Use of cancer support groups among Latina breast cancer survivors

Journal of Cancer Survivorship

Volumn 1, Issue 3, 2007, Pages 193-204

  Nápoles Springer, Anna M ^a,b   Ortíz, Carmen ^c   O'Brien, Helen ^a   Díaz Méndez, Marynieves ^a   Pérez Stable, Eliseo J ^a,b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c Circulo de Vida Cancer Support and Resource Center   (United States)

Author keywords

Breast cancer; Latinas; Social support; Spirituality; Support groups

Indexed keywords

ADULT; AGED; ARTICLE; BREAST TUMOR; CROSS-SECTIONAL STUDY; CULTURAL FACTOR; DOCTOR PATIENT RELATION; ETHNOLOGY; FAMILY RELATION; FEMALE; HEALTH SERVICE; HEALTH STATUS; HISPANIC; HUMAN; MIDDLE AGED; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; RELIGION; SELF HELP; SOCIAL SUPPORT; STATISTICS; SURVIVOR; UNITED STATES; UTILIZATION REVIEW;

ADULT; AGED; AGED, 80 AND OVER; BREAST NEOPLASMS; CALIFORNIA; CROSS-SECTIONAL STUDIES; CULTURAL CHARACTERISTICS; FAMILY RELATIONS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS; HISPANIC AMERICANS; HUMANS; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PHYSICIAN-PATIENT RELATIONS; PSYCHOMETRICS; SELF-HELP GROUPS; SOCIAL SUPPORT; SPIRITUALITY; SURVIVORS;

EID: 34748820510     PISSN: 19322259     EISSN: 19322267     Source Type: Journal    
DOI: 10.1007/s11764-007-0029-7     Document Type: Article

References (68)

