Prognosticating futures and the human experience of hope

Palliative and Supportive Care

Volumn 5, Issue 3, 2007, Pages 227-239

  Thorne, Sally ^a   Oglov, Valerie ^a   Armstrong, Elizabeth Anne ^a   Hislop, T Gregory ^b  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b BRITISH COLUMBIA CANCER RESEARCH CENTRE   (Canada)

Author keywords

Cancer; Chronic illness; Communication; Hope; Prognosis

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CHRONIC DISEASE; FEMALE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NEOPLASM; PROGNOSIS; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CHRONIC DISEASE; COMMUNICATION; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PROFESSIONAL-PATIENT RELATIONS; PROGNOSIS; QUALITATIVE RESEARCH;

EID: 34848915429     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951507000399     Document Type: Article

References (79)

1. Altheide, D.L. & Johnson, J.M. (1994). Criteria for assessing interpretive validity in qualitative research. In Handbook of qualitative research, Denzin N.K. & Lincoln Y.S. (eds.), pp. 485-499. Thousand Oaks, CA: Sage.
2. Back, A.L., Arnold, R.M., Baile, W.F., et al. (2005). Approaching difficult communication tasks in oncology. CA: A Cancer Journal for Clinicians, 55, 164-177.
3. Baile, W.F. & Aaron, J. (2005). Patient-physician communication in oncology: Past, present and future. Current Opinion in Oncology, 17 331-335.
4. Baile, W.F., Glober, G.A., Lenzi, R., et al. (1999). Discussing disease progression and end-of-life decisions. Oncology (Huntington), 13, 1021-1031; discussion 1031-1026, 1038.
5. Baker, L. (1998). Sense making in multiple sclerosis: The information needs of people during an acute exacerbation. Qualitative Health Research, 8, 106-121.
6. Bartz, R. (1999). Beyond the psychosocial model: New approaches to doctor-patient interactions. Journal of Family Practice, 48, 601-607.
7. Bensing, J., van Dulmen, S., & Tates, K. (2003). Communication in context: New directions in communication research. Patient Education and Counseling, 50, 27-32.
8. Bishara, E., Loew, F., Forest, M.I., et al. (1997). Is there a relationship between psychological well-being and patient-carers consensus? A clinical pilot study. Journal of Palliative Care, 13, 14-22.
9. Boon, H. & Stewart, M. (1998). Patient-physician communication assessment instruments: 1986 to 1996 in review. Patient Education and Counseling, 35, 161-176.
10. Brown, J.B., McCracken, E.C., Stewart, M., et al. (1992). Teaching the patient-centered clinical method in primary care: A program for community physicians. The Journal of Continuing Education in the Health Professions, 12, 181-186.
11. Brown, R.F., Butow, P.N., Butt, D.G., et al. (2004). Developing ethical strategies to assist oncologists in seeking informed consent to cancer clinical trials. Social Science & Medicine, 58, 379-390.
12. Butow, P.N., Brown, R.F., Cogar, S., et al. (2002a). Oncologists' reactions to cancer patients' verbal cues. Psycho-oncology, 11, 47-58.
13. Butow, P.N., Dowsett, S., Hagerty, R., et al. (2002b). Communicating prognosis to patients with metastatic disease: What do they really want to know? Supportive Care in Cancer, 10, 161-168.
14. Chesla, C.A. (2005). Nursing science and chronic illness: Articulating suffering and possibility in family life. Journal of Family Nursing, 11, 371-387.
15. Clark, N.M., Nothwehr, F., Gong, M., et al. (1995). Physician-patient partnership in managing chronic illness. Academic Medicine, 70, 957-959.
16. Clayton, J.M., Butow, P.N., Arnold, R.M., et al. (2005). Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their care-givers. Cancer, 103, 1965-1975.
