Consent systems for post mortem organ donation in Europe

European Journal of Health Law

Volumn 11, Issue 2, 2004, Pages 175-186

  Gevers, Sjef ^a   Janssen, Anke ^a   Friele, Roland ^b  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

^b NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRIA; BELGIUM; CADAVER DONOR; EUROPE; FRANCE; GERMANY; INFORMED CONSENT; ITALY; LAW; NETHERLANDS; ORGAN DONOR; REGISTER; REVIEW; SPAIN; SWEDEN; SWITZERLAND; UNITED KINGDOM;

HEALTH CARE AND PUBLIC HEALTH; LEGAL APPROACH;

EUROPE; FAMILY; HUMANS; INFORMED CONSENT; ORGAN TRANSPLANTATION; PUBLIC OPINION; TISSUE AND ORGAN PROCUREMENT; TISSUE DONORS;

EID: 3442891177     PISSN: 09290273     EISSN: None     Source Type: Journal    
DOI: 10.1163/1571809041457422     Document Type: Review

References (23)

1. R. Friele, J. Gevers a.o., Tweede Evaluatie van de Wet op de orgaandonatie, ZON/MW, The Hague 2004.
2. See also the WHO Guiding Principles on Human Organ Transplantation (Geneva 1990): 'Organs may be removed from the bodies of deceased persons for the purpose of transplantation if (a) any consents required by law are obtained, and (b) there is no reason to believe that the deceased person objected to such removal, in the absence of any formal consent given during the person's lifetime.'
3. See also C.-L. Fischer-Fröhlich, 'Die Situation der Organtransplantation in der Bundesrepublik Deutschland und im europäischen Ausland aus medizinischer Sicht - eine Bestandsaufnahme', in: E. Baacke, G. Ruprecht (ed.), Organentnahme und Transplantation im Spannungsfeld zwischen Ethik und Gesetz, Stuttgart: Landeszentrale für Politische Bildung Baden-Württemberg 1997, p. 7-28.
4. P. Michielsen, 'Presumed consent to organ donation: 10 years' experience in Belgium', Journal of the Royal Society of Medicine (89) 1996, p. 665; I. Boone, 'Het wegnemen en transplanteren van organen volgens het Belgisch recht', Tijdschrift voor Privaatrecht 1996, p. 124.
5. P. Michielsen, 'Presumed consent to organ donation: 10 years' experience in Belgium', Journal of the Royal Society of Medicine (89) 1996, p. 665; I. Boone, 'Het wegnemen en transplanteren van organen volgens het Belgisch recht', Tijdschrift voor Privaatrecht 1996, p. 124.
6. L. Roels, G. Deschoolmeester, Y. Vanrenterghem, 'A Profile of People Objecting to Organ Donation in a Country with a Presumed Consent Law: Data From the Belgian National Registry', Transplantation Proceedings (29) 1997, p. 1473; Boone 1996, p. 124-125, Michielsen 1996, p. 663
7. L. Roels, G. Deschoolmeester, Y. Vanrenterghem, 'A Profile of People Objecting to Organ Donation in a Country with a Presumed Consent Law: Data From the Belgian National Registry', Transplantation Proceedings (29) 1997, p. 1473; Boone 1996, p. 124-125, Michielsen 1996, p. 663
8. L. Roels, G. Deschoolmeester, Y. Vanrenterghem, 'A Profile of People Objecting to Organ Donation in a Country with a Presumed Consent Law: Data From the Belgian National Registry', Transplantation Proceedings (29) 1997, p. 1473; Boone 1996, p. 124-125, Michielsen 1996, p. 663
9. Michielsen 1996, p. 663-665.
10. Claeys M.P., Huriet C., Rapport sur l'application de la loi no. 94-654 du 29 juillet 1994 relative au don et à l'utilisation des éléments et produits du corps humain, à l'assistance médicale à la procréation et au diagnostic prénatal, Paris: l'Office parlementaire d'evaluation des choix scientifiques et technologiques 1999.
11. Inspectie voor de Gezondheidszorg, Orgaandonatie in de Nederlandse ziekenhuizen, The Hague: Inspectie voor de Gezondheidszorg 2000, p. 32 ev.; H. Rosendal, W.T. van Beekum, J. Legemaate, M.A.J.M. Buisen, E.H. Hulst, M. van den Berg, A. Assink, E.B. Veen, Evaluatie Wet op de orgaandonatie, The Hague: ZonMw 2001, p. 19-20 en 84.
12. Inspectie voor de Gezondheidszorg, Orgaandonatie in de Nederlandse ziekenhuizen, The Hague: Inspectie voor de Gezondheidszorg 2000, p. 32 ev.; H. Rosendal, W.T. van Beekum, J. Legemaate, M.A.J.M. Buisen, E.H. Hulst, M. van den Berg, A. Assink, E.B. Veen, Evaluatie Wet op de orgaandonatie, The Hague: ZonMw 2001, p. 19-20 en 84.
13. P. McMaster, H. Vadeyar, 'Spain Model: World Leader in Organ Donation', Liver Transplantation (6, 4) 2000, p. 502; A. López-Naivdad, P. Domingo, M.A. Viedma, 'Professional characteristics of the Transplant Coordinator', Transplantation Proceedings (29) 1997, p. 1609; A. López-Navidad, F. Caballero, 'Organs for Transplantation', The New England Journal of Medicine (343, nr. 23) 2000, p. 1730; C.M. Romeo-Casabona, J.U. Hernández- Plasencia, E. Sola-Reche, in: R. Blanpain, H. Nys (ed.), International encyclopaedia of laws, Medical Law, (supplement 3, 1994), The Hague: Kluwer Law International 1993, p. 205.