1. Ashing-Giwa, K. T., Padilla, G., Tejero, J., Kraemer, J., Wright, K., Coscarelli, A., et al. (2004). Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psychooncology, 13, 408-428.
2. Ashing-Giwa, K. T., Tejero, J. S., Kim, J., Padilla, G. V., & Hellemann, G. (2007). Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Quality of Life Research, 16, 413-428.
3. American Cancer Society (2001). Cancer facts & figures for hispanics: 2000-2001. Atlanta, GA, pp 1-10.
4. Aziz, N. M., & Rowland, J. H. (2002). Cancer survivorship research among ethnic minority and medically underserved groups. Oncology Nursing Forum, 29, 789-801.
5. Bauman, L. J., Gervey, R., & Spiegel, R. (1992). Factors associated with cancer patients' participation in support groups. Journal of Psychosocial Oncology 10, 1-20.
6. Bowen, D. J., Alfano, C. M., McGregor, B. A., Kuniyuki, A., Bernstein, L., Meeske, K., et al. (2007). Possible socioeconomic and ethnic disparities in quality of life in a cohort of breast cancer survivors. Breast Cancer Res Treat (in press) Accessed August 4, 2007 at http://www.springerlink.com/content/ j84166h527287067/.
7. Brady, M. J., Peterman, A. H., Fitchett, G., Mo, M., & Cella, D. (1999). A case for including spirituality in quality of life measurement in oncology. Psychooncology, 8, 417-428.
8. Brislin, R. W. (1976). Translation: Applications and research. New York: Gardner.
9. Brislin, R. W., Lonner, W. J., & Thorndike, E. M. (1973). Cross-cultural research methods. New York: Wiley.
10. Bui, L. L., Last, L., Bradley, H., Law, C. H., Maier, B. A., & Smith, A. J. (2002). Interest and participation in support group programs among patients with colorectal cancer. Cancer Nursing, 25, 150-157.
11. Burgess, C., Cornelius, V., Love, S., Graham, J., Richards, M., & Ramirez, A. (2005). Depression and anxiety in women with early breast cancer: Five year observational cohort study. BMJ, 330, 702.
12. Classen, C., Butler, L. D., Koopman, C., Miller, E., DiMiceli, S., Giese-Davis, J., et al. (2001). Supportive-expressive group therapy and distress in patients with metastatic breast cancer: A randomized clinical intervention trial. Archives of General Psychiatry, 58, 494-501.
13. Cope, D. G. (1995). Functions of a breast cancer support group as perceived by the participants: An ethnographic study. Cancer Nursing, 18, 472-478.
14. Cunningham, A. J., & Edmonds, C. V. (1996). Group psychological therapy for cancer patients: A point of view, and discussion of the hierarchy of options. International Journal of Psychiatry In Medicine, 26, 51-82.
15. Culver, J. L., Arena, P. L., Antoni, M. H., & Carver, C. S. (2002). Coping and distress among women under treatment for early stage breast cancer: Comparing African Americans, Hispanics and non-Hispanic Whites. Psychooncology, 11, 495-504.
16. de Bocanegra, H. (1992). Cancer patients' interest in group support programs. Cancer Nursing 15, 347-352.
17. Detmar, S. B., Aaronson, N. K., Wever, L. D., Muller, M., & Schornagel, J. H. (2000). How are you feeling? Who wants to know? Patients' and oncologists' preferences for discussing health-related quality-of-life issues. Journal of Clinical Oncology, 18, 3295-3301.
18. Docherty, A. (2004). Experience, functions and benefits of a cancer support group. Patient Education and Counseling, 55, 87-93.
19. Eakin, E. G., & Strycker, L. A. (2001). Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: Patient and provider perspectives. Psychooncology 10, 103-113.
20. Edelman, S., Bell, D. R., & Kidman, A. D. (1999). A group cognitive behaviour therapy programme with metastatic breast cancer patients. Psychooncology 8, 295-305.
21. Ell, K., Nishimoto, R., Morvay, T., Mantell, J., & Hamovitch, M. (1989). A longitudinal analysis of psychological adaptation among survivors of cancer. Cancer, 63, 406-413.
22. Ell, K., Sanchez, K., Vourlekis, B., Lee, P. J., Dwight-Johnson, M., Lagomasino, I., et al. (2005). Depression, correlates of depression, and receipt of depression care among low-income women with breast or gynecologic cancer. Journal of Clinical Oncology, 23, 3052-3060.
23. Gelberg, L., Andersen, R. M., & Leake, B. D. (2000). The behavioral model for vulnerable populations: Application to medical care use and outcomes for homeless people. Health Services Research, 34, 1273-1302.