17. Cox, K. (2002). Informed consent and decision-making: Patients' experiences of the process of recruitment to phases I and II anti-cancer drug trials. Patient Education & Counseling, 46, 31-38.
18. Daugherty, C., Ratain, M.J., Grochowski, E., et al. (1995). Perceptions of cancer patients and their physicians involved in phase I trials. Journal of Clinical Oncology, 13, 1062-1072.
19. Degner, L.F. & Sloan, J.A. (1992). Decision-making during serious illness: What role do patients really want to play? Journal of Clinical Epidemiology, 45, 941-950.
20. de Haes, H. & Koedoot, N. (2003). Patient centered decision making in palliative cancer treatment: A world of paradoxes. Patient Education & Counseling, 50, 43-49.
21. Eliott, J.A. & Olver, I.N. (2007). Hope and hoping in the talk of dying cancer patients. Social Science & Medicine, 64, 138-149.
22. Ellis, P.M. & Tattersall, M.H. (1999). How should doctors communicate the diagnosis of cancer to patients? Annals of Medicine, 31, 336-341.
23. Fallowfield, L. & Jenkins, V. (1999). Effective communication skills are the key to good cancer care. European Journal of Cancer, 35, 1592-1597.
24. Fallowfield, L. & Jenkins, V. (2004). Communicating sad, bad, and difficult news in medicine. Lancet, 363, 312-319.
25. Fallowfield, L.J., Jenkins, V.A., & Beveridge, H.A. (2002). Truth may hurt but deceit hurts more: Communication in palliative care. Palliative Medicine, 16, 297-303.
26. Faulkner, A., Argent, J., Jones, A., et al. (1995). Improving the skills of doctors in giving distressing information. Medical Education, 29 303-307.
27. Finset, A., Smedstad, M., & Ogar, B. (1997). Physician-patient interaction and coping with cancer: The doctor as informer or supporter? Journal of Cancer Education, 12, 174-178.
28. Freedman, T.G. (2002). 'The doctor knows best' revisited: Physician perspectives. Psycho-oncology, 11, 327-335.
29. Gafni, A., Charles, C., & Whelan, T. (1998). The physician-patient encounter: The physician as a perfect agent for the patient versus the informed treatment decision-making model. Social Science & Medicine, 47, 347-354.
30. Girgis, A. & Sanson-Fisher, R.W. (1995). Breaking bad news: Consensus guidelines for medical practitioners. Journal of Clinical Oncology, 13, 2449-2456.
31. Girgis, A., & Sanson-Fisher, R.W (1998). Breaking bad news. 1: Current best advice for clinicians. Behavioral Medicine, 24, 53-59.
32. Glaser, B.G. & Strauss, A.L. (1967). The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago: Aldine.
33. Gordon, D.R. & Paci, E. (1997). Disclosure practices and cultural narratives: Understanding concealment and silence around cancer in Tuscany, Italy. Social Science & Medicine, 44, 1433-1452.
34. Gordon, E.J. & Daugherty, CK. (2003). 'Hitting you over the head': Oncologists' disclosure of prognosis to advanced cancer patients. Bioethics, 17, 142-168.
35. Hagerty, R.G., Butow, P.N., Ellis, P.M., et al. (2005a). Communicating prognosis in cancer care: A systematic review. Annals of Oncology, 16, 1005-1053.
36. Hagerty, R.G., Butow, P.N., Ellis, P.M., et al. (2005b). Communicating with realism and hope: Incurable cancer patients' views on the disclosure of prognosis. Journal of Clinical Oncology, 23, 1278-1288.
37. Hope, S., Williams, A.E., & Lunn, D. (2000). Information provision to cancer patients: A practical example of identifying the need for changes in practice from the Dorset Cancer Centre. European Journal of Cancer Care, 9, 238-242.
38. Kim, D.S., Kim, H.S., Schwartz-Barcott, D., et al. (2006). The nature of hope in hospitalized chronically ill patients. International Journal of Nursing Studies, 43, 547-556.
39. King, G.A., King, S.M., & Rosenbaum, P.L. (1996). Interpersonal aspects of care-giving and client outcomes: A review of the literature. Ambulatory Child Health, 2, 151-160.
40. Kralik, D., Brown, M., & Koch, T. (2001). Women's experiences of 'being diagnosed' with a long-term illness. Journal of Advanced Nursing, 33 594-602.
41. Laerum, E., Steine, S., Finckenhagen, M., et al. (2002). The final version of the Patient Perspective Survey (PPS): A new tool to improve consultation outcome and patient participation in general practice patients with complex health problems. Doctors' and patients' evaluation and guidelines for clinical use. Family Practice, 19, 264-271.
42. Lambert, B.L., Street, R.L., Cegala, D.J., et al. (1997). Provider-patient communication, patient-centered care, and the mangle of practice. Health Communication, 9, 27-43.
43. Lincoln, Y.S. & Guba, E.G. (1985). Naturalistic Inquiry. Beverly Hills, CA: Sage.
44. Maguire, P. & Pitceathly, C. (2003). Managing the difficult consultation. Clinical Medicine, 3, 532-537.
45. Miles, M.B. & Huberman, A.M. (1994). Qualitative Data Analysis (2nd ed.). Thousand Oaks, CA: Sage.
46. Mushlin, A.I., Mooney, C., Grow, V., et al. (1994). The value of diagnostic information to patients with suspected multiple sclerosis. Archives of Neurology, 51, 67-72.
47. Ong, L.M.L., De Haes, J.C.J., Hoos, A.M., et al. (1995). Doctor-patient communication: A review of the literature. Social Science & Medicine, 40, 903-918.
48. Ptacek, J.T. & Eberhardt, T.L. (1996). Breaking bad news: A review of the literature. Journal of the American Medical Association, 276, 496-502.
49. Quill, T.E. & Suchman, A.L. (1993). Uncertainty and control: Learning to live with medicine's limitations. Humane Medicine, 9, 109-120.
50. Roter, D.L., Hall, J.A., & Katz, N.R. (1988). Patient-physician communication: A descriptive summary of the literature. Patient Education & Counseling, 12, 99-119.
51. Sainio, C., Eriksson, E., & Lauri, S. (2001). Patient participation in decision making about care. Cancer Nursing, 24, 172-179.
52. Salander, R (2002). Bad news from the patient's perspective: An analysis of the written narratives of newly diagnosed cancer patients. Social Science & Medicine, 55, 721-732.
53. Salander, P., Bergenheim, A.T., Bergstrom, P., et al. (1998). How to tell cancer patients: A contribution to a theory of communicating the diagnosis. Journal of Psychosocial Oncology, 16, 79-93.
54. Sardell, A.N. & Trierweiler, S.J. (1993). Disclosing the cancer diagnosis. Procedures that influence patient hopefulness. Cancer, 72 3355-3365.
55. Schofield, P.E. & Butow, P.N. (2004). Toward better communication in cancer care: A framework for developing evidence-based interventions. Patient Education & Counseling, 55, 32-39.
56. Severinsson, E.I. & Luetzen, K.I. (1999). Time- and task-oriented communication in the psychosocial care of patients with chronic illness. Australian and New Zealand Journal of Mental Health Nursing, 8, 143-152.
57. Sheilds, C.E. (1998). Giving patients bad news. Primary Care, 25, 381-390.
58. Shidler, S. (1998). Participation of chronically ill older adults in their life-prolonging treatment decisions: Rights and opportunities. Canadian Journal on Aging, 17, 1-23.
59. Siminoff, L.A. (1992). Improving communication with cancer patients. Oncology (Huntington), 6, 83-87; discussion 87-89.
60. Simpson, M., Buckman, R., Stewart, M., et al. (1991). Doctor-patient communication: The Toronto consensus statement. British Medical Journal, 303, 1385-1387.
61. Stewart, M.A. (1995). Effective physician-patient communication and health outcomes: A review. Canadian Medical Association Journal, 152 1423-1433.
62. Surbone, A. (1997). Truth-telling, risk and hope. In Communication with the Cancer Patient: Information and Truth, Surbone A. & Zwitter M. (eds.), pp. 72-79. New York: New York Academy of Sciences.
63. The, A.M., Hak, T., Koeter, G., et al. (2001). Collusion in doctor-patient communication about imminent death: An ethnographic study. Western Journal of Medicine, 174, 247-253.
64. Thorne, S. (1994). Secondary analysis in qualitative research: Issues and implications. In Critical issues in qualitative research methods Morse J.M. (ed.), pp. 263-279. Thousand Oaks, CA: Sage.
65. Thorne, S. (1999). Communications in cancer care: What science can and cannot teach us. Cancer Nursing, 22, 370-378.
66. Thorne, S.E., Bultz, B.D., Baile, W.F., et al. (2005). Is there a cost to poor communication in cancer care?: A critical review of the literature. Psycho-oncology, 14, 871-884.
67. Thorne, S., Con, A., McGuinness, L., et al. (2004). Health care communication issues in multiple sclerosis: An interpretive description. Qualitative Health Research, 14, 5-22.
68. Thorne, S., Harris, S.R., Mahoney, K., et al. (2004). The context of health care communication in chronic illness. Patient Education & Counseling, 54, 299-306.
69. Thorne, S., Hislop, G.T., Kuo, M., et al. (2006). Hope and probability: Patient perspectives of the meaning of numerical information in cancer communication. Qualitative Health Research, 16, 318-336.
70. Thorne, S.E., Kuo, M., Armstrong, E.-A. et al. (2005). "Being known:" Patient perspectives on human connection in cancer care. Psycho-oncology, 14, 887-898.
71. Thorne, S., McGuinness, L., McPherson, G., et al. (2004). Health care communication issues in fibromyalgia: An interpretive description. Physiotherapy Canada, 56, 31-18.
72. Thorne, S., Reimer Kirkham, S., & MacDonald-Emes, J. (1997). Interpretive description: A non-categorical qualitative alternative for developing nursing knowledge. Research in Nursing & Health, 20, 169-177.
73. Thorne, S., Reimer Kirkham, S., & O'Flynn-Magee, K. (2004). The analytic challenge in interpretive description. International Journal of Qualitative Methods, 3. Article 1. Retrieved April 19, 2004 from http://www.ualberta.ca/~iiqm/backissues/3_1/html/thorneetal.html.
74. Turner, J., Zapart, S., Pedersen, K., et al. (2005). Clinical practice guidelines for the psychosocial care of adults with cancer. Psycho-oncology, 14, 159-173.
75. Walsh, D. & Nelson, K.A. (2003). Communication of a cancer diagnosis: Patients' perceptions of when they were first told they had cancer. American Journal of Hospice Palliative Care, 20, 52-56.
76. Walsh, R.A., Girgis, A., & Sanson-Fisher, R.W. (1998). Breaking bad news. 2: What evidence is available to guide clinicians? Behavioral Medicine, 24, 61-72.
77. Weil, M., Smith, M., & Khayat, D. (1994). Truth-telling to cancer patients in the western European context. Psycho-oncology, 3, 21-26.
78. Weston, W.W. & Brown, J.B. (1995). Teaching the patient-centered method: The human dimensions of medical education. In Patient Centered Medicine: Transforming the Clinical Method, Stewart M., Brown J.B., Weston W.W., et al. (eds.), pp. 117-131. Thousand Oaks, CA: Sage.
79. Yardley, S.J., Davis, C.L., & Sheldon, F. (2001). Receiving a diagnosis of lung cancer: Patients' interpretations, perceptions and perspectives. Palliative Medicine, 15, 379-386.