Secondary analysis of administrative, routine and research data sources: Lessons from the UK

Health and Social Research in Multiethnic Societies

Volumn , Issue , 2006, Pages 165-195

  Aspinall, Peter J ^a  

^a UNIVERSITY OF KENT   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 34250801380     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9780203969939     Document Type: Chapter

References (83)

1. Abubakar, I. and Kanka, D. (2002) 'Access to invasive procedures can be audited by ethnic group', British Medical Journal, 324: 1454.
2. Airey, C., Bruster, S., Erens, B. et al.(1998) National Surveys of NHS Patients: General Practice 1998, London: National Centre for Social Research.
3. Alexander, Z. (1999 September) The Department of Health: study of Black, Asian and ethnic minority issues, London: Department of Health.
4. Aspinall, P.J. (1995) 'Department of Health's requirement for mandatory collection of data on ethnic group of inpatients', British Medical Journal, 311: 1006-1009.
5. Aspinall, P.J. (1999) 'Ethnic groups and our healthier nation: whither the information base?', Journal of Public Health Medicine, 21(2): 125-132.
6. Aspinall, P.J. (2000a) 'Asking a question about religion in the 2001 British census. A public policy case in favour', Social Policy and Administration, 34(5): 76-92.
7. Aspinall, P.J. (2000b) 'The mandatory collection of data on ethnic group of inpatients: experience of NHS trusts in England in the first reporting years', Public Health, 114: 254-259.
8. Aspinall, P.J. (2000c) 'The new 2001 Census question set on cultural characteristics: is it useful for the monitoring of the health status of people from ethnic groups in Britain?', Ethnicity and Health, 5(1): 33-40.
9. Aspinall, P.J. and Anionwu, E. (2002) 'The role of ethnic monitoring in mainstreaming race equality and the modernization of the NHS: a neglected agenda?', Critical Public Health, 12(1): 1-15.
10. Aspinall, P., Jacobson, B., Klodawski, E. and Polato, G.M. (2003) Missing Record: the case for recording ethnicity at birth and death registration, London: LHO.
11. Aust, R. and Smith, N. (2003) Ethnicity and Drug Use: key findings from the 2001/2002 British Crime Survey. Findings 209.London: Home Office.
12. Aveyard, P. (1998) 'A fresh look at proportional mortality ratios', Public Health, 112: 77-80.
13. Bakshi, N., Ross, A. and Heim, D. (2002) 'Drug and alcohol issues affecting Pakistani, Indian and Chinese young people and their communities: a study in Greater Glasgow', Glasgow: NB Associates & Human Factors Analysts.
14. Bardsley, M., Hamm, J., Lowdell, C. et al.(2000) Developing Health Assessment for Black and Minority Ethnic Groups: analysing routine health information, London: Health of Londoners Project and NHS Executive (London).
15. Bhopal, R.S. (2004) Concepts of Epidemiology, Oxford: Oxford University Press.
16. Bierman, A. and Bubolz, T. (2004) 'Secondary analysis of large survey datasets', in M.B.Max and J. Lynn (eds) Symptom Research: methods and opportunities, Bethesda, MD: National Institutes of Health.
17. CDSC (2003) AIDS/HIV Quarterly Surveillance Tables: cumulative UK data to end September 2003. No. 60: 03/03. November 2003. Health Protection Agency, SCIEH and Institute of Child Health.
18. CDSC (HPA) (2004) Survey of Prevalent HIV Infections Diagnosed (SOPHID). Regional data for 2003, London: CDSC (Health Protection Agency).
19. Chaturvedi, N., McKeigue, P.M. and Marmot, M.G. (1993) 'Resting and ambulatory blood pressure differences in Afro-Caribbeans and Europeans', Hypertension, 22: 90-96.
20. Cooper, P. (2002) Delivering Quality Children's Services: inspection of Children's Services [CI(2002)19], London: Department of Health.
