Infromal carer activities, carer burden and health status in multiple sclerosis

Clinical Rehabilitation

Volumn 21, Issue 6, 2007, Pages 563-575

  Forbes, Angus ^a   While, Alison ^a   Mathes, Lucia ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANALYSIS OF VARIANCE; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CONFIDENCE INTERVAL; CONTROLLED STUDY; FEMALE; HEALTH CARE DELIVERY; HEALTH STATUS; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MULTIPLE SCLEROSIS; PHYSICAL ACTIVITY; PHYSICAL PERFORMANCE; PROSPECTIVE STUDY; REGRESSION ANALYSIS; SCORING SYSTEM; SHORT FORM 36; STATISTICAL SIGNIFICANCE; UNITED KINGDOM; ANXIETY; CLUSTER ANALYSIS; COST OF ILLNESS; DAILY LIFE ACTIVITY; DEPRESSION; DYSPNEA; FATIGUE; HOSPITALIZATION; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SEX DIFFERENCE; SEXUAL BEHAVIOR; STATISTICS;

ACTIVITIES OF DAILY LIVING; ANXIETY; CAREGIVERS; CLUSTER ANALYSIS; COST OF ILLNESS; DEPRESSION; DYSPNEA; FATIGUE; FEMALE; GREAT BRITAIN; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PROSPECTIVE STUDIES; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; SEX FACTORS; SEXUAL BEHAVIOR;

EID: 34447619353     PISSN: 02692155     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269215507075035     Document Type: Article

References (24)

1. Carton H, Loos R, Pacolet J, Versieck K, Vlietinck R. A quantitative study of unpaid caregiving in multiple sclerosis. Multiple Sclerosis 2000; 6.
2. McKeown LP, Porter-Armstrong A, Baxter G. The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clin Rehabil 2003; 17: 234-48.
3. Chesson R. Who's there for carers? Report from the MS Society Scotland, Edinburgh, 2003.
4. Hind L. Challenging assumptions of care. Way Ahead (Multiple Sclerosis Trust) 2001; 5: 2.
5. Boeije H. Duijnstee M, Grypdonck M. Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health Social Care Community 2003; 11.
6. DesRosier M, Catanzaro M, Piller J. Living with chronic illness: social support and the well spouse perspective. Rehabil Nurs 1992; 17: 87-91.
7. O'Brien R, Wineman N, Nealon N. Correlates of the caregiving process in multiple sclerosis. Scholarly Inquiry Nurs Pract 1995; 9: 323-38.
8. Chipchase SY, Lincoln NB. Factors associated with carer strain in carers of people with multiple sclerosis. Disabil Rehabil 2001; 23: 768-76.
9. Cohen C, Colantonio A, Vernich L. Positive aspects of caregiving: rounding out the caregiver experience Int J Geriatr Psych 2002; 17: 184-88.
10. Good D, Bower D, Einsporn R. Social support: gender differences in multiple sclerosis spousal caregivers. J Neurosci Nurs 1995; 27: 305-11.
11. Aronson KJ. Quality of life among persons with multiple sclerosis and their caregivers. Neurology 1997; 48: 74-80.
12. Hakim EA, Bakheit A, Bryant T et al. The social impact of multiple sclerosis - a study of 305 patients and their relatives. Disabil Rehabil 2000; 22: 288-93.
13. Hatch L, Hayes G, Griffith C, Burn J, Baker R. Carer stress scales: are they valid for the caregivers of younger disabled people? Way Ahead (Multiple Sclerosis Trust) 2002; 6: 3.
14. Aronson KJ, Cleghorn G, Goldenberg E. Assistance arrangements and use of services among persons with multiple sclerosis and their caregivers. Disabil Rehabil 1996; 18: 354-61.
15. Pakenham. KI. Couple coping and adjustment to multiple sclerosis in care receiver-carer dyads. Family Relations 1998; 47: 269-77.
16. Forbes A, While A, Mathes L, Griffiths P. Evaluation of an MS specialist nurse programme. Int J Nurs Stud 2006; 43: 985-1000.
17. Given B, Stommel M, Collins C. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 1992; 15: 271-83.
18. Jenkinson C. Stewart-Brown S. Petersen S, Paice C. Assessment of the SF-36 version 2 in the United Kingdom. J Epidemiol Community Health 1999; 53: 46-50.
19. Craig J, Young CA, Ennis M, Baker G, Boggild M. A randomised controlled trial comparing rehabilitation against standard therapy in multiple sclerosis patients receiving intravenous steroid treatment. J Neurol Neurosurg Psychiatry 2003; 74: 1225-30.
20. White DM. Treating the family with multiple sclerosis. Phys Med Rehabil Clin N Am 1998; 9: 675-87.
21. Hobart JC, Lamping DL, Fitzpatrick R, Riazi A, Thompson AJ. The Multiple Sclerosis Impact Scale (MSIS-29): a new patient-based outcome measure. Brain 2001; 124: 962-73.
22. Jacobi C, van den Berg B, Boshuizen H, Rupp I, Dinant H, van den Bos G. Dimension specific burden of caregiving among partners of rheumatoid arthritis patients. Rheumatology 2003; 42: 1226-33.
23. Duijnstee M, Boeije H. Home care by and for relatives of MS patients. J Neurosci Nurs 1998; 30: 356-60.
24. Forbes A While A, Mathes L, Griffiths P. Health problems and health related quality of life in people with multiple sclerosis. Clin Rehabil 2006; 20: 67-78.