Patient evaluation of end-of-life care

Palliative Medicine

Volumn 21, Issue 3, 2007, Pages 243-248

  de Vogel Voogt, Elsbeth ^a   van der Heide, Agnes ^a   van Leeuwen, Anna F ^a   Visser, Adriaan P ^b   van der Rijt, Carin C D ^a   van der Maas, Paul J ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b HELEN DOWLING INSTITUTE   (Netherlands)

Author keywords

Cancer; End of life care; Multidisciplinary; Patients; Problems; Quality

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER PATIENT; CAREGIVER SUPPORT; COLORECTAL CANCER; DEATH; EXPERIENCE; FEMALE; FOLLOW UP; HEALTH CARE ACCESS; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; NETHERLANDS; OVARY CANCER; PATIENT ATTITUDE; PATIENT CARE; PATIENT SATISFACTION; PROSTATE CANCER; QUESTIONNAIRE; TERMINAL CARE;

AGED; CAREGIVERS; CHI-SQUARE DISTRIBUTION; COMMUNICATION; FEMALE; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; NEOPLASMS; NETHERLANDS; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; PROSPECTIVE STUDIES; QUESTIONNAIRES; TERMINAL CARE; TERMINALLY ILL;

EID: 34250758696     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216307077352     Document Type: Article

References (23)

1. Donaldson MS, Field MJ. Measuring quality of care at the end of life. Arch Intern Med 1998; 158: 121-28.
2. Gordijn B, Janssens R. The prevention of euthanasia through palliative care: new developments in The Netherlands. Patient Educ Couns 2000; 41: 35-46.
3. Smeenk FW, de Witte LP, Nooyen IW, Crebolder HF. Effects of transmural care on coordination and continuity of care. Patient Educ Couns 2000; 41: 73-81.
4. Statistics Netherlands [Centraal Bureau voor de Statistiek]. http://www.cbs.nl/nl/publicaties/artikelen/algemeen/webmagazine/ artikelen/2004/1483k.htm.
5. Higginson IJ, Astin P, Dolan S. Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England. Palliat Med 1998; 12: 353-63.
6. Bruera E, Sweeney C, Russell N, Willey JS, Palmer JL. Place of death of Houston area residents with cancer over a two-year period. J Pain Symptom Manage 2003; 26: 637-43.
7. Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004; 291: 88-93.
8. Sulmasy DP, McIlvane JM, Pasley PM, Rahn M. A scale for measuring patient perceptions of the quality of end-of-life care and satisfaction with treatment: the reliability and validity of QUEST. J Pain Symptom Manage 2002; 23: 458-70.
9. Morrison RS, Sin AL, Leipzig RM, Cassel CK, Meier DE. The hard task of improving the quality of care at the end of life. Arch Intern Med 2000; 160: 743-47.
10. Patrick DL, Engelberg RA, Curtis JR. Evaluating the Quality of Dying and Death. J Pain Symptom Manage 2001; 22: 717-26.
11. Teno JM, Casey VA, Welch LC, Edgman-Levitan S. Patient-focused, family-centered end-of-life medical care; views of the guidelines and bereaved family members. J Pain Symptom Manage 2001; 22: 738-51.
12. Sulmasy DP, McIlvane JM. Patients' ratings of quality and satisfaction with care at the end of life. Arch Intern Med 2002; 162: 2098-104.
13. Voogt E, van der Heide A, Rietjens JA, et al. Attitudes of patients with incurable cancer toward medical treatment in the last phase of life. J Clin Oncol 2005; 23: 2012-19.
14. Voogt E, van der Heide A, van Leeuwen AF, et al. Positive and negative affect after diagnosis of advanced cancer. Psycho-Oncology 2005; 14: 262-73.
15. Osse BH, Vernooij-Dassen MJ, Schade E, et al. Problems to discuss with cancer patients in palliative care: a comprehensive approach. Patient Educ Couns 2002; 47: 195-204.
16. Osse BH, Vernooij MJ, Schade E, Grol RP. Towards a new clinical tool for needs assessment in the palliative care of cancer patients: the PNPC instrument. J Pain Symptom Manage 2004; 28: 329-41.
17. Hendriks AA, Vrielink MR, van Es SQ, De Haes HJ, Smets EM. Assessing inpatients' satisfaction with hospital care: should we prefer evaluation or satisfaction ratings? Patient Educ Couns 2004; 55: 142-46.
18. Onwuteaka-Philipsen BD, van der Heide A, Koper D, et al. Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet 2003; 362: 395-99.
19. Teno JM, Fisher ES, Hamel MB, Coppola K, Dawson NV. Medical care inconsistent with patients' treatment goals: association with 1-year Medicare resource use and survival. J Am Geriatr Soc 2002; 50: 496-500.
20. Hagedoorn M, Uijl SG, Van Sonderen E, et al. Structure and reliability of Ware's Patient Satisfaction Questionnaire III: patients' satisfaction with oncological care in the Netherlands. Med Care 2003; 41: 254-63.
21. Staniszewska SH, Henderson L. Patients' evaluations of the quality of care: influencing factors and the importance of engagement. J Adv Nurs 2005; 49: 530-37.
22. Morita T, Hirai K, Sakaguchi Y, et al. Measuring the quality of structure and process in end-of-life care from the bereaved family perspective. J Pain Symptom Manage 2004; 27: 492-501.
23. Smeenk FW, de Witte LP, van Haastregt JC, et al. Transmural care. A new approach in the care for terminal cancer patients: its effects on re-hospitalization and quality of life. Patient Educ Couns 1998; 35: 189-99.