The Swiss Childhood Cancer Registry: Rationale, organisation and results for the years 2001-2005

Swiss Medical Weekly

Volumn 137, Issue 35-36, 2007, Pages 502-509

  Michel, Gisela ^a   Von Der Weid, Nicolas Xavier ^b   Zwahlen, Marcel ^a   Adam, Martin ^a   Rebholz, Cornelia Eva ^a   Kuehni, Claudia Elisabeth ^a  

^a UNIVERSITY OF BERN   (Switzerland)

^b LAUSANNE UNIVERSITY HOSPITAL   (Switzerland)

Author keywords

Cancer registry; Childhood cancer; Incidence; Neoplasms; Survival

Indexed keywords

ARTICLE; BRAIN TUMOR; CANCER REGISTRY; CANCER SURVIVAL; CENTRAL NERVOUS SYSTEM TUMOR; CHILDHOOD CANCER; FOLLOW UP; HUMAN; INCIDENCE; LEUKEMIA; LONG TERM CARE; LYMPHOMA; METHODOLOGY; PEDIATRIC HOSPITAL; PRIVACY; RISK FACTOR; SEX RATIO; STANDARDIZATION; SWITZERLAND;

EID: 34548860649     PISSN: 14247860     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (45)

1. Parkin DM, Whelan SL, Ferlay J, Teppo L, Thomas DB (eds.). Cancer Incidence in Five Continents Volume VIII. Lyon: IARC Scientific Publication No. 155; 2002.
2. Steliarova-Foucher E, Stiller C, Lacour B, Kaatsch P. International Classification of Childhood Cancer, third edition. Cancer. 2005;103:1457-67.
3. Junker C, Diebold M, Grossen S, Hugi S. Todesursachenstatistik: Ursachen der Sterblichkeit 2001 und 2002. Neuchâtel: Bundesamt für Statistik; 2005.
4. von der Weid N, Beck D, Caflisch U, Feldges A, Wyss M, Wagner HP. Standardized assessment of late effects in long-term survivors of childhood cancer in Switzerland. Int J Pediatr Hematol / Oncol. 1996;3:483-90.
5. von der Weid N. Late effects in long-term survivors of ALL in childhood: experiences from the SPOG late effects study. Swiss Med Wkly. 2001;131:180-7.
6. Hudson MM, Mertens AC, Yasui Y, Hobbie W, Chen H, Gurney JG, et al. Health Status of Adult Long-term Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. JAMA. 2003;290:1583-92.
7. Stevens MCG, Mahler H, Parkes S. The health status of adult survivors of cancer in childhood. Eur J Cancer. 1998;34:694-8.
8. Kaatsch P. German Childhood Cancer Registry and its favourable setting. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 2004;47:437-43.
9. Steliarova-Foucher E, Kaatsch P, Lacour B, Pompe-Kirn V, Eser S, Miranda A, et al. Quality, comparability and methods of analysis of data on childhood cancer in Europe (1978-1997): Report from the Automated Childhood Cancer Information System project. Eur J Cancer. 2006;42:1915-51.
10. Stiller CA, Allen MB, Eatock EM. Childhood cancer in Britain: the National Registry of Childhood Tumours and incidence rates 1978-1987. Eur J Cancer. 1995;31A:2028-34.
11. Pury P, Lutz JM, Jundt G, Bouchardy C, Frick H, Ess S, et al. Cancer in Switzerland. Geneva: Swiss Association of Cancer Registries; http://www.asrt.ch/asrt/newstat/i2001ch.pdf; accessed: 15 Jan 2007; 2005.
12. Kuehni C, Michel G, Sturdy M, Redmond S, Zwahlen M, von der Weid N. Swiss Childhood Cancer Registry - Annual Report 2004. Bern: Swiss Childhood Cancer Registry; 2005.
13. Centers for Disease Control and Prevention. Updated guidelines for evaluating public health surveillance systems: recommendations from the guidelines working group. MMWR 2001; 50.
14. Parkin M, Chen VW, Ferlay J, Galceran J, Storm HH, Whelan SL. Comparability and Quality Control in Cancer Registration. Lyon: IARC Technical Report No. 19; 1994.
15. Fritz A, Percy C, Jack A, Shanmugaratham K, Sobin L, Parkin M, et al. International Classification of Diseases for Oncology, 3d Ed. Geneva: World Health Organization; 2000.
16. World Health Organization. International Statistical Classification of Diseases and Related Health Problems - 10th Revision. Geneva: World Health Organization; 1994.
17. Bundesamt für Statistik. Statistik des jährlichen Bevölkerungsstandes (ESPOP) 2005 [Annual population statistics (ESPOP) 2005]. Neuchâtel: Bundesamt für Statistik; 2006.
18. Kirkwood BR, Sterne JA. Essential Medical statistics. Oxford: Backwell Science Ltd; 2003.
19. Michel G, von der Weid N, Zwahlen M, Strippoli M-PF, Redmond S, Kuehni C. Incidence of childhood cancer in Switzerland: the Swiss Childhood Cancer Registry. Pediatric Blood & Cancer, DOI 101002/pbc21129 in press.
20. Stiller CA, Marcos-Gragera R, Ardanaz E, Pannelli F, Almar Marques E, Canada Martinez A, et al. Geographical patterns of childhood cancer incidence in Europe, 1988-1997. Report from the Automated Childhood Cancer Information System project. Eur J Cancer. 2006;42:1952-60.
21. Kaatsch P, Steliarova-Foucher E, Crocetti E, Magnani C, Spix C, Zambon P. Time trends of cancer incidence in European children (1978-1997): Report from the Automated Childhood Cancer Information System project. Eur J Cancer. 2006;42:1961-71.
22. Kaatsch P, Spix C. Annual Report 2005 (1980-2004): German Childhood Cancer Registry. Mainz: Deutsches Kinderkrebsregister; 2006.
