Description of an Australian model for end-of-life care in patients with hematologic malignancies

Oncology Nursing Forum

Volumn 34, Issue 1, 2007, Pages 79-85

  McGrath, Pam D ^a   Holewa, Hamish A ^a  

^a CENTRAL QUEENSLAND UNIVERSITY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; BLOOD DISEASE; FEMALE; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; MODEL; NEEDS ASSESSMENT; NURSING; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; QUALITY CONTROL; TERMINAL CARE;

ADULT; AGED; AUSTRALIA; BENCHMARKING; FEMALE; HEMATOLOGIC NEOPLASMS; HUMANS; MALE; MIDDLE AGED; MODELS, NURSING; NEEDS ASSESSMENT; PALLIATIVE CARE; TERMINAL CARE;

EID: 34250373411     PISSN: 0190535X     EISSN: 15380688     Source Type: Journal    
DOI: 10.1188/07.ONF.79-85     Document Type: Article

References (48)

1. Addington-Hall, J., & Altmann, D. (2000). Which terminally ill cancer patients in the United Kingdom receive care from community specialist palliative care nurses? Journal of Advanced Nursing, 32, 799-806.
2. Andershed, B., & Ternestedt, B.M. (2001). Development of a theoretical framework describing relatives' involvement in palliative care. Journal of Advanced Nursing, 34, 554-562.
3. Andersson-Segesten, K. (1989). The last period of life of the very old. A pilot study evaluating the psychological autopsy method. Scandinavian Journal of Caring Sciences, 3, 177-181.
4. Barbato, M.P. (2005). Caring for the dying patient. Internal Medicine Journal, 35, 636-637.
5. Beach, P. (2004). Palliative care in an acute care setting. Clinical Journal of Oncology Nursing, 8, 202-203.
6. Christakis, N.A., & Iwashyna, T.J. (1998). Attitude and self-reported practice-regarding prognostication in a national sample of internists. Archives of Internal Medicine, 158, 2389-2395.
7. Christakis, N.A., & Lamont, E.B. (2000). Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. BMJ, 320, 469-472.
8. Gaskill, D., Henderson, A., & Fraser, M. (1997). Exploring the everyday world of the patient in isolation. Oncology Nursing Forum, 24, 695-700.
9. Hall, L.E. (1964). Nursing - What is it? Canadian Nurse, 60, 150-154.
10. Harstade, C.W., & Andershed, B. (2004). Good palliative care: How and where?: The patients' opinions. Journal of Hospice and Palliative Nursing, 6, 27-35.
11. Hermansson, A.R., & Ternestedt, B.M. (2000). What do we know about the dying patient? Awareness as a means to improve palliative care. International Journal of Medicine and Law, 19, 335-344.
12. Humphreys, J., & Murray, D. (1994). The national rural health strategy. Australian Journal of Rural Health, 2, 25-31.
13. Hunt, R., & McCaul, K. (1998). Coverage of cancer patients by hospice services, South Australia, 1990 to 1993. Australian and New Zealand Journal of Pubic Health, 22, 45-48.
14. Lamont, E.B., & Christakis, N.A. (2002). Prognostic disclosure to patients with cancer near the end of life. European Journal of Cancer Care, 11, 70-71.
15. Leininger, M. (Ed.). (2001). Culture care diversity and universality: A theory of nursing. Sudbury, MA: Jones and Bartlett.
16. Mackillop, W.J., & Quirt, C.F. (1997). Measuring the accuracy of prognostic judgments in oncology. Journal of Clinical Epidemiology, 50, 21-29.
17. Maddocks, I., Bentley, L., & Sheedy, J. (1994). Quality of life issues in patients dying from hematological diseases. Annals of Academic Medicine, Singapore, 23, 244-248.
18. Mander, T. (1997). Haematology and palliative care: An account of shared care for a patient undergoing bone marrow transplantation for chronic myeloid leukaemia. International Journal of Nursing Practice, 3, 62-66.
19. McGrath, P. (1999a). Accommodation for patients and carers during relocation for treatment for leukaemia: A descriptive profile. Supportive Care in Cancer, 7, 6-10.
20. McGrath, P. (1999b). Experience of relocation for specialist treatment for hematologic malignancies. Cancer Strategy, 1, 157-163.
21. McGrath, P. (1999c). Palliative care for patients with hematological malignancies - If not, why not? Journal of Palliative Care, 15(3), 24-30.
22. McGrath, P. (1999d). Post-traumatic stress and the experience of cancer: A literature review of new directions in rehabilitation in oncology. Journal of Rehabilitation, 65, 17-23.
23. McGrath, P. (2000a). Informed consent to peripheral blood stem cell transplantation. Cancer Strategy, 2, 44-50.