21. Cornish, J. (1993) 'National experiences in the measurement of ethnicity: Australia', in Challenges of Measuring an Ethnic World: Science, Politics and Reality. Proceedings of the Joint Canada-United States Conference on the Measurement of Ethnicity, Washington, DC: US Government Printing Office.
22. Department of Health (1997) The Caldicott Committee. Report on the Review of Patient- Identifiable Information, London: Department of Health.
23. Department of Health (2000) Statistics from the Regional Drug Misuse Databases, Bulletin 2000/13 (June) [and Bulletin 2001/18 (June 2001)].
24. Department of Health (2003a/May) Review of Central Returns: dealing with race information in the ROCR approval process, London: Department of Health.
25. Department of Health (2003b/October) Delivering Race Equality: a framework for action.Mental Health Services, London: Department of Health.
26. Department of Health (2003c/May) NHS Maternity Statistics, England: 2001-02. Bulletin 2003/09, London: Department of Health.
27. Department of Health (2003d) Chlamydia Screening Programme Roll Out. Data Manual, London: Department of Health.
28. Department of Health (2003e/10 July) Select Committee on Health Written Evidence.Memorandum by the Department of Health (MA1), London: Department of Health.
29. Department of Health (2003f/Ocotber) Statistics on Alcohol: England, 2003. Bulletin 2003/20, London: Department of Health.
30. Department of Health (2003g) 'Every patient to get electronic patient record', Press release notice 2003/05/02, London: Department of Health.
31. Department of Health (2004) Statistics on NHS Stop Smoking Services in England, April 2003 to March 2004. Statistical Bulletin 2004/18, London: Department of Health.
32. Department of Health. HES website, Data Quality Indicator Report, 2002/03: Components & Fail Counts: www.dh.gov.uk/assetRoot/04/08/37/68/04083768.xls. Last accessed 28 January 2005. Data relate to records with valid codes (those missing, not stated, or coded to the 1991 Census ethnic classification are counted as invalid).
33. Drife, J. (2003) 'Appendix 33', Memorandum by Professor James Drife, Medical Director, Confidential Enquiry into Maternal Deaths (MS 40). Select Committee on Health.
34. Erens, B., Primatesta, P. and Prior, G. (eds) (2001) Health Survey for England: the health of minority ethnic groups 1999, Vol. 1: Findings. Vol. 2: Methodology & Documentation, London: The Stationery Office.
35. Feder, G., Crook, A.M., Magee, P. et al.(2002) 'Ethnic differences in invasive management of coronary disease: prospective cohort study of patients undergoing angiography', British Medical Journal, 324: 511-516.
36. Fitzgerald, C. (2004/May) 'How good is HES ethnicity coding and where do the problems lie?' (Ethnicity category: coverage report), London: Department of Health (HES).
37. Gill, P.S., Kai, J., Bhopal, R.S. and Wild, S. (in press) 'Health care needs assessment: black and minority ethnic groups', in J. Raftery, A. Stevens and J. Mant (eds), Health Care Needs Assessment: the epidemiologically based needs assessment reviews, 3rd series, Abingdon: Radcliffe Medical Press. Available at: http://hcna.radcliffe-oxford.com/bemgframe.htm (accessed 11 March 2006).
38. Hansell, A. and Aylin, P. (2000) 'Routine data and health impact assessment-a review of epidemiological studies of socio-economic influence on health and evaluation of outcome indicators derived from routine health data for health impact assessment', Report to the Department of Health, London: Imperial College School of Medicine.
39. Haskey, J. (ed.) (2002) 'Population projections by ethnic group: a feasibility study', Studies on Medical and Population Subjects No. 67, London: The Stationery Office.
40. House of Commons Hansard. Written Answers for 3 April 2002 (col. 1050W).
41. House of Commons Hansard. Written Answers for 4 July 2003 (col. 537W).
42. House of Commons. Health Committee. Fourth Report of Session 2002-03. Vol. 1. Report and Minutes. HC 464-I. London: The Stationery Office, 2003 (June).
