Carer participation in England, Wales and Northern Ireland: A challenge for interprofessional working

Journal of Interprofessional Care

Volumn 21, Issue 3, 2007, Pages 303-317

  Roulstone, Alan ^a   Hudson, Val ^a  

^a UNIVERSITY OF SUNDERLAND   (United Kingdom)

Author keywords

Informal carers; Interprofessional working; Participation; Social and healthcare professionals

Indexed keywords

CAREGIVER; GOVERNMENT REGULATION; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HUMAN; IRELAND; MEDICAL SOCIETY; POLICY; REVIEW; STAFF TRAINING; TEAMWORK; UNITED KINGDOM;

CAREGIVERS; CHILD; CONSUMER PARTICIPATION; DECISION MAKING, ORGANIZATIONAL; DISABLED CHILDREN; ENGLAND; HEALTH POLICY; HOME NURSING; HUMANS; INTERPROFESSIONAL RELATIONS; NORTHERN IRELAND; ORGANIZATIONAL POLICY; PATIENT CARE PLANNING; PATIENT CARE TEAM; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SOCIAL SUPPORT; SOCIAL WORK; SPOUSES; WALES;

EID: 34548441487     PISSN: 13561820     EISSN: 14699567     Source Type: Journal    
DOI: 10.1080/13561820701327822     Document Type: Review

References (59)

