Psychological sequelae in parents of extreme low and very low birth weight infants

Journal of Clinical Psychology in Medical Settings

Volumn 14, Issue 3, 2007, Pages 238-247

  Elklit, Ask ^a   Hartvig, Tilde ^b   Christiansen, Marianne ^c  

^a AARHUS UNIVERSITY   (Denmark)

^b Department of Psykologhuset ^*  (Denmark)

^c AARHUS UNIVERSITY HOSPITAL   (Denmark)

Author keywords

Coping; Low birth weight; Premature infant; PTSD; Social support

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DISTRESS SYNDROME; EMOTIONAL DISORDER; FEMALE; HANDICAPPED CHILD; HUMAN; MALE; MENTAL STRESS; PARENTAL ATTITUDE; PARENTAL BEHAVIOR; POSTTRAUMATIC STRESS DISORDER; PREMATURITY; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; VERY LOW BIRTH WEIGHT;

EID: 34948848156     PISSN: 10689583     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10880-007-9077-4     Document Type: Article

References (59)

1. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders IV. Washington, DC: Author.
2. Ballard, C. G. (1995). Posttraumatic stress disorder (PTSD) after childbirth. British Journal of Psychiatry, 166, 525-528.
3. Beckwith, L. (1990). Adaptive and maladaptive parenting: Implications for intervention. In S. J. Meisels, & J. P. Shonkoff (Eds.), Handbook of early childhood intervention (pp. 53-77). Cambridge, MA: Cambridge University Press.
4. Buunk, B. P., & Hoorens, V. (1992). Social support and stress: The role of social comparison and social exchange processes. British Journal of Clinical Psychology, 31, 445-457.
5. Cobb, S. (1976). Social support as a moderator of life stress. Psychosomatic Medicine, 38, 300-314.
6. Cronin, C. M., Shapiro, C. R., Casiro, O. G., & Cheang, M. S. (1995). The impact of very low-birth-weight infants on the family is long lasting. Archives of Pediatrics and Adolescent Medicine, 149, 151-158.
7. DeMier, R. L., Hynan, M. T., Harris, H. B., & Maniello, R. L. (1996). Perinatal stressors as predictors of symptoms of posttraumatic stress in mothers of infants at high risk. Journal of Perinatology, 16, 276-280.
8. DeMier, R. L., & Hynan, M. T. (2000). A measurement of perinatal stressors: Identifying risk for postnatal emotional distress in mothers of high-risk infants. Journal of Clinical Psychology, 56, 89-100.
9. Elklit, A. (1996) Coping styles questionnaire: A further validation of a scale for measuring coping strategies. Personality and Individual Differences, 21, 809-812.
10. Elklit, A. (2002). Victimization and PTSD in a Danish national youth probability sample. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 174-181.
11. Elklit, A., & Jind, L. (1999). Forældrereaktioner på spædbarnsdød, Copenhagen: Forlaget Skolepsykologi/Dansk Psykologisk Forlag [Parents' reactions following death of infant].
12. Elklit, A., Pedersen, S. S., & Jind, L. (2001). The Crisis Support Scale: Psychometric qualities and further validation. Personality and Individual Differences, 31, 1291-1302.
13. Engelhard, I. M., van den Hout, M. A., & Arnoud, A. (2001). Posttraumatic stress disorder after pregnancy loss. General Hospital Psychiatry, 23, 62-66.
14. Field, T., Sandberg, D., Garcia, R., Nitza, V. L., Goldstein, S., & Guy, L. (1985). Pregnancy problems, postpartum depression, and early mother-infant interactions. Developmental Psychology, 21, 1152-1156.
15. Goldberg, S., & DiVitto, B. A. (1983). Born too soon. Preterm birth and early development. San Francisco: W.H. Freeman and Company.
16. Goldberg, S., & Marcovitch, S. (1986). Nurturing under stress: The care of preterm infants and developmentally delayed preschoolers. In A. Fogel & G. Nelson (Eds.), Origins of nurturance: Developmental, biological and cultural perspectives on caregiving (pp. 259-276). Hillsdale, NJ: Erlbaum.
17. Greisen, G. (1994). Meget for tidligt fødte børn. Månedskrift for Praktisk Lægegerning, 68, 851-860 [Extremely premature infants].