43. Hunt, I.M., Robinson, J., Bickley, H. et al.(2003) 'Suicides in ethnic minorities within 12 months of contact with mental health services. National clinical survey', British Journal of Psychiatry, 183: 155-160.
44. Karlsen, S. and Nazroo, J.Y. (2004) 'Fear of racism and health', Journal of Epidemiology and Community Health, 58: 1017-1018.
45. Karlsen, S. and Nazroo, J.Y. (2002) 'Relation between racial discrimination, social class, and health among ethnic minority groups', American Journal of Public Health, 92(4): 624-631.
46. Klodawski, E. (2003) Fertility of Ethnic Groups in London. DMAG Briefing 2003/19, London: Greater London Authority.
47. Krieger, N. (2002) 'Geocoding state data and establishing collaborations', in National Committee on Vital and Health Statistics, Department of Health and Human Services, Meeting of: Subcommittee on Populations, Fairfax, VA: CASET Associates.
48. Krieger, N., Waterman, P.D., Chen, J.T. et al.(2003) 'Monitoring socioeconomic inequalities in sexually transmitted infections, tuberculosis, and violence: geocoding and choice of areabased socioeconomic measures-the public health disparities geocoding project (US)', Public Health Reports, 118(3): 240-260.
49. London Health Observatory (2003) Diversity Counts: ethnic health intelligence in London.The story so far, Report, London: London Health Observatory.
50. Lowdell, C., Evandrou, M., Bardsley, M. et al.(2000) Health of Ethnic Minority Elders in London: reporting diversity, London: The Health of Londoners Project.
51. McCormick, A., Fleming, D. and Charlton, J. (1995) Morbidity statistics from general practice.Fourth national study 1991-1992, London: HMSO.
52. McKenzie, K. (2003) 'Racism and health: antiracism is an important health issue', BMJ, 326: 65-66.
53. Macpherson, W. (1999) The Stephen Lawrence Inquiry: report of an inquiry by Sir William Macpherson of Cluny, London: The Stationery Office.
54. Mental Health Act Commission (2001) Ninth Biennial Report 1999-2001, London: The Stationery Office.
55. Mental Health Act Commission (2003) Tenth Biennial Report 2001-2003, London: The Stationery Office.
56. Mitchell, R. (2004) A Review of Race Relations (Amendment) Act Implementation by NHS Organisations within the North Central London Sector-September 2004, London: North Central London Strategic Health Authority.
57. Mohammed, M.A., Cheng, K.K., Rouse, A. and Marshall, T. (2001) 'Bristol, Shipman, and clinical governance: Shewart's forgotten lessons', Lancet, 357(9254): 463-467.
58. National Statistics and Department of Health (2000) Children in Need in England: first results of activity and expenditure as reported by Local Authority Social Services' Children and Families Teams for a survey week in February 2000, London: Department of Health.
59. National Statistics and Department of Health (2002) Children in Need in England: preliminary results of a survey of activity and expenditure as reported by Local Authority Social Services' Children and Families Teams for a survey week in September/October 2001, London: NS and Department of Health.
60. National Statistics and Department of Health (2004) Children in Need in England: results of a survey of activity and expenditure as reported by Local Authority Social Services' Children and Families Teams for a survey week in February 2003, London: NS and Department for Education & Skills.
61. Nazroo, J. (1997) The Health of Britain's Ethnic Minorities, London: Policy Studies Institute.
62. NHS Executive (1994/30 September) Collection of ethnic group data for admitted patients. (Letter EL(94)77), Leeds: NHS Executive.
63. NHS Information Authority (1999) 'NHS Number for Babies', Autumn 1999 Seminars: Questions & Answers. NHS Number Programme (ref. doc. 1999-1A-162), Exeter: NHS Information Authority.
64. NHS Information Authority. Maternity Care Data Dictionary: Data Item Definitions and Category Values within Entity. Version 3.0 (updated 03.09.01). www.nhsia.nhs.uk/mcd/pages/data_dictionary.asp. Last accessed 19.11.03.
