Time Course and Characteristics of Symptom Distress and Quality of Life at the End of Life

Journal of Pain and Symptom Management

Volumn 34, Issue 3, 2007, Pages 227-236

  Kutner, Jean S ^a   Bryant, Lucinda L ^a   Beaty, Brenda L ^a   Fairclough, Diane L ^a  

^a UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

Author keywords

hospice; palliative care; quality of life; Symptoms

Indexed keywords

ARTICLE; CAREGIVER; DISEASE ASSOCIATION; DISTRESS SYNDROME; FAMILY COUNSELING; HOSPICE CARE; HOSPICE PATIENT; HOSPITAL ADMISSION; HOSPITAL DISCHARGE; HUMAN; MENTAL DISEASE; NURSE; PAIN ASSESSMENT; PALLIATIVE THERAPY; POPULATION RESEARCH; PREDICTION; PREVALENCE; QUALITY OF LIFE; QUESTIONNAIRE; SYMPTOM DISTRESS SCALE;

ADULT; AGED; AGED, 80 AND OVER; COHORT STUDIES; FEMALE; HOSPICE CARE; HUMANS; MALE; MIDDLE AGED; PAIN; PALLIATIVE CARE; PROSPECTIVE STUDIES; QUALITY OF LIFE; STRESS, PSYCHOLOGICAL; TERMINALLY ILL; TIME FACTORS;

EID: 34548512464     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2006.11.016     Document Type: Article

References (31)

1. Chang V.T., Hwang S.S., Feuerman M., and Kasimis B. Symptom and quality of life survey of medical oncology patients at a Veterans Affairs medical center: a role for symptom assessment. Cancer 88 (2000) 1175-1183
2. Cohen S.R., and Mount B.M. Living with cancer: "good" days and "bad" days-what produces them?. Cancer 89 (2000) 1854-1865
3. Cooley M.E., Short T.H., and Moriarty H.J. Symptom prevalence, distress, and change over time in adults receiving treatment in lung cancer. Psychooncology 12 (2003) 694-708
4. Kutner J.S., Kassner C.T., and Nowels D.E. Symptom burden at the end of life: hospice providers' perceptions. J Pain Symptom Manage 21 (2001) 473-480
5. Lo R.S.K., Woo J., Zhoc K.C.H., et al. Quality of life of palliative care patients in the last two weeks of life. J Pain Symptom Manage 24 (2002) 388-397
6. Vainio A., and Auvinen A. Prevalence of symptoms among patients with advanced cancer: an international collaborative study. Symptom Prevalence Group. J Pain Symptom Manage 12 (1996) 3-10
7. Donnelly S., and Walsh D. The symptoms of advanced cancer. Semin Oncol 22 (1995) 67-72
8. McMillan S.C., and Small B.J. Symptom distress and quality of life in patients with cancer newly admitted to hospice home care. Oncol Nurs Forum 29 (2002) 1421-1428
9. Portenoy R.K., Thaler H.T., Kornblith A.B., et al. Symptom prevalence, characteristics and distress in a cancer population. Qual Life Res 3 (1994) 183-189
10. Walsh D., Donnelly S., and Rybecki L. The symptoms of advanced cancer: relationships to age, gender, and performance status in 1,000 patients. Support Care Cancer 8 (2000) 175-179
11. Tranmer J.E., Heyland D., Dudgeon D., et al. Measuring the symptom experience of seriously ill cancer and noncancer hospitalized patients near the end of life with the Memorial Symptom Assessment Scale. J Pain Symptom Manage 25 (2003) 420-429
12. Cohen S.R., Boston P., Mount B.M., and Porterfield P. Changes in quality of life following admission to palliative care units. Palliat Med 15 (2001) 363-371
13. Bretscher M., Rummans T., Sloan J., et al. Quality of life in hospice patients: a pilot study. Psychosomatics 40 (1999) 309-313
14. McMillan S.C., and Mahon M. Measuring quality of life in hospice patients using a newly developed Hospice Quality of Life Index. Qual Life Res 3 (1994) 437-447
15. McMillan S.C. Quality of life assessment in palliative care. Cancer Control 3 (1996) 223-229
16. Kutner J.S., Main D.S., Westfall J.M., and Pace W. The Practice-Based Research Network as a model for end-of-life care research: challenges and opportunities. Cancer Control 12 (2005) 186-195
17. Portenoy R.K., Thaler H.T., Kornblith A.B., et al. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer 30A (1994) 1326-1336
18. Cohen S.R., Mount B.M., Bruera E., et al. Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain. Palliat Med 11 (1997) 3-20
19. Hickman S.E., Tilden V.P., and Tolle S.W. Family Reports of dying patients' distress: the adaptation of a research tool to assess global symptom distress in the last week of life. J Pain Symptom Manage 22 (2002) 565-574
20. Chang V.T., Thaler H.T., Polyak T.A., et al. Quality of life and survival: the role of multidimensional symptom assessment. Cancer 83 (1998) 173-179
21. Hwang S.S., Chang V.T., Fairclough D.L., Cogswell J., and Kasimis B. Longitudinal quality of life in advanced cancer patients: pilot study results from a VA medical cancer center. J Pain Symptom Manage 25 (2003) 225-235
22. Chang V.T., Hwang S.S., Thaler H.T., Kasimis B.S., and Portenoy R.K. Memorial Symptom Assessment Scale. Expert Rev Pharmacoeconomics Outcomes Res 4 (2004) 171-178
23. Chang V.T., Hwang S.S., Kasimis B.S., and Thaler H.T. Shorter symptom assessment instruments: the Condensed Memorial Symptom Assessment Scale (CMSAS). Cancer Invest 22 (2004) 526-536
24. Chang V.T., Hwang S.S., Feuerman M., Kasimis B., and Thaler H.T. The Memorial Symptom Assessment Scale Short Form (MSAS-SF). Cancer 89 (2000) 1162-1171
25. Cohen S.R., Mount B.M., Strobel M.G., and Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 9 (1995) 207-219
26. Mor V., Laliberte L., Morris J.N., and Wiemann M. The Karnofsky Performance Status Scale. An examination of its reliability and validity in a research setting. Cancer 53 (1984) 2002-2007
27. Rubin D.B. Multiple imputation for nonresponse in surveys (1987), John Wiley & Sons, New York
28. Kutner J.S., Nowels D.E., Kassner C.T., et al. Confirmation of the "disability paradox" among hospice patients: preservation of quality of life despite physical ailments and psychosocial concerns. Palliat Support Care 1 (2004) 231-237
29. Ventafridda V., DeConno F., Ripamonte C., Gamba A., and Tamburini M. Quality of life assessment during a palliative care programme. Ann Oncol 1 (1990) 415-420
30. Pfeiffer E. A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. J Am Geriatr Soc 23 (1975) 433-441
31. Fillenbaum G.G., Landerman L.R., and Simonsick E.M. Equivalence of two screens of cognitive functioning: the Short Portable Mental Status Questionnaire and the Orientation-Memory-Concentration test. J Am Geriatr Soc 46 12 (1998) 1512-1518