Effects of adherence to treatment on short-term outcomes in children with juvenile idiopathic arthritis

Arthritis Care and Research

Volumn 57, Issue 6, 2007, Pages 905-912

  Feldman, Debbie Ehrmann ^a,g   De Civita, Mirella ^b   Dobkin, Patricia L ^c   Malleson, Peter N ^d   Meshefedjian, Garbis ^e   Duffy, Ciarán M ^f  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b Quebec Health Services and Technology Assessment Agency   (Canada)

^c MCGILL UNIVERSITY HEALTH CENTRE   (Canada)

^d UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^e Public Health Department   (Canada)

^f MONTREAL CHILDREN S HOSPITAL   (Canada)

^g UNIVERSITY OF MONTREAL   (Canada)

Author keywords

Adherence; Function; Health outcomes; Juvenile idiopathic arthritis; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTHRALGIA; ARTICLE; CANADA; CHILD; CHILD HEALTH ASSESSMENT QUESTIONNAIRE; DISEASE DURATION; EXERCISE; FEMALE; HUMAN; JUVENILE ARTHRITIS QUALITY OF LIFE QUESTIONNAIRE; JUVENILE RHEUMATOID ARTHRITIS; LOGISTIC REGRESSION ANALYSIS; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; PARENT ADHERENCE REPORT QUESTIONNAIRE; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; TREATMENT OUTCOME; VISUAL ANALOG SCALE; WELLBEING;

ADOLESCENT; ARTHRITIS, JUVENILE RHEUMATOID; CHILD; CHILD, PRESCHOOL; EXERCISE THERAPY; FEMALE; HEALTH SURVEYS; HUMANS; LONGITUDINAL STUDIES; MALE; PAIN MEASUREMENT; PATIENT COMPLIANCE; QUALITY OF LIFE; REGRESSION ANALYSIS; TIME FACTORS; TREATMENT OUTCOME;

EID: 34547821860     PISSN: 21514658     EISSN: 15290131     Source Type: Journal    
DOI: 10.1002/art.22907     Document Type: Article

References (38)

