rice J., Ahn C., et al. Growth hormone treatment enhances nutrition and growth in children with cystic fibrosis receiving enteral nutrition. J Pediatr 146 (2005) 324-328
39. Keller B.M., Aebischer C.C., Kraemer R., et al. Growth in prepubertal children with cystic fibrosis, homozygous for the Delta F508 mutation. J Cyst Fibros 2 2 (2003) 76-83
40. Lai H.C., FitzSimmons S.C., Allen D.B., et al. Risk of persistent growth impairment after alternate-day prednisone treatment in children with cystic fibrosis. N Engl J Med 342 12 (2000) 851-859
41. McNaughton S.A., Stormont D.A., Shepherd R.W., et al. Growth failure in cystic fibrosis. J Paediatr Child Health 35 1 (1999) 86-92
42. Sawyer S.M., Rosier M.J., Phelan P.D., et al. The self-image of adolescents with cystic fibrosis. J Adolesc Health 16 3 (1995) 204-208
43. Beker L.T., Russek-Cohen E., and Fink R.J. Stature as a prognostic factor in cystic fibrosis. J Am Diet Assoc 101 4 (2001) 438-442
44. Aris R.M., Renner J.B., Winders A.D., et al. Increased rate of fractures and severe kyphosis: sequelae of living into adulthood with cystic fibrosis. Ann Intern Med 128 3 (1998) 186-193
45. Kokkonen J. The social effects in adult life of chronic physical illness since childhood. Eur J Pediatr 154 (1995) 676-681
46. Pless I.B., Cripps H.A., Davies J.M.C., et al. Chronic physical illness in childhood: psychological and social effects in adolescence and adult life. Dev Med Child Neurol 31 (1989) 746-755
47. Newachek P.W., and Halfon N. Prevalence and impact of disabling chronic conditions in childhood. Am J Public Health 88 4 (1998) 610-617
48. Jacobson A.M., Hauser S.T., Willett J.B., et al. Psychological adjustment to IDDM: 10-year follow-up of an onset cohort of child and adolescent patients. Diabetes Care 20 (1997) 811-818
49. Beale I.L. Scholarly literature review: efficacy of psychological interventions for pediatric chronic illnesses. J Pediatr Psychol 31 5 (2006) 437-451
50. Stuber M.L., Shemesh E., and Saxe G.N. Posttraumatic stress responses in children with life-threatening illnesses. Child Adolesc Psychiatr Clin N Am 12 (2003) 195-209
51. Lip G.Y.H., Lane D.A., Millane T.A., et al. Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database Syst Rev 3 (2003) CD004394
52. Gupta S., Giuffre R.M., Crawford S., et al. Covert fears, anxiety and depression in congenital heart disease. Cardiol Young 8 4 (1998) 491-499
53. Bromberg J.I., Beasley P.J., D'Angelo E.J., et al. Depression and anxiety in adults with congenital heart disease: a pilot study. Heart Lung 32 2 (2003) 105-110
54. Cox D., Lewis G., Stuart G., et al. A cross sectional study of the prevalence of psychopathology in adults with congenital heart disease. J Psychosom Res 52 2 (2002) 65-68
55. Horner T., Liberthson R., and Jellinek M.S. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75 1 (2000) 31-36
56. Anderson D., Flume P.A., and Hardy K.K. Psychological functioning of adults with cystic fibrosis. Chest 119 4 (2001) 1079-1084
57. Pfeffer P.E., Pfeffer J.M., and Hodson M.E. The psychosocial and psychiatric side of cystic fibrosis in adolescents and adults. J Cyst Fibros 2 (2003) 61-68
58. Turkel S.B., and Cafaro D.R. Lithium treatment of a bipolar patient with cystic fibrosis. Am J Psychiatry 149 (1992) 574
59. Stepniak-Ziolkiewicz I., and Pierzchala W. Cystic fibrosis and pregnancy. Wiad Lek 55 5-6 (2002) 346-350
60. von Weiss R.T., Rapoff M.A., Varni J.W., et al. Daily hassles and social support as predictors of adjustment in children with pediatric rheumatic disease. J Pediatr Psychol 27 2 (2002) 155-165
61. Packham J.C., Hall M.A., and Pimm T.J. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: predictive factors for mood and pain. Rheumatology 41 12 (2002) 1444-1449
62. Frank R.G., Hagglund K.H., Schopp L.H., et al. Disease and family contributors to adaptation in juvenile rheumatoid arthritis and juvenile diabetes. Arthritis Care Res 11 3 (1998) 166-176
63. Rosenberg A.M. Systemic lupus erythematosus in children. Springer Semin Immunopathol 16 (1994) 261-279
64. Silber T.J., Chatoor I., and White P.H. Psychiatric manifestations of SLE in children and adolescents. Clin Pediatr 23 (1984) 331-335
65. Steinlin M.I., Blaser S.I., Gilday D.L., et al. Neurologic manifestations of pediatric systemic lupus erythematosus. Pediatr Neurol 13 (1995) 191-197
66. Turkel S.B., Miller J.H., and Reiff A. Case series: neuropsychiatric symptoms with pediatric systemic lupus erythematosus. J Am Acad Child Adolesc Psychiatry 40 (2001) 282-285
67. Kawakatsu S., and Wada T. Rheumatic disease and depression. Nippon Rinsho 59 8 (2001) 1578-1582 [in Japanese]