18. Guomundsdóttir, H. S., Elklit, A., & Guomundsdóttir, D. B. (2006). PTSD and psychological distress in Icelandic parents of chronically ill children: Does social support mediate psychological distress? Scandinavian Journal of Psychology, 47, 77-93.
19. Halpern, L. F., Brand, K. L., & Malone, A. F. (2001). Parenting stress in mothers of very-low-birth weight (VLBW) and full-term infants: A function of infant behaviorial characteristics and child rearing attitudes. Journal of Pediatric Psychology, 26, 93-104.
20. Hobbie, W. L., Stuber, M., Meeske, K., Wissler, K., Rourke, M. T., Ruccione, K., et al. (2000). Symptoms of posttraumatic stress in young adult survivors of childhood cancer. Journal of Clinical Oncology, 18, 4060-4066.
21. Hughes, M., & McCollum, J. (1994). Neonatal intensive care: Mothers' and fathers' perceptions of what is stressful. Journal of Early Intervention, 18, 258-268.
22. Joseph, S. A., Williams, R., & Yule, W. (1992). Crisis support, attributional style, coping style, and post-traumatic symptoms. Personality and Individual Differences, 13, 1249-1251.
23. Joseph, S., Andrews, B., Williams, R., & Yule, W. (1992). Crisis support and psychiatric symptomatology in adult survivors of the Jupiter cruise ship disaster. British Journal of Clinical Psychology, 31, 63-73.
24. Kazak, A. E., Alderfer, M., Rourke, M. T., Simms, S., Streisand, R., & Grossman, J. R. (2004). Posttraumatic stress disorder (PTSD) and posttraumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. Journal of Pediatric Psychology, 29, 211-219.
25. Kazak, A. E., Barakat, L. P., Alderfer, M., Rourke, M. T., Meeske, K., & Gallagher, P. (2001). Posttraumatic stress in survivors of childhood cancer and mothers: Development and validation of the Impact of Traumatic Stressors Interview Schedule (ITSIS). Journal of Clinical Psychology in Medical Settings, 8, 307-323.
26. Kazak, A. E., Barakat, L. P., Meeske, K., Christakis, D., Meadows, A. T., Casey, R., et al. (1997). Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology, 65, 120-129.
27. Kessler, R. C., Sonnega, A., Bromet, E., Hughes, M., & Nelson, C. B. (1995). Posttraumatic stress disorder in the National Comorbidity Survey. Archives of General Psychiatry, 52, 1048-1060.
28. Kirkebæk, B., Clausen, H., Storm, K., & Dyssegaard, B. (1994). Skrøbelig Kontakt. For Tidligt Fødte Børn og Deres Samspil med Omgivelserne. Copenhagen: Dansk Psykologisk Forlag [Fragile contact. Premature infants and their interaction with the surroundings].
29. Kupst, M. J., Natta, M., Richardson, C., Schulman, J., Lavigne, J., & Das, L. (1995). Family coping with pediatric leukemia: Ten years after treatment. Journal of Pediatric Psychology, 20, 601-617.
30. Landolt, M. A., Ribi, K., Laimbacher, J., Vollrath, M., Gnehm, H. E., & Sennhauser, F. H. (2002). Brief report: Posttraumatic stress disorder in parents of children with newly diagnosed Type 1 diabetes. Journal of Pediatric Psychology, 27, 647-652.
31. Lin, N., Ensel, W. M., Simeone, R. S., & Kuo, W. (1979). Social support, stressful life events, and illness: A model and an empirical test. Journal of Health and Social Behavior, 20, 108-119.
32. Lindy, J. D., Grace M. C., & Green, B. L. (1981). Survivors - outreach to a reluctant population. American Journal of Orthopsychiatry, 51, 468-478.
33. Lyons, S. (1998). Post-traumatic stress disorder following childbirth: Causes, prevention and treatment. In S. Clement (Ed.), Psychological perspectives on pregnancy and childbirth New York: Harcourt.
34. Macey, T. J., Harmon, R. J., & Easterbrooks, M. A. (1987). Impact of premature birth on the development of the infant in the family. Journal of Consulting and Clinical Psychology, 55, 846-852.
35. Madsen, S. A., Lind, D., & Munk, H. (2002). Fædres tilknytning til spædbørn. Copenhagen: Hans Reitzels Forlag [Fathers' attachment to infants].
36. Maroney, D. (1994). Helping parents survive the emotional "roller coaster ride" in the newborn intensive care unit. Journal of Perinatology, 14, 131-133.