1. Peterson LS, Mason T, Nelson AM, O'Fallon WM, Gabriel SE. Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study. Arthritis Rheum 1997;40:2235-40.
2. Guillaume S, Prieur AM, Coste J, Job-Deslandre C. Long-term outcome and prognosis in oligoarticular-onset juvenile idiopathic arthritis. Arthritis Rheum 2000;43:1858-65.
3. Oen K. Long-term outcomes and predictors of outcomes for patients with juvenile idiopathic arthritis [review]. Best Pract Res Clin Rheumatol 2002;16:347-60.
4. Zak M, Pedersen FK. Juvenile chronic arthritis into adulthood: a long-term follow-up study. Rheumatology (Oxford) 2000;39:198-204.
5. Duffy CM, Tucker LB, Burgos-Vargas R. Update on functional assessment tools [review]. J Rheumatol Suppl 2000;58:11-4.
6. Ravelli A, Martini A. Early predictors of outcome in juvenile idiopathic arthritis [review]. Clin Exp Rheumatol 2003;21 Suppl 31:S89-93.
7. Wagner JL, Chaney JM, Hommel KA, Page MC, Mullins LL, White MM, et al. The influence of parental distress on child depressive symptoms in juvenile rheumatic diseases: the moderating effect of illness intrusiveness. J Pediatr Psychol 2003;28:453-62.
8. Cassidy JT, Petty RE. Juvenile rheumatoid arthritis. In: Cassidy JT, Petty RE, editors. Textbook of pediatric rheumatology. Toronto: Elsevier; 2005.
9. Sabate E, editor. Adherence to long term therapies: evidence for action. Geneva: World Health Organization; 2003.
10. Emery H. Pediatric rheumatology: what does the future hold? [letter]. Arch Phys Med Rehabil 2004;85:1382-4.
11. Emery P, Breedveld FC, Dougados M, Kalden JR, Schiff MH, Smolen JS. Early referral recommendation for newly diagnosed rheumatoid arthritis: evidence based development of a clinical guide. Ann Rheum Dis 2002;61:290-7.
12. Fantini F, Gerloni V, Gattinara M, Cimaz R, Arnoldi C, Lupi E. Remission in juvenile chronic arthritis: a cohort study of 683 consecutive cases with a mean 10 year followup. J Rheumatol 2003;30:579-84.
13. Ehrmann Feldman D, De Civita M, Dobkin PL, Malleson PN, Meshefedjian G, Duffy CM. Perceived adherence to prescribed treatment in juvenile idiopathic arthritis over a one-year period. Arthritis Rheum 2007;57:226-33.
14. De Civita M, Dobkin PL, Ehrmann-Feldman D, Karp I, Duffy CM. Development and preliminary reproducibility and validity of the Parent Adherence Report Questionnaire: a measure of adherence in juvenile idiopathic arthritis. J Clin Psychol Med Settings 2005;12:1-12.
15. Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum 1994;37:1761-9.
16. Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The juvenile arthritis quality of life questionnaire: development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol 1997;24:738-46.
17. Derogatis LR, Rickels K, Rock AF. The SCL-90 and the MMPI: a step in the validation of a new self-report scale. Br J Psychiatry 1976;128:280-9.
18. Pediatric Rheumatology Collaborative Study Group. Methodology for studies of children with juvenile rheumatoid arthritis. J Rheumatol 1982;9:107-55.
19. Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: dimensions and practical applications [review]. Health Qual Life Outcomes 2003;1:20.
20. Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: a review of its history, issues, progress, and documentation. J Rheumatol 2003;30:167-78.
21. Doherty E, Yanni G, Conroy RM, Bresnihan B. A comparison of child and parent ratings of disability and pain in juvenile chronic arthritis. J Rheumatol 1993;20:1563-6.
22. April KT, Feldman DE, Platt RW, Duffy CM. Comparison between children with juvenile idiopathic arthritis (JIA) and their parents concerning perceived quality of life. Qual Life Res 2006;15:655-61.
23. Derogatis LR. SCL-90-R: administration, scoring and interpretation manual. Minneapolis: National Computer System; 1994.
24. Kiger JA, Murphy SA. A reliability assessment of the symptom Checklist-90-R: suitability for postdisaster-bereaved and nonloss study samples. West J Nurs Res 1987;9:572-88.
25. Dempster H, Porepa M, Young N, Feldman BM. The clinical meaning of functional outcome scores in children with juvenile arthritis. Arthritis Rheum 2001;44:1768-74.
26. Giannini EH, Ruperto N, Ravelli A, Lovell D, Felson DT. Preliminary definition of improvement in juvenile arthritis. Arthritis Rheum 1997;40:1202-9.
27. Ilowite NT. Current treatment of juvenile rheumatoid arthritis [review]. Pediatrics 2002;109:109-15.
28. Wallace CA. Current management of juvenile idiopathic arthritis [review]. Best Pract Res Clin Rheumatol 2006;20:279-300.
29. Rapoff MA. Management of adherence and chronic rheumatic disease in children and adolescents. Best Pract Res Clin Rheumatol 2006;20:301-14.
30. Klepper SE. Effects of an eight-week physical conditioning program on disease signs and symptoms in children with chronic arthritis. Arthritis Care Res 1999;12:52-60.
31. Klepper SE. Exercise and fitness in children with arthritis: evidence of benefits for exercise and physical activity. Arthritis Rheum 2003;49:435-43.
32. Takken T, van der Net J, Helders PJ. Do juvenile idiopathic arthritis patients benefit from an exercise program? A pilot study. Arthritis Rheum 2001;45:81-5.
33. Rapoff MA, Lindsley CB, Christophersen ER. Improving compliance with medical regimens: case study with juvenile rheumatoid arthritis. Arch Phys Med Rehabil 1984;65:267-9.
34. Rapoff MA, Purviance MR, Lindsley CB. Educational and behavioral strategies for improving medication compliance in juvenile rheumatoid arthritis. Arch Phys Med Rehabil 1988;69:439-41.
35. Rapoff MA, Belmont J, Lindsley C, Olson N, Morris J, Padur J. Prevention of nonadherence to nonsteroidal anti-inflammatory medications for newly diagnosed patients with juvenile rheumatoid arthritis. Health Psychol 2002;21:620-3.
36. Takken T, van der Net J, Helders PJ. Relationship between functional ability and physical fitness in juvenile idiopathic arthritis patients. Scand J Rheumatol 2003;32:174-8.
37. De Civita M, Ehrmann-Feldman D, Meshefedjian GA, Dobkin PL, Malleson PN, Duffy CM. Caregiver recall of treatment recommendations in juvenile idiopathic arthritis (JIA) [abstract]. Arthritis Rheum 2005;52 Suppl 9:S539.
38. April KT, Feldman DE, Platt RW, Duffy CM. Comparison between children with juvenile idiopathic arthritis and their parents concerning perceived treatment adherence. Arthritis Rheum 2006;55:558-63.