Disease pattern of spondyloarthropathies in Spain: Description of the first national registry (REGISPONSER) - Extended report

Rheumatology

Volumn 46, Issue 8, 2007, Pages 1309-1315

  Collantes, E ^a   Zarco, P ^b   Munoz E ^a   Juanola, X ^c   Mulero, J ^d   Fernandez Sueiro J L ^e   Torre Alonso, J C ^f   Gratacos J ^g   Gonzalez C ^h   Batlle, E ⁱ   Fernandez P ^j   Linares, L F ^k   Brito, E ^l   Carmona, L ^m  

^a HOSPITAL UNIVERSITARIO REINA SOFÍA   (Spain)

^b HOSPITAL UNIVERSITARIO FUNDACIÓN ALCORCÓN   (Spain)

^c HOSPITAL UNIVERSITARI DE BELLVITGE   (Spain)

^d HOSPITAL UNIVERSITARIO PUERTA DE HIERRO   (Spain)

^e HOSPITAL JUAN CANALEJO   (Spain)

^f HOSPITAL MONTE NARANCO   (Spain)

^g HOSPITAL DE SABADELL   (Spain)

^h HOSPITAL GENERAL UNIVERSITARIO GREGORIO MARAÑÓN   (Spain)

ⁱ HOSPITAL GENERAL UNIVERSITARIO DE ALICANTE   (Spain)

^j HOSPITAL UNIVERSITARIO 12 DE OCTUBRE   (Spain)

^k HOSPITAL UNIVERSITARIO VIRGEN DE LA ARRIXACA   (Spain)

^l HOSPITAL RAMÓN Y CAJAL   (Spain)

^m UNIDAD DE INVESTIGACIÓN   (Spain)

more..

Author keywords

Ankylosing spondylitis; Disease registry; Epidemiology; Spondyloarthropathies; Undifferentiated spondyloarthropathies

Indexed keywords

ADULT; ANKYLOSING SPONDYLITIS; ARTICLE; CLINICAL FEATURE; CONTROLLED STUDY; DATA BASE; DEMOGRAPHY; DISEASE ACTIVITY; DISEASE DURATION; ENTERITIS; ENTHESITIS; FEMALE; FUNCTIONAL STATUS; HUMAN; INFORMATION PROCESSING; IRIDOCYCLITIS; LOW BACK PAIN; MAJOR CLINICAL STUDY; MALE; METHODOLOGY; OUTPATIENT DEPARTMENT; PATIENT CARE; PATIENT CODING; PRIORITY JOURNAL; PSORIATIC ARTHRITIS; PUBLICATION; QUALITY OF LIFE; REACTIVE ARTHRITIS; REGISTER; SOCIAL ASPECT; SPAIN; SPONDYLOARTHROPATHY; WORK DISABILITY;

ADULT; AGE FACTORS; AGE OF ONSET; ANTIRHEUMATIC AGENTS; ATTITUDE TO HEALTH; BACK PAIN; FEMALE; HUMANS; MALE; MIDDLE AGED; PAIN MEASUREMENT; REGISTRIES; SEVERITY OF ILLNESS INDEX; SPAIN; SPONDYLARTHROPATHIES; SPONDYLITIS, ANKYLOSING;

EID: 34547852165     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/kem084     Document Type: Article

References (31)