23. Stiller CA. Childhood cancer in Britain: incidence, survival, mortality. Oxford: Oxford University Press; 2007.
24. Association of Swiss Cancer Registries. Cancer in Switzerland: Volume 1 - Statistics of Incidence 1985-2003. Geneva: ASRT; 2006.
25. Haupt R, Nanduri V, Calevo MG, Bernstrand C, Braier JL, Broadbent V, et al. Permanent consequences in Langerhans cell histiocytosis patients: a pilot study from the Histiocyte Society-Late Effects Study Group. Pediatr Blood Cancer. 2004;42:438-44.
26. Alston RD, Tatevossian RG, McNally RJ, Kelsey A, Birch JM, Eden TO. Incidence and survival of childhood Langerhans cell histiocytosis in Northwest England from 1954 to 1998. Pediatr Blood Cancer. 2007;48:555-60.
27. Michel G, von der Weid NX, Zwahlen M, Redmond S, Strippoli MP, Kuehni CE. Incidence of childhood cancer in Switzerland: The Swiss childhood cancer registry. Pediatric Blood & Cancer 2007; DOI 10.1002/pbc.21129.
28. Desandes E, Clavel J, Berger C, Bernard JL, Blouin P, de Lumley L, et al. Cancer incidence among children in France, 1990-1999. Pediatr Blood Cancer. 2004;43:749-57.
29. Kaatsch P, Spix C. Annual Report 2004 (1980-2003): German Childhood Cancer Registry. Mainz: Deutsches Kinderkrebsregister; 2004.
30. Dalmasso P, Pastore G, Zuccolo L, Maule MM, Pearce N, Merletti F, et al. Temporal trends in the incidence of childhood leukemia, lymphomas and solid tumors in north-west Italy, 1967-2001. A report of the Childhood Cancer Registry of Piedmont. Haematologica. 2005;90:1197-204.
31. Kaatsch P, Rickert CH, Kuhl J, Schuz J, Michaelis J. Population-based epidemiologic data on brain tumors in German children. Cancer. 2001;92:3155-64.
32. Peris-Bonet R, Martinez-Garcia C, Lacour B, Petrovich S, Giner-Ripoll B, Navajas A, et al. Childhood central nervous system tumours - incidence and survival in Europe (1978-1997): Report from Automated Childhood Cancer Information System project. Eur J Cancer. 2006;42:2064-80.
33. Morin G, Ackermann Liebrich U, Imbach P. Childhood leukaemia in Switzerland: comparison of different sources of data. Soz Praventivmed. 1993;38:196-201.
34. Steliarova-Foucher E, Stiller C, Kaatsch P, Berrino F, Coebergh J-W, Lacour B, et al. Geographical patterns and time trends of cancer incidence and survival among children and adolescents in Europe since the 1970s (the ACCIS project): an epidemiological study. Lancet. 2004;364:2097-105.
35. Magnani C, Pastore G, Coebergh JW, Viscomi S, Spix C, Steliarova-Foucher E. Trends in survival after childhood cancer in Europe, 1978-1997: Report from the Automated Childhood Cancer Information System project (ACCIS). Eur J Cancer. 2006;42:1981-2005.
36. Poretti A, Grotzer MA, Ribi K, Schonle E, Boltshauser E. Outcome of craniopharyngioma in children: long-term complications and quality of life. Dev Med Child Neurol. 2004;46:220-9.
37. Ribi K, Relly C, Landolt MA, Alber FD, Boltshauser E, Grotzer MA. Outcome of medulloblastoma in children: long-term complications and quality of life. Neuropediatrics 2005;36:357-65.
38. von der Weid N, Beck D. Sequelles tardives d'un groupe d'enfants et d'adolescents traites pour cancer entre 1981 et 1986 en Suisse. Late sequelae in a group of children and adolescents treated for cancer between 1981 and 1986 in Switzerland. Schweiz Med Wochenschr. 1993;123:1293-9.
39. von der Weid N, Mosimann I, Hirt A, Wacker P, Nenadov Beck M, Imbach P, et al. Intellectual outcome in children and adolescents with acute lymphoblastic leukaemia treated with chemotherapy alone: age- and sex-related differences. Eur J Cancer. 2003;39:359-65.
40. Stupnicki A, von der Weid N, Imbach P, Arnet B, Berchtold W, Delaleu B, et al. Incidence of childhood acute lymphoblastic leukemia (ALL) and population-based treatment results in Switzerland: experiences with 507 study and 149 nonstudy patients. Med Pediatr Oncol. 1995;25:79-83.
41. Wagner HP, Dingeldein Bettler I, Berchthold W, Luthy AR, Hirt A, Pluss HJ, et al. Childhood NHL in Switzerland: incidence and survival of 120 study and 42 non-study patients. Med Pediatr Oncol. 1995;24:281-6.
42. Oeffinger KC, Hudson MM. Long-term complications following childhood and adolescent cancer: foundations for providing risk-based health care for survivors. CA Cancer J Clin. 2004;54:208-36.
43. Oeffinger KC, Mertens AC, Hudson MM, Gurney JG, Casillas J, Chen H, et al. Health Care of Young Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study. Ann Fam Med. 2004;2:61-70.
44. von der Weid N, Wagner HP. Organisation of follow-up in paediatric oncology. Eur J Cancer. 2003;39:1150-4.
45. An international case-control study on mobile phone use and the risk of brain tumors in children and adolescents (Cefalo study): study design and first experiences from the field work [http://www.cost281.org/documents.php?node= 155&dir_session=]