1. Adams, R. (2002) Social policy and social work, Palgrave, London
2. Alzheimer's Society Lesbian and Gay Carers Network (2002) The gay and lesbian carers network. The first two years, Alzheimer's Society, London
3. Arnstein, S. (1969) A ladder of citizen participation. Journal of the America Institute of Planners, 35, pp. 216-224.
4. Arksey, H., Hepworth, D. and Qureshi, H. (2000) Carers' needs and the Carers Act: An evaluation of the process and outcomes of assessment, Social Policy Research Unit, York
5. Audit Commission (2004) Support for carers of older people: Independence and wellbeing, Audit Commission, London
6. Bauld, L., Chesterman, J., Davies, B., Judge, K. and Mangalore, R. (2000) Caring for older people: An assessment of community care in the 1990s, Ashgate, Aldershot
7. Black Carers Network (2000) Black carers manifesto, NBCWN, London
8. Briggs, K. and Ashkam, J. (1999) The needs of people with dementia and those who care for them, Alzheimer's Society, London
9. Butt, J. and Box, L. (1997) Supportive services, effective strategies: The views of black-led organisations and the social care agencies on the nature of social care for black communities, York Publishing, York
10. Carers National Association (2000) Caring on the breadline, Carers National Association, London
11. Carers National Association (2001) You can take him home now: Carers experience of hospital discharge, Carers National Association, London
12. Carers UK (2002) Without us? Calculating the value of carers' support, Carers UK, London
13. Carers UK (2003) Missed opportunities: The impact of carers new rights, Carers UK, London
14. Carers UK (2005) Back me up: Planning for emergencies-Carers UK practice briefing, Carers UK, London
15. Department for Education and Employment (2000) Employment Relations Act: Guidance for flexible working policies for carers, DfEE, London
16. Department of the Environment, Transport and the Regions (1998) Modern local government - in touch with the people, HMSO, London
17. Department of Health, Social Services and Public Safety (Northern Ireland) and Carers Northern Ireland (2002) Valuing carers: Proposals for a strategy for carers in Northern Ireland, Northern Ireland Assembly, Belfast
18. Department of Health (1999) Caring about carers: A national strategy for carers, DoH, London
19. Department of Health (2001) Valuing people: A new strategy for learning disability for the 21st century, HMSO, London
20. Department of Health (2001) Carers and Disabled Children Act: Carers and people with parental responsibility for disabled children: Practice guidance, DoH, London
21. Department of Health (2001) Better care, higher standards: Guidance for 2001/2, DoH, London
22. Department of Health (2005) Beacon Status scheme 2005, Round 6: Supporting carers, DoH, London
23. Department of Health and the Social Services Inspectorate (2002) Modernising services to transform care: Inspection of how councils are managing the modernisation agenda in social care, SSI, London
24. Gordon, D., Adelman, L., Ashworth, K., Bradshaw, J., Levitas, R., Middelton, S., Pantazis, S., Patsios, D., Payne, S., Townsend, P. and Williams, J. (2000) Poverty and social exclusion in Britain, Joseph Rowntree Foundation/York Publishing, York
25. General Social Care Council (2006) Put social care centre stage in social exclusion. GSCC, London
26. Goss, S. and Miller, C. (1995) From margin to mainstream, Joseph Rowntree Foundation, York
27. Gunaratnam, Y. (1997) Breaking the Silence: Black and minority ethnic carers and service provision. Community care: A reader, Open University Press, Milton Keynes
28. Halliday, B. and Dixon, P. (1996) Perceptions of care management within a Northern Ireland Health and Social Services Board. Elders: The Journal of Care and Practice, 5, pp. 20-28.
29. Hirst, M. (2003) Caring-related inequalities in psychological distress in Britain during the 1990s. Journal of Public Health Medicine, 25, pp. 336-343.
30. Holzhauzen, E. and Pearlman, V. (2000) Caring on the breadline-The financial implications of caring, Carers National Association, London
31. Howard, M. (2001) Paying the price: Carers, poverty and social exclusion, Child Poverty Action Group, London
32. Institute of Psychiatry and Rethink (2006) Sharing Mental Health Information with Carers: Pointers to good practice for service providers.
33. Kemshall, H. and Littlechild, R. (2000) User involvement and participation in social care: Research informing practice, Jessica Kingsley, London
34. King's Fund (2001) Future imperfect: Report of the King's Fund Care and Support Inquiry, King's Fund, London
35. Last, A. (2003) User involvement: Pick and choose. Health Service Journal, 113:5852, pp. 28-29.
36. Manthorpe, J. (2001) Caring at a distance: Learning and practice issues. Social Work Education, 20, pp. 593-602.
37. Manthorpe, J. and Price, E. (2006) Lesbian carers: Personal issues and policy responses. Social Policy and Society, 15, pp. 15-26.
38. Milne, A. and Hatzidimitriadou, E. (2002) The caring in later life report: A secondary analysis of the 1995 General Household Survey. Quality in Ageing: Policy, Practice and Research, 3, p. 315.
39. Mitchell, A. (2003) Impact of discharge from day surgery on patients and carers. British Journal of Nursing, 12, pp. 402-408.
40. Northern Ireland Social Services Inspectorate (2005) Final Draft Standards for Inspection of Social Care Support Services for Carers of Older People: Key standards and criteria, SSI, Belfast
41. (1995) Working carers, Avebury, Aldershot
42. (1995) Values and visions: Changing ideas in services for people with learning difficulties, Butterworth Heinemann, Oxford
43. Princess Royal Trust (2002) Carers speak out project: Report on the main findings and recommendations, PRT, London
44. Princess Royal Trust (2004) Primary carers-Identifying and providing support to carers in primary care, PRT, London
45. Rethink (2003) Who cares? The experiences of mental health carers accessing services and information, Rethink, London
46. Seddon, D. and Robinson, C. (2004) Carers of older people with dementia: Assessment and the Carers Act. Health and Social Care in the Community, 9, pp. 151-158.
47. Simpson, A. (1999) Creating alliances: The views of users and carers on the education and training needs of community mental health nurses. Journal of Psychiatric and Mental Health Nursing, 6, pp. 347-356.
48. Social Services Inspectorate (1999) They look after their own don't they?, SSI, London
49. Stalker, K. (2003) Reconceptualising work with carers: New directions for policy and practice, Jessica Kingsley, London
50. (2004) Disabling barriers enabling environments, Sage, London
51. Vernon, A. (2002) Users' views of community care services for disabled people, Joseph Rowntree Foundation, York
52. Ward, L. (2001) Family matters: Counting families in, Department of Health, London
53. Welsh Assembly Government (2000) Caring about carers, WAG, Cardiff
54. Welsh Assembly Government (2000) Carer's Strategy Implementation Plan, WAG, Cardiff
55. Welsh Assembly Government (2001) Equity, empowerment, effectiveness and efficiency: Adult Mental Health Strategy, WAG, AMHS, Cardiff
56. Welsh Assembly Government (2002) National Service Framework for Working Age Adults, WAG, Cardiff
57. Welsh Assembly Government (2002) Challenging the myth: They look after their own don't they?, WAG, Cardiff
58. Williams, V. and Robinson, C. (2000) In their own right: The Carers Act and carers of people with learning difficulties, Policy Press, Bristol
59. Zarb, G. (1992) On the road to Damascus: First steps towards changing the social relations of production. Disability, Handicap and Society, 7, pp. 125-131.