Siblings' Experiences of Having a Brother or Sister With Autism and Mental Retardation: A Case Study of 14 Siblings From Five Families

Journal of Pediatric Nursing

Volumn 22, Issue 5, 2007, Pages 410-418

  Benderix, Ylva ^a   Sivberg, Bengt ^a  

^a LUND UNIVERSITY   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; ATTITUDE TO HEALTH; AUTISM; CHILD; CHILD PARENT RELATION; CHILD PSYCHOLOGY; COUNSELING; EMPATHY; FEAR; FRIEND; GRIEF; HEALTH SERVICE; HUMAN; LIFE EVENT; MENTAL DEFICIENCY; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; RESIDENTIAL HOME; SIBLING; SIBLING RELATION; SWEDEN; VIOLENCE;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ATTITUDE TO HEALTH; AUTISTIC DISORDER; CHILD; CHILD PSYCHOLOGY; COUNSELING; EMPATHY; FEAR; FRIENDS; GRIEF; GROUP HOMES; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LIFE CHANGE EVENTS; MENTAL RETARDATION; NURSING METHODOLOGY RESEARCH; PARENT-CHILD RELATIONS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SIBLING RELATIONS; SIBLINGS; SWEDEN; VIOLENCE;

EID: 34548677042     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2007.08.013     Document Type: Article

References (25)

1. Bågenholm A., and Gillberg C. Psycho-social effects on siblings of children with autism and mental retardation: A population based study. Journal of Mental Deficiency Research 35 (1991) 210-307
2. Benderix, Y., Nordström, B., & Sivberg, B. (2004). Parents' lived experience of having a child with autism and mental retardation living at home or in a group home (submitted).
3. Brazelton T.B., and Sparrow J.D. Touchpoints three to six (2001), Perseus Publishing, Cambridge
4. Burnard P. A method of analysing interview transcripts in qualitative research. Nurse Education Today 11 (1991,a) 461-466
5. Burnard P. Teaching the analysis of textual data: An experiential approach. Nurse Education Today 16 (1991,b) 278-281
6. Burton S.L., and Parks A.L. Self-esteem, locus of control and career aspirations of college-age siblings of individuals with disabilities. Social Work Research 18 (1994) 178-185
7. Dillon K.M. Living with autism. The parents' stories (1995), Parkway Publishers, Inc., Boone, NC
8. Faber, and Mazlish. How to talk so kids will listen and listen so kids will talk (1982), Avon, New York
9. Ferrari M. Chronic illness: Psychosocial effects on siblings. Journal of Child Psychology and Psychiatry 25 (1984) 459-476
10. Gillberg C. Autism (1999), Natur och Kultur, Stockholm
11. Gold N. Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders 23 (1993) 1
12. Grossman F.K. Brothers and sisters of retarded children: An exploratory study (1972), Syracuse University Press, Syracuse, NY
13. Grunewald K. 40 år med utvecklingsstörda: Samtal med Karl Grunewald. Göran Graninger och John Loven (1994), Fontes, Moheda
14. Grunewald K. Psykiska handikapp: Möjligheter och rättigheter (2000), Liber, Stockholm
15. Grunewald K. Close the institutions for the intellectually disabled (2003), University of Manchester, Stockholm, Enabling Education Network
16. Grunewald K., Simeonsson R.J., and Schneider A. Piaget and normalization: Developmental humanism. Scandinavian Journal of Educational Research 21 (1977) 181-195
17. Kaminsky L., and Dewey D. Sibling relationships of children with autism. Journal of Autism and Developmental Disorders 31 (2001) 4
18. Kaminsky L., and Dewey D. Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry 43 (2002) 2
19. Konidaris J.B. A sibling's perspective on autism. In: Cohen D., and Volkmar F. (Eds). Handbook of autism and pervasive developmental disorders 2nd ed. (1997), Wiley, New York 1021-1031
20. Mates T.E. Siblings of autistic children: Their adjustment and performance at home and in school. Journal of Autism and Developmental Disorders 20 (1990) 4
21. Persson P. Treatment evaluation and screening of autism (2003), Lund University, Lund
22. Powell T.H., and Ogle P.A. Brothers and sisters: A special part of exceptional families (1985), Brookes, Baltimore
23. Rodrigue J.R., Geffken R., and Morgan S.B. Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders 23 (1993) 4
24. Sivberg B. Family systems and coping behaviours. A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism 6 (2002) 419-431
25. Wright L.M., Watson W.L., and Bell J.M. Beliefs. The heart of healing in families and illness (1996), Basic Books, New York