65. NIMHE (National Institute for Mental Health in England) (2003a) Engaging and Changing: developing effective policy for the care and treatment of Black and minority ethnic detained patients, Leeds: NIMHE.
66. NIMHE (2003b) Inside Outside. Improving Mental Health Services for Black and Minority Ethnic Communities in England, London: Department of Health.
67. Office for National Statistics (2003) Ethnic Group Statistics. A guide for the collection and classification of ethnicity data, London: ONS.Office of the Deputy Prime Minister. Indices of Deprivation, 2004: www.odpm.gov.uk/stellent/groups/odpm_control/documents/contentservertemplate/odpm_index.hcst?n=4610&l=3.
68. PHLS (2002) GRASP: The Gonococcal Resistance to Antimicrobials Surveillance Programme.Annual Report, Year 2001 Collection, London: PHLS.
69. PHLS (2002) (England, Wales and Northern Ireland), DHSS and PS (Northern Ireland) and the Scottish ISD(D)5 Collaborative Group (ISD, SCIEH and MSSVD). Sexually Transmitted Infections in the UK: new episodes seen at genitourinary medicine clinics, 1991-2001, PHLS, DHSS and PS, and ISD(D)5 Collaborative Group.
70. Raghunathan, T.E. (2004) 'What do we do with missing data? Some options for analysis of incomplete data', Annual Review of Public Health, 25(1): 99-117.
71. Rainford, L. (1997) 2001 Census Testing Programme: report on the ethnic group and religion question test carried out in March 1997, London: Office for National Statistics.
72. Rowe, R.E. and Garcia, J. (2003) 'Social class, ethnicity and attendance for antenatal care in the United Kingdom: a systematic review', Journal of Public Health Medicine 25: 113-119.
73. Shah, R., McNiece, R. and Majeed, A. (2001) 'Socio-demographic differences in general practice consultation rates for psychiatric disorders among patients aged 16-64', Health Statistics Quarterly, 11: 5-10.
74. Simmons, D., Williams, D.R. and Powell, M.J. (1991) 'The Coventry Diabetes Study: prevalence of diabetes and impaired glucose tolerance in Europids and Asians', Quarterly Journal of Medicine, 81: 1021-1030.
75. Simpson, L. (2004) Quantifying Stability and Change in Ethnic Group, Manchester: Cathie Marsh Centre for Census and Survey Research, University of Manchester, 2004: www.iser.essex.ac.uk/seminars/mondays/2004/autumn/papers/simpson.pdf.
76. Spiegelhalter, D.J. (2002) 'Funnel plots for institutional comparison', Quality and Safety in Health Care, 11: 390-391.
77. Stewart, A.L. and Naploes-Springer, A. (2000) 'Health-related quality-of-life assessments in diverse population groups in the United States', Medical Care, 38(9 Suppl.): II 102-124.
78. Stroud, J. (2000 November) Strategic Review of Business Information Needs (RoBIN): Race Equality Review-Final Report, London: Department of Health.
79. Sutton, G.C., Storer, A. and Rowe, K. (2001) 'Cancer screening coverage of south Asian women in Wakefield', Journal of Medical Screening, 8(4): 183-186.
80. UK Parliament Written Answers for 7 Jan. 2004 (pt. 14). Col. 398 w. Ethnic monitoring in 2002-03. [145081]. Ms Melanie Johnson.
81. Unal, B., Critchley, J.A. and Capewell, S. (2003) 'Missing, mediocre, or merely obsolete? An evaluation of UK data sources for coronary heart disease', Journal of Epidemiology and Community Health, 57: 530-535.
82. West, R., McNeill, A. and Raw, M. (2003) Meeting Department of Health Smoking Cessation Targets. Recommendations for Primary Care Trusts, London: Health Development Agency.
83. Yorkshire and Humber Public Health Observatory (June 2005) PBS Diabetes Population Prevalence Model-Phase 2, Briefing Document, York: YHPHO.