37. Meyer, G. (1991). Gult Lys for Behandling af De Spædeste. Sygeplejersken, 91, 30-31 [Yellow light for treatment of the infants].
38. Mødrehjælpen af 1983. (1998). Sårbar Men Stærk. En Brugsbog om For Tidligt Fødte Børn. Copenhagen: Komitéen For Sundhedsoplysning [Vulnerable but strong. A workbook about premature infants].
39. Mollica, R. F., Caspi-Yavin, Y., Bollini, P., Truong, T., Tor, S., & Lavelle, J. (1992). The Harvard Trauma Questionnaire: Validating a cross-cultural instrument for measuring torture, trauma, and posttraumatic stress disorder in Indochinese refugees. Journal of Nervous and Mental Disease, 180, 111-116.
40. O'Brien, M., Soliday, E., & McCluskey-Fawcett, K. (1995). Prematurity and the neonatal intensive care unit. In M. C. Roberts (Ed.), Handbook of pediatric psychology (pp. 463-478). New York: Guilford Press.
41. Padden, T., & Glenn, S. (1997). Maternal experiences of preterm birth and neonatal intensive care. Journal of Reproductive and Infant Psychology, 15, 121-139.
42. Pederson, D. R. (1987). Maternal emotional responses to preterm birth. American Journal of Orthopsychiatry, 57, 15-21.
43. Porritt, D. (1979). Social support in crisis: Quantity or quality? Social Science and Medicine, 13A, 715-721.
44. Roger, D., Jarvis, G., & Najarian, B. (1993). Detachment and coping: The construction and validation of a new scale for measuring coping strategies. Personality and Individual Differences, 15, 619-629.
45. Sarimski, K. (1996). Belastung von Eltern frühgeborener Babys nach der Entlassung. Frühförderung Interdisziplinär 15, 28-36.
46. Singer, L. T., Danviller, M., Bruening, P., Hawkins, S., & Yamashita, T. S. (1996). Social support, psychological distress, and parenting strains in mothers of very low birthweight infants. Family Relations, 45, 343-350.
47. Solomon, Z., Avitzur, E., & Mikulincer, M. (1990). Coping styles and post-war psychopathology among Israeli soldiers. Personality and Individual Differences, 11, 451-456.
48. Stern, D. N., Bruschweiler, N., & Freeland, A. (1999). En mor bliver til. Copenhagen: Hans Reitzels Forlag [The birth of a mother].
49. Stjernquist, K. (1992). Extremely low birth weight infants less than 901 Grams. Impact on the family during the first year of life. Scandinavian Journal of Social Medicine, 20, 226-233.
50. Stjernquist, K. (1996). The birth of an extremely low birth weight infant (ELBW) <901 g: Impact on the family after 1 and 4 years. Journal of Reproductive and Infant Psychology, 14, 243-264.
51. Stjernquist, K. (1999). Född för tidligt. Hur Går Det Sedan? Borås, Sverige: Centraltryckeriet AB. [Born too soon. How does it go later in life?].
52. Subramanian, S., & Yoon, H. (2002). Extremely low birth weight infant. http://www.emedicine.com/ped/topic2784.htm.
53. Sylvest, A., & Peitersen, B. (1999). Forældregrupper. Kriseintervention til Forældre under Indlæggelse ved Ekstremt for Tidlig Fødsel. Ugeskrift For Læger, 162, 659-662 [Parental groups. Crisis intervention for parents during hospitalization following extremely premature birth].
54. Tracey, N. (Ed.) (2000). Parents of premature infants. Their emotional world. London: Whurr Publishers.
55. Tucker, P., & Trautman, R. (2000). Understanding and treating PTSD: Past, present, and future. Bulletin of the Menniger Clinic, 64 (Suppl. A), 37-51.
56. Vonderlin, E. (1999). Die Bedeutung von Gesprächsgruppen für die Bewältigung einer Frühgeburt durch die Eltern. Frühförderung Interdisziplinär, 18, 19-27.
57. Walker, A., Harris, G., Baker, A., Kelly, D., & Houghton, J. (1999). Posttraumatic stress responses following liver transplantation in older children. Journal of Child Psychology and Psychiatry, 40, 363-374.
58. Weisæth, L. (1989). Importance of high response rates in traumatic stress research. Acta Psychiatrica Scandinavica, 80 (Suppl. 355), 131-137.
59. Wilson, J. P., Raphael, B., Meldrum, L., & Bedosky, C. (2000). Preventing PTSD in trauma survivors. Bulletin of the Menninger Clinic, 64, 181-196.