Views of patients with heart failure about their role in the decision to start implantable cardioverter-defibrillator treatment: Prescription rather than participation

Journal of Medical Ethics

Volumn 33, Issue 9, 2007, Pages 514-518

  Ågård, Anders S ^a,b   Löfmark, Rurik ^c   Edvardsson, Nils ^b   Ekman, Inger ^d  

^a LUND UNIVERSITY   (Sweden)

^b SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

^c UPPSALA UNIVERSITY   (Sweden)

^d UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; DEFIBRILLATOR; ETHICS; FEMALE; HEART ARRHYTHMIA; HEART FAILURE; HUMAN; INFORMED CONSENT; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH;

ADULT; AGED; ARRHYTHMIAS, CARDIAC; ATTITUDE TO HEALTH; DEFIBRILLATORS, IMPLANTABLE; FEMALE; HEART FAILURE; HUMANS; INFORMED CONSENT; MALE; MIDDLE AGED; PATIENT PARTICIPATION; QUALITATIVE RESEARCH;

EID: 34548685509     PISSN: 03066800     EISSN: None     Source Type: Journal    
DOI: 10.1136/jme.2006.017723     Document Type: Article

References (29)

1. Glikson M, Friedman PA. The implantable cardioverter defibrillator. Lancet 2001;357:1107-17.
2. Hauer RN, Aliot F, Block M, et al. Indications for implantable cardioverter defibrillator (ICD) therapy. Study group on guidelines on ICDs of the working group of arrhythmias and the working group on cardiac pacing, European Society of Cardiology. Eur Heart J 2001;22:1074-81.
3. Swedberg K, Cleland J, Dargie H, et al. Guidelines for the diagnosis and treatment of chronic heart failure. Eur Heart J 2005;26:1115-40.
4. Gregoratos G, Cheitlin MD, Conill A, et al. ACC/AHA guidelines for implementation of cardiac pacemakers and antiarrhythmia devices: executive summary. Circulation 1998;97:1325-35.
5. Cleland J. Heart failure. A handbook for clinical training. London: Mosby-Wolfe Medical Communications, 1998.
6. Domanski MJ, Sakseena S, Epstein AE, et al. Relative effectiveness of the implantable cardioverter-defibrillator and antiarrhythmic drugs in patients with varying degrees of left ventricular dysfunction who have survived malignant ventricular arrhythmias: AVID investigators-antiarrhytmics versus implantable defibrillators. J Am Coll Cardiol 1999;34:1090-5.
7. Sears SF, Conti JB. Quality of life and psychological functioning of ICD patients. Heart 2002;87:488-93.
8. Heller SS, Ormont MA, Lidagoster L, et al. Psychosocial outcome after ICD implantation: a current perspective. Pacing Clin Electrophysiol 1998;21:1207-15.
9. Herbst JH, Goodman M, Feldstein S, et al. Health related quality-of-life assessment of patients with life-threatening ventricular arrhytmias. Pacing Clin Electrophysiol 1999;22:915-26.
10. Irvine J, Dorian P, Baker B, et al. Quality of life in the Canadian Implantable Defibrillator Study (CIDS). Am Heart J 2002;144:282-9.
11. Lemon J, Edelman S, Kirkness A. Avoidance behaviour in patients with implantable cardioverter defibrillators. Heart Lung 2004; 33:176-82.
12. Rosenqvist M, Beyer T, Block M, et al. Adverse events with transvenous implantable defibrillators: a prospective multicenter study [correction appears in Circulation 1998;98:2647]. Circulation 1998;98:663-70.
13. Luderitz B, Jung W, Deister A, et al. Patient acceptance of the implantable cardioverter defibrillator in ventricular tachyarrhytmias. Pacing Clin Electrophysiol 1993; 16:1815-21.
14. Doyal L. Good clinical practice and informed consent are inseparable. Heart 2002;87:103-6.
15. The Council of Europe. The convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine, Oviedo, Spain, 1997.
16. Ågård A. Informed consent: theory versus practice. Nat Clin Pract Cardiovasc Med 2005;2:270.
17. Neuendorf KA. The content analysis guidebook. London: Sage Publications, 2002.
18. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24:105-12.
19. Whitney SN, McGuire AL, McCullough LB. A typology of shared decision making, informed consent, and simple consent. Ann Intern Med 2003;140:54-9.
20. Lo B. End-of-life care after termination of SUPPORT. Dying well in the hospital. The lessons from SUPPORT. Hastings Cent Rep 1995; 25:S6-8.
21. Eldh AC, Ehnfors M, Ekman I. The phenomena of participation and non-participation in health care - experiences of patients attending a nurse-led clinic for chronic heart failure. Eur J Cardiovasc Nurs 2004;3:239-46.
22. Faden. RR, Beauchamp TL. A history and theory of informed consent. New York: Oxford University Press, 1986.
23. Braddock CH III. Advancing the cause of informed consent: moving from disclosure to understanding. Am J Med, 105:354-5.
24. Hammond C, Austin L, Chester MR. Making consent patient centred. BMJ 2003;327:1159-61.
25. Fried TR, Bradley EH, O'Leary J. Prognosis communication in serious illness: perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc 2004;51:1398-403.
26. Ågård A, Hermerén G, Herlitz J. When is a patient with heart failure adequately informed? A study of patients' experiences and preferences regarding medical information. Heart Lung 2004;33:119-226.
27. Schlapfer J, Kappenberger L, Fromer M. What risk should justify implantable therapy? Am J Cardiol 1999;83:101-3D.
28. Simpson CS, Klein GJ, Hoffmaster B. Expensive medical technologies and "indication extrapolation": the case of implantable cardioverter-defibrillators. Am Heart J 2000;140:419-22.
29. M Breithhardt G. Drugs or implantable cardioverter defibrillators in patients with poor left ventricular function? Am J Cardiol 1996;78:62-8.