68. Hutchinson G.A., Nehall J.E., and Simeon D.T. Psychiatric disorders in systemic lupus erythematosus. West Indian Med J 45 2 (1996) 48-50
69. Denberg S.D., Carbotte R.M., and Denburg J.A. Psychological aspects of systemic lupus erythematosus: cognitive function, mood, and self report. J Rheumatol 24 (1997) 998-1003
70. Karassa F.B., Magliano M., and Isenberg D.A. Suicide attempts in patients with systemic lupus erythematosus. Ann Rheum Dis 62 1 (2003) 58-60
71. Monastero R., Bettini P., Del Zotto E., et al. Prevalence and pattern of cognitive impairment in systemic lupus erythematosus patients with and without overt neuropsychiatric manifestations. J Neurol Sci 184 1 (2001) 33-39
72. Waterloo K., Omdal R., Husby G., et al. Emotional status in systemic lupus erythematosus. Scand J Rheumatol 27 6 (1998) 410-414
73. Valesini G., Alessandri C., Celestino D., et al. Anti-endothelial antibodies and neuropsychiatric systemic lupus erythematosus. Ann NY Acad Sci 1069 (2006) 118-128
74. Harrison M.J., Ravdin L.D., and Lockshin M.D. Relationship between serum NR2a antibodies and cognitive dysfunction in systemic lupus erytehmatosus. Arthritis Rheum 54 8 (2006) 2515-2522
75. Lapteva L., Nowak M., Yarboro C.H., et al. Anti-N-methyl-D-aspartate receptor antibodies, cognitive dysfunction, and depression in systemic lupus erythematosus. Arthritis Rheum 54 8 (2006) 2505-2514
76. Blum R.W., Garell D., Hodgman C.H., et al. Transition from child-centered to adult health care systems for adolescents with chronic conditions. J Adolesc Health 14 (1993) 570-576
77. Leung S.S., Steinbeck K.S., Kohn M.R., et al. Chronic illness perception in adolescence: implications for the doctor-patient relationship. J Paediatr Child Health 33 2 (1997) 107-112
78. Scal P., Evans T., Blozis S., et al. Trends in transition from pediatric to adult health care services for young adults with chronic conditions. J Adolesc Health 24 (1999) 259-264
79. Reid G.J., Irvine M.J., McCrindle B.W., et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113 (2004) 197-205
80. Tucker L.B., and Cabral D.A. Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 52 (2005) 641-652
81. Viner R. Transition from paediatric to adult care: bridging the gaps or passing the buck?. Arch Dis Child 81 (1999) 271-275
82. Conway S.P. Transition from paediatric to adult-oriented care for adolescents with cystic fibrosis. Disabil Rehabil 20 6 (1998) 209-216
83. Schildlow D.V., and Fiel S.B. Life beyond pediatrics: transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am 74 5 (1990) 1113-1120
84. Child Health and Maternity Services Branch. Transition: getting it right for young people, improving the transition of young people with long term conditions from children's to adult health services (2006), National Health Services, London p. 1-46
85. Ziring P.R., Brazdziunas D., Gonzalez de Pijem L., et al. Transition of care provided for adolescents with special health care needs. Pediatrics 98 6 (1996) 1203-1206
86. Robertson L. When should young people with chronic rheumatic disease move from paediatric to adult-centred care?. Best Pract Res Clin Rheumatol 20 2 (2006) 387-397
87. Watson A.R. Transitioning adolescents from pediatric to adult dialysis units. Adv Perit Dial 12 (1996) 176-178
88. Dore A., de Guise P., and Mercier L.-A. Transition of care to adult congenital heart centres: what do patients know about their heart condition?. Can J Cardiol 18 2 (2002) 141-146
89. Knauth A., Verstappen A., Reiss J., et al. Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiol Clin 24 (2006) 619-629
90. Watson A.R. Problems and pitfalls of transition from paediatric to adult renal care. Pediatr Nephrol 20 2 (2005) 113-117
91. Reiss J.G., Gibson R.W., and Walker L.R. Health care transition: youth, family and provider perspectives. Pediatrics 115 5 (2005) 1449-1450
92. Fox A. Physicians as barriers to successful transitional care. Internat J Adolesc Med Health 14 1 (2002) 3-7
93. Volta C., Luppino T., Street M.E., et al. Transition from pediatric to adult care of children with chronic endocrine diseases: a survey on the current modalities in Italy. J Endocrinol Invest 26 2 (2003) 157-162
94. Donckerwolcke R.A., and van Zeben-van der Aa D.M. Transfer of the care for adolescents with chronic diseases: from pediatrics to specialists for adults. Ned Tijdschr Geneeskd 146 25 (2002) 1205-1206
95. Rosen D.S. Transition of young people with respiratory diseases to adult health care. Paediatr Respir Rev 5 2 (2004) 124-131
96. van der Lee J.H., Mokkink L.B., Grootenhuis M.A., et al. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA 287 (2007) 2741-2751