A haemophilia treatment centre-administered disease management programme in patients with bleeding disorders

Haemophilia

Volumn 13, Issue 5, 2007, Pages 480-488

  Tencer, T ^a   Roberson, C ^b   Duncan, N ^b   Johnson, K ^a   Shapiro, A ^b  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b INDIANA HEMOPHILIA AND THROMBOSIS CENTER   (United States)

Author keywords

Bleeding disorders; Disease management; Eeconomics; Haemophilia; Resource utilization

Indexed keywords

RECOMBINANT BLOOD CLOTTING FACTOR 7A; RECOMBINANT BLOOD CLOTTING FACTOR 8; RECOMBINANT BLOOD CLOTTING FACTOR 9;

ADULT; ARTICLE; BLEEDING DISORDER; CLINICAL ARTICLE; COMORBIDITY; CONTROLLED STUDY; DISEASE SEVERITY; EMERGENCY CARE; FEMALE; HEALTH CARE COST; HEALTH CARE FACILITY; HEALTH CARE UTILIZATION; HEALTH INSURANCE; HEMOPHILIA; HOSPITAL PATIENT; HOSPITALIZATION; HUMAN; MALE; MEDICAL RECORD; METHODOLOGY; OUTCOME ASSESSMENT; OUTPATIENT CARE; PATIENT CARE; PRIORITY JOURNAL; SAMPLE SIZE; STATISTICAL SIGNIFICANCE; UNITED STATES;

ADULT; COSTS AND COST ANALYSIS; FEMALE; HEALTH CARE COSTS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH RESOURCES; HEALTH SERVICES ACCESSIBILITY; HEMOPHILIA A; HUMANS; INDIANA; INSURANCE, HEALTH; MALE; MANAGED CARE PROGRAMS; QUESTIONNAIRES;

EID: 34548301666     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2007.01495.x     Document Type: Article

References (19)

1. Barr RD, Saleh M, Furlong W, et al. Health status and health-related quality of life associated with hemophilia. Am J Hematol 2002; 71: 152-60.
2. Royal S, Schramm W, Berntorp E, et al. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8: 44-50.
3. Carcao MD, Aledort L. Prophylactic factor replacement in hemophilia. Blood Rev 2004; 18: 101-13.
4. Globe DR, Curtis RG, Koerper MA. Utilization of care in haemophilia: A resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS). Haemophilia 2004; 10: 63-70.
5. Bohn RL, Avorn J, Glynn RJ, Choodnovskiy I, Haschemeyer R, Aledort LM. Prophylactic use of factor VIII: An economic evaluation. Thromb Haemost 1998; 79: 932-7.
6. Carlsson KS, Hojgard S, Lindgren A, et al. Costs of on-demand and prophylactic treatment for severe haemophilia in Norway and Sweden. Haemophilia 2004; 10: 515-26.
7. Bohn RL, Aledort LM, Putnam KG, Ewenstein BM, Mogun H, Avorn J. The economic impact of factor VIII inhibitors in patients with haemophilia. Haemophilia 2004; 10: 63-8.
8. Love L, Winter M, Bedford M, Blaxland A. Home therapy forms - why don't they come back? Haemophilia 1996; 2: 182.
9. Walker I, Sigouin C, Sek J, et al. Comparing hand-held computers and paper diaries for haemophilia home therapy: A randomized trial. Haemophilia 2004; 10: 698-704.
10. Smith PS, Keyes NC, Forman EN. Socioeconomic evaluation of a state-funded comprehensive hemophilia-care program. N Engl J Med 1982; 306: 575-9.
11. Smith PS, Levine PH. The benefits of comprehensive care of hemophilia: A five-year study of outcomes. Am J Public Health 1984; 74: 616-7.
12. Soucie JM, Nuss R, Evatt B, et al. Mortality among males with hemophilia: Relations with source of medical care. The Hemophilia Surveillance System Project Investigators. Blood 2000; 96: 437-42.
13. Soucie JM, Symons JT, Evatt B, et al. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia 2001; 7: 198-206.
14. Collins PW, Bolton-Maggs P, Stephenson D, Jenkins B, Loran C, Winter M. Pilot study of an Internet-based electronic patient treatment record and communication system for haemophilia, Advoy.com. Haemophilia 2003; 9: 285-91.
15. Centers for Disease Control and Prevention. Basic Concepts of Hemophilia: A Self-Study and Planning Workbook for Families with a New Diagnosis of Hemophilia. Washington, D.C.: U.S. Government Printing Office.
16. Morisky DE, Green LW, Levine DM. Concurrent and predictive validity of a self-reported measure of medication adherence. Med Care 1986; 24: 67-74.
17. Fetterolf D, Wennberg D, Devries A. Estimating the return on investment in disease management programs using a pre-post analysis. Dis Manage 2004; 7: 5-23.
18. Drummond MF, Sculpher MJ, Torrance GW, O'Brien BJ, Stoddart GL. Methods for the Economic Evaluation of Health Care Programmes, 3rd edn. Oxford University Press, 2005.
19. Anonymous. Standard outcome metrics and evaluation methodology for disease management programs. American Healthways and Johns Hopkins Consensus Conference. In Disease Management 2003; 121-38.