1. Khan MA. Update on spondyloarthropathies. Ann Intern Med 2002;135:896-907.
2. Akkoc N, Khan MA. Epidemiology of ankylosing spondylitis and related spondyloar-thropathies. In: Weisman MH, van der Heijde D, Reveille JD, eds. Ankylosing spondylitis and the spondyloarthropathies. Philadelphia: Mosby, 2006;117-31.
3. Collantes E, Cisnal A, Muñoz E et al. Validación de criterios diagnósticos y de clasificación do las espondiloartropatías: Estudio multicéntrico en España. Rev Esp Reumatol 1994;21:426-29.
4. Carmona L, Ballina J, Gabriel R, Laffon A. EPISER Study Group. The burden of musculoskeletal diseases in the general population of Spain: results from a national survey. Ann Rheum Dis 2001;60:1040-5.
5. Lynge E. Implication for epidemiology of disease registers. Public Health Rev 1993-94;21:263-70.
6. Zink A, Listing J, Klindworth C, Zeidler H. The National database of the German Collaborative Arthriris Centres: I. Structure, aims, and patients. Ann Rheum Dis 2001;60:199-206.
7. Wolfe F. A short history of data banking in the United States from 1974 to 2003. J Rheumatol 2004;31:41-45.
8. Mayes MD, Giannini EH, Pachman LM, Buyon JP, Fleckman P. Connective tissue disease registries. Arthritis Rheum 1997;40:1556-9.
9. Malleson PN, Fung MY, Rosenberg AM. The incidence of pediatric rheumatic diseases: Results from the Canadian Pediatric Rheumatology Association Disease Registry. J Rheumatol 1996;23:1981-7.
10. Bond C. South Australian Scleroderma Register: Analysis of deceased patients. Pathology 1998;30:386-90.
11. Sokka T. Rheumatoid artritis databases. Rheum Dis Clin North Am 2004;30:769-81.
12. Kremer JM. The CORRONA Database. Clin Exp Rhoumatol 2005;23:S172-77.
13. Mayes MD. The establishment and utility of a population based registry to understand the epidemiology of systemic sclerosis. Curr Rheumatol Rep 2000; 2:512-6.
14. Wolfe F, Sharp JT. Radiographic outcome of recent-onset rheumatoid arthritis: A 19-year study of radiographic progression. Arthritis Rheum 1998;41:571-82.
15. Christensson D, Saveland H, Rydholm U. Cervical spine surgery in rheumatoid arthritis. A Swedish nation-wide registration of 83 patients. Scand J Rheumatol 2000;29:314-9.
16. Silman A, Klareskog L, Breedveld F et al. Proposal to establish a register for the long term surveillance of adverse events in patients with rheumatic diseases exposed to biological agents: The EULAR Surveillance Register for Biological Compounds. Ann Rheum Dis 2000;59:419-20.
17. Comité científico de BIOBADASER. Sociedad Española de Reumatología. BIOBADASER: Registro español de acontecimientos adversos de terapias biológicas en enfermedades reumáticas. Rev Esp Reumatol 2002;29:292-9.
18. Gladman DD, Ritchlin C, Helliwell PS. Psoriatic arthritis clinical registries and genomics. Ann Rheum Dis 2005;64:103-5.
19. Jarvinen P. Occurrence of ankylosing spondylitis in a nationwide series of twins. Arthritis Rheum 1995;38:381-3.
20. Dougados M, van der Linden Sjef, Juhlin R et al. The European Spondyloarthropathy Study Group Preliminary Criteria for the Classification of Spondyloartropathy. Arthritis Rheum 1991;34:1218-27.
21. Heuft-Dorenbosch L, Spoorenberg A, Van Tubergen R et al. Assessment of enthesitis in ankylosing spondylitis. Ann Rheum Dis 2003;62:127-32.
22. Garrett S, Jenkinson T, Kennedy LG, Whitelock H, Gaisford P, Calin A. A now approach to defining disease status in ankylosing spondylitis: The Bath Ankylosing Spondylitis Disease Activity Index. J Rheumatol 1994;21:2286-91.
23. Calin A, Garrett S, Whitelock H et al. A new approach to defining functional ability in ankylosing spondylitis: The development of the Bath Ankylosing Spondylitis Functional Index. J Rheumatol 1994;21:2281-5.
24. Mackay K, Mack C, Brophy S, Calin A. The Bath Ankylosing Spondylitis Radiology Index (BASRI). A now validated approach to diseases assessment. Arthritis Rheum 1998;41:2263-70.
25. Doward LC, Spoorenberg A, Cook SA et al. Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003;62:20-6.
26. Ware JE, Kosinski M, Keller SD. A 12-Itern Short-Form Health Survey. Construction of scales and preliminary test of reliability and Validity. Med Care 1996;34:220-33.
27. Gomariz EM, del Mazo AC, Guijo VP, Contreras AE, Villanueva M, Estévez EC. The potential of ESSG spondyloathropathy classification criteria as a diagnostic aid in rheumatological practice. J Rheumatol 2002;29:326-30.
28. Amor B, Dougados M, Listrat V et al. Evaluation of the Amor criteria for spondylarthropathies and European Spondylarthropathy Study Group (ESSG). A cross-sectiorial analysis of 2,228 patients. Ann Med Interne 1991;142:85-9.
29. Siepper J, Rudwaleit M. Early referral recommendations for ankylosing spondylitis (including pre-radiographic and radiographic forms) in primary care. Ann Rheum Dis 2005;64:659-63.
30. Feldkeller E, Khan MA, van der Heijde D, van der Linden S, Braun J. Age at disease onset and diagnosis delay in HLA-B27 negative vs. positive patients with Ankylosing spondylitis. Rheumatol Int 2003;23:61-6.
31. Cardiel MH, Londoño JD, Gutierrez E, Pacheco-Tena C, Vazquez-Mellado J, Burgos-Vargas R. Translation, cross-cultural adaptation, and validation of the Bath Ankylosing spondylitis functional index (BASFI) and the Dougados Fuctional Index (DFI) in a Spanish speaking population with spondyloarthropathies. Clin Exp Rheumatol 2003;21:451-8.