14. P. McMaster, H. Vadeyar, 'Spain Model: World Leader in Organ Donation', Liver Transplantation (6, 4) 2000, p. 502; A. López-Naivdad, P. Domingo, M.A. Viedma, 'Professional characteristics of the Transplant Coordinator', Transplantation Proceedings (29) 1997, p. 1609; A. López-Navidad, F. Caballero, 'Organs for Transplantation', The New England Journal of Medicine (343, nr. 23) 2000, p. 1730; C.M. Romeo-Casabona, J.U. Hernández- Plasencia, E. Sola-Reche, in: R. Blanpain, H. Nys (ed.), International encyclopaedia of laws, Medical Law, (supplement 3, 1994), The Hague: Kluwer Law International 1993, p. 205.
15. P. McMaster, H. Vadeyar, 'Spain Model: World Leader in Organ Donation', Liver Transplantation (6, 4) 2000, p. 502; A. López-Naivdad, P. Domingo, M.A. Viedma, 'Professional characteristics of the Transplant Coordinator', Transplantation Proceedings (29) 1997, p. 1609; A. López-Navidad, F. Caballero, 'Organs for Transplantation', The New England Journal of Medicine (343, nr. 23) 2000, p. 1730; C.M. Romeo-Casabona, J.U. Hernández- Plasencia, E. Sola-Reche, in: R. Blanpain, H. Nys (ed.), International encyclopaedia of laws, Medical Law, (supplement 3, 1994), The Hague: Kluwer Law International 1993, p. 205.
16. P. McMaster, H. Vadeyar, 'Spain Model: World Leader in Organ Donation', Liver Transplantation (6, 4) 2000, p. 502; A. López-Naivdad, P. Domingo, M.A. Viedma, 'Professional characteristics of the Transplant Coordinator', Transplantation Proceedings (29) 1997, p. 1609; A. López-Navidad, F. Caballero, 'Organs for Transplantation', The New England Journal of Medicine (343, nr. 23) 2000, p. 1730; C.M. Romeo-Casabona, J.U. Hernández- Plasencia, E. Sola-Reche, in: R. Blanpain, H. Nys (ed.), International encyclopaedia of laws, Medical Law, (supplement 3, 1994), The Hague: Kluwer Law International 1993, p. 205.
17. B. Miranda, M. Fernández Lucas, C. De Felipe, N. Naya, J.M. González-Posada, R. Matesanz, 'Organ donation in Spain', Nephrology Dialysis Transplantation (14, supplement 3) 1999, p. 20; B. Miranda, M. Matesanz, M. Fernández Lucas, C. Felipe, M.T. Naya, 'Integrated Ways to Improve Cadaveric Organ Donation', Transplantation Proceedings (28) 1996, p. 96-97.
18. B. Miranda, M. Fernández Lucas, C. De Felipe, N. Naya, J.M. González-Posada, R. Matesanz, 'Organ donation in Spain', Nephrology Dialysis Transplantation (14, supplement 3) 1999, p. 20; B. Miranda, M. Matesanz, M. Fernández Lucas, C. Felipe, M.T. Naya, 'Integrated Ways to Improve Cadaveric Organ Donation', Transplantation Proceedings (28) 1996, p. 96-97.
19. Schweizerischen Bundesrates, Botschaft zum Bundesgesetz über die Transplantationen von Organen, Geweben und Zellen (Transplantationsgesetz) vom 12. September 2001.
20. Schweizerischen Bundesrates, Botschaft zum Bundesgesetz über die Transplantationen von Organen, Geweben und Zellen (Transplantationsgesetz) vom 12. September 2001, p. 79.
21. See for similar observations several other authors on this subject, such as R. Matesanz, 'Cadaveric organ donation: comparison of legislation in various countries in Europe', Nephr. Dial. Transplant (13) 1998 ('Social reality interferes with the wish to change reality by an act of law. At the very best everything returns to the status quo.') and G. Palea, D. Pegg, 'The ethics of donation: changes are necessary and soon', The Lancet (362) 2003, p. 932 ('... as long as the agreement of relatives is required, an opt-out system would probably have a small overall effect on donation').
22. See for similar observations several other authors on this subject, such as R. Matesanz, 'Cadaveric organ donation: comparison of legislation in various countries in Europe', Nephr. Dial. Transplant (13) 1998 ('Social reality interferes with the wish to change reality by an act of law. At the very best everything returns to the status quo.') and G. Palea, D. Pegg, 'The ethics of donation: changes are necessary and soon', The Lancet (362) 2003, p. 932 ('... as long as the agreement of relatives is required, an opt-out system would probably have a small overall effect on donation').
23. H.D.C. Roscam Abbing, 'Organ donation; the legal framework', Health Policy (16) 1990, p. 105-115.