24. McGrath, P. (2000b). Post-treatment support for patients with haematological malignancies: Findings from regional, rural, and remote Queensland. Australian Health Review, 23, 142-150.
25. McGrath, P. (2001a). Caregivers' insights on the dying trajectory in hematology oncology. Cancer Nursing, 24, 413-421.
26. McGrath, P. (2001b). Dying in the curative system: The hematology/oncology dilemma. Part 1. Australian Journal of Holistic Nursing, 8(2), 22-30.
27. McGrath, P. (2001c). Follow-up of patients with haematological malignancies and their families in regional, rural and remote Queensland: The GP's perspective. Supportive Care in Cancer, 9, 199-204.
28. McGrath, P. (2001d). Returning home after specialist treatment for hematological malignancies: An Australian study. Family and Community Health, 24, 36-48.
29. McGrath, P. (2002a). Are we making progress? Not in haematology! Omega, 45, 331-348.
30. McGrath, P. (2002b). Creating a language for "spiritual pain" through research: A beginning. Supportive Care in Cancer, 10, 637-646.
31. McGrath, P. (2002c). Dying in the curative system: The haematology/oncology dilemma: Part 2. Australian Journal of Holistic Nursing, 9, 14-21.
32. McGrath, P. (2002d). End-of-life care for hematological malignancies: The "technological imperative" and palliative care. Journal of Palliative Care, 18, 39-47.
33. McGrath, P. (2002e). Qualitative findings on the experience of end-of-life care for hematological malignancies. American Journal of Hospice and Palliative Care, 19, 103-111.
34. McGrath, P. (2005a, October). New models for understanding end-of-life care in hematology: Functional, evolving, and refractory. Paper presented at the meeting of Advancing Oncology Social Work, The Way Forward, Oncology Social Work Australia, 2nd National Conference, Queensland, Australia.
35. McGrath, P. (2005b, June). An update on the development of a model for end-of-life care in hematology. Paper presented at the meeting of Communication Issues for Health Care Professionals: A Research Update, Leukaemia Foundation, Sydney, Australia.
36. McGrath, P., & Holewa, H. (2006). Missed opportunities: Nursing insights on end-of-life care for haematology patients. International Journal of Nursing Practice, 12, 295-301.
37. McGrath, P., & Joske, D. (2002). Palliative care and haematological malignancy: A case study. Australian Health Review, 25(3), 60-66.
38. McGrath, P., Joske, D., Holewa, H., & Fournier, C. (2005, September). New models for understanding end-of-life care in hematology: Functional, evolving, and refractory. Paper presented at the meeting of Australian Palliative Care Conference, Sydney, Australia.
39. Mount, B.M. (1986). Dealing with our losses. Journal of Clinical Oncology, 4, 1127-1134.
40. Sahlberg-Blom, E., Ternestedt, B.M., & Johansson, J. (1998). The last month of life: Continuity, care site, and place of death. Journal of Palliative Medicine, 12, 287-296.
41. Sahlberg-Blom, E., Ternestedt, B.M., & Johansson, J. (2001). Is good "quality of life" possible at the end of life? An explorative study of the experiences of a group of cancer patients in two different care cultures. Journal of Clinical Nursing, 10, 550-562.
42. Seravalli, E.P. (1988). The dying patient, the physician, and the fear of death. New England Journal of Medicine, 319, 1728-1730.
43. Shapiro, J., Brown, S., Briggs, P., Stanley, R., Griffiths, J., Brodie, G., et al. (1997). Adult acute leukaemia - A retrospective study of 66 consecutive patients. Australian and New Zealand Journal of Medicine, 27, 301-306.
44. Staffelt, A., Brodin, H., Pettersson, S., & Eklof, A. (2001). The final phase in acute myeloid leukaemia (AML): A study of cause of death, place of death, and type of care during the last week of life. Leukemia Research, 25, 673-680.
45. Ternestedt, B.M., Andershed, B., Eriksson, M., & Johansson, I. (2002). A good death: Development of a nursing model of care. Journal of Hospice and Palliative Nursing, 4, 153-160.
46. Van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. Albany, NY: State University of New York Press.
47. Vigano, A., Dorgan, M., Bruera, E., & Suarez-Almazor, M.E. (1999). The relative accuracy of the clinical estimation of the duration of life for patients with end-of-life cancer. Cancer, 86, 170-176.
48. Yabroff, K.R., Mandelblatt, J.S., & Ingham, J. (2004). The quality of medical care at the end-of-life in the USA: Existing barriers and examples of process and outcome measures. Journal of Palliative Medicine, 18, 202-216.