24. Gentry, C. (2002). Improving quality of care for Californians with breast cancer (pp. 1-36). Oakland, CA: California Healthcare Foundation.
25. Gidron, B., Chesler, M. A., et al. (1991). Cross-cultural perspective on self-help groups: Comparison between participants and nonparticipants. American Journal of Community Psychology, 19, 667-681.
26. Giese-Davis, J., Koopman, C., Butler, L.D., Classen, C., Cordova, M., Fobair, P., et al. (2002). Change in emotion-regulation strategy for women with metastatic breast cancer following supportive-expressive group therapy. Journal of Consulting and Clinical Psychology, 70, 916-925.
27. Goodwin, P. J., Leszcz, M., Ennis, M., Koopmans, J., Vincent, L., Guther, H., et al. (2001). The effect of group psychosocial support on survival in metastatic breast cancer. New England Journal of Medicine, 345, 1719-1726.
28. Gottlieb, B. H., & Wachala, E. D. (2006). Cancer support groups: A critical review of empirical studies. Psychooncology, 16, 379-400.
29. Gray, R., Fitch, M., Davis, C., & Phillips, C. (1997). A qualitative study of breast cancer self-help groups. Psychooncology, 6, 279-289.
30. Greater Bay Area Cancer Registry (2005). Northern California Cancer Center Greater Bay Area Cancer Registry, Northern California Cancer Center.
31. Guidry, J. J., Aday, L. A., Zhang, D., & Winn, R. J. (1997). The role of informal and formal social support networks for patients with cancer. Cancer Practice, 5, 241-246.
32. Guillemin, F., Bombardier, C., & Beaton, D. (1993). Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. Journal of Clinical Epidemiology, 46, 1417-1432.
33. Hays, R. D., & Hayashi, T. (1990). Beyond internal consistency reliability: Rationale and user's guide for multitrait analysis program on the microcomputer. Santa Monica, CA: Rand.
34. Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (1999). Education and peer discussion group interventions and adjustment to breast cancer. Archives of General Psychiatry, 56, 340-347.
35. Helgeson, V. S., Cohen, S., Schulz, R., & Yasko, J. (2000). Group support interventions for women with breast cancer: Who benefits from what? Health Psychology, 19, 107-114.
36. Hewitt, M., Breen, N., & Devesa, S. (1999). Cancer prevalence and survivorship issues: Analyses of the 1992 National Health Interview Survey. Journal of the National Cancer Institute, 91, 1480-1486.
37. Hewitt, M., Herdman, R., & Holland, J. (Eds.) (2004). Meeting psychosocial needs of women with breast cancer. Washington, D.C.: The National Academies.
38. Hewitt, M., Greenfield, S., & Stovall, E. (Eds.) (2005). From cancer patient to cancer survivor: Lost in transition. Washington, D.C.: The National Academies.
39. Juarez, G., Ferrell, B., & Borneman, T. (1998). Perceptions of quality of life in Hispanic patients with cancer. Cancer Practice, 6, 318-324.
40. Juarez, G., Ferrell, B., & Borneman, T. (1999). Cultural considerations in education for cancer pain management. Journal of Cancer Education, 14, 168-173.
41. Kissane, D. W., Grabsch, B., Love, A., Clarke, D. M., Bloch, S., & Smith, G. C. (2004). Psychiatric disorder in women with early stage and advanced breast cancer: A comparative analysis. Australian and New Zealand Journal of Psychiatry, 38, 320-326.
42. Leedham, B., & Ganz, P. A. (1999). Psychosocial concerns and quality of life in breast cancer survivors. Cancer Investigation, 17, 342-348.
43. Lim, Y. W., Andersen, R., Leake, B., Cunningham, W., & Gelberg, L. (2002). How accessible is medical care for homeless women? Medical Care, 40, 510-520.
44. Markides, K. S., & Mindel, C. H. (1987). Aging & Ethnicity. Newbury Park: SAGE.
45. Maunsell, E., Drolet, M., Ouhoummane, N., & Robert, J. (2005). Breast cancer survivors accurately reported key treatment and prognostic characteristics. Journal of Clinical Epidemiology, 58, 364-369.
46. Michalec, B., Van Willigen, M., Wilson, K., Schreier, A., & Williams, S. (2004). The race gap in support group participation by breast cancer survivors: Real or artifact? Evaluation Review, 28, 123-143.
47. Miller, B. A., Kolonel, K. L., Bernstein, L., Young, J. J. L., Swanson, G. M., West, D., et al. (Eds.) (1996). Racial/ethnic patterns of cancer in the United States, 1988-1992, Vol. NIH Pul. No. 96-4104. Bethesda, MD: National Cancer Institute.
48. Moore, R. J., & Butow, P. (2004). Culture and oncology: Impact of context effects. In R. J. Moore & D. Spiegel (Eds.), Cancer, culture, and communication (pp. 15-54). New York, NY: Kluwer.
49. Meyerowitz, B. E., Formenti, S. C., Ell, K. O., & Leedham, B. (2000). Depression among Latina cervical cancer patients. Journal of Social and Clinical Psychology, 19, 352-371.
50. Peterman, A. H., Fitchett, G., Brady, M. J., Hernandez, L., & Cella, D. (2002). Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapy-Spiritual Well-being Scale (FACIT-Sp). Annals of Behavioral Medicine, 24, 49-58.
51. Petersson, L. M., Berglund, G., Brodin, O., Glimelius, B., & Sjoden, P. O. (2000). Group rehabilitation for cancer patients: Satisfaction and perceived benefits. Patient Education and Counseling, 40, 219-229.
52. Phillips, K. A., Milne, R. L., Buys, S., Friedlander, M. L., Ward, J. H., McCredie, M. R., et al. (2005). Agreement between self-reported breast cancer treatment and medical records in a population-based Breast Cancer Family Registry. Journal of Clinical Oncology, 23, 4679-4686.
53. Ries, L., Eisner, M. P., Kosary, C. L., Hankey, B. F., Miller, B. A., Clegg, L., et al. (2005). SEER cancer statistics review, 1975-2002. Bethesda, MD: National Cancer Institute.
54. Rehse, B., & Pukrop, R. (2003). Effects of psychosocial interventions on quality of life in adult cancer patients: Meta analysis of 37 published controlled outcome studies. Patient Education and Counseling, 50, 179-186.
55. Shapiro, S. L., Lopez, A. M., Schwartz, G. E., Bootzin, R., Figueredo, A. J., Braden, C. J., et al. (2001). Quality of life and breast cancer: Relationship to psychosocial variables. Journal of Clinical Psychology, 57, 501-519.
56. Simoni, J. M., & Perez, L. (1995). Latinos and mutual support group: A case for considering culture. American Journal of Orthopsychiatry, 65, 440-445.
57. Smiley, M. R., McMillan, S. C., Johnson, S., & Ojeda, M. (2000). Comparison of Florida hispanic and non-hispanic caucasian women in their health beliefs related to breast cancer and health locus of control. Oncology Nursing Forum, 27, 975-984.
58. Spencer, S. M., Lehman, J. M., Wynings, C., Arena, P., Carver, C. S., Antoni, M. H., et al. (1999). Concerns about breast cancer and relations to psychosocial well-being in a multiethnic sample of early-stage patients. Health Psychology, 18, 159-168.
59. Stevenson, B. S., & Coles, P. M. (1993). A breast cancer support group: Activities and value to mastectomy patients. Journal of Cancer Education, 8, 239-242.
60. Squiers, L., Finney Rutten, L. J., Treiman, K., Bright, M. A., & Hesse, B. (2005). Cancer patients' information needs across the cancer care continuum: Evidence from the cancer information service. Journal of Health Communication, 10(Suppl 1), 15-34.
61. Taylor, S. E., Lichtman, R. R., & Wood, J. V. (1984). Attributions, beliefs about control, and adjustment to breast cancer. Journal of Personality and Social Psychology, 46, 489-502.
62. US Census Bureau (1999). Current population reports, P25-1130 population projections of the United States by age, sex, Race, and hispanic origin: 1995 to 2050, vol. 2002.
63. US Census Bureau (2006). Census Bureau Guideline: Language Translation of Data Collection Instruments and Supporting Materials (Census Advisory Committees, ed.).
64. Wan, G. J., Counte, M. A., Cella, D. F., Hernandez, L., McGuire, D. B., Deasay, S., et al. (1999). The impact of socio-cultural and clinical factors on health-related quality of life reports among Hispanic and African-American cancer patients. Journal of Outcome Measurement, 3, 200-215.
65. Ware, J. E., Harris, W. J., Gandek, B., Rogers, B. W., & Resse, P. R. (1997). MAP-R for windows: Multitrait/multi-item analysis program-revised user's guide. Boston: Health Assessment Lab.
66. Weidmer, B., Hurtado, M., Weech-Maldado, R., Ngo-Metzger, Q., & Bogen, K. (2006). Guidelines for Translating CAHPS Surveys, CHAPS.
67. Werner, O. (1970). Translating, wording through interpreters, and the problem of decentering. In R. N. R. Cohen (ed.), A handbook of methods in cultural anthropology. New York: Museum of Natural History.
68. Young, J. L. J., Roffers, S. D., Ries, L. A. G., Fritz, A. G., & Hurlbut, A. A. (2001). SEER summary staging manual-2000: Codes and coding instructions, vol. NIH Pub. No. 01-4969. Bethesda, MD: National